Re: SEEING THE SCARRING DISAPEAR!!!!

2008-02-29 12:17:12

That is wonderful Wendy Im so happy for you and yes I agree that we
forget to nourish the skin. I for one have tried so many things and
wasn't seeing results duh, I wasn't drinking enough water. I don't know
If I'm drinking from the fountain of youth r what but keeping my body
hydrated seems to be doing it. well I also take allergy pills from time
to time coz the last doctor I seen said I had allergies, to what? never
did figure that one out.anywayIm happy to say that most of MY liesons
are healed and am left with a whole lot of scars. I will deffinitely try
out Olay,is expensive though have to get some results right,anyway I
hope and pray and hope that I can at least get 75% of me back. I don't
know maybe wishful thinking.Praying for us all, Have a good day.

SEEING THE SCARRING DISAPEAR!!!!

2008-02-29 06:02:06

I have just (4 days) started washing with Olay Age Defying Body Wash
with Vita Niacin and have seen instant results!!!!! I was with a friend
today and she told me, "WOW .... your arms look great!" She said she
noticed that my scars are fading and almost gone!!!! I have noticed it
after 2 days. It is amazing and also wonderful!!!!!!!! I highly
reccomend trying it! I am still using fenben and get a small occasional
lesion. Also I was suffering with small raised bumps on my upper arms,
back, neck ..... all GONE after 2 days.
I believe it moisturizes and soothes our skin as so many of us are
using harsh products to rid these things off of ourselves. We then
forget to nourish the skin as a whole.
Wendy

Re: [Morgellons] SEEING THE SCARRING DISAPEAR!!!!

2008-02-29 05:16:31

Hi Wendy, Deb here, I too use Olay definity correcting protective lotion found

it worked miracles but at 25.00 for the individual products did not have enough

funds to try the others. So I'm happy to hear what you are proclaiming so I

know what to buy next. Thanks for the info & I will try this next. Deb
Wendy e Tripp <WETRIPP@...

I have just (4 days) started washing with Olay Age Defying Body Wash
with Vita Niacin and have seen instant results!!!!! I was with a friend
today and she told me, "WOW .... your arms look great!" She said she
noticed that my scars are fading and almost gone!!!! I have noticed it
after 2 days. It is amazing and also wonderful!!!!!!!! I highly
reccomend trying it! I am still using fenben and get a small occasional
lesion. Also I was suffering with small raised bumps on my upper arms,
back, neck ..... all GONE after 2 days.
I believe it moisturizes and soothes our skin as so many of us are
using harsh products to rid these things off of ourselves. We then
forget to nourish the skin as a whole.
Wendy

Re:New cases of Morgellons?

2008-02-29 01:21:25

Or maybe just too exhausted--I know it has taken us a year
to feel somewhat back to normal.
Katherine Walker
Producer
Sunset Gower Studios, Bldg 62
323-993-7922, direct
323-993-7921, fax

Re: Question for anyone who might have an answer........

2008-02-28 17:01:08

Paula,
In an extremely high concentration of VO, yes VO, the actual
parasite I found died in 4 days.
The fibers on my pants I sprayed with enxymes 4 times and they died.
My suggestion now that the horse is out of the barn is to up the
chemicals for at least 4-5 days and make sure everyone hoses off
when jumping in and out and showers immediately when done. I would
not let anyone sit in a wet bathing suit just to be safe. Morg's
does not like the sun or ultra violet light, it brings morg's to the
surface. Make sure everyone stays in the sun for awhile. Morg's does
not like clorox, it brings them to the surface of the skin. One
other suggestion, morg's also does not like sea salt. Can you make
the pool a little salty without affecting the ph too much?
That is the limit of my knowledge.
Have Faith,
Cheryl

Re: [Morgellons] Question for anyone who might have an answer........

2008-02-28 10:30:56

I have been invited to hot tub and swim in pools many times since getting Morg. I do not do it ever just in case. We don't know for sure how its spread or why some get it while others don't. Don't panic dear - its unlikely you'll get it. I would avoid swimming with him again. All the best, Barbara
Paula Brock <rhapsodycards@...

Does anyone have a clue, an idea, solid answer or belief about the effects of catching morgellons in a swimming pool? Do you think the chlorine would kill it first? My concern is my nephew who has morgellons was swimming in my sisters (his other aunt, not mom) pool. My sister does not believe my nephew and other sister have morgellons......of course she believes that most everything is in the mind so she allowed him to swim in the pool with no concerns. I'm now concerned about the rest of the family (including myself)......please help with any ideas you may have. I know some of you have done extensive research and I respect your opinion very much!

Thanks,

Paula

Question for anyone who might have an answer........

2008-02-28 05:27:05

Does anyone have a clue, an idea, solid answer or belief about the effects of catching morgellons in a swimming pool? Do you think the chlorine would kill it first? My concern is my nephew who has morgellons was swimming in my sisters (his other aunt, not mom) pool. My sister does not believe my nephew and other sister have morgellons......of course she believes that most everything is in the mind so she allowed him to swim in the pool with no concerns. I'm now concerned about the rest of the family (including myself)......please help with any ideas you may have. I know some of you have done extensive research and I respect your opinion very much!

Thanks,

Paula

Re: [Morgellons] Here's my reply from Kaiser Permanente

2008-02-27 18:45:48

I'm just dropping in for a moment to the list...will try to check back within a day or two...How do you feel about this letter from Kaiser? You could post about it on YouTube a la Michael Moore's suggestion to expose various companies, if you would like...
Wendy e Tripp <WETRIPP@...

I sent an e-mail off to Kaiser Permanente last Friday evening, August
3, 2007. I was asking if I could be included in the CDC/KP Morgellons
study:
Dear Ms. Tripp: Thank you for inquiring. We are currently
negotiating with the CDC to assist them in conducting the first
serious study of Morgellon's Syndrome. We should know in
approximately two weeks whether the study will be conducted at
Kaiser. The study has been designed by the CDC and will include
clinical examinations of approximately 50 persons who are suspected
of having Morgellon's syndrome. It will include skin biopsies,
multiple blood tests, a general medical examination, a dermatology
examination and a neuropsychiatric examination.
One purpose of the study is simply to calculate the prevalence of the
condition in a large population. For that reason, the study has to
be limited to the members of a definable population. If we should be
selected by the CDC, the population would have to be the Kaiser
membership. I suspect that we may not be able to examine every
person within Kaiser who may have the condition, but rather that we
will be doing a random, representative sample of the membership.
This study would be a first step and depending on what is found could
lead to larger studies as follow-up. I appreciate your interest and
willingness to participate and am sorry that we won't be able to
include you in this study. However, we will be happy to keep you
informed of our progress and findings.

Here's my reply from Kaiser Permanente

2008-02-27 16:26:35

I sent an e-mail off to Kaiser Permanente last Friday evening, August
3, 2007. I was asking if I could be included in the CDC/KP Morgellons
study:
Dear Ms. Tripp: Thank you for inquiring. We are currently
negotiating with the CDC to assist them in conducting the first
serious study of Morgellon's Syndrome. We should know in
approximately two weeks whether the study will be conducted at
Kaiser. The study has been designed by the CDC and will include
clinical examinations of approximately 50 persons who are suspected
of having Morgellon's syndrome. It will include skin biopsies,
multiple blood tests, a general medical examination, a dermatology
examination and a neuropsychiatric examination.
One purpose of the study is simply to calculate the prevalence of the
condition in a large population. For that reason, the study has to
be limited to the members of a definable population. If we should be
selected by the CDC, the population would have to be the Kaiser
membership. I suspect that we may not be able to examine every
person within Kaiser who may have the condition, but rather that we
will be doing a random, representative sample of the membership.
This study would be a first step and depending on what is found could
lead to larger studies as follow-up. I appreciate your interest and
willingness to participate and am sorry that we won't be able to
include you in this study. However, we will be happy to keep you
informed of our progress and findings.

Re: White things and fibers/bryozoan and gel

2008-02-27 07:02:30

I'm not lazy, just too many sites to keep track of .... why don't
you post some of these pictures on this site? It would make it so
much easier to follow along. Yes, I am getting tired and that would
really help.
I also have written to the Kaiser Permanente Reasch Group located
here in Oakland, CA. I live about 60 miles south in San Jose and was
asking about the CDC/Kaiser Permanente Study. I e-mailed them Friday
night so I don't expect any type of reply soon .....
Wendy

