Listening to a Seinfeld episode tonight!!!!!

2007-12-31 22:29:27

Elaine is discribing some woman who is acting like someone with Epstein
Barr, mixed with a dash of Lyme Disease. She tells Jerry that this
woman was an actress in the play, "Hair", performing nude in Conneticut
somewhere!!!!!!!
I just got over having mono (Epstien Barr Virus) and a close friend has
just been diagnosed with it as well (with Morgellons)!!!!! What an odd
coincidence ...... rather "spooky" don't you all agree?????
wendy

Morgellons disease

2007-12-31 21:03:16

THANKS-Thank you also for the epsom salt tip, I am going to buy some tomorrow and give it a try

Lori
Wendy e Tripp <WETRIPP@...

YOU DID GREAT!
wendy

Morgellons disease

2007-12-31 10:37:29

I noticed that after I wrote this-at least it's some progress-thanks for keeping us informed

Take care,

Lori
"Niels P. Mayer" <NielsMayer@...

I got the same letter. (see attachment)
The change is a good thing. It means the link puts up eight articles on
Morgellons, of which at least two support the non-DOP point of view, one is a
newsarticle about the CDC launch of investigation, and the rest are DOP.
Actually, there's a new one I haven't seen yet from a psychology magazine...
don't know if it's DOP-oriented.

Date: Mon, 28 May 2007 01:25:56 -0700
From: "Niels P. Mayer" <NielsMayer@...
To: GARDinfo@..., webmaster@...

Morgellons disease

2007-12-31 07:27:12

I got the same letter. (see attachment)
The change is a good thing. It means the link puts up eight articles on
Morgellons, of which at least two support the non-DOP point of view, one is a
newsarticle about the CDC launch of investigation, and the rest are DOP.
Actually, there's a new one I haven't seen yet from a psychology magazine...
don't know if it's DOP-oriented.

Morgellons disease

2007-12-30 17:21:12

YOU DID GREAT!
wendy

Morgellons disease

2007-12-30 12:51:27

Note: forwarded message attached.
I received this response from the NIH, in response to
the letter I sent-the one thing I am unclear about is
what she stated in the closing re:changing the search
from pubmed to Morgellons-can someone enlighten me-is
this a good thing? Or does it mean anything at all?
Lori

New question

2007-12-30 05:24:08

HI all, it's been awhile since i've posted,. but i am always reading and taking
advice from
everyone's great tips. I'm still suffering, but i notice it comes and goes
through 'stages' with
the biggest 'outbreak' or issues around my monthly mestrual period. Just to
update you all
I'm a 32 year old otherwise healthy woman in California and I've had Morgellons
for about a
year now.. anyway the worst thing I have issues with is my hair. Which used to
be thick and
curly and now is thinner, brittle, etc.
ANyway I had a question - i've noticed something really strange that I think is
connected to
Morgs. I wasn't sure at first, but now I am because yesterday I actually sneezed
this out of my
nose!
I began noticing these round 'discs'- the only way I can describe them is clear
sequin looking
things, if you look close they have hair and/or gelly type crap on them- you can
pick them
up, hold them, they have the consistency/thickness of a sequin. perfectly round.
i thought it
was from a sweater in my washer or something- i noticed them in my wood dresser
/clothes,
and in laundry. also on ME, and in my bathroom. Well yest erday I sneezed and
sure enough,
one was on the white piece of paper in front of me on my desk at work!
Any one heard of this at all? AM i nuts?NOT DELUSIONAL ofcourse, cause i know
this crap is
real!
Thanks and God Bless to all,
BN

Re: New question

2007-12-30 03:37:07

Yeah, alot of jelly-looking things coming out of my body as well ....
jelly-looking globules on hair shafts too. Our the Morgellons
scientists examining these "things" or are they just focusing on the
fibers? You are not crazy in describing these jelly-looking things.
wendy

medications and Kaiser

2007-12-29 23:08:12

Hi

I am new to this group but my sister (who has Kaiser) and morgellons needs help. She has seen Dr. Karjoo in Santa Ana who I found from the Jeff Rense radio program. He is convinced that this is not a parasite and my sister found what she said looks like a worm that she dug out of her face. Do you have any suggestions on a doctor in California that treats this and how does she get Keiser to send her to see him/her? Her legs are swollen up, she has lost teeth and the dentist said he has never seen anything like this. Her vitiman D is way below normal and her face is all swollen up. She has no energy and can't even work and Kaiser acts as if she is nuts they said she has dermatitis's. Do you think this is contagious? Any suggestions or help would be appreciated as she is becoming suicidal.

Thank you,

LeeAnn in Southern CA

Re: A question

2007-12-29 10:54:57

I would not take your son to see your mom. My son is showing symptoms,
and he is a strong healthy boy. I would not take him. I would shower
before touching him after seeing your mom. I would take a lot of
precautions for his sake. all of he peple with morg, well many i have
talked to anyway, have some other health issue that weakened them
first, I think. If it is an autoimmune disease, you may need to
consider that he already has morg but does not yet have lesions. Many
seem to have the other aspects of this syndrome without lesions.
Dana

Re: sticky stuff

2007-12-29 03:38:26

I have exaclty the same thing. The only things I have found that help
are slowly getting it off and out, which means letting the lesions
open and removing the material. Baking soda will bring a lot out, but
some of it has to be taken out with tweezers and curved nail
scissors.
Never squeeze. Gently scrape at any hard stuff. If you feel something
hard with tweezers, grasp and pull it out. Put enzymes on the areas
too. Lips and scalp are hardest. I have that filmy thick scabby stuff
on lips. It's like a dried film only when you peel it up, it's
connected by the tiny stalagmite white things that grow into the
skin. Some of them have grown very deep. I rub the cut edge of a
fresh garlic clove across them, soften them with vaseline, and gently
scrape any film away, and remove any white deposits that seem close
to surface. Sometimes you have to break the skin to get at them.
Lorimin on the lips a few times daily seems to help too. Taking
enzymes internally helps dissolve it from the inside out. Bitotene
mouthwash has enzymes and you can rinse the mouth and apply to inside
of lips, where you wouldn't want to put other stuff maybe. If it is
open, baking soda seems to work really well, but will definitely
cause a lot of swelling and the sore to open further. It has to open
for the gunk to come out, but you might not want to do it if you have
plans to see anyone the next day. I hate that I have to open the
sores to get them cleaned out and to heal, but this is what doctors
do with abcesses. I just do it slowly as it seems to need to be done.
If a sore comes up, I clean it out and remove as much as I can with
the above techniques.
Dana

Re: anothere article presented by SAFREY

2007-12-29 03:21:30

NICOLE- YES!!!!
You have done a good job accurately describing the scarier aspects of
this movement I feel and see but have been afraid to try to describe
in too much depth. It's nuts. It's as if this flat tough scabby layer
had a string attatched to the underside of the middle and when I try
to peel it off, it's like some one responded by pulling the string
and the flat part sinks down, even disappears deep underneath the
skin. Sometimes the string seems to go straight down at 90 degrees
from the skin's surface, but often it goes sideways into the skin at
a lesser angle, And sometimes it seems to slide sideways from the
edge of the lesion, the 'string' attatched to one edge rather than
the middle. It tries to escape!!!! I have seen the flat things
literally slide away under the skin AND RESURFACE through the skin.
Unbroken skin next to the lesions suddenly had this scabby flat thing
COME UP THROUGH. And even if the scabby thing is protruding from the
lesion to the point it is bulging and feels as though I could scrape
it easily off, it will still often sink in if I don't get it like a
bandaid, fast and all at once.
It only EVER heals if I get ALL of this material out AND what ever is
underneath, which varies. Sometimes its a sac, or capsule type thing,
sometimes it's a pocket of abcess and granules or splinters of hard
stuff, often with fiberballs or individual fibers, sometimes it is a
long thin flat 'streamer' or ribbon shaped protrusion made of the
same material as the flat scabby thing on top.
There are almost always worm shaped things in there too. And when it
is gone, it feels empty- like nothing is there anymore- no pain,
irritation, or hard stuff can be felt/from in the sore. It will then
be soft and flat, ooze for a few days, and heal. Sometimes that
plasticky layer is not near the surface or at the surface, it makes
sores with white 'sprouts or beans' (for lack of a better word)
growing through inflamed tissues, and it eventually deepens A Lot,
and then I'll hit something hard. UNDER A CLOSED SCAB, IN THE WOUND,
where it should be soft, is a hard, plastic feeling layer. You can't
treat these without cutting, or nicking, this layer. I cut the
surface of this part just barely with a curved pair of sharp nail
scissors that come to a fine point. Applying baking soda to this cut
usually dissolves a lot of this peice, but it will still slide away
and retract. It scares me because I know that whatever this is has
either A. grown in it's own channels all through the skin, muscles,
organs etc... or it is using the lymph and or blood vessels. My best
advantage for getting these buggers out is to wait fr the scab to
really bulge and then go after it mercilessly with my scissors, which
I use as tweezers, not actually to cut with, except for the tiny nick
I make in the tough under layer. You know, if it were just skin,
these scissors should easily cut through it, but they do not. I
really have to wrestle to make just a tiny, tiny snip. Ok- I did it.
I was trying not to say anything that would make me look like a self
mutilator ar anything, and I really am not at all. This is very
minor, gentle, cleaning of an infected lesion. These things are NOT
me. They are numb. I can not feel them. When they are removed, I can
feel the skin under them and releif that the offending object is gone.
Thank you Nicole, for reaffirming my beleif in my own senses. I know
this is happening to me, but to hear another describe in minute
detail exactly what I experience is the most definitive proof I have
that this IS real. This IS happening. I could not possibly know, nor
you know, what the subtle details could be like for one another. How
could we describe the same thing if we did not have the same thing
occuring in our bodies? It is so nuts that I question myself all the
time, if I really have what everyone else has, if I am not just crazy.
I know that I am not only because of this group.
Dana

Re: [Morgellons] A question

2007-12-28 19:21:34

No one knows for sure-but somehow more and more people
seem to be coming down with it. I would be careful
and err on the side of caution.

