Linda's Blog

I put some important posts (blast from the past) and INFO in the files
here. This is bigger, then just one bug or disease. WTG

When I found a picture of the sand fly, it looked exactly like
the "Hellicopter Bug". I found this very interesting ....
Seems pretty rare but with the way trasportation and importing of
produce, it could be a possibility!!!! The skin form produces skin
leasions that look like ours!!!!
http://www.pdhealth.mil/downloads/Leishmaniasis_Service_member_06212004.
pdf
http://www.cdc.gov/healthypets/diseases/leishmania.htm
http://www.dpd.cdc.gov/dpdx/HTML/Leishmaniasis.htm
wendy

I am of english decent, med skin tone, loved working in the sun. I
noticed a problem, breaking out in a rash on my arms if i was in the
sun too long. That was unusual. I started having problems with my
right side from head to toe...a tight jaw, spasms in the lower back or
thigh or calf or arch. Later my right hand would become numb within a
few minutes of starting a task. About that time i found out about
bioflow magnets, and since it helped my dogs arthritis(and i took him
off rimydol), i found total relief for my hand wearing the magnet.
Then i started noticing that when i stood up, it was hard to walk, so
i would spread my legs about 2 feet apart and get started in that
position. It was absolutely rediculous, i couldnt figure it
out. There were times when i would be asleep-, and i would
wake up gasping for air, like my throat was clogged on one side..the
right side also. Sometimes i would notice a weird sensation traveling
across my stomach like moving inside sideways. Very puzzeling. I had
times when i felt like i couldnt form words easily, or make a
decision, like things just were not working smoothly. This would last
for maybe minutes then pass.
When i found the lessions on the dogs and used silver to get them
out, i decided to try some internally. I started to feel better and
not take naps, and weird old skin things erupted after many years and
healed. Then i bought the 10x magnifying mirror, and put organic aloe
gel on my face. Thats when the shit hit the fan so to speak. But first
let me say
that
I have not had acne, and my complexion has been very
nice so i dont wear makeup. As a matter of fact, i remember thinking
several years ago that my skin felt exceptionally smooth and without
blemish(fake coating?)--Except i had a horrible rash that would break
out in the summer under my bra line. I would put alcohal on it to stop
the itching. I thought maybe it was the elastic in the bra so i folded
it up and sewed it so it wouldnt touch my skin.
So when i got the mirror and aloe gel and put it on my skin, i had no
facial blemishes. But what happened is that the skin turned bright
red, then puckered up, then all these white objects began popping out
of every pore on my chin. I felt sorry for my skin, so i lifted the
white things out with angled tweezers. At first i thought they were
white heads...like being a teenager, and i had noticed once before
having squeezed a pore on my nose...why was so much white stuff coming
out of those pores. But, i didnt think any more about it til i was
dealing with my chin and looking in the 10x mirror. Some pores, when i
would lift out one white thing...2 or 3 more would follow from the
same pore!I repeted this everyday, and gradually it looked like i was
seeing a fake coating of skin dissolving and some areas were clumps
of these of these white things, what i now call....white beans. Those
turned out to be lessions. Most of them were on the right side of my
face. Then i had a whole new giant time consuming project to deal with
lessions. So i switched to the miracle foot aloe cream to soften the
lession, the chemicals in it work great and being a cream it could sit
in a pile and i could walk around and do chores while it did its work.
Then i would snow plow it off with the angeled tweezers and put dry
baking soda on the lession.I could only see using the 10x magnifying
mirror, without it this can not be viewed. In seconds the top of the
layer of white embedded beans would turn mushy and i would remove
that and re apply. My thought is that this begins to drain to the
outside, all that has formed inside. But this is a gradual process,
and at the end of months, the area becomes flat again and there is
nothing left for the baking soda to go after. At first there
was pain felt in different teeth, and since my teeth have gone
downhill in the past several years...i thought it a good idea to keep
draining these. I also un- embedded a big one on my stomach. I have
no more of the strange stomach sensations, and no more of the problems
on the right side, so i think now, there was some connection between
those problems and the embedded lessions. I also had one on my back by
the sholder blade. Before i knew about morgellons, it was a spot that
either itched or was numb and was there for years, also on my right
side. I dont know for
certain that my problems were caused by these hidden lessions but i
think so enough to trade them growing in there one more day even if it
means having scars. I am ever so carefull to not touch the skin around
these "purses of beans". Because i follow with silver soaked
bandages...i have not had any infection, and the skin around where the
healed ulcers were looks normal. The oldest healed ulcer is from last
summer and hasnt come back, nor the others that are done. The ones
that were uncovered as others healed are almost done, and at this
point sometimes getting the last few beans out feels sooooo good, like
the last scratch across an itch, then relief. I
havent met anyone else who has uncovered these, or removed them with
baking soda............so put my experiement on the table of growing
morgellons efforts to get rid of this. I dont know what will happen
next, but i like that the swelling is gone from my face and i look
more like myself again, hopefully without scaring. I like the feeling
that i this may have been successful, and that my right side will
appreciate smooth sailing again. Next...the teeth. Sigh ,I hope to
find an understanding and not too expensive dentist.