more about bryozoan

2008-02-27 02:28:06

Some thoughts i put on find- You are right, we have different
insects everywhere. The question is....are the morgellons lesions
similar no matter what part of the world? And if so, the next
question is
why?
Obviously they are performing according to exactly
certain physical, chemical laws. Calcium carbonate is a chemical
formula, with properties which behave in only certain ways.
Bryozoan, although varried, have been identified world wide for
thousands of years, yet can still be in the catagory of bryozoan.
Why? They conform to specific design and
behavior.
My most recent photos(not yet posted) ,a zooid look
alike pulled at the bottom of my facial lesion, suggests, by my
unprofessional opinion, that they are bringing blood into the zooid,
seperating it, making a screen(like a screen window)out of calcite,
putting the dark remainder of the blood(looks like a blood clot)
into the netting in the zooid...and sending it out, where it becomes
a part of the redness, and sometimes blackness of the lesion. If it
drys into an ooze pebble, the pebble can unkink into black
fibers,specks.The selected blood mixes with the calcite and takes on
a bright , almost flouresent pinkish red color. In some zooids i see
many circles or rings of pink to red being made, stacked, and sent
out on their mission thru the top of the zooid(under the callus).
Larva? Vampire
bryozoans?
Now, if insects are attracted to the scent, they
could easily get stuck in this ooze, for it is sticky at body temp,
and quickly dries in air. Keep this in mind, calcium carbonate
can "flip/flop" from calcite to aragonite. ONe is clear, one is
white. If this white stuff is exiting pores due to over production
of bryozoan colonies......it can look white coming out, and spread
out clear on the skin and catch stuff flying by. If stuff is falling
from the environment, calcite clear flakes....it can catch things on
the way down in it. All of this needs to be proved/disproved. I
wrote a member of the international society of bryozoan and asked
for help. Imagine receiving that letter! I will understand if he
laughs! This is a complicated situation, but the players have to
play by the rules....calcium carbonate is an amazing and beautiful
substance but should not be in our bodies. Bryozoan are amazing and
beautiful, and their colonies incredible at the way they specialize
each bryozoan for specific tasks.But...cementing themselves to us
and using the blood?Isnt that against the law?Somebody hire a
lawyer!
The bryozoan seem to make a pool of blood... i have
not seen it with the microscope but have spent hours letting a newly
opened lesion bleed out, and it takes alot of patience and kleenex.
As i said, trying to play tug of war with one was quite shocking
when it pulled back. However, the calcium carbonate they live in
precipatates with baking soda......and eventually errodes their
home. But....the goal would be to kill the colony....because its
making the calcium carbonate, in abundance as any who have opened a
lesion finds out quickly.They are prepared to defend, hide, glide,
slide, and devide quickly! Folks who perform experiements on
colonies, by first putting them to sleep... might be the ones to
have the answer for a quick eviction of the situation(but
safe).
Yes, you bet...i see this as an environmental
affliction, if you think of the lesion as a mound of splinters that
are cemented on a platform, and embedded with hooks,you dont think
of your body as decaying and give it some food, you help it by
removing the splinters, then sitting down to a victory dinner!

HOpe this works

2008-02-26 20:41:24

http://www.flickr.com/photos/tags/morgellons/

White things and fibers/bryozoan and gel

2008-02-26 15:25:34

I have been posting about taking the bryozoan challenge presented by
safrey on morgellons-disease-research.com. From the photos i am
getting, this all makes sense if you learn about the calcium
carbonate that the bryozoan excreates. CaCo3 can form two
things...calcite which is a crystal that can travel in one plane in
opposite directions. It can form translucent fibers, and cement like
ooze with tiny gravel, in my photos you can see the clear ooze with
fibers coming out with crystals parading on the fiber! CaCo3
can also make aragonite, it is white and can form equal distant
angles in two planes. It can form hooks, spikes and triangles,
chisel forms and wavy or zigzag fibers, and pieces like you are
finding, and frilly looking puzzel piece shapes. It can form
conduits or ribbons and they can twine. This is called twinning and
it is exactly what the rim of the lesion looks like in the photos i
have gotten from my face. You have to research this
to see the similarities with bryozoan.Bryozoan live in CaCo3
houses,anchored into a platform the CaCo3 makes and cements itself
to. You can look at examples of calcium carbonate shapes in
caves....but this also makes up the house for many sea forms, like
sea shells. The disturbing question is how this would get in our
skin. I have taped sparklie stuff coming from the sky at night and
it looks just like taping off the clear ooze of a lesion!!!!! I
found one with the orange gel attached to it. The bryozoan
schizoporella cornuta that safrey is guessing this could
be.......has BRIGHT orange and red larva. I also have photos of this
gel with fibers coming out of it on the sticky tape from the
enviorment, and from my lesions. I also have the tiny
white objects coming out in the urine. I think our bodies have
reached a threshold dealing with these bryozoan "factories", putting
out excess CaCo3. ON one study i read, a scientist extracted
bryozoan from their "houses" and left only a few. Skiping the
details of the experiement, one thing he noticed about the
bryozoan.....the empty houses had buds growing in them within two
days. The double celled zooid is like a hurricane lamp shape, and
inside i see the shapes of what could be the muscle(that retracts
the zooid into the house), the gut, tentacles, and some are full of
what looks like reproduction larva. I dont think the doctors would
ever even think of this.....i dont know how safrey did, but, im so
thankful. If it isnt bryozoan it sure is something exactly like it.
Please pray about this and research for yourselves. This might take
things to a new level, God willing. ---

im here at group anybody on can help

2008-02-26 12:05:17

sorry typing left hand

Re: A note on Cheryl's (sparky7of9)

2008-02-26 08:27:50

Zip,
Where do you get Fenben?
The homeopath prescribed homeopathics. I started at low doses
and every month I increased the potentcy. It may take years to
get rid of this. I don't work because I am afraid of spreading it.
My husband is not pleased. I won't take the chance.
This is the first group I interacted with, I was too depressed to
want to talk to anyone and I am on 2 antidepressants.
This feels right. The people here are good stock.
Cheryl

Re: A note on Cheryl's (sparky7of9) Morg treatment post

2008-02-26 01:37:05

I'm with you all who believe that there's something in the digestive
tract. What you see at Lymephotos and a few other places grows in the
digestive tract. But I believe that it's also in the liver, (part of
the digestive tract) too. My liver used to jump and move about like a
baby moving and kicking. (Can men get pregnant?) When I took my home
test it said that I wasn't. (snicker giggle chuckle) Those photos at
Lymephotos.com are floating in the top of the toilet water when people
find them after various meds.
http://www.lymephotos.com/bb/index.html
http://www.lymephotos.com/bg/index.html
I'm appreciative for the Lymephotos pics, but the claims aren't true
there. Salt and C has never cured anybody. Too, I took my samples in
for testing. They weren't Borellia of any kind. Also I tested
negative for Babesia at that time. So Lymephotos should update that
information. Like you say though, the febendazole, albendazole works
good on that stuff. You felt better? Me too. I found that years of
nausea had disappeared for the most part.

A note on Cheryl's (sparky7of9) Morg treatment post

2008-02-25 18:33:58

I do believe that the Morg parasites are in your colon and that they
multiply there. I felt much better after taking the 5-day "horse" dose
of Fenben, which is designed to kill parasites in the colon. I don't
know if that is what the "Master" Homeopath proscribed or if you were
treated with herbs and roots that have similar killing properties. In
any event, the Fenben worked surprisingly well in easing my Morg
symptoms and it's also cheap. ZIP

Re: [Morgellons] New cases of Morgellons?

2008-02-25 07:46:41

Perhaps they were all cured.
zip22045 <zip22045@...

Haven't seen very many new members on here lately. Does that suggest
that the number of people becoming newly infected with Morgellons is
decreasing? ZIP

Re: New cases of Morgellons?

2008-02-25 05:59:07

HOPE SO!

New cases of Morgellons?

2008-02-24 23:38:03

Haven't seen very many new members on here lately. Does that suggest
that the number of people becoming newly infected with Morgellons is
decreasing? ZIP

Re: normal bloodwork

2008-02-24 10:59:35

Yes, during my years as a veterinary technician, when we did a CBC
and found elevated eosinophils it was a sign of either an allergic
reaction or indicative of PARASITES. We would then request a stool
sample from the animal and check for parasite eggs. Heartworm tests
were also done and we would also have the owners check thier pets for
the tape worm segments on thier fur around thier anus, or watch the
stools (as tapeworm eggs are carried in these segments and if not
broken will not show up in a stool exam).
Since our doctors do not believe we Americans could possibly have
parasites, they only look at the allergy connection.
wendy

Re: Needed: Morgellon's sufferers for Online Radio Show

2008-02-24 10:49:23

I, for one, doubt if Jesus ever existed, but it's a nice thought.

Re: [Morgellons] normal bloodwork

2008-02-24 01:47:27

Yes, I went just a few weeks ago, and the same thing-I thought, "how is that possible?", just due to some of the obvious, such as my blood being "thicker", bruising easily, ....

Niels Mayer posted something on here earlier today in regards to this(bloodwork being "normal" and a specialized test), I am going to check into this with my dr..

Lori
sandra white <sanwhite409@...

I went to the Dr. last week for bloodwork and they called me today to tell me that everything looked normal. I was relieved, but I wonder if these things just don't show up in normal physical bloodwork. anyone else with this experience?