Re: [Morgellons] Misinformation regarding 'morgellons' on NIH rare diseases website.

2007-12-28 18:59:03

:-)

Re: Bubbles

2007-12-28 06:15:51

This article, called Alien emerging.....Is great microscopic pictures

A question

2007-12-28 05:22:24

Is this disease contagious or communicable? I think my mother has it
and I want to go see her but I have a very sick little boy who needs
medical attention all the time. I'm afraid he will get it because he
is so weak. Any thoughts or preventions?
Thank you

Re: Bimectin for horses

2007-12-27 15:27:49

Many people have taken Ivermectin ..... As I recall not too many found
relief, Good Luck!
wendy

Bimectin for horses

2007-12-27 12:33:20

Hi all,
Wish me luck just took my first dose today.
Denise, FL

sticky stuff

2007-12-27 04:36:45

Hi all,
ok, I don't mean to be too graphic here-but I am
wondering if others have had similar experiences. To
start, my lower lip hurts so bad, and it seems like
the lesions are never going to heal there. When I
have tried to remove the "cocoon" it or the organism
just moves to the left or right and creates another
one-similarly happening on the side of my
face-ugh-anyhow, here is the graphic part, it seems
like when I am messing around with it with the
tweezers there is a center that once removed bleeds
and bleeds, but as I try to remove the part around the
center, first the center moves and there is a new
center, like circles connected to circles, connected
to circles. Not only that but the blood is sticky and
"stringy", sometimes it is like a long strand of a
stick string with a little "blob" at one end-so
sometimes it's by itself, and when I run it under
water to try and get it off the tweezers I have to
pull it off sometimes, as it doesn't just rinse off.
Also sometimes the blobs are very large and it's like
this mass of stingy sticky blood (sorry for the
description, but the only way I can really describe
it, is that it is like a buger-like when someone
sneezes and they need a tissue yesterday)-I hope I am
not the only one whom this happens too, and I probably
shouldn't be so aggressive with it - I am just so
frustrated-ok it this has never happened to anyone-it
maybe because I am so aggressive with it-This would
not be the first time I have heard "wow, I've never
come across anything like that before". That seems to
be a theme in my life, no matter the subject-so it
wouldn't hurt my feelings.
Ok, also, you know I just wonder if I leave it alone
if it will go away on my lips, as it has been over a
year-I know when I have left it alone before I get a
VERY THICK layer of that scab like thing, that seems
to build upon itself, and then if the edge starts to
peel and I peel it off, which most comes off
comfortable, at the very edge it is attached much
deeper and then the whole thing starts all over again.
I just wondered if anyone else has experienced
anything similar-and if I offended anyone with the
graphics, I apologize.

Re: [Morgellons] sticky stuff

2007-12-27 04:33:25

I have everything you described, and would be willing to bet that just about
everyone else does as well..
I believe Dana posted something concerning stealth viruses. One of the signs of
an active infection by a stealth virus is blood which clots very quickly or is
extremely viscous, (like snot, as you were saying.......LOL!). Is that correct,
Dana, or am I getting this mixed up........(everything else in my life is mixed
up, so it wouldn't suprise me!).
Sent from my BlackBerry® wireless handheld

Re: [Morgellons] anothere article presented by SAFREY

2007-12-27 02:55:40

After looking at these pictures and reading the accompanying article, I feel
confident this is NOT what I have attached and growing under my lesions. Dana,
you hit the nail on the head when you made the comment about them being sea
dwelling creatures. If they were to be surviving under our skin, they would
have had to somehow have become Anaerobic. How did that happen? I'm sure they
have a means of processing oxygen from the sea water.........or should I have
read farther? It just doesn't feel right to me. Similar maybe, but not exactly
right.
With that being said, however, let me state that I am open to almost anything at
this point.......with all the absolutely unbelievable shit I've seen come out of
my body, I really WOULD be CRAZY if I wasn't open.......
In regards to your comments, Dana, about the give mentality that something
associated with this damn disease possesses, you have described my experience to
a "T". I have seen both the parasitic organism which resembles a flake of dry
skin AND something else-which is either dark brown or black, (and at first
glance was thought to be a scab covering a new lesion)-suddenly move under the
surrounding skin if an attempt is made to grap the edge with tweezers. You can
literally see the entire organism flatten out and then suck itself down,
creating a concavity or depression, which is an attempt to make itself more
difficult to lift off!!! I should mention it WORKS too! Once that happens, I
just usually give up, because I know from experience I am going to have to
practically use a scalpel to get under the edge of it at that point.......and
then when and if I am finally able to free one or two sides of the organism, the
opposing edges slip UNDER the skin which was up to that point FLUSH with the
covering of the lesion. Yep, in just a couple of seconds, it will suck itself
under the other side and move AWAY from whatever side I was originally trying to
lift up on. I can then watch it as it moves under my skin.......there will be a
large lump which moves, and it will leave a red Striation behind it as it moves
along. If it was one of the black or dark colored ones, I can sometimes see the
color and even the borders of it through the thin layer of skin which it is
moving beneath!!!! I have also had unbroken skin which will suddenly become
extremely painful, and then a large depression will form under that spot. The
depression will not only be wide, but suprisingly deep as well. These actually
frighten me more than the preceding organisms, only because it is as though they
simply sink into the skin........and they are gone. I never see any striations
or lumps......the skin will look flat, healthy and unbroken one second, then
intense pain and a huge depression that will take a few days to level out again.
What I want to know is........what the F\@& is it, and where the HELL does it
go??!?
Anyone, anyone?
Sent from my BlackBerry® wireless handheld

Re: Bryozoan Challenge

2007-12-26 14:24:16

I am going to have to really look into this. I did read the articles
posted. I can see how Safrey and others could guess at similarities
from there, but it's not enough for me. I really would have to do
some serious reading to see if I can accept this as a legitimate
possibility. I did not see any mention of this animal parasitizing
anything in the articles I have read, but will keep looking. From
what I saw, these are colonies of microscopic organisms that live in
the sea, not within a host body. These organisms may be visible to
the naked eye as a colony, but I'd think the tiny structures compared
to morg would not be, tentacles, hooks etc... I really just need more
info. How large is this animal (one) alone? Has it been known to
parasitize warm blooded creatures? Has it been known to parasitize
ANY creatures in water temp similar to body temp? Can it actually
live within a host body? Why would it live within a host body when
it's food source is readily available in it's own environ? What would
cause it to need to adapt such a relationship with humans? What would
this look like in a human host, because I can tell you now that
looking at the microscopic attribues and saying I see this in my
lesions with my eyes does not make a lot of sense to me. I am
intrigued by the possibility, enough to look further anyway, but it's
too early to jump, for me.
Now, on the other hand-
Here is what I see of interest, that has caused me to feel I need to
look further:
Many with scopes have mentioned a 'jellyfish' like organism.
It can act/react as one organism, even though it's a colony, behaves
more like one organism, with specialized subspecies and jobs, etc,
and i know that whatever is in my body has given me the impression it
is capable of reacting to danger, and acting like one organism in
it's defenses. Especially the ability of the colony to react and move
away from stimuli (the skin flakes have done this on many occasions,
slid away under the skin)
The sticky or jelly matrix it produces sounds like it could be
familiar.
Really- I just don't know enough about it yet to have any good guess,
but you can bet your buttons I'm going to find out enough to make a
good guess. If anyone can help me find more articles that might
answer some of the questions I have, that would be great, as time is
limited since I have been back at work.
Dana

Bubbles

2007-12-26 13:41:04

Just found this, remind you of talking about bubbles coming off skin
in the bath tub? Top right animation on this
site:http://ebiomedia.com/gall/micronat/bryozoan.html

anothere article presented by SAFREY

2007-12-25 22:20:46

http://www.reefkeeping.com/issues/2003-10/rs/index.php

Bryozoan Challenge

2007-12-25 18:14:07

I have been posting on the site, morgellons-disease-research, the
same reports i have put here, called "hanging out inside the
lesion", describing the behavior of the lesion. On the other site, i
am using the name of my beloved dog Chester, who got me on this
strange mysterious path learning about the mystery skin disease. I
feel honored that someone actually took my post and used it to
compare to the behavior of the bryozoan.....which nerver in my
wildest dreams would i have thought or known about. Safrey has done
extensive work trying to connect the dots, and is asking for others
to aid in this challenge. Here is his post from morgellons-disease-
research...............
The Bryozoan Challange
by SAFREY
If you have not read the outstanding work done by Cliff Mickelson
regarding his personal observations of the morgellons infection then
do so now, it can be found at
http://morgellonsgroup.proboards23.com/index.cgi?
board=articles&action=display&thread=1152243797
If you have read it then re-read it. Pay close attention to his
observations of the callus and the object he refers to as
having "horns".
Then read Chesters observations, also outstanding work, of the same
thing which you can find here:
http://www.morgellons-disease-research.com/Morgellons-Message-
Board/index.php?topic=1576.msg7695#msg7695
and here:
http://www.morgellons-disease-research.com/Morgellons-Message-
Board/index.php?board=3.0
Now compare their observations with the description of a typical
Bryozoan that you can find here:
http://earthlife.net/inverts/bryozoa.html
You will find that if you pay close attention to detail, both
Chester and Cliff are describing some of the exact characteristics
of a Bryozoan.
Specifically decribed by one or both are the zooids, the zooecium,
the mat-like colony, the calcified colonial wall, the lophophore,
the orifice, the operculum, and the tentacles. Many of the
characteristics of these objects have been accurately described.
These references provide only a small amount of the factual evidence
that is available to conclude with reasonable accuracy that the
presense of Bryozoan colonies within the human body is responsible
for the symptoms of morgellons.
If after studying these references you are still not willing to
consider this as being the posible origin of morgellons than I have
no reason to continue.
If this has gotten your attention then let me say that in addition
to what you've already seen I can accuratly account for many more
symptoms and characteristics of morgellons by referencing facts
associated with the Bryozoans, specifically a small group of them
known as burrowing bryozoans.
This Hypothesis can explain the fibers, including the color
variations, the chemical composition, the flourescence, and the
reports of movement. Also explained are the callus(in its entirty
and in detail), the biting and crawling sensations, the reported
numerous forms of life including the undulating fiber and the rarely
witnessed clawlike object that bites, the orange as well as white
(one of the latest correlations) under ultraviolet, the association
to certain bacterias and fungus or yeast such as candida and
possibly Lyme, the joint pain and most significantly it also
provides an explanation as to the cause of Psuedo Gout and a disease
associated with dizzyness and crystals of calcium carbonate in the
ear, the blue fuzz balls, the dermatitis, the growth pattern of
infection, the various reports of an electrical component
(conductivity, unusual occurances), the various reports of percieved
communication ability, the crystal formation and life forms seen in
the video at silentsuperbug.com, the "brown bodies" (recorded by
Chester), and more.
I am convinced beyon a shadow of a doubt that what I am claiming is
true. There has been no report of Bryozoans parasitizing humans past
or present to back-up this claim but consider this, the little
studied burrowing species of bryozoan burrows into the shells of
crustaceans, feeds, multiplies, builds a colony, and reproduces both
by budding and by eggs, all within the confines of a shell. If it
can do this would it be a stretch of the imagination to conjecture
that it could do the same inside the human body where the salt
content and Ph is virtually the same as their natural environment?
If I have struck your interest and you would like to hear more then
reply here and let me know, it is an overwhelming task for me to put
all this together by myself and I wish to waste no more time in
doing so if it is falling onto deaf ears.
Steve Frey
safrey@...
530-886-0626