A long time ago I mentioned a reaction I have to certain foods, mostly
to grains/carbs, where I feel sleepy and drugged for several hours
after eating them. DUH!!! feeling a little stupid, but couldn't that be
due to a proliferation of yeast producing ethanol, in effect ACTUALLY
drugging me? (one doctor swore he could smell alcohol on my breath once
and I DO NOT DRINK AT ALL) Does anyone else have that specific problem?
Dana

thats about my question for the moment? did anyone see this coming
before all the skin symptoms?

This is Feruary 14, so took a stroll down memory lane and all the
valentins days past. The year was 1999 and my husband and I had split
after a 27 year marriage. Living alone down town winnipeg in a high
rise. The accountant I used to do my tax that year lived in the same
building, so called him.He decided he would come by at some point and
pick up the forms. Wasn't expecting him when he did arrive. Greeted
the door ring with hair still in shampoo but not rinced off, housecoat
on, no make up, and just knew I looked pretty damn hillarious. So when
He asks me out, I was so shocked that I let out a loud snort,
releasing a huge glob of snot that sailed across the hall and landed
on his cheek. There was some left on my chin as well, and with out
hesitation, I rubbed it off on the back of my hand. How would I know
he was going to shake my hand when he left.
We did go out for several dates. First one Feb.14
Anybody have some late valentines stories?
shirley

I have no problem answering your questions sweetie, actually I
responded to your poll before it was closed and do think it was a valid
question. It was the person advertising their blogspot and acne 'cures'
that lead to the misunderstanding, I think just a coincidence of timing.
I never had acne. I did have infrequent small versions of the same
sores I have now, but not often enough even to remark on them had I not
later come down with this. They STARTED like a pimple but quickly
ulcerated leaving an open 'crater' that was slow to heal, 2 to 3mm at
the most in size.
I am caucasian, fair skinned, blonde and blue eyes, of Irish and German
descent. My husband is also fair skinned, blonde, with blue eyes, and
of a similar line of descent, German and French, I think.

Good questions, BOTH. I was very fortunate as a teenager, I never removed my
makeup at night, or did anything as far as skin care, but was oftentimes asked
by other girls what I used to keep my face from breaking out. I've never had
acne. Just a few months ago I was getting a facial, (during a time that I had
NO lesions on or near my face), and the Aesthetician commented on what wonderful
skin I have?!?! I think my mouth literally dropped open! As for your other
question, I am Caucasian.
Also, please stop thinking it was YOU who was being attacked in regards to the
acne issue. You simply had unfortunate timing with your first post. It came
right after several advertisements which were placed as though they were
legitimate posts, and they were about.......acne. Then you posted and asked
about acne, and were jumped on by several of us who thought you were belittling
our disease by calling it acne. Does that make sense? Again, it was not
personal, it was TIMING and WORDING, and that is ALL it was. Sorry that you
were made to feel that your thoughts were not appreciated. I feel your
questions are valid, and in science you can never ask too many
questions......the more we know, the more we can narrow things down.
Nicole
Sent from my BlackBerry® wireless handheld

go ahead and knock me down just as my acne question was knocked out of
this group. still no one answers my acne question, which was, are any
of you prone to having acne before this morgellons or still now? we
all are here that have it ,so...? do you? also, what race are you
all ? maybe certain types of people are more prone to this????????

Zip,
Haven't you been reading any of my posts? I am presently getting 3
people together to meet with a Local television station to video tape
our experiences and treaments (doctor prescribed and our self-
treatment) which will then be taken to Atlanta to the CDC and see what
thier reaction is. this will then be aired on television with thier
reaction in an attempt to embarrasse them.
I also have a friend that runs an on-line magazine with 200,000 readers
and is going to run an article about us.
Things are in the making believe me .... it just takes some time to
coordinate everything and get things going.
wendy

Why wasn't it mentioned that it was "Morgellons"?
wendy

Considering all the pain and suffering we are all going through, this
really pisses me off. I believe that the high power biotech companies
like Onyx and Genentec could come up with a cure in a couple days.
It's also my belief that the reason they haven't is that the CDC
hasn't said that it a real physical disease. Officially, it still DOP.
Like to do something to get the CDC moving. Anybody know any politicos
that could apply some pressure? Maybe go to Atlanta and picket the CDC
in order to get it on the evening news?... Anyone have the similar
thoughts??? ZIP

she's getting the word out
http://www1.wsvn.com/features/articles/investigations/MI39689/

I have a friend that runs an on-line magazine with over 200,000
readers. He experienced a bout with leukemia