Re: issues with Kaiser Permanente attempting to study morgellons

2008-02-23 18:42:55

I agree totally Niels,
But if it stares Kaiser in the face and they conclude that it's real
then maybe it can help raising both issues off the ground.
(Morgellons and Lyme both)
Richy

normal bloodwork

2008-02-23 17:30:41

I went to the Dr. last week for bloodwork and they called me today to tell me that everything looked normal. I was relieved, but I wonder if these things just don't show up in normal physical bloodwork. anyone else with this experience?

issues with Kaiser Permanente attempting to study morgellons

2008-02-23 12:11:18

I posted the following recently to morgellons-watch. It would be useful to get a
response to the issues I raise:
http://morgellonswatch.com/2007/07/23/cdc-federal-business-opportunity-to-study-\
morgellons/#comment-34440
I have strong issues in having Kaiser selected for studying Morgellons. It seems
like it's corrupt on it's face. Kaiser is a company that strongly backs the
IDSA's non-treatment guidelines for Lyme, and is therefore prejudiced against
the existence of Chronic Lyme disease. Such a company cannot possibly have the
open-mind needed to study this disease and get a proper handle on it's etiology.
Even the the first published paper on Morgellons makes a strong case for chronic
Lyme infection found in the majority of Morgellons patients:
more than 300 years ago. The disease is characterized by fiber-like strands
extruding from the skin in conjunction with various dermatologic and
neuropsychiatric symptoms. In this respect, Morgellons disease resembles and may
be confused with delusional parasitosis. The association with Lyme disease and
the apparent response to antibacterial therapy suggest that Morgellons disease
may be linked to an undefined infectious process. Further clinical and molecular
research is needed to unlock the mystery of Morgellons disease
How is a Lyme-denialist organization like Kaiser ( http://lyme.kaiserpapers.info
) going to be able to do a study of Morgellons when it doesn't even take Lyme
disease seriously?
Why is a contract being awarded to a company that appears to be violating
California Health and Safety code as modified by SB772 (
http://info.sen.ca.gov/pub/07-08/bill/sen/sb_0751-0800/sb_772_bill_20070223_intr\
oduced.pdf
) by only offering "IDSA" treatment standards when in fact SB772 defines ILADS
treatment and diagnostic guidelines for Lyme as "medically viable." Kaiser
refuses to acknowledge the validity of ILADS guidelines even though the IDSA
guidelines are under legal challenge (
http://www.the-scientist.com/news/home/49605/ )
After the public sees "Sicko!" and http://lymediseasefilm.com I'm wondering how
much of our anger will bubble up into better congressional oversight of the
total mismanagement of health resources that appears to be happening at the CDC.
Morgellons sufferers are urged to begin a letter-writing campaign to achieve
this needed oversight of the CDC and questionable contract expenditure such as
this Kaiser Morgellons contract. Lyme disease sufferers have used similar means
to fight the corrupt medical organizations that refuse to recognize or treat
the disease. Looks like Morgellons sufferers will need to do the same.
http://lymebusters.proboards39.com/index.cgi?board=rash&action=display&thread=11\
82232750 )
http://en.wikipedia.org/wiki/Tuskegee_Study_of_Untreated_Syphilis_in_the_Negro_M\
ale
where their own labs contradict themselves. I get regular CBC/diff that shows
for exampe 0-1% eosinophils (aka no sign of infection or immune response) but
I got a special hemogram alongside a fancier look at my CD57s and it showed
my EOS at 16.5% (whch is HIGH and sign of infection or allergy).. Ive been
asking infectious disease docs, hematology, etc why there is this discrepancy
since EOS levels is one of the stupid things they look at to determine if youre
sick or not
http://www2.fbo.gov/spg/HHS/CDCP/PGOA/Reference-Number-2007-Morgellons/Modificat\
ion%2001.html
Also, here's an example of the kind of constant wrangling I need to engage in
order to get either Lyme or Morgellons to be taken seriously at Kaiser:
http://info.sen.ca.gov/pub/07-08/bill/sen/sb_0751-0800/sb_772_bill_20070223_intr\
oduced.pdf

Re: [Morgellons] Needed: Morgellon's sufferers for Online Radio Show

2008-02-23 06:30:31

James,

Wow, it has been quite awhile since you have written. I would definately be willing to be a guest on your show. Just provide the details of how, when, where, etc.

Lori
krazycyberfool <hartkingsley@...

My Dear Friends,
I has been a while since I posted here as I have been busy with my
ministry and radio show on NOWLIVE.Com called "What Would Jesus Say
Now?..LIVE!" (aka: "WWJSNL").
As some of you know I, myself, have the disease and I desire to focus
a future broadcast on the topic of "Morgellons" and other odd plagues
and pestulances.
If anyone would be interested in being a call-in guest and telling
their story live on the air please write to me at

Re: Great News Regarding our ever present enemy "MORGELLONSWATCH.COM"

2008-02-23 00:56:34

Hi Dana,
I agree that Smiley has Morgellons and can't admit it for some
reason. But, I don't think with her that I can excuse it for brain
fog or the like. She's very sharp, on the ball neurologically it
seems. She's just in such a state of hatred and envy against Mary
Leitao that her life revolves around it. Any lengths to deny where
the fibers come from, she goes to. It's a self caused problem. She
can change her views though but refuses to.
Richy

Needed: Morgellon's sufferers for Online Radio Show

2008-02-22 20:04:32

My Dear Friends,
I has been a while since I posted here as I have been busy with my
ministry and radio show on NOWLIVE.Com called "What Would Jesus Say
Now?..LIVE!" (aka: "WWJSNL").
As some of you know I, myself, have the disease and I desire to focus
a future broadcast on the topic of "Morgellons" and other odd plagues
and pestulances.
If anyone would be interested in being a call-in guest and telling
their story live on the air please write to me at
krazycyberfool@.... (Potential guests will be contacted by E-
mail in advance).
You can hear the show FREE at www.nowlive.com every Wednesday at 3
p.m. pacific/ 6 eastern and every Sunday at 7 p.m. pacific/ 10
eastern. or for more information you can check out the web-site
www.wwjsnl.com.
BE LOVE & BE LOVED!
J

Re: Fwd: Red Friday

2008-02-22 12:08:01

Yeah,
That's been making the rounds. I got it in my email last year
sometimes.
I want them home, and think that's how to best support them. It's
horrific that we sent them there to die for Halliburton and oil.
I was initially against impeachment proceedings, but the more I think
of it, the better it seems. These jerks in the government should not
be able to get away with killing our kids over there for their
selfish purposes.

Fwd: Red Friday

2008-02-21 22:03:48

Hi everyone!! This is another e-mail sent to me from my family & I thought

I would send this on to all of you in hopes that you would want to participate
in supporting our troops in IRAQ. Your Friend, Deb :)

Re: life with Scott and White

2008-02-21 16:56:57

we are going to be real lucky when we do find that doctor dont lose
hope because this too shall pass.your friend
margie

life with Scott and White

2008-02-21 14:31:32

Well, it's been a long time- Very tired lately- so here's my update-
I have health insurance now- and had really hoped that being able to
afford a physicain would help me sort things out (haha ha ha hahaha)
I made an appt with my PCP for a physical and have had several dental
appts. The Dentist thought something medical was going on and did not
think the swollen glands, sinus probs, and abcesses on face had
anything to do with teeth. Docs first question was "how much stress
are you under?" but is sending me to a derm anyway, and at least ran
more blood tests (hepatitis cultures due to dark urine, CBC looking
for ANA's again, etc...) but was really just scratching her head. And
I'm back on clindamycin which seems to help. I can't swallow anything
solid and vomiting, probably from yet another dental abcess, though I
have had all offending teeth extracted already. The infection seems
to be in the jawbone itself and dentist is sending me for a head CT
type dental X ray to make sure I don't have facial abcesses through
sinuses, or neck, or something like that, I did not quite understand
what he meant because he speaks to me as if I were two rather than
just telling me the name and purpose of procedures. I am still having
some strange things happen that I think are seizures... no Idea how
to broach that subject with a doc who already thinks I am under too
much stress and with delusory Sx. I am REALLY tired. I do not really
know what more to do.
Dana

Re: KAISER AWARD FOR MORGELLONS

2008-02-21 13:25:46

This is VERY interesting ..... I went to the link but it doesn't go
anywhere. Where did you get this information? I live in CA., but I am
not a member of KP. However, if this is true, I could switch my
health provider. I'd do it immediately!
wensy

Re: Great News Regarding our ever present enemy "MORGELLONSWATCH.COM"

2008-02-21 03:35:48

I have done my fair share of badmouthing smileykins and her meth
recovering counterpart, but understanding that they are also
sufferring, and scared (so scared in fact that they must go to great
lenghs to deny their realities publicly) we should perhaps instead
feel pity for them, ignore their blathering, and hope they get the
help they need and go away.
Dana

KAISER AWARD FOR MORGELLONS

2008-02-21 01:45:20

Has enybody become involved with this?
KAISER AWARD FOR MORGELLONS
FBO DAILY ISSUE OF JULY 16, 2007 FBO #2058
SOLICITATION NOTICE
http://www.fbodaily.com/archive/2007/07-July/16-Jul-2007/FBO-
01342706.htm
B -- Investigation of an Unexplained Dermopathy, California

I need help finding an article

2008-02-20 18:56:16

I read an article that listed the four or possibly 5 stages of
Morgellons,I believe it was a fairly recent article, now I cant locate
it, can anyone help and post the link, thanks.

Re: Opportunities for Doctors, Physicians and Nurses

2008-02-20 09:25:58

Thank you Jessica,
Is this is something that a person may have to move to be employed, or
is there possibilities that persons can be employed where they live?
Do you have any experience about these questions.
Or is it based upon what's available at the time?
Richy

Re: Great News Regarding our ever present enemy "MORGELLONSWATCH.COM"

2008-02-20 06:18:04

Thank you Wendy!

Re: "The New OSU CENTER FOR THE STUDY OF "MORGELLONS DISEASE"

2008-02-19 19:13:49

Cheers!