Re:Speaking as a new member to our group &amp; Morgellons Diease

2007-12-25 12:15:59

Hi all! Hope everyone is having a great day. I just felt the need to
say a few things. I am still new to the idea that what I have been
suffering with for at least the past 3yrs was Morgellons Diease, &
somewhat new to this group(joined back in Mar'07).For me, being part
of this group has been life saving & a positive force in my life. I
wasn't sure I had Morg. because of all the talk of blue fibers but
yet, I still had all the other symptoms. Part of me didn't want to
believe but then one night when I was trying to clean & remove the
crusted scab from my lesion on my chin, which was so painful, I
literally saw what looked like a black needle shoot out of my chin &
went right in my left hand forefinger knuckle like a dagger or a
syringe. My knuckle immediately swelled up & turned red like a
mosquito/ant bite. I was terrified so I stopped thats when I started
to keep my chin covered with a bandaid pretty much at all time. Then
I started to become even more ill(a few weeks ago remember) and then
it happened a fiber came out of my chin that I didnt even need a
microscope to see it.It was mostly black in color with a hint of blue
that almost seemed florescent. It looked like several threads
intertwined with each other. Then using tweezers I set it on a sheet
of kleenex then covered it with another sheet to mimic the fold of
skin. The kleenex was moving not just slightly, but definite movement
bold movement. I was horrified, I jumped in the shower, crying
scrubbing my body to the point I was almost raw. I was so frightened
still am, of what they are & the feeling of not wanting to be me
because how do you run away from something that is inside you. Thats
the horror of it all that these things are in me. So am I becoming
them or are they becoming me? The reason I say that is because when
they stick out of my skin like a splinter how the skin stretches
almost as if its infused with my skin. I'm not a Doctor or
sciencetist but yet here I am spending my days & nights researching
medical sites/books News articles/archives, Government related
issues/agencies & learning about chemistry envolving DNA Gentics & so
on. I have signed petitions & written letters to CDC & my State Rep.&
have asked my friends/family who believe me, to also sign these
petitions & write letters & they did. I do believe its spreading & I
feel that I might have infected at least two of my friends, my
biggest fear is that of my 12yr old son, sometimes he shows symptoms
but then he seems fine with no symptoms, but if I did infect someone
I would feel so bad but how was I to know. I don't go out much unless
its absolutly necessary because of that reason. As I have stated
before I have not seen a Dr. of any kind but I do have an appt. on
July 3rd with a Dermatologist set up by my Dad (my Dad now believes
in Morgellons he too has been doing alot of research). My Dad has
already spoken to this Dr. on the phone at great lengths about
Morgellons Diease & told him not to waste our time if he was going to
tell me I was Delusional. The appt is still on so I guess he
satisfied my Dad. Anyway, last night I researched all night on how to
lite a fire under CDC's ass(Task Force) & how to get this moving or
at least bring about some type of public awareness. Still not sure
how to proceed, theres so much to research, but I'm trying Wendy &
your right about some things I was hiding. I guess I just needed
proper motivation & you, Neil, Dana, Zip & others through these last
postings did that. So there it is, I think I said all I needed to
say, so thanks for listening & bye for now. Onward through the fog,
Deb : )
P.S sorry for any misspelled words.

Re: movie "Bugs"

2007-12-25 08:00:34

Yep- my sores do that too, Hubby's too. Exactly how you said it, with
one end deeper than the other. I do think I may have infected a
neighbor two years ago, she started to have some similar symptoms and
a few strange 'bites', but we moved away and lost contact before I
knew even the name of what I was dealing with and too soon to know if
she ever got bad. I would feel terribly.
One of my co-workers is really bad, but I think she really, actually
IS using the drugs that causes symptoms that also look like morg. She
has layers of scars and I'd say morg if I did not beleive that she is
using meth. She may also have morg- I don't have any way to know
that, there seems to be some possibility that drug addicts are prone
to develop morg, but I overheard a conversation she and another
coworker had about drugs, so I'm pretty certain about that. I think
my new neighbor may have it, also. I think a lady at the E.R. last
year did, too. That's a lot of people in a small area for a rare
disease.
Dana

movie "Bugs"

2007-12-24 21:41:47

Wow,

that is pretty amazing Nicole-It was kind of funny, not-but about a month ago I was at Starbucks, and the woman working behind the counter, had these familiar looking sores along with scars, all up and down her arms- I finally got the courage up to ask her if she had heard of morgellons, and she said "no", that they were mosquito bites- of course, not knowing her, I left it alone, but I thought, "ok, whatever, I have never seen mosquito bites like that before) Also, I think many people have it and don't know it or don't know a name for it-so I thought if that was what is going on with her, she could look it up on the net..)

I agree this shit is spreading-I work in a hospital, and within that I am in an office with one other co-worker. She has these two sores on her upper arm that she scratches at that bleed, and that never seem to heal-I feel like it's my fault perhaps, and feel really guilty, but at the same time, have no idea what to say-she is aware that there is something wrong with me-my lips have had lesions for over a year that don't heal-or they heal, but get this "film" like scab, that then peels, (or I should say, I peel) off, and there is always one little piece embedded deeper that when I pull it off it bleeds forever, and then my lips are red and swollen...) anyhow, also on the side of my face and forehead, and small ones on my wrist and hand-I am able to cover the ones on my forehead and the side of my face to a large degree-but I feel horrible that she may have gotten this from me-I so hope not-

Lori

Fwd: [finding1cure] outraged

2007-12-24 20:38:41

I belong to both groups, so forwarded my response to both-I got them mixed up-sorry:(
Note: forwarded message attached.

Re: Misinformation regarding 'morgellons' on NIH rare diseases website.

2007-12-24 18:51:35

We're going to have to fight for the fair and equal treatment from
the med community that we deserve. Lets sit down individually or
collectively and come up with some ideas on how to proceed and
decide what's the best thing to do and whom we want to do it to. We
need to stop whining and started acting. Establish us as a group and
make our claims... The more people we get onboard the greater our
impact will be...
Know it's easier said that done and I'm as guilty as everybody else
in letting it slide. . All of us are suffering and finding it
difficult just to get through some days but if we all just do what
we can, I truly believe be can make a difference
Zip

Misinformation regarding 'morgellons' on NIH rare diseases website.

2007-12-24 10:30:40

Regarding 'Morgellons Disease' at
http://rarediseases.info.nih.gov/asp/diseases/diseaseinfo.asp?ID=9805
The Pubmed link on the above URL, performs a completely inappropriate search:
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=PureSearch&db=pubmed&details_t\
erm=%28delusional%5BAll%20Fields%5D%20AND%20%28%28%22parasitic%20diseases%22%5BT\
IAB%5D%20NOT%20Medline%5BSB%5D%29%20OR%20%22parasitic%20diseases%22%5BMeSH%20Ter\
ms%5D%20OR%20parasitosis%5BText%20Word%5D%29%29%20AND%20hasabstract%5Btext%5D
The search prejudges Morgellons as delusional with the following query embedded
in the URL:
(delusional[All Fields]
AND (("parasitic diseases"[TIAB] NOT Medline[SB])
OR "parasitic diseases"[MeSH Terms]
OR parasitosis[Text Word] ))
AND hasabstract[text] )
It is premature, foolish, and completely wrong-headed for a government website
to be presenting misinformation that ultimately leads to patient human rights
violations, as well as discrimination. People are going to their doctors with a
real disease, and based on a significant amount of misinformation and "spin,"
these patients' life-threatening medical issues are being ignored, treatment is
refused, and incredible suffering ensues. Unfortunately, NIH's "rare diseases"
site helps promote this form discrimination by prematurely and prejudicially
assuming that the condition is delusional, despite significant evidence to the
contrary. The CDC, which has been taking reports on this condition for over 10
years, has done nothing, other than claim to have begun a task-force on the
issue -- yet they do not take a position that Morgellons is delusional.
August medical societies, such as the
International Lyme and Associated Diseases Society, recognize this as a real
disease, in distinction from delusional parasitosis:
http://www.ilads.org/morgellons.html . ILADS has recognized that a significant
proportion of Morgellons sufferers also show signs of Lyme Disease, and this is
backed up by Western-blot tests indicating active infection with the Borrelia
spirochete.
Many Lyme-disease experts consider Morgellons to be a co-infection or
complication of Lyme disease -- a real disease, and not a delusion. The fact
that laboratory evidence of disease exists for these sufferers should rule out a
delusional diagnosis. However, the prejudices promoted by your website ensure
that patient complaints will not be taken seriously, and clinical signs of
infection will be missed, simply because doctors are refusing to even run any
tests. After all, why should they, the NIH Pubmed search for Morgellons gives
SEVENTY articles on delusions. Buried in the misinformation are a small handful
of articles suggesting it is a real disease.
Please correct this inaccuracy at once. It is totally inappropriate and illegal
for a federal government organization to be promoting prejudice against
sufferers of a particular medical condition. The misinformation presented on the
NIH website threatens the civil rights of patients and promotes discrimination.
To fix the problem, simply search Pubmed for "Morgellons" and completely
eliminate "delusional parasitosis" from the query:
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=PureSearch&db=pubmed&details_t\
erm=morgellons%5BText%20Word%5D%20AND%20hasabstract%5Btext%5D
Thank you for your consideration,
Niels Mayer.
http://nielsmayer.com
PS: you may be getting more calls and letters on this:
http://lymebusters.proboards39.com/index.cgi?board=rash&action=display&thread=11\
79601876
Genetic and Rare Diseases Information Center. Information specialists can
provide free assistance in obtaining the information you need. The Information
Center is supported by the Office of Rare Diseases in partnership with the
National Human Genome Research Institute, both of the National Institutes of
Health. The Genetic and Rare Diseases Information Center can be reached at
888-205-2311, 888-205-3223 (TTY), or by e-mail GARDinfo@....
Control and Prevention (CDC) Morgellons information and voice mail line at
404-718-1199.
offered on the National Library of Medicine's Web site. Some of these resources
may be duplicated in the list of links below. Click on the link to go to the NLM
Gateway, and search by condition name.
found in the fresh stool of a 27-year-old Japanese woman resident of Shiobara,
150 km north of Tokyo, on 16 November 1998. This is the first record of myiasis
due to Dryomyza. Detection of this maggot (2cm long) by the patient herself was
associated with her longstanding delusion of abdominal parasitosis as a symptom
of chronic schizophrenia. Circumstantial evidence agreed with this being a
genuine case of intestinal myiasis, apparently due to accidental ingestion of
the insect, with no signs that the patient had contrived the report, nor that
the maggot had invaded the stool post-defaecation. This case draws attention to
the likelihood that some personality states are predisposed to noticing and
reporting myiasis, when it occurs. We review other conditions (mental and
physical) that are more prone to myiasis.
living in New York City. The patient sought medical attention with the complaint
of a sensation of 1-year duration of something moving in her mouth. On two
occasions she removed worms from her mouth, once from her lip, once from the
gum. One of the specimens submitted for examination was an adult female
Gongylonema. It is not possible to say whether the infection was acquired in New
York City, or elsewhere, since the patient traveled frequently to Mississippi to
visit relatives. As cases of delusional parasitosis continue to increase,
clinicians and laboratorians alike need to be alert to the possibility that
foreign objects removed from the mouth, or elsewhere, may indeed represent
unusual parasitic infections, and that these objects should be examined before
being discarded.

movie "Bugs"

2007-12-24 05:30:37

Thanks Dana for noticing & for your concern, but let me tell you, I too was worried & scared.My lesion is getting smaller everyday & after using Dr. Neil's sinus rinse, changing my diet & what I drink, better hygiene with mouthwash & brushing teeth more often & last but not least more Vitamins (vitamin C etc.) I believe is the reason for my recovery. I'm still a little weak & fatigue but its getting better.I have been cutting out the carbs & trying not to drink sodas & I have so much to learn but I'm doing it. All the lesions that were in my sinus are almost gone. I felt like they were exiting everywhere through my nose & bowels skin because I could feel them leaving. I don't know if it was the St John Wort I was applying on lesions or if it was the hot tea I drank which also contains St Johns Wort (called Mood Mender) it also helped with my depression which was great! Killed two birds with one stone you know why do we use that term its actually quite violent & mean, here I
go again losing sight of what I was saying anyway you should try the herb tea its quite good if your a hot tea lover, I like it. I wish I could help in regards to your tooth but all I can do is say a prayer which I will. Hey I recently started to try to meditate for the first time in my life. It was rejuvenating to say the least.when I was alone I just lit some candles played soft soothing music in background laid out a blanket crossed my legs Indian style, cleared my mind of all worries & just listened to myself breath in & out. Wow it was great! Do you meditate? oops Gotta Go I'll let you know about silver.bye for now Deb : )
danacantstop <danacantstop@...

Oh yeah! And I almost forgot why I first responded to your post: It
is great to hear you are feeling better! You seem so much more
positive, and frankly, I'm releived, I was worrying about you for a
few days there. Glad you are doing better!
Dana

Re: movie "Bugs"

2007-12-23 20:08:49

Oh yeah! And I almost forgot why I first responded to your post: It
is great to hear you are feeling better! You seem so much more
positive, and frankly, I'm releived, I was worrying about you for a
few days there. Glad you are doing better!
Dana

Re: movie "Bugs"

2007-12-23 18:19:39

Please let me know if the silver doesn't arrive by tuesday, they told
me it would be delivered saturday. I didn't get a tracking number or
anything, just sent it regular usps 3 day mail, but still they should
be able to tell me something if it does not arrive.
And my tooth is so-so, a few days of pennicillin under my belt and it
hurts less, but is healing very slowly and I'm getting yeast back.
eyes are driving me crazy, which always happens with the symptoms I
attribute to fungi, itching and white spots in mouth and throat. No
amount of acidophilus seems to counter the abx and yeast. It seems
like I keep trading one infection for another and cannot rid myself
of both. One of these days I'll have to get the right combo down,
eventually, right?
Dana

movie "Bugs"

2007-12-23 15:06:18

I too feel that this movie is almost mocking Morg suffers but then again I only saw the trailer & not the movie.But what I did see I did not like!

On the subject of " the shit is spreading " ( by the way, I like your choice of words), I too, have noticed Morg symptoms on some friends, neighbors & acquaintances. I don't have the courage to say anything, so I don't, I just listen & observe, because I could be wrong, but its funny how I had the same thought just the other day" its spreading" & then I read your message. Scary!!! Deb

P.S. Hi Dana, In case your wondering I still haven't received the silver, I suspect its due to the holiday weekend. Feeling so much better today, can you tell by all my postings.LOL I'm just happy that the nausea & dizziness stopped, I can finally eat & keep it down, anyway, I can't wait to try the silver. Thanks again for your helpful advice & generosity. By the way, hows your tooth? Hope your feeling better too!!!! D.

danacantstop <danacantstop@...

My new next-door neighbor, too, has morg I think. We have been
friends for a few weeks now, and finally got to talking about it
after I saw scars on her as well. She only has a few small visible
bumps, but told of times she has felt such movement that she bathed
in permethrin and flea dip or something. She said she was afraid she
had permanent neuro damage from doing this. We also talked about the
knotted muscles that feel like there are pockets of fluids or
pressure in them and how we can move them under the skin. They are in
the same places and drain along the same paths. She did not mention
fibers, but clear splinters, like glass, she said. I have given her

Re: movie "Bugs"

2007-12-23 08:24:21

My new next-door neighbor, too, has morg I think. We have been
friends for a few weeks now, and finally got to talking about it
after I saw scars on her as well. She only has a few small visible
bumps, but told of times she has felt such movement that she bathed
in permethrin and flea dip or something. She said she was afraid she
had permanent neuro damage from doing this. We also talked about the
knotted muscles that feel like there are pockets of fluids or
pressure in them and how we can move them under the skin. They are in
the same places and drain along the same paths. She did not mention
fibers, but clear splinters, like glass, she said. I have given her

Re: [Morgellons] decaying teeth

2007-12-22 16:34:48

Sandy,
Just a couple of questions first. Did that tooth have any type of filling in
it, or was it a virgin tooth? Also, do you floss twice a day and brush at least
two minutes twice a day?
Thanks sweetie, and I'm so sorry that this is happening.
Sent from my BlackBerry® wireless handheld

movie "Bugs"

2007-12-22 09:22:02

Guess what? From the review I read it sounds as though the Gulf War Veteran
that infects Ashley Judd's character is.........DELUSIONAL. He passes his
DELUSION of bugs on to her.
This is going to be REALLY helpful to our cause....NOT.
BTW, I had lunch yesterday with my best friend from Dental School. I haven't
seen her for almost fifteen years. We were just finishing lunch when she
absent-mindedly pulled up her pantleg to scratch her leg, and I could not
BELIEVE what I was seeing!!! DARK, ROUND SCARS running all up and down her
leg!! I asked her if they were from sores which would swell as though they were
a spider bite, get pus in the middle, along with a crater type hole. Did they
itch but hurt when you scratched them? Did they bleed profusely? Did they take
a long time to heal, and then sometimes come back in the same spot? Did they
occur all over her body, and come on when she was stressed, lacking sleep and
proper diet? She was AMAZED that I knew so much!!! Then I lifted my pant leg
and showed her my matching scars, and she was open mouthed!! She has been to so
many different doctors, and one Dermatologist had her on antibiotics for over
four months!!! The first, huge lesion on her shin took over a year to
heal.......and she has lines of "Freckles" all over her legs and what I could
see of her arms. She had never even heard of Morgellons, but I showed her three
places on my left hand where I could very éasily find multiple fibers coming
out. She was totally freaked out! When I told her about my trip to the OHSU ER
when my legs and feet swelled up, she gasped and said, "I have NEVER had any
Édema in my entire life until this last year!!! I've woken up three times with
huge ankles and calves, my Podiatrist noticed it and said I needed to find out
what was going on ASAP!!
Is this shit spreading, or what??? Delusional my ASS!!!
Sent from my BlackBerry® wireless handheld

Re: decaying teeth

2007-12-22 06:00:56

Oh yeah, QUITE A FEW OF THOSE. And the holes are white and clean
looking, and Jagged, like you said. At least they begin that way,
obviously after time they decay. I have had so amny that I just have
not been able to keep up with it financially. And I do not know which
started first, If I grind my teeth at night which caused cracking and
holes, or if the decay/infections from the holes caused me to clinch my
jaw and grind. Either way, it created a viscious cycle. I would
recommend a night guard right away if you think you might be clenching
or grinding at night. Also, the mouthwash I found called Biotene seems
to be really good, with enzymes to promote beneficial flora and xylitol
to keep bacteria from adhereing, and no alcohol. I also do listerine at
night just to ensure a good clean for the night. I use peroxide a few
times a week to brush with. The key to oral peroxide is to immediately
brush with baking soda afterwards, because peroxide is really acidic
and can damage teeth itself, I think. I also swish with silver several
times a day. I also use sea salt to swish and gargle with often.
Unfortunately, it's too late for me. Even with all that, brushing and
flossing, I still have to have fillings/crowns/extractions all the
time, and am currently fighting an abcess for the latest break.
Dana

decaying teeth

2007-12-22 04:58:28

does anyone have any ideas on how we can save our teeth. I take care of mine and had no problems, but was eating a salad last night and felt something not right in one of my upper molars.after examining it,I noticed that these BASTARDS had eaten a hole right through

my tooth. I had no warning, no decay,nothing,just a hole in my tooth. it is all jagged and hurts when my tongue touches it. since it is a holiday weekend I will have to see dentist on tues. hope he can save it.anyone else with the same problems? any suugestions would be appreciated. thanks,Sandy.