Re: please help me figure this out!

2008-02-19 18:11:07

I remember seeing a diagram about it as I was researching it because
I have a tankful of Ramshorn Snails. (those snails can reproduce all
by themselves .....) The disease is supposed to be self limmiting (in
humans) as I believe that the stage that infects humans dies off as
the host (Humans) are not the desired host the ducks /geese are. Many
parasites act that way ... The specific stage of thier lifecycles
needs a specific host at a VERY specific time. (did I say specific
enough times???? hahahahaha)
For example:
The dog/cat tapeworm sheds segments from the intestinal tract of the
infected animal. These are seen in the stool of the dog/cat or
inching around their anus area. Those segments contain the eggs,
which MUST be eaten by a flea so that the eggs can hatch and live a
life stage in the flea. Then the dog/cat accidently eats the infected
flea (while grooming themselves) and the larval stage from the flea
then infects the dog/cat. The flea is an intermediate host before
infecting the mammal ...dog/cat. That's why it's so important to
control fleas ... especially if you see these 'segments" which look
like pieces of rice.
Also many of us haven't encountered what you have while swimming. So
I don't believe we have this. However anything seems possible today
as we don't know what science has been "playing" and experimenting"
with.
Wendy

Re: [Morgellons] "The New OSU CENTER FOR THE STUDY OF "MORGELLONS DISEASE"

2008-02-19 15:05:34

If they did they would be violating HIPPA violations and could be fined a huge amount or worse. HIPPA, stands for Healthcare information and privacy, portability act-which is a federal law in place to protect our privacy as healthcare consumers. Sometimes it goes a bit too far, but they would be in a huge mess if they were to divulge who we are,

Lori
richymcgreggor <richymcgreggor@...

Here I have some tremendous news that a major Morgellons Organization
has REFUSED to submit to ALL Registerants and Sufferers. They have
even REFUSED to post it anywhere upon their website. There is a
"New OSU CENTER FOR THE STUDY OF "MORGELLONS DISEASE"
http://morgellonsusa.com/files/vision_statement.pdf
Patients can Register there also, and they take direct "Donations"
with a statement for tax purposes with a thank you as well.
Now this has been news for 1 month, and yet the MRF has never wished
for anybody to know it, and yet this is MAJESTIC NEWS!!!
What a magnificent blessing. OUR VERY FIRST CENTER as a matter of
fact, for the study of Morgellons Disease
(Here is the content)
Oklahoma State University Center for Health Sciences
Center for the Investigation of Morgellons Disease
Morgellons is a multi-system disease of unknown etiology
Morgellons disease is discounted by many public health officials and
physicians
Physical and neurological symptoms are often dismissed or ignored
Sufferers are labeled with delusions of parasites or neurotic
excoriations
OSU-CHS physicians/researchers have physical evidence of Morgellons
Disease
Morgellons is not psychiatric in origin
Morgellons is an emergent disease
The Center for the Investigation of Morgellons Disease will
facilitate successful research,
treatment and an eventual cure for Morgellons Disease. The Center has
three central goals:
Research Goals:
Tissue bank and specimen repository at OSU-CHS
Centralized collection site for samples
Cataloging of Morgellons-related specimens
Storage for future studies
Epidemiology of Morgellons Disease
Patient registrations on OSU-server
Formal epidemiological studies; initiated at OSU-CHS
Collaborate with public health officials and other universities
Biomedical research
Microscopic, chemical and spectroscopic analyses
Survey of microbiological populations
Explore possible links with environmental or genetic factors
Identify the cause of Morgellons Disease
Clinical Goals:
Improve the quality of life of Morgellons sufferers
Diagnostic evaluations
Treatment of associated symptoms
Partner with mental health professionals/organizations to participate
in treatment
Offer hope for the future
Reduced number of suicides
Refine the case definition
Increased physician participation/observations
Identify optimal diagnostic markers
Develop optimal treatment protocols
Cure Morgellons Disease
Educational Goals:
Public education about Morgellons Disease
Disseminate future clinical information to the public
Educate public health officials
Disseminate information to city/county, state and CDC officials
Continuing medical education of physicians
Research/treatment seminars
Annual conference for presentation of research and clinical progress

Great News Regarding our ever present enemy "MORGELLONSWATCH.COM"

2008-02-19 08:40:59

Wendy e Tripp <WETRIPP@...

Richey,
Are you being sarcastic and cruel when you are speaking about OSU and Randy Wymore and his group? Now, I don't know any of them personally, or have any stake in stating this, other than to find a cure for this, whoever happens to be able to do this, BUT you seem very ungrateful. Wymore's group may not have all the answers and they may not be moving at the rate of speed that any of us would like, but HELLO??? Randy Wymore is VOLUNTEERING his time and energy into this, unlike a huge portion of the medical community. He has been able to further our cause and is working towards finding an answer, along with others-Maybe you are not being sarcastic??? And maybe I am missing the boat??? But my gosh, be grateful that there are caring and committed individuals working towards an answer. Just a bit of unsolicited advice: Your anger, as evidenced by your sarcasm, is not helping your system to heal one iota, in fact it has a negative effect.
Grateful to those searching for answers,
Lori

Re: Great News Regarding our ever present enemy "MORGELLONSWATCH.COM"

2008-02-18 17:25:15

Richy,
I posted this message back in June on Morgellons Watch. It was posted
on their site for ONE DAY before it was deleted. Many members on this
group believed it was too factual and believable as I do have a
scientific background and knowledge of parasites and labratory work.
Now it's your chance to learn about me. For your information I have
also been in very close communication with Greg from
MorgellonsUSA.com via e-mail as well as telephone conversations. I
see that your just repeating pretty much what you have been posting
here since you started. At first you gave the links, now copying and
pasting the same information.
(I apologize to this group for reposting this but I feel Richy needs
to learn a little about me)
Here is what I sent to MORGELLONSWATCH.COM:
Wendy Says: June 17th, 2007 at 10:48 pm
I have suffered with this for over 3 years now, and it is
definitely a disease, not a delusion. I am an ex veterinary
technician and have dealt with parasites, testing, diagnosis, and
treatment.
When I first started showing signs of this illness I immediately went
on-line to investigate hundreds of parasite listings as to find what
I was feeling and seeing exit through my skin. I could not come up
with any parasite that met any of my symptoms.
This disease is not a laughing matter and for you people to berate
and belittle us is inhumane. I only hope that you or any family
member or friend never comes down with this disease. It is
debilitating, the lesions are real (non-healing for months and
scarring the skin) the chronic fatigue ruins your life, the
fibers are real (they are extremely tiny most appear to be the size
or smaller of a pin head, yet upon magnification show the "ball of
interlaced fibers". Not all are colored.)the intense never ending
itching and crawling sensations will "drive you crazy" (think about
having ants crawling all over your skin, yet nothing is visible).
I have been trained in the veterinary field, performed many
laboratory tests (blood/urine/cultures/stool samples/skin scrapings/x-
rays/surgery/administration of treatments) and I am not a stupid,
uneducated individual. Believe me my life has been altered in so
many ways since coming down with this illness.
I was told by a dermatologist that I was creating the lesions on my
skin as a "means of getting attention". I don't think anyone wishes
to have open, painful, non-healing lesions all over their body.
Having to wear long sleeved shirts and pants in 90+ degree weather is
not my idea of fun!Scars that look like giant vaccination marks
visible on the skin cause embarrassment. This illness has also forced
me to stop dating and seeking out and participating in social
activities. I had to stop going to the YMCA to exercise as my skin
prevented me from using their facilities, as no skin rashes were
allowed on the exercise equipment or in the swimming pool.
Take time to show compassion for those suffering. Take time to
realize that the AIDS epidemic was "dismissed" when it first
became evident that there was an illness infecting people. So many
people lost their lives as no one seemed to care or hear their pleas
for help until thousands came down with the illness and it began
infecting everyone, NOT just homosexual men.
Please remove your negative material from the internet as it is
indeed hurtful, HATEFUL, and untrue. No one is making $$$ on this
except the many "snake-oil-salesmen" trying to cash in on sufferers
professing a cure to an unidentified causative agent. They prey upon
us as we do become desperate for ways to stop this illness. We are
our own researchers, doctors, and pharmacists as we are NOT helped by
the general medical community.
How can doctors be expected to treat us as there is no protocol to
follow? They would be risking their licenses by treating us as there
is no set treatment known. We are stuck in a catch 22 senario: the
CDC tells us to have our doctors treat us, and our doctors do not
know what to do. Raise awareness for us with the time and effort you
use to debunk our suffering. Turn your negativity around and help us
all. Remember, CHILDREN are also suffering from this globally. At
least have some compassion for them.