Re: movie "Bugs"

2007-12-22 02:45:27

Yes- In february the movie was set to premiere this december. I saw the
trailer then when someone posted a link to the trailer in another group.
Now it opens at the end of this month, a week or so from now, I think.
Looks Creepy. For a minute, I entertained thoughts that it may be that
the public is being softened to the idea with this movie, but it seems
more likely after consideration that some producer saw something about
morg or body bugs or something and thought, "Hey, what a great idea for
a horror flick!"
It still looks creepy.
Dana

Re: Sen. Schumer Treated For Lyme Disease

2007-12-21 14:27:12

MY BROTHER LIVES IN NY & WAS GOING TO SEND ME THE ALL THE NEWSPAPER
CLIPPINGS.
I don't know if anyone here knows but my ex-fiance (we were to be
married in 1977) came down with Rocky Mountain Spotted Fever (TICK
VECTORED) while sailing in the Delaware Bay on his parent's sailboat.
He had to take his dog to potty and upon returning to the boat both
he and his dog had found ticks on their skin.
My ex became extreamly ill and he almost died. This nightmare began
as he was camping with my brother, sister-in-law, and I. we had him
hospilized at the nearest town then traveled about 8 hours "home" but
we had to stop at many hospitals along the way as he had such a high
fever. It was so scarey!!!
Finally back in Rochester, NY, he was admitted to Strong Memorial
Hospital and it took a few days before an INFECTIOUS DISEASE doctor
identified what he had.
I never knew how long it took him to recover, as his family gave him
an choice at that time ... them or me!!!! He chose them. I said
goodbye to him in the hospital and never heard from him again. He was
down to 80 lbs. the last time I saw him.
The wedding was canceled.
THIS IS WHY I HAVE SUCH A STRONG VENGENCE AGAINST TICKS!!!!
wendy

Re: movie "Bugs"

2007-12-21 06:51:24

Has anyone seen the previews or trailer to the movie "Bugs"? I had no
idea of the movie much less what it was about, but my girlfriend
brought it to my attention yesterday & she pulled the trailer up on
the internet & I could not believe what I saw. Deb

Sen. Schumer Treated For Lyme Disease

2007-12-21 06:01:46

Once Bitten: Sen. Schumer Treated For Lyme Disease
wcbstv.com
May 25, 2007
Senator Charles Schumer, the veteran politician from Brooklyn,
announced that he is being treated for Lyme disease. The senior U.S.
senator from New York was on the job when a tick bit him. He was
touring dams in upstate New York on May 7.
Schumer says he found the deer tick on himself and then spotted a
telltale "bulls-eye" mark of infection on his leg.
The 56-year-old Brooklyn native is now undergoing a three-week
treatment with antibiotics and says he hasn't noticed any of the
usual signs and symptoms of Lyme disease, such as rashes, fever, body
aches, malaise or fatigue.
"Nassau and Suffolk counties are on track for one of the worst Lyme
disease seasons ever," Schumer said in July 2006, long before his own
tick bite.
That day, he was on Long Island, drumming up support for a bipartisan
bill that would allocate $100 million for prevention, treatment and
research of the disease.
Little did he know at the time that he would soon acquire first-hand
knowledge of the disease.
At this point, Schumer is saying he is being treated to prevent the
tick bite from developing into the disease.
"I don't think there is a disease that is as widespread and causes as
much harm that gets such little attention from the federal
government," Schumer said.

Im still sick

2007-12-20 21:09:34

You also might try collodial silver, get something with a minumum of 10 parts per million. This helps with viruses, bacteria infections, and fungus which may be part of the Morg affiction. I also take a large chopped clove of fresh garlic, 1/2 oz apple cider vinegar in water, cats claw, tumeric, Pau d'arco, neem, and sarsapirilla capsules (or get liquid) morning and night, plus vitamins and tons of vit c. My symptoms were really bad, with lots of lesions and I am about 90% better. If you can only afford a few things, start with the silver, garlic, and apple cider vineger - its all inexpensive. All the best to you dear, I hope you feel better soon, Barbara
ritainthelibrary <ritainthelibrary@...

Strongly suggest you eliminate/severely lower your carbohydrate
intake & take a lot of acidophillus, more than ten Billion units, if
possible. 5000 units of vitamin C, daily, is also good.
Rita

Re: [Morgellons] Organic Aloe Gel

2007-12-20 20:24:58

I agree Daisy aloe is excellent for our condition. All the best, Barbara
daisybaleen <daisybaleen@...

Dont forget about this wonderful aid against the lesions. I get this
at whole foods market or vitimin shoppe for a big bottle about $6. If
you watch the effects in a magnifying mirror....this gel melts the
amber ooze, the callus, and causes the white things to stand up in the
pores or lesion.Apply, wait, watch......the trick is to blot the melt
down of the particles of this affliction. You can reduce a lesion
by this process. For example, put the gel on a lesion, let about 2
minutes go by, then blot with a paper towel and apply some more gel.
This process will gradualy and gently bring the stuff up and out and
reduce the sore. Also, if you google aloe, you will find it is
full of wonderful things that are an aid to our health if taken
internally. The gel does not taste bad at all, kinda sour fruit but
not as sour as lemons.

Organic Aloe Gel

2007-12-20 12:48:22

Dont forget about this wonderful aid against the lesions. I get this
at whole foods market or vitimin shoppe for a big bottle about $6. If
you watch the effects in a magnifying mirror....this gel melts the
amber ooze, the callus, and causes the white things to stand up in the
pores or lesion.Apply, wait, watch......the trick is to blot the melt
down of the particles of this affliction. You can reduce a lesion
by this process. For example, put the gel on a lesion, let about 2
minutes go by, then blot with a paper towel and apply some more gel.
This process will gradualy and gently bring the stuff up and out and
reduce the sore. Also, if you google aloe, you will find it is
full of wonderful things that are an aid to our health if taken
internally. The gel does not taste bad at all, kinda sour fruit but
not as sour as lemons.

Im still sick

2007-12-20 06:31:50

Debbie,
My thuoghts and prayers are with you and I have been
where you are. I am not doing as well as some on
here, but one thing that seems to have helped a great
deal is taking the fenbendazole, as well as using
"combocare" (a combination of moxidectin and
praziquantel) topically. I am not a doctor and cannot
give medical advice, but I have to say that when I
began taking this I noticed an improvement. I got
them at a local feed store, and it does scare me that
I am taking this at times, but continue as it has been
helpful for me. Additionally, I drink water with
apple cider vinegar, use colloidial silver, both
internally and topically, and am taking cat's claw and
olive leaf extract. Hang in there,
Lori
--- debbie <dgarrett8138@...

RE: Im still sick

2007-12-19 21:44:34

Hi everyone! Hope everyone is doing better than me. Im still laid up
have been for the last 3 weeks. Nuasia has slowed down just so dizzy,
fatigue is so great.Still applying St John Wort to lesion & getting
smaller but they have moved into sinus my girlfriend picked me up Dr
neil sinus rinse I can barely breath.Now have new lesion on left hand
fore finger knuckle quite large.Im drinking lots of ozarka water &
taking lots vitamins lots vita.C.My boyfriend bought me cemtrum
silver afraid to take it because of nausia.Brain fog is getting worse
(scarey).Muscle ache & joint pain is severe & latest thing I keep
peeing on myself not all the time but good many times cant hold it to
make it to bathroom how embarrasing.Then the depression comes & is
almost more than I can fight off.My friends have now rallied together
God Bless them, they take turns coming over taking care of my 12yr
son cooking cleaning trying to sterlize the house.House not done yet
but getting there.My parents came over & visited me my Dad leans over
to me & says let me tell ypu a secret couple of yrs ago I had what
you had a lesion on thumb nail things shooting out black & white
specs he said to me dont you remember I was laid up for 3 months it
took over a yr for lesion to heal but I did over come it & so can
you.Im trying. I signed petition to cdc trying to keep up with all of
yalls postings. there is one last thing I would like to say that
everytime there is anew theroy on this diease I have a conection for
ex: molds-I was subjected to black mold at work for 3yrs(worked down
in a basement cellar turned into a office).Agrobactruim theroy I
owned a landscaping co. for 6yrs & worked with employees on many jobs
for yrs. Fish theroy when I was exposed to black mold & working down
in the cellar I was office manager/bookkeeper/etc. for 3 high class
restarurants here in SA 2 of the restaurants being seafood as well as
Italian.I ate lots of fish pretty much on a daily basis.When I was
exposed to black mold I was very sick & weakend my immune system so
much so that my drs said I must quit my job or I was going to die.So
I could easily catch any type of viruses.any way I just thought it
was freaky to say the least. Gotta Go not feeling well feeln like I
have a fever.miss yall DEB

veterans hospitals

2007-12-19 13:48:05

Returned from veterans hospital dermatology clinc roday with a
diagnosis of Delsuional Parasotis. There coment was It is a mental
problem We dont believe in it and there is nothing crawling under your
skin. I took print outs from a number of web sites and also articles
in Medical journals and she still would not listen to anything I said.
Next step is Congresswoman This is the VA Hospital Ohlkhoma City
Oklhaoma. Any vets out there have this? would like to hear from u,
email is cstubblefield711@... Any body have something that
helps. hands hyrt real bad have to keep them wrapped up. thanks for
any replies.

Veterans Medical Center Oklahoma City

2007-12-19 13:12:58

I just returned from the VA dermatology clinic in Oklahoma City. I was
diagonosed with DELUSIONAL PARASITOSIS. The doctor would not even
lisren to anything I told her. I ask she contact the university of
Oklahoma at Tulsa who was doing research on Morgellons and her answer
was"no I won't WE DON'T BELIEVE IN IT AND THERE IS NOTHING CRAWLING
AROUND IN YOU". She then checked my middle back and said there was not
any spots there and that was because I couldn't reach there to pick at
anything. She did not mention the red spots under the skin where THEY
HAD BEEN. I was so upset I called her an idiot and left. Then on the
way home I thought that the new studies found these to be man made
instead of living organism, so if that is so then the FEDERAL
GOVERNMENT WOULD NOT ALLOW THE VETERANS HOSPITALS TO ACKNOWLEDGE THEY
EXIST AS THEY ARE PROBABLY WHO LET THEM LOOSE, EITHER BY ACCIDENT OR
ON PURPOSE FOR TESTING. Any way any vets out there that have these
please email me at cstubblefield711@..., My hands hurt so
bad I have had to keep them wrapped up to prevent hitting them. Any
one find anything that helps? I have tried so many things with no
help. Thanks for replies.

Re: [Morgellons] Bryozoan

2007-12-18 23:09:21

It appears these things cause skin disease too:
http://www.glaucus.org.uk/DoggerBankItch.htm
fishing for 25 years without a problem I've developed the allergy, diagnosed as
Dogger Bank Itch by the Dermatologist. Of course I knew what the problem was
because I'm the fifth person in this area to suffer from it. It starts as
itching sores in the wrist area, which for the first couple of years subdue
after a couple of days ashore. However, in my case, by the third year it seems
that I had become sensitized such that a walk along the cliff with the wind off
the sea was sufficient to keep the allergy active ....
Alcyonidium diaphanum the most likely culprit for the 'Itch' and is sometimes
referred to as Sea Chervil. It is a pale brown (honey) colour, gelatinous,
commonly around 150mm but can grown larger and variable in shape. It is a
common sublittoral species occasionally occurring in great numbers. It attaches
itself to stones, shells etc and is easily removed (and due to its size
presumably captured) by demersal trawls. This would therefore explain it comes
into contact with fishermen. I cannot explain the seasonality of the itch but it
could be associated with its summer growth period. Does anyone else have any
ideas?
succombed at age 60 after fishing for 30 years and yet at that time I had only
potted for 20 years and had no problem.
mile or so. Crews of bigger boats fishing beyond 3 miles dont have the problem,
although this could be because the crews tend to be younger so havn't fulfilled
the 25 year requirement !
ropes is either responsible for, or at least acting as a trap, for the source of
the problem.
'itch' normally subsides. Having said that, the 'itch' persisted into September
last year.
fishermen as curly weed, which grows in the shallow waters of the North Sea"..
[also NW Scotland, Greenland, Norway]
established it requires only contact with nets used in the area to precipitate
an attack".
the area causes painful cracks to appear in the skin. Where the face and eyes
are involved there is marked swelling esp. around the eyes together with
conjunctival inflammation"
further contact".... should be advised to go deep-sea. Rash otherwise behaves
like sea-sickness and staying ashore does the trick..
Fishermen" (which includes an entry on "Tit Juice Conjunctivitis") immediately
precedes that on "Pregnancy and Female Disorders"...

Save Your Right to Treat Yourself Holistically--Deadline May 29

2007-12-18 22:39:40

Kevin Porter <rugbykevin3@...
Date: Tue, 22 May 2007 20:07:17 -0700 (PDT)
From: Kevin Porter <rugbykevin3@...
To: firstbase_kev@...
The FDA is about to promulgate* a rule whereby all
natural supplements and substances, including water in
some cases, will become regulated drugs which you
will be able to obtain only by prescription from an
allopathic doctor
(an M. D.) Your right to treat yourself, take what
you want when you want,
to control your own body in this way will be violated.
http://www.wnd.com/news/article.asp?ARTICLE_ID=55403
This is quite an emergency. We need to call our
Congresspersons and Senators
quickly to stop this--and it absolutely has to be
stopped. FDA also has a comment period until May 29;
the phone number is 1-800-INFO-FDA.
The case docket number is 2006D-0480; it should be
mentioned when calling.
In the news article above, there is a
link to form where you can
comment on this plan (which has been fast-tracked.)
All individual choice and natural treatment options
will be gone if this rule goes into
effect. The supplement industry that millions depend
on for their health
will go out of business almost overnight.
The only supplements available then will be ones made
by pharmaceutical
companies, and will likely be of extremely poor
quality.
Phone numbers for your Reps. and Senators and the
President are below,
or you can get them at at www.house.gov ,
www.senate.gov , and
www. whitehouse.gov
Even if the rule goes into effect, Congress can pass a
law
overturning it at any time, so it is very much
worth contacting your
representatives in Washington.
Call YOUR Congressman
at 866 340-9281
1-800-833-6354
1-877-762-8762
1-866-808-0065
1-888-355-3588
1-866-220-0044
Call the President
at 202 456-1111
Find Your Elected Officials and
send a message from this web page:
http://capwiz. com/jbs/home/
Sample letter or email to Congress:
The FDA is about to promulgate* a rule whereby all
natural supplements and substances, including water in
some cases, will become regulated drugs which we will
be able to obtain only by prescription from an
allopathic doctor
(an M. D.) Our right to treat ourselves, take what
we want when we want, to control our own body in this
way will be violated.
This is quite an emergency, and it absolutely has to
be stopped.
The case docket number is 2006D-0480
All individual choice and natural treatment options
will be gone if this rule goes into effect. The
supplement industry that millions depend on for
natural health options will go out of business almost
overnight.
The supplements available then will only be ones made
by pharmaceutical companies, and will likely be of
extremely poor quality.
Even if the rule goes into effect, Congress can pass a
law overturning it at any time. I ask that you introduce
legislation to stop the FDA from doing this, now or
ever.
Sincerely,
(your name)
*Promulgation (of executive branch rules): an
unconstitutional process where Congress long ago
illegally delegated its lawmaking power to executive
branch agencies, such as the FDA, which issue
regulations having the force of law.
The legislative power was granted to Congress in the
Constitution, not the Executive Branch, which the FDA
is a part of. Congress should make its OWN "comment"
to the FDA!

Re: Bryozoan

2007-12-18 09:12:03

Hi, I am looking for your photo, but cannot find it. I would not
doubt that what you are identifying has something to do with this
problem though. Are you the one who posted on another site about
bryozoa? I found that reference very interesting. I have seen little
green blobs which have fallen off onto the floor, doubtless from my
feet. Twice some of the skin on my toes formed into a circle covering
something. Underneath it looked like parasites were forming. When I
broke open the skin it looked like the inside of the way the outside
of a snail shell looks from the outside, that same indented circular
path to the center, where I believe lodged the food supply for the new
parasites. About the size of a nickel on the back of one toe. The
skin becomes very tough and will bleed if pulled too quickly. One
product I used would soften the skin which would allow me to gradually
get it off along with parasites underneath. In one area I found
iridescent white critters with a pinkish blue shine. When this first
began these would lodge in my nails. Time and treatment has lessened
most really odd symptoms, thank goodness.
At the beginning of all this parsites lodged in my lips. If this area
became inflammed at that time I would taste fish. I know that what I
got came from fish.

Bryozoan

2007-12-18 07:38:29

A Bryozoan is a moss animal. I believe this is what is stuck on the
strip of PVC pipe glue that is shown on " Skin inside out " in the
PHOTO section here. From a single organism they come together to form
a colony. You can see this in the photo ( the smaller stalagmite
looking things ). PVC pipe glue was put on an infected of the skin
then peeled off to get these microscopic photos. WTG

Re: New person: Comments on Morgellons and fish parasites

2007-12-18 04:11:56

Think it also might be possible that the parasite infected the fish
after it was caught... Fish can be poisonous and can have bacteria
that make us sick but, don't think parasites are very good at
changing host species and environment particularly from a salt water
dwelling creature to humans... Do you have any references of this
occurrence being possible and thanks for the detailed post... Zip

Re: CDC

2007-12-18 02:18:26

Good to see you're back and feeling better. Also, great idea on
going after the CDC... Look forward to seeing your future posts....
Zip

Umm. Hi.

2007-12-17 18:42:37

LOL
Yeah, yeah. I know.
Hey...miss daisybalene. Long time no chitty chat! Doing well? Hope
so.
Check this out, all. Anyone look into the Molecular test, yet? I
did a bit, this am.
I got Phagocytosis & Bacterial pathogens...Plasmodium
Falciparum...Heat treated Blood sample to purify DNA (?) and
Microtubular Hairlike structures. Just a summary but interesting.
I dunno. This particular Doc recommends the test. Hope you r clean
of any other illegal chemicals before considering it, if it is even a
consideration.
Yeah...me and my alternative medicine kick. I was trying to post an
ingredients list because I just can't quite get over it, actually.
I'm telling you, I feel brand new but I know I can't solicit/which I
kinda can't stand soliciters, either. So I show U!...Somehow.

Orange markers?