Great News Regarding our ever present enemy "MORGELLONSWATCH.COM"

2008-02-18 09:56:11

Yessiree,
Morgellons Sufferers have been in constant attack at various blog
spots for quite a few years now, and the most viscious attacks have
occured from our #1 enemy on the web, "MorgellonsWatch.com"
And once again, our very beloved "Randy Wymore" has given to us
another great "masterpiece of defence" yesiree, once again for ALL
Morgellons Sufferers, and once again, here it is for ALL of us to
bask in:
http://www.cherokeechas.com/RWud0607.pdf
Once again, late news delivered over 1 month ago, and in case we
hadn't heard, here it is.
June 19, 2007
A position statement from Randy S. Wymore on the topic of Morgellons
Disease
and other Morgellons-related issues:
Some excerpts he speaks of a "Conference" in the Bay Area at the
beginning of the year.
7. This conference was attended by physicians and biomedical
scientists from
various universities, biotechnology companies and major pharmaceutical
companies. Those scientists and physicians who viewed the
presentation from
the preliminary evidence through to the conclusions made no attempt
to "debunk"
the presentation. They asked the kind of rigorous questions that are
expected
from a highly trained, skeptical and critical audience. Their
reactions tended to
be surprise, shock and puzzlement. Not one single person tried to
convince
his/her colleagues, or me, that I was mistaken in the conclusion that
Morgellons
Disease is real physical pathology of unknown cause.
8. Amateur debunkers carry no weight in academia and have no
relevance in the
discussion of Morgellons Disease in the scientific and medical
community. Since
the clinicians (both D.O. and M.D.) and scientists at the conference
I mentioned
above did not debunk a formal presentation on the topic of Morgellons
Disease,
why would an amateur think that they could? An amateurish debunking
approach is often nothing more than a type argumentative arrogance. A
person,
or persons, manages to attract an audience that will participate in
the argument
and it gives the debunker a sense of power. What goes on at debunking
sites is
most definitely NOT scientific debate and critical inquiry. Critical
scientific debate
occurs at conferences (regional, national or international), during
seminars and
during the editorial review when scientific manuscripts are
submitter. If an
amateur debunker (unless the debunker is paid for the debunking
services, in
which case she/he would be a professional debunker) feels that they
can
compete in the professional scientific arena, let them submit an
abstract to a
conference or a manuscript to a scientific journal (a legitimate,
peer-reviewed
scientific journal). The results would be laughable; probably not to
the debunker,
but the reality of the world is that none of the mainstream journals
that are peerreviewed
would publish such a manuscript. The internet is a wonderful forum for
discussions of all sorts and a place where information can be
obtained on just
about any subject imaginable. If a person, or group of people, wish
to spend
time deconstructing the words, comments and images of others, or to
try to
debunk what they view as unreal, then that is certainly their option
in life. I
personally do not find that it would be very personally satisfying.
In my mind,
such efforts are, at the very least, a waste of valuable time and at
the worst,
hurtful. What good can come of it? If the Morgellons community TRULY
was
delusional, then a debunking site would not convince them not to be
delusional.
Truly delusional behavior is a psychological condition; one
cannot "cure" a
delusion by simply arguing against the delusion on an internet site.
The
delusional person will not simply read the words and in near-
miraculous form
say, "Oh my, I really am delusional. Now that I know this I can give
up my
delusion. Thank you for pointing out the obvious and curing me."
Since that will not happen, then what good can come from the
debunking site? It is difficult to
use the word "good" when the main accomplishment of such a site is to
cause
consternation and further emotional pain to an already suffering
population. The
reason is that, while the professional medical and scientific
community will pay
no attention to a debunking website, the same cannot be said for the
friends and
family of the Morgellons sufferer. Words are powerful and when spoken
in an
authoritative fashion those loved ones of a Morgellons sufferer may
well feel that
the debunking arguments clearly prove that Morgellons is not real. In
a formal
debate ANY position can be effectively argued. It is possible to
argue a position
that one does not even believe in during a debate. It is all about
skill with words,
the ability argue in a logical and convincing fashion and a personal
talent for
thinking fast on one's feet. When debates are judged in high-school
and
college/university settings, the winner is not the contestant that
bases his/her
argument on truth, reality or the socially accepted constructs; it is
the person who
can argue their point the most effectively. Most debunkers are quite
good at this.
That is why true scientific debate is not carried out using the same
judging
standards as a competitive debate. Generally, scientists try to
understand the
world around them. Scientific "debate" is all about experimental
design,
methods, materials, quality and reproducibility of data and
conclusions. And that
type of debate can only occur between scientific peers.
(This was Posted about in the other Thread)
9. Recently, OSU-CHS has established a Center for the Investigation of
Morgellons Disease and the OSU Foundation has established a Morgellons
Research, Education and Treatment Fund for individuals wishing to
make taxdeductible
donations to help in trying to sort out this mystery that is called
Morgellons Disease.

Re: [Morgellons] Speaking out against dogfighting in the NFL,

2008-02-18 08:56:14

There are a lot of sickos in this world, lenght some people would go for pleasure

, personally i couldn't careless about this stupid quarterback.

Go Colts

ock <rhapsodycards@...

Maybe we could work something out with the Humane Society in order to have a petition signed. It's amazing how everyone will jump at the chance to save the animals of the world; including me :)

In all seriousness....if anyone would like to sign this petition....please do so. And, as I live in Atlanta and hope to never lay my eyes on Michael Vick again...does anyone have room for him in their state?
Note: forwarded message attached.

"The New OSU CENTER FOR THE STUDY OF "MORGELLONS DISEASE"

2008-02-18 05:58:39

Here I have some tremendous news that a major Morgellons Organization
has REFUSED to submit to ALL Registerants and Sufferers. They have
even REFUSED to post it anywhere upon their website. There is a
"New OSU CENTER FOR THE STUDY OF "MORGELLONS DISEASE"
http://morgellonsusa.com/files/vision_statement.pdf
Patients can Register there also, and they take direct "Donations"
with a statement for tax purposes with a thank you as well.
Now this has been news for 1 month, and yet the MRF has never wished
for anybody to know it, and yet this is MAJESTIC NEWS!!!
What a magnificent blessing. OUR VERY FIRST CENTER as a matter of
fact, for the study of Morgellons Disease
(Here is the content)
Oklahoma State University Center for Health Sciences
Center for the Investigation of Morgellons Disease
Morgellons is a multi-system disease of unknown etiology
Morgellons disease is discounted by many public health officials and
physicians
Physical and neurological symptoms are often dismissed or ignored
Sufferers are labeled with delusions of parasites or neurotic
excoriations
OSU-CHS physicians/researchers have physical evidence of Morgellons
Disease
Morgellons is not psychiatric in origin
Morgellons is an emergent disease
The Center for the Investigation of Morgellons Disease will
facilitate successful research,
treatment and an eventual cure for Morgellons Disease. The Center has
three central goals:
Research Goals:
Tissue bank and specimen repository at OSU-CHS
Centralized collection site for samples
Cataloging of Morgellons-related specimens
Storage for future studies
Epidemiology of Morgellons Disease
Patient registrations on OSU-server
Formal epidemiological studies; initiated at OSU-CHS
Collaborate with public health officials and other universities
Biomedical research
Microscopic, chemical and spectroscopic analyses
Survey of microbiological populations
Explore possible links with environmental or genetic factors
Identify the cause of Morgellons Disease
Clinical Goals:
Improve the quality of life of Morgellons sufferers
Diagnostic evaluations
Treatment of associated symptoms
Partner with mental health professionals/organizations to participate
in treatment
Offer hope for the future
Reduced number of suicides
Refine the case definition
Increased physician participation/observations
Identify optimal diagnostic markers
Develop optimal treatment protocols
Cure Morgellons Disease
Educational Goals:
Public education about Morgellons Disease
Disseminate future clinical information to the public
Educate public health officials
Disseminate information to city/county, state and CDC officials
Continuing medical education of physicians
Research/treatment seminars
Annual conference for presentation of research and clinical progress

Re: The Truth of the MRF and the NMO

2008-02-18 01:08:05

What are these "truth's of the past"? There must be a reason that
these people have been banned by Lymebusters. These people then have
had to form their own forum. I'd imagine that this forum would then
be composed of people that are harboring bad feelings as "outcasts"
and could be very well biased in their beliefs, with an agenda
against those that have banished them.
Why do you continue to keep bringing up this subject here? We have
discussed it and I thought you agreed that we can not force people to
sign petitions or to be proactive. There are so many people on these
groups that hide in the shadows and read what's posted here. These
people more than likely know others that could and get the word out
about that petition.
You also seem to believe that this has been the only petition that
has been presented to the Morgellons community to be presented to
Congress! There have been others. Just because it was presented or
endorsed by the New Morgellons Order doesn't give them the right to
force it upon others.
I believe you are trying to incite negative feelings here and
discredit to The Morgellons Research Foundation. Get over it and move
on. Take the time you waste here bad-mouthing others and be proactive
YOURSELF.
P.S. Do you really know about all the "truths of the past"????? I
think not. Or you may be afraid to face some real morally correct
issues.
Wendy

The Truth of the MRF and the NMO

2008-02-17 11:24:43

Well, this is really unfortunate that the truth's of the past are
beginning to come out now every since people were banned at
Lymebusters. People are showing the cover up that's been happening
all of this last year.
http://thefiberdisease.proboards78.com/index.cgi?board=general
The thread of "Mary Balks at the Petition" is still going,
http://thefiberdisease.proboards78.com/index.cgi?
board=general&action=display&thread=1184440459
And now here's this thread, "The Truth of the MRF and the NMO"
http://thefiberdisease.proboards78.com/index.cgi?
board=general&action=display&thread=1184440459
Now Chas Holman has begun a thread declaring his latest experiences:
http://thefiberdisease.proboards78.com/index.cgi?
board=general&action=display&thread=1184902699
And others have joined in and have experienced the same sad type of
conduct aimed at themselves also.
It's too bad that the MRF and Lymebusters has engaged in such
unrightouss acts of dis-charity. It looks like it's beginning to
backfire on them.
Richy

Re: [Morgellons] Re:Department of Pediatrics - UT Health Science Center at San Antonio

2008-02-17 11:24:14

Your right! Thats what my mother has, its called Meniere's Disease.

Thanks Linda! I appreciate your help!! Your friend, Deb
LINDALU <lindalu1000@...

en.wikipedia.org/wiki/Benign_paroxysmal_positional_vertigo
I believe this is what your mother has. I had this
last year when symptoms were really bad.
Linda
Linda

Re: MORE bioengineering

2008-02-17 08:40:10

you need to copy and paste the first and second line there as many
links don't go through on here!
wendy

Re: [Morgellons] MORE bioengineering

2008-02-17 02:44:32

hello wendy, link did not work for me, intreresting!

eleni
Wendy e Tripp <WETRIPP@...

We will never know how much bioengineering is being undertaken behind
closed doors .... seems like our world is turning into a "Jurasic Park"
and then some!!! It's mind-blowing ........... Look out Mother
Nature .... we're taking over!
Wendy
http://www.forbes.com/2007/07/03/bp-genomics-energy-biz-sci-cx-
mh_0703green_bp.html?partner=biotech_newsletter

Re:Hanging out inside the lesion....many crystals

2008-02-16 14:03:02

Nancy,
We have compared notes before on MDR. I have also had
the ZIZ-ZAG--on my chin also. It looked almost like a
couple of M's side by side. Even my friend in
Florida, who I was visiting when this distinct little
pattern came out was baffled. Originally mine were
more circle and semi-cicle. But, as time went on,
there were many distinct V's.
I have also been working away at mine and am convinced
that slowly attacking each and every one until it is
gone is the only way. I believe everywhere there is
still a white area or raised area is just a pocket of
these things. I have seen improvement and no longer
see the white tracks/burrows/ whatever all across my
chin, but there are still pockets/ colonies. Generally
these have started some sort of small opening or sore
somewhere along "the path" and the sore seems to be
the way they are released from under the skin. I read
somewhere on here about the 4 or 5 dots together-- I
have seen that. Usually mine heal with only 2 small
dots side by side as the last remnant. I have been
alternating with DSP,silver, and Lamisil for the most
part and find that I get LOTS of small white things
that come out of the open areas using these. It takes
a while, but eventually the white stuff finally stips
and it heals.
I need to email the person wh has the friend with a
silver generator. I have also used the silver and it
seems to help, but has gotten too expensive...... I
put a dropper full of silver alng the outer edge of my
lower gum before bed as my sores are all in the chin
area now-- hoping to get the silver as close to them
as possible. (I also apply it directly). I have also
swished with peroxide. I had been wiping my face with
dilluted peroxice, but it was just messing it up so
bad. I am working to get what is "sores" now healed
and then attack the colonies one at a time.
But, yea, every so often I will read your posts and
have one of those OMG moments when you have just
described another aspect of my sores..........not to
mention you should be a writer!
Linda
Linda

MORE bioengineering

2008-02-16 10:57:00

We will never know how much bioengineering is being undertaken behind
closed doors .... seems like our world is turning into a "Jurasic Park"
and then some!!! It's mind-blowing ........... Look out Mother
Nature .... we're taking over!
Wendy
http://www.forbes.com/2007/07/03/bp-genomics-energy-biz-sci-cx-
mh_0703green_bp.html?partner=biotech_newsletter

Re:Department of Pediatrics - UT Health Science Center at San Antonio

2008-02-16 06:26:04

en.wikipedia.org/wiki/Benign_paroxysmal_positional_vertigo
I believe this is what your mother has. I had this
last year when symptoms were really bad.
Linda
Linda

Re: [Morgellons] Hanging out inside the lesion....many crystals

2008-02-15 16:10:30

ny friend who lives next to me also owns the health food store below us and she gave me the zapper,my first parasite cleans, and her own home made silver. very strong. well I was just drinking it for a while and dabbing it on my lesions. but not too long ago I decided to give my face a real good scrub with it and you know what happened? no word of a lie I scrubbed my wrinkles right off my face!!! I couldnt belive it... also I was told the reason I could not open my mouth very far anymore was because the radiation I was given for throat cancer had created scar tissue in my jaw.. well as I cleaned my face all of a suddn the corners of my mouth came free!! I can now open my mouth almost all the way!! this also uncovered some critters that didnt want to be revealed and they made a mess of my neew found face but I have them almost all cleaned up now . just wanted to share that anybody else have a si8milar experiance?
daisybaleen <daisybaleen@...

Soon i will get the pics up, and you will see the inside of the
white "bean", as i call the white things inside the lesion. The ooze
that comes out of them is full of liquid that forms solid like
crystals. I have written about it on morgellons-disease-research.com
in detail(hanging out inside the lesion under the main catagory of
morgellons theories and speculations, screen
name "chester").
Basically the clear ooze can form squares, cubes, gravel
like crystals, delicate glass like fibers with tiny assortments of
crystal shapes on them lengthwise, triangles,and fibers that are
tightly spiraled. The colors of the lesions, red to pink,to amber,
to white...are all contributing their special parts to the total
lesion and how it behaves. This all is combining to form an agenda,
predictable and similar in all the morgellons lesions.I think our
bodies are reaching a threshold and so this is becoming apparent
that our bodies cannot get rid of this without help. So many folks
are reporting what helps. I have stayed with soda, silver and
aloe.
This bizarre lesion seems to be able to move due to some
of the laws of physics concerning crystals that are recorded on the
net......... and include the ability to reflect and to pivot. I have
healed chin lesions that have left a zig-zag trough across my lower
chin. It may be that these are bryozoan colonies doing what they do
(excrete calcium carbonate
milky white and frilly coral- like pieces), in a place we would
never imagine...our skin! Or, this is more than that.....but
behaving in a similar fashion.Time will tell, but in the mean time
im continueing to follow the "bryozoan challenge" presented by
safrey on the MDR site, and it has helped me greatly to understand
the parts and pieces i am seeing with the microscope. May God help
us all to understand the truth about this, and help hasten the end
of any and all problems related to it....--- In

Re: I'm new / Introduction

2008-02-15 15:56:20

--- "
myself, but you put your finger on what I experience so much. I
practically go into panic mode before seeing a doctor. Delusions is
what they name my medical condition right now without one doctor
ever looking at my skin. My work place has some people worried about
possible infection from me, so I have to go convince the doctor to
make some comments regarding this matter. I can only imagine his
annoyance. But this time if he doesn't at least check the lessions,
my work place will send me to their doctor with the intent ppurpose
of educating himself to this disease and making an evaluation based
onwhat he has read and what he sees on me. I don't think anyone can
tell at this point if we are contagious. I hope I don't have to
leave work as this has kept structure and sanity in my life.
The emotions are the most dificult. I feel so angry at my doctors
and at other times I can understand how delusional would be the
obvious diagnosis given to the bazarre symptoms and stories we come
to see them with. My family makes me feel guilty for not just
getting over whatever it is that makes me do this for attention.
The clergy think its demons. The councillor thinks I've got
unresolved childhood issues. Work people are more sympathetic but
are afraid for themselves so I am in conflict about whether I am
endangering others. Without the communities, We are basically alone.
But we're not, There are thousands of us. And no matter how bizzare
your experience sounds, here many will relate.
SHIRLEY
BETSY WROTE

Hanging out inside the lesion....many crystals

2008-02-15 14:38:56

Soon i will get the pics up, and you will see the inside of the
white "bean", as i call the white things inside the lesion. The ooze
that comes out of them is full of liquid that forms solid like
crystals. I have written about it on morgellons-disease-research.com
in detail(hanging out inside the lesion under the main catagory of
morgellons theories and speculations, screen
name "chester").
Basically the clear ooze can form squares, cubes, gravel
like crystals, delicate glass like fibers with tiny assortments of
crystal shapes on them lengthwise, triangles,and fibers that are
tightly spiraled. The colors of the lesions, red to pink,to amber,
to white...are all contributing their special parts to the total
lesion and how it behaves. This all is combining to form an agenda,
predictable and similar in all the morgellons lesions.I think our
bodies are reaching a threshold and so this is becoming apparent
that our bodies cannot get rid of this without help. So many folks
are reporting what helps. I have stayed with soda, silver and
aloe.
This bizarre lesion seems to be able to move due to some
of the laws of physics concerning crystals that are recorded on the
net......... and include the ability to reflect and to pivot. I have
healed chin lesions that have left a zig-zag trough across my lower
chin. It may be that these are bryozoan colonies doing what they do
(excrete calcium carbonate
milky white and frilly coral- like pieces), in a place we would
never imagine...our skin! Or, this is more than that.....but
behaving in a similar fashion.Time will tell, but in the mean time
im continueing to follow the "bryozoan challenge" presented by
safrey on the MDR site, and it has helped me greatly to understand
the parts and pieces i am seeing with the microscope. May God help
us all to understand the truth about this, and help hasten the end
of any and all problems related to it....--- In

zappers?

2008-02-15 06:45:47

has anyone used or had success with zappers and parisite cleanse. I am
doing both right now the zapper is one that has electrodes that are
placed on either side of neck just below the ears at pulse points
.regards eleni

Re: Department of Pediatrics - UT Health Science Center at San Antonio

2008-02-15 00:15:20

I really don't think that the CDC gives a crap about us... I agree
with whoever make the comment, "that the only way to get them to act
is to light a fire under them." I would only add that it should be a
Big Fire... Maybe the only way to fix it is to fire the whole lot
and hire some people that do care... ZIP

Re: Making it through Morgellons, There is Life Left

2008-02-14 12:11:46

I've also uses Natures Miracle with some success, which is also an
enzyme-based cleaning product for removing odor from carpets. It was
brought to my attention by a similar long post which also claimed it
was a cure. As it turned out, it really wasn't effective at all in
killing the Morg but it probably was effective in generating sales
for the product. The only things that I have found that personally
work for me are Fenben and Nutra Silver and I have no connection
what so ever with either... ZIP
PS There have been similar posts about Alfalfa supplements that
also didn't work. Go figure!

Department of Pediatrics - UT Health Science Center at San Antonio

2008-02-14 03:43:24

OK so the bookmark did not work, so let me try sending the link.

Dr. Jeffery Meffert has an explanation for everything involving

Morgellon's. I'm not sure how to feel about his opinion but it's what

he says @ the very end of the video about someone here @ uthsc

is in charge of the Morgellons research, possibly with CDC I didn't

understand but if its true then maybe I can locate this person or Dr.

& question him about the CDC Task Force, maybe lite a fire under

his ass so to speak. Anyway I could be wrong about the whole thing

because I have been all over the place surfing the net for anything

that can help us with our cause but I'm getting tired. Deb

P.S. I'm feeling better but my mother was in the hospital for 2 days

she was released yesterday. She was diagnosed with crystals in

her ears causing Vertigo also she has a bladder infection. My boyfriend

has recently had a full blown seizure & has been showing signs of

having another one. That is just a brief summary but I will say I am

terrified because everyone is becoming ill all around me & my gut

says it's all connected to Morgellons. Haven't heard from own Dr. but

as you can see my plate is full but will try to contact him this week.

BTW here's the link hope it works...http://www.pediatrics.uthscsa.edu/cme.asp

I'm new / Introduction

2008-02-13 22:23:04

Hi Everyone,
I've been lurking for about a month, mainly because I'm so new to
this that I didn't even know the questions to ask. This is the
second round for me of trying to find a Dr. who would believe me.
After 2 years I convinced a Rheumatologist that I do have
Fibromyalgia. That was 11 years ago. I had to give up my Nursing
career and I grieved for years. I had lost myself. Who was I now?
God got me through
that.
Morgellons broke out on my legs about 7 months ago and I
didn't pay too much attention to it at first but when they wouldn't
heal and started rapidly spreading on my arms I got scared and
started looking for answers. I couldn't find anything but my
computer guru Daughter found it very quickly.
The first thing I did was ask my primary Dr to find a
dermatologist who would see me quickly. They didn't have anything
for 3 or 4 months. In my terrified state I went to see my eye Dr.
and told him my tale of the mysterious disease that could take my
sight and he fathfully checked my eyes every week.
for months. The first time I saw him, for this, I described how I
couldn't
find a dermatologist. He got me in to see one two days later.Thus
began the abuse as I went to one after another, being told that I'm
just digging at myself and to find something to keep my hands busy.
One told me I had hives and told my primary that I had DOP. This
is now on my medical records.
I had had it and was ready to give up on Dr's but was encouraged
to continue so I saw another Dr. who threw my chart on the desk and
left slamming the door. His nurse refered me to the
dermatologist "upstairs". By then I was really cautious, so said
nothing to him except that I had a rash that nobody could diagnose.
He turned out to be a wonderful person and is treating me for
Nodular Eczema. He is very interested in the Morgellons news on
research and he says we will watch it together while he tries to
limit my pain. He has tried many salves and of course, they haven't
helped.
Sorry about the long letter but I had to vent.
I am so thankful that I have found all of you and now maybe I can
at lease find a way to keep these lesions at bay.
Is it possible to get rid of the lesions once they are there? My
left forearm is almost solid lesions but for some reason it seems to
be less active and I see less Critters. Only the Puff Balls
continue to appear but my arm still feels like it is being burned
all the time. One day the lesions will all be closed and the next
they are all open. Is this what I can expect.
How do you all handle the emotional problems that come with this
Monster?
I welcome email from anyone who wants to talk to me. I live in
East Central Florida.
Hugs to all,
Betsy Curry

Re: [Morgellons] Fwd: daughter ill

2008-02-13 20:58:17

My prayers are with you and your daughter dear. May The Lord bring healing and protection. All the best, Barbara
Lori Ferguson <creativelor@...

I belong to both groups and did not want to have to type this whole story again-but wanted to share and ask for prayers, as I am not sure who belongs to which group-
thanks,
Lori
Note: forwarded message attached.

Re: [Morgellons] Mary Leitao Balked at the CDC Petition

2008-02-13 17:57:30

I feel rather strongly M Leitao has done more to harm us then assist. All the best, Barbara
Richy McGreggor <richymcgreggor@...

Well it looks like somebody posted about Mary Leitao,

Mary didn't support a CDC Petition so there's a thread about it. It says that she's hurting the cause.

http://thefiberdisease.proboards78.com/index.cgi?board=general&action=display&thread=1184440459

Here's the board: http://thefiberdisease.proboards78.com/index.cgi?board=general

Rich

Re: [Morgellons] Ok I think im ready now!

2008-02-13 04:55:20

Welcome dragonfly, these groups ease the isolation we all feel because of morg.. After 5 years with this affliction I still think at times I must be dreaming this just can't be real. Its real and knowing you aren't alone is huge for all of us. All the best, Barbara
dragonflyzalady2000 <dragonflyzalady2000@...

You know when something really bad is happening and U think "if I just
close my eyes and go to sleep,It wont be happening anymore when I wake
up"? Well I woke up and its still happening!!I joined this group today
after searching for just the right one for me and I think this is it
but Ive never joined a group before so please bare with me as I fumble
around. I have been reading the posts and I dont think ive cried this
much in years. Its all so overwhelming. I have been suffering alone
for a while now , trying to act normal so my family and friends wont
think Im a total nut bar but the symptoms have gotten so bad just
recently that Im close to giving up alltogether. I need to share what
has happened and some of my own ideas about whats going on but I dont
know where to start and I dont want to bore u with my stuff when u all
have stuff of your own, so I started a blog today and got the first
paragraph written. I can tell it will take a while but I think it is
the only way for me. My life is a shambles but I no longer feel alone
and I think if we all work together we will find the solution to this
nightmare. I look forward to getting to know all of you. and thankyou
for being here.

please help me figure this out!

2008-02-13 00:16:01

I have already written this once and [acidentely] erased it.
I will try again...
It seems the closer I get to maybe an answer the harder it is for me to
think at all!
all I can do right now is put down the facts that I have and ask for
your help to put them together .
I live in osoyoos briatish columbia canada. It is a border town to
oroville washington 5 miles away. we share osoyoos lake. we are at the
end of the sonora desert very hot here and osoyoos lake is the warmest
lake in canada. for years now canadian geese have wintered here instead
of going south . every year our winters get milder and more geese line
our beaches leaving their droppings everywhere. very messy .this is
where it gets too scientific for me to explain so I will just put down
the fact and maybe someone can help put it together with me. every
summer we have outbreak of swimmers itch. fluke parasites inhabit fresh
waster snails, geese eat snails, poop on beach , I am not sure now
sequence of events. If swimmers get parasite from goose poop in water or
snails .please look at wikipedia swimmers itch , also biologyonline.org
that site has very iunteresting info about parasites that take over
snails nervous systems as well as other creatures.We have a very iffy
water supply nobody likes to drink the water here. I belive I got sick
from a contaminated water supply. also think black mold might be
connected. Im sorry this is so disjointed ,I hope I dont sound too
crazy thank you for any help you can give.

Making it through Morgellons, There is Life Left

2008-02-12 22:15:38

Greetings to all of you who suffer from Morgellons Disease. My heart
goes out to you.
I thought that I had the disease for 2 years to find out that I got
it sometime after I was born in 1953. My father was in WWII. He had
psoriasis with a hitch-hiker of Morgellons. My mother has it also.
My brothers would not admit to it if they were dying from it.
The Army so kindly sent my father home with cortisone cream and that
was it to his treatment. He never had great symptoms, but, my
mother, I remember her scratching her arms and legs for years when I
was a child and teenager.
One of the first products that I tried was Kleen-Free and now I use
Superzyme. A most effective product.
The Superzyme causes the hairs hidden under the camoflage they put
on my body to come to the surface and the hairs on my head that they
have taken over it makes them fall out.
I use to have plenty of ghost movement, which, by the way, is the
first stage that you cannot see, but, it is there. I put a little
peroxide on the critters and it makes them die in their tracks and
turn white. Now, I use the Superzyme which is much more gentle and
it seems to eradicate them.
I use the Superzyme on my hair to wash it, or I leave it on all
night. I use it to clean my lesions. It helps to dislove the lesion
that is being built. If I feel like I am being bit, I immediately
apply the Superzyme and wipe with TP (toilet paper) and inspect for
what was trying to enter my skin. I used Superzyme and TP everyday.
If you have a lesion on you that has healed, you are still infected.
If you have the type of Morgellons that I have, which is four holes
or one center hole and many holes around it, or 5 that look like a
dice marking....that is the base of the lesion. The critter builds
from the edge around and up. If you leave a bandaide on, it will try
to cover it also.
If there are scars on my skin I can be sure that there is some
action going on under it. Everything must go. Once the scar and the
holes are rubbed away with the Superzyme, it is gone forever.
I have studied my Morgellons in detail. They get in my fingernails.
I have seen actual holes with black dots. They were under my nails.
That is how I spread them over my body quicker. They got in my cat
food, my gum, just everything. I threw everything away.
One thing they hate is the Sunlamp. I put a fiber under the sunlamp
that you could only see with a 14x magnifier and it was wiggling all
over the place inside a ziplock bag and 30 seconds of sumlamp and
one end could barely move.
I have used everything from kerosene (which works but the hospital
put me in the nut house for 9 days...said I was hurting myself. I
would have lit it if I wanted to hurt myself. Kerosene was suggested
to me from a 1930's doctors book for scabies. I mixed it with olive
oil. The black dots that had burrowed themselves into my arms and
chest lifted right off. This, of course, was before I knew about
Superzyme.) to clorox to Mayo. Now, I have a lawsuit going because I
don't have Hospitalization and it cost me 11,000 dollars for 9 days.
One thing I can tell you is that where there is a lesion there are
underlying markings of the holes in different designs. The holes
contain white things and they have to go.
I am covered with designs. I have them under their camo in the
corner of my eyes. The bridge of my nose was a solid sheet of
granules that took 2 months to rub away with Superzyme. I have
cotton puffs coming out of my skin. The Superzyme on TP with a
little water rubbed over any area that is puffy will eventually shed
crystals, puff balls or something. I have taken one half inch off my
face cheeks by rubbing with TP and Superzyme over and over and over.
I have also passed some sort of black fluke about 4 months ago and
something dead 2 weeks ago. I am taking caprylic acid, wormwood
combination and anything I can find with wormwood powder in it.
I can give you links if you want them. I am also treating with a
certified homeopath. With Phyllis' help I am actually getting better.
She is a God send. She said the parasites would slowly die off. They
have. It does not have the power it once had. It took over my
nervous system a year ago and I could not feel my arms or my head. I
was bedridden for 3 months. If I tried to scratch at a lesion a
black cloud appeared it as they tried to stop me from destroying the
lesion. It was a nightmare.
It gets a little messy, but, you learn to tell which ones are coming
out of the skin...they pop out and are hard and dry.
Clothes washing is a chore. I use apple cider vinegar, oxyclean
powder, borax, baking soda and I only wash about 4-5 items at a time.
Half clothes and half water. I use a tape roll on my clothes before
washing and expose the bad ones to the sunlamp. Exposing every room
to a sunlamp and Superzyme should help keep down re-infection.
Especially the furniture.
I could go on and on, but, I welcome your emails and will answer
what I can. My days and nights are mixed up. Some nights I spend all
night in the mirror rubbing. Now, I will be using Superzyme and my
sunlamp. I ripped up all my carpets and the one that is left I am
covering with plastic nailed down.
I am trying to find someone in genetics to help me.
God Bless You All
Cheryl
www.superzyme.com (owner of the site-great guy--absolutely wonderful
product and best price....I checked them ALL out!)
P.S. If you see any typos let me know. I have a lesion by my left
eye and it is hard to see. The pain is unreal.
Disclaimer: I am in no way giving medical advice. I am only telling
what I used on myself and what it did for me. Always seek the advice
of your family physician for medical problems. CG

Mayo Clinic, etc.

2008-02-12 13:23:32

http://www.mayoclinic.com/health/morgellons-disease/SN00043
(Sorry, font keeps starting out big...)
The Mayo Clinic offers a web page on Morgellons that might be useful to bring to a physician, etc.
Just did a web search. I have been unable to find nothing, zero, that states anything more than the CDC is forming a team. Bush was able to start a war in months. Why would it take a year to form a team? The CDC has been incompetent in its dissemination of information. Also, its hotline does not request specific information from callers..There appears to be a conflict between what they say that they wish to accomplish (thoroughly investigate) and the kind of information that they are seeking from callers (nothing specific)...something is amiss...
So do you think that the bug thing is internal and external? Has anyone noticed a sulfide intolerance?
I

CDC, Randy's Report, and Board of Health

2008-02-12 09:01:42

Hi, Everybody,

(Sorry if this font is too big!) Re: CDC...Has anyone seen any actual physical evidence that they are doing anything? Why would they not keep the public informed with up-to-date info? Is there anything in writing which actually states that the investigation has begun? They were getting a team together last year. That should be a 30 day process -- not a 300 day process. And what's with the media blackout?

Next question: Re: Randy Wyman's Report...Does anyone know of a URL? Had trouble downloading.

I think that once a well written report comes out, it might be worthwhile for folks to get a copy of the report to Board of Health in their local communities. (This should be the CDC's job, but there isn't evidence that they have kept the state Dept. of Health abreast of their investigation...Perhaps I am incorrect, but I think that it should be CDC, State Dept. of Public Health, Board of Health...Perhaps the info can instead come from the grassroots...
Finally, I want to say something re: my own health...I have noticed that since starting Prednisone (which I'm told has a million side effects)...I've not only been feeling better re: aches, but...for example..it used to be that when I went to certain places, I felt that invisible bug feeling...Not itchiness, but the actual feeling of actual bugs like ants...Now with Pred that doesn't happen. Wonder why? Maybe not related, but...(only get to sometimes check this email account)

Re: Mary Leitao Balked at the CDC Petition

2008-02-12 02:57:01

There are 2 sides (at least) to everything. I haven't heard Mary's
side yet so I'll wait to judge. Not everything is black and white.
Rita

Re: Fwd: Laugh it's healthy!

2008-02-11 22:36:36

Talking animals? They are funny, but hey everyone, don't really believe
that they are! We are all considered crazy as it is! hahahahahahaha
wendy

Re: Morgellons is an "EMERGENT DISEASE" by Oklahoma State University

2008-02-11 20:31:43

ALL THIS INTERNAL FIGHING IS RIDICULOUS ..... Many know the true
reasons for such a divide between the two major groups and we all
need to get over it and come together (but ego, trust, and bad
feelings will continue, it's human nature, which is too bad) .... I
believe that we all have stated an adequate amount of information to
our government through the media, petitions, and writing campaigns
concerning our condition. There have been so many people go off in
inappropriate ways that can and may have actually caused us all to
look crazy and unbelieveable. Our government is dealing with so many
issues right now (this doesn't mean that I am supporting thier non
actions)the War and now the upcoming election. The changes in the
CDC's definition of our "disease" is encouraging and means that they
are paying attention. Research and cures will not come instantly as
many commonly "known diseases" are still being researched all the
time. Time, the word that all persons suffering from a debilatating
disease never want to hear.
It's a shame that the opportunity to sign a petition is hindered but
who can predict it's effectiveness. You also can not force people to
sign it even if they became aware of it. Many people with this
disease suffer in fear of other's knowing. I told people on this
group about it but how do I know if they even had followed thru.
It was my name that that e-mail had been sent to as I have been
pushing to get the word out. However, I will not just pledge an
alligence to one group or the other. I myself will work with both if
needed. When I first got this disease 3 years ago, I was in close
personal contact with Mary and found her to be a very concerned,
helpful, kind person. She got me started in getting help and also
made it possible for me to go on television here in the San Francisco
Bay Area. I also had the opportunity to be involved in two studies.
The MRF was the only organization at that time as you know.
We should push our cause in a cohessive, intelligent manner. In doing
that we are a more credible group with a voice.
Wendy

Re: Fwd: daughter ill

2008-02-11 12:05:48

-Our prayers are with you! Are you in a town with lots of chemtrail
activity?-- Inhttp://www.youtube.com/watch?

Re: Ok I think im ready now!

2008-02-10 22:47:34

Welcome Dragonfly, pull up a chair and pour out your story. You are
not alone, and we will cry with you. Big hugs, keep the faith, join
the group fight against this.......--- In

Ok I think im ready now!

2008-02-10 16:30:15

You know when something really bad is happening and U think "if I just
close my eyes and go to sleep,It wont be happening anymore when I wake
up"? Well I woke up and its still happening!!I joined this group today
after searching for just the right one for me and I think this is it
but Ive never joined a group before so please bare with me as I fumble
around. I have been reading the posts and I dont think ive cried this
much in years. Its all so overwhelming. I have been suffering alone
for a while now , trying to act normal so my family and friends wont
think Im a total nut bar but the symptoms have gotten so bad just
recently that Im close to giving up alltogether. I need to share what
has happened and some of my own ideas about whats going on but I dont
know where to start and I dont want to bore u with my stuff when u all
have stuff of your own, so I started a blog today and got the first
paragraph written. I can tell it will take a while but I think it is
the only way for me. My life is a shambles but I no longer feel alone
and I think if we all work together we will find the solution to this
nightmare. I look forward to getting to know all of you. and thankyou
for being here.

Mo