2007-12-17 07:00:53

I have added st johns wort to my soda sessions for the past week. I
wear the wort for several hours. I then apply miracle foot aloe
cream to the top of it for about ten minutes. This softens the wort
and i wipe it all off with tissue. I then add dry soda to the lesion
and keep applying until it is done absorbing the ooze. The wort
is making the process much
faster. Several years ago i
looked at my face with the blacklight and i could see bright glowing
orange in skin pores around chin and nose. This week i looked again
and was surprised to see that the pores look normal,and the open
lesions look clear.....but encircling the lesion is bright glowing
orange. I have looked at the wort under the black light and it does
not glow. I think the under layers of this ooze is being drawn to
the lesion by the wort and lifted out by the soda. It could be what
Al ment when he talked of the hive, and the defense being drawn to
it when blocked by the wort. What is this orange stuff? Is this what
causes the
lesions?
I was surprised today to find this article which was written in
2000..."ORANGE MARKER" QUESTION
AUGUST 17 2000
Over the course of several months, many individuals that participate
within the message board attached to www.carnicom.com have become
aware of the following unusual event. Under ultra-violet light
(i.e., blacklight), there are bright flourescent orange spots on the
face of the observer, and especially so in the nasal area. It is
reported commonly that the orange spots are difficult, if not
impossible to remove, through normal cleansing. The appearance of
these bright orange spots, visible only under ultra-violet
radiation, was confirmed by myself several months ago. More
recently, one participant, by the name of "Moose", has recorded that
the material can be extracted by a forced squeeze of the skin
surrounding the orange spots. The extended curiosity of this
particular researcher is appreciated, and I have been able to easily
confirm his results. As he states, the flourescent material extends
beneath the surface of the skin layer, and apparently the nasal oils
are permeated at depth with the unusual color.
It has been suggested by many of these observers that this
unnaturally bright flourescent orange color may be a biological
marker of some sort. I am not aware of any historical record of
bright flourescent orange spots on the facial area of the human
species. As such, the question of a biological marker being used
without an individual's knowledge presents itself as a reasonable
claim to investigate.
Two micro-photographs of this extracted material will be presented
on this page. The materials shown are oils of the nasal area removed
as described above. Magnification of the images is at 60x. An image
is also presented under the microscope under ultra-violet light. The
ultra-violet light available for microscopy is insufficiently bright
to reveal the bright orange color of the material, however, the
flourescent nature of it can be seen. The bright orange color is
easily visible to the naked eye under ultra-violet light. While it
is understood that these micro-photographs may not be especially
visually appealing, they are presented in the broader context of the
goal aimed at the scientific explanation of the observations
recorded.
It would be beneficial for anyone with adequate knowledge in the
health professions to expain what is being recorded by numerous
observers that have had the motivation to investigate this
phenomenon. It would also be helpful for anyone with laboratory
resources to identify the source of the bright orange color that is
commonly being reported and observed. Any comments regarding this
research question can be posted publicly on the message board
attached to www.carnicom.com, or email can be sent to
cecarnicom@....
The observations described and recorded can be investigated by naked
eye observation from anyone with access to ultra-violet light (e.,g.
a blacklight). Please also refer to the numerous posts on this
subject by many interested parties on the message board attached to
www.carnicom.com, especially under the Physical Samples Research
forum topic.
The microphotographs referred to above now follow:
Extracted Oils from Nasal Region
Visible Light - 60x
Appears Bright Orange Under Ultra-Violet Light
Extracted Oils from Nasal Region
Ultra Violet Light - 60x
Luminance Sufficient Only to Demonstrate Flouresence
Appears Bright Orange To Naked Eye
Clifford E Carnicom
August 17 2000

Fw: A

2007-12-17 05:33:15

----- Forwarded Message ----
From: Stands wfist <stands_wfist@...
To: sinisterthreads@...
Sent: Saturday, May 19, 2007 2:38:14 PM
Subject: A
Ok

New person: Comments on Morgellons and fish parasites

2007-12-16 16:05:10

Hello, I am new on this forum, but would like to state that I know
exactly when this problem started for me. It was from eating fish,
and the parasites seen were probably more than one in the beginning.
I became deathly ill within six hours of eating the fish (yes, it was
cooked), vomiting (thank goodness, I got some out at the beginning)
with a fierce migraine headache and diarrhea (also a good thing). I
have studied traditional Chinese medicine (TCM) so I am aware that
most of my headaches start in my stomach and colon. I saw a TCM
practitioner soon after this and my spleen was treated. I had flu like
symptoms along with urine which was dark and clouded. At that time I
passed a load of parsites in one form in my stool (this is what the
treatment was for). I have been using TCM herbs since that time
(about two years) and have controlled many symptoms in this way. I
have also used parasite cleanses.
My skin symptoms were also quite severe in the beginning. It started
with a round white hard lesion with alot of edema underneath. Then
itching and trails of parasites (small brown bugs) followed leading to
more lesions. Another TCM practitioner knew about some skin cancer
salves and this problem did respond to this treatment. I do believe
there is some component of cancer associated with this problem.
Perhaps it easier for this parasite to reproduce in areas of poor
microcirculation such as the scalp. The salve will eat down into the
area beneath the skin and then the parasite sort of looks like a
central worm from which this stuff feeds and reproduces. I do not
mean to alarm anyone, but think of the fish found in large fish kills
who often have similar symptoms (lesions). It is often reported that
cancer in one form or another may be involved with fish as well,
killing them because they are so small. Anyway, the salve treatment
resolves these areas, becoming symptom free and seems to remain that way.
The area between my toes was recently treated with the salve where
some of this stuff was very deep. I am now using a TCM powder to dry
up the surface parasites. I believe this problem is probably
parasitic including the white fuzzy hooked things as when the major
areas are treated with the cancer salve the white fuzzy things
dissipate along with the the central core being treated. I believe
the twig like things are also parasites, the little unformed green
flakes, the blue inky stuff has disappeared. The hairlike form I think
comes from the adult form of the parsite which has probably laid eggs
and now exits the body. The parsites in some form like to be between
the skin and what lies immediately underneath the skin. I believe the
blue ink was some form of a fish parasite which can give off ink, like
an octopus only much, much smaller. I am detoxing mercury with a foot
detox machine, and at one time I was working on one of the areas of my
toe. Imagine my surprise when a parsite resembling a very small jelly
fish came out. No wonder that area was so raised and hurt so much. I
have also passed behive shaped mucous with hairs attached in my
urine--I do not have this now, just alot of almost microscopic debris.
This has gotten less over time as well.
I have a friend who told me that sometimes fish are caught in areas
off the coral reef and should not be sold for food as they may contain
toxic parasites. This could explain the numbing sensations in my lips
and mouth after eating this fish which was grouper. Since then I will
not touch any fish or seafood, not knowing what it has been exposed
to, farmed or wild. This sensation has mostly stopped though I notice
some numbness and tingling in my feet which are still being treated.
I believe this would account for the brain fog many have because if
you do not get these parasites out, they will probably accumulate in
the body with a nerve toxin circulating throughout your whole system.
If they are in the blood stream (which I surmise) then they also can
be circulating this toxin in the brain.
In addition I have started seeing my original practitioner again and
he is an expert in TCM. He saw blue spots in my eyes (white part)
which indicates parasite eggs. He also saw them in my gums and is now
using special parasite herbs in a powder which I chew and leave in my
mouth as long as I can stand it (it is very bitter). Anyway,
gradually over time my symptoms are improving. The spots are just
about gone, but he is continuing treatment with herbs until they are
all gone.
In I now see someone who has lymph machine which gets the lymph fluid
out of stagnant areas and moving. If you will notice most people who
allow themselves to be pictured with this disease (not all of course)
have very puffy weight on them. This indicates that the spleen may
not be working right. Parasites thrive on excess body dampness. BTW
these parasites seem to lurk in the spleen, liver and kidney. They
also may cause palpatations, I believe, from infested fluid around the
heart. Parasites like germs will find the weakest spots in the body
and take up residence there. I also am fairly certain that the
parasites are circulating throughout the entire blood stream and lymph
system itself.
When I first got this I looked up my symptoms and saw that people with
similar symptoms were reporting themselves as having morgellons. I
have only read about one other person on another website who has
noticed this particular fish correlation with symptom onset. I
believe the difference in symptoms could be related to the different
seaborne parasites to which one is exposed. This would vary with
perhaps bathing in infested seawater alone (maybe not even eating
fish), but being in different ares of the sea along different
seaboards. Also not everyone may have eaten the same type of fish.
The fish may have been fresh water etc, on and on. We live in a very
toxic world.

Re: immediate sinus relief

2007-12-16 12:13:52

From what I read, and this was a medical site, they can get into the
brain through the ears, but the nasal irrigation was demonstrated on
Oprah by that Dr.Oz, and seems like a great idea for sinuses.
Thank you. I will hang on to this site.

Re: Hi. I'm new here; but not new to this...damn it.

2007-12-16 07:03:15

Wow, honey you have yoyur plate full. I am a little concerned about
this pregnancy, for you. Can you find a midwife to be with you when
you deliver? I had one, and I know some will even deliver outside of
a hospital. They are great, much more willing to let you listen to
your body and it's wisdom.
And you can post a link directly to the group anytime you want to,
just type it in the message body and send, when you write your story.
Welcome to our group and let me know if I can do anything to help.
Dana

Hi. I'm new here; but not new to this...damn it.

2007-12-16 01:16:55

Hey ya'll. I am way super glad to have stumbled upon this
group...finally people to relate too!. I started with the very 1st
msg. and screened thru about 155 of them b4 I bumped up to present
day. How it all its 'home' I would like to bring msg #11 to ya'lls
attention. It's Good. So anyhoo, for me I'd began this Morgellons
mis-adventure Mar.29 2004, I do however believe the actual onset was
likely prior to then..but that was the initial oh shit day.
Oh F.Y.I. Happens that I've gotta alot to say so b-4 hand let me
just tell you how wonderful this will be for me; as like so many
others I have been in this battle alone for quite awhile, ya'll know
how things will build! God Bless & here goes...Yay!
{Q
monstrausity of a story then just have it where ya'll can link to
it? I know there is! Anybody want to email me how, I'd sure be
greatful.< None the less this one won't be a short post, but I'll
sure try to be minimal anyway!
3-29-04 I was drinking from a 2-liter that I'd filled from the tap,
something told me to stop and look, there were these 'jellyfish'
type things floating around. I freaked abit, course I got one out of
the water put it on a paper plate, It decreased in size like by 90-
95% this tells me it was (obviously) for the most part water. Okay,
well I did not allow myself to obsess on this for too long. It stuck
in my head firm for a week or so, welltime went by and I'd had 3
dif. trips to the doc. thru-out the next few months. Oddly the
jellyfish thing didn't come into mind again till the final of the 3
visits.
( When I drank them I remeber thinking, whoa, what if these things
grew in me like they do in the water...) Anyway After the Dr. Visits
things really began to unfold or present themselves...to much so to
be coincidence at least so it does seem.Okay well I can see how I
could get really lengthy here so I'll tell ya what. I'm gonna go
ahead and compile a bit of a paper and I'll be back in touch with
the group and those interested...well we will figure it out. But
before I stop, I know this is kinda crazy but I am in NC. I loaded
up my dogs and hitched up to the RV and basically have run away from
all the discerned folks back home in Texas. I am frickin pregnant.
Scared and well lots of emotions ball up in it, but none the less I
am due best I figure no later than Mid- June. See I hat e Dr.s know
and think for the most part they are idiots...so I have not been.
Had a boy {he'll be 1yr old in 2 days} His daddy was all for
violence, and definatley would not hear of any morgellons...so I,
being a weak pathetic mess, left my baby with him. ANyhow that
pregnancy went like t.v. easy I did not go to the Dr.until I ws 5 or
6 months along, they guesstimated my due date..I had him on that
day. So I guess I'm just hopin' for the best this time. Anyway,
Gawd, let me just stop right there. I was gonna see if anybody out
there wanted a new friend in town. Gotta find someone to look after
my 2 dogs when I go to the hosp to have this kid (whom I do not have
a clue what to do with!) Lord knows I'm an idiot some how for this
predicamnent. Okay ya'll at least this felt good to get out. Bye for
now Take care and God Bless ~ T.

Re: [Morgellons] Hi to all

2007-12-15 20:31:39

Welcome! You have a lot of new friends here, and we are glad to have you.
Nicole
Sent from my BlackBerry® wireless handheld

Re: Hi to all

2007-12-15 16:46:20

Everhopeful!!!!
You are something like a celebrity in my book, I use your 'delusions
that something is burrowing into my skin' photo as a reference often,
because it's a great pic of exactly what I have in my skin. Very nice
to meet you! It was your site that finally convinced me that yes,
this is too insane not to be true, and yes, we all do seem to have
the same thing. Thank you, it gave me confidence in my own
convictions.
Also, I use listerine, but have found that biotene (enzymatic)
mouthwash works great, in a diferent way, to use several times a day
between brushing. It seems to combat yeast as well.
Welcome to our group!
Dana

Hi to all

2007-12-15 13:29:43

Hello to everyone in this group. I joined a few days ago and have
been reading without posting just to get a sense of who's here and
what you're like. You all seem like a great group and it's so nice
to read people being so helpful to each other.
I've missed a message board ever since the NUSPA board shut down.
The number of sufferers seem to be growing like crazy since I first
got this, back in the winter of 2000-2001. Then there were just a
few of us posting on Safe2Use and NUSPA. Now there are morgies
everywhere. Some of you may have seen my own website--I'm also known
as Ever Hopeful, and the site is Ever Hopeful's Delusions at
www.dpref.com.
Ivermectin has been my drug of choice for years now, but I'm
researching other antiparasitics and have found lots of good
information here.
I have to second the poster who suggested lots of oral hygiene. I
also use a water pik, and Crest's Pro-Health mouthwash religiously in
the evenings (Listerine in the a.m. and during the day). These do
seem to help. Teeth have been major problems for me, and now my
larynx seems to be bad too.
Anyway, thanks again for all the great info and for being so
helpful. I'll be posting from time to time.

Re: [Morgellons] abx, fungi, and bacteria

2007-12-15 03:41:04

Hi dana. Wow. You have been there, done that. The latest, I have heard is a Molecular test.
My symptoms, actually are basically none existant and have been for awhile. I purchased an ionic detox machine that also came w/an infrared belt. Then i started in on putting back into my body the healthiest of healthy i could find with a fruit and vegetable drink that if protein powder were added to it, one could actually live on this. Good stuff, surprisingly as it has a taste like green tea. Then added goldenseal, artemisia, cat's claw, paw-paw cell reg and heavy metal detox herbs. The artimisia is an anti-parasitic and soothes the digestive tract. The paw-paw helps to modulate the growth of blood vessels near abnormal cells but also slows the production of ATP in Mitochondria of abnormal cells (anti-bacterial, basically). So why do I bother coming to these sites? I still seem to have a need to understand this thing. I don't want it back, for one but I still seem to be learning things on this plague, and I think being informed is not only good but very neccessary
for the futures emerging diseases. No doubt, they are coming, unfortunately.

abx, fungi, and bacteria

2007-12-15 02:40:53

I have taken several short term courses of abx, clindamycin,
oxytetracycline, cipro, Augmentin... For various reasons. Everytime,
I
do see improvement in some aspects. Abcesses stop, the sores that
actually drain fluids, and no new sores develop, my eyes get better,
less muscle pain. The sores that are present do remain after
treatment
and though flat, are still open and infected with some kind of fungi,
likely candida as far as I can tell. I also get yeast in my throat
and
have difficulty swallowing, and itching and crawling sensations
increase. This is how I found out that some symptoms are fungal and
others are bacterial. And yes, after a period of time, things return
to
the same state, after a week or two, or after a month when I was on a
month and a half of cipro. The fungal sit. after abx is worse than
the
bacterial beforehand, actually, with intense fatigue as compared to
the 'normal' morg state. I think most of us swing between these two
states all the time based on diet and drugs, and may not realize it.
I
think there may also be a viral component for some, or maybe not, I'm
not sure. It could be that what I am construing as fungi is viral, or
some part of it is viral. The opposing infections are natural
competitors and when only one is eliminated the others are
exacerbated
because competition ceases. I had a pretty rough time after the
oxytetracycline, even though I really needed it for the bacterial
infection in my sinuses, ears, jaw and neck. I got worse in some
ways,
better in others. You may just have to try the abx and see what it
does
for you, you may not have the same experience. For me, the silver and
herbal/dietary support have been much more effective than the drugs I
tried, because they don't cause the 'no-competition-swing' thing. It
is
slower progress, but more complete and balanced. Before, I'd get
better
for a few days on abx, but before the infection was even completely
gone, I'd be dealing with what I think is candida overgrowth, and
then
have to get rid of that, while the bacteria came back in the
meantime.
The damage is there, and whatever is around takes over the damaged
tissues, no time to heal completely. I'd say, either do antifungals
and
abx at the same time, or go the homeopathic route. I think that may
also be why the fenbendazole is able to work, because it addresses
both
as well as parasites. You gotta get it all at once. I have had the
best luck just rotating antimicrobial/fungal herbs every few days,
silver everyday, and dietary supplements/diet changes.
I posed a long time ago about the interperetations I made to discern
fungal from bacterial infections, you might search the archives if
interested, for: Fungal Vs Bacterial Symptoms. Actually I may have
saved it, if so will repost.
Dana

Re: [Morgellons] Re:St Johns Wort

2007-12-14 12:26:52

Debbie,

i don't think that looking back at how you got here helps. In time of stress and anxiety what you do is.. Just take a deep breath and hold it for 5 seconds..than let it go everything all at once (repeat this several times). That's what Barbara does every night before she goes to bed, even tho i don't have much trouble sleeping at night but it helps me during the time of stress and anxiety.

Hmm..about the depression, I'd suggest that you should see doctor if its a long term- depression, but i have heard that there are many side effects of depression medications, so i don't know.. sorry i just can't think of anything right now ( once in a while i wake up in the morning feeling depressed, but mines are temporary, it fades but when I'm alittle depressed like after a bad day when nothing seems to go right what i do is listen to some sad music..( well not that sad, but you know..) and try to move on like the day never happened.

I can see.. Dana already have told about the silver, so give it a try. It really helps i just wish it was alittle more afford able, ( darn, can..you believe one of those little 8 oz bottle cost about 25- 29 bucks, which is only good for about a week). But anyway.. well i hope that you are feeling better soon.

debbie <dgarrett8138@...

Re: Actinomycetes...

2007-12-14 09:53:54

We have discussed actinomycetes in some depth previously. I was all but
convinced it played a major role in what I have. I went to the clinic,
described the problems, the fact that I felt large pockets of fluids or
something that felt like fluids, draining with gravity in various
locations throughout my body, the grainy exudate I showed them, and was
Dx'd with staph, sent home with a week's clindamycin.
I have to admit there were flaws in the theory, that I clung to it
because it was treatable and known. I don't have the intense localized
pain and swelling these abcesses would likely cause or the fevers. I
have since realized that the fluids draining that I feel, and see from
the lesions, are lymph fluids, congested in the vessels, that will give
and drain as I hydrate and produce enzymes or take enzymes, from one
congested area to another, but always along the major lymph vessels.
It did lead me to to understand the way this disease works, but the
pathogen we are dealing with is in some way hidden from the immune
system, stealth adapted, a mycoplasma, something like that. It is
certainly actinomycetes-like. Keep reading, many of the mycoplasmas are
actinomyces.
Dana

immediate sinus relief

2007-12-14 01:07:50

this clears the sinusus out completely...nose sores also are
immediately wiped...also balances ph in the sinus cavity. Someone else
had listed it, so I tried it. Awesome stuff, especially for those
concerned w/eggs in brain area or whatever the talk on that was. It
cleans out where you didn't know you had things:
www.neilmed.com
To the one who is so ill (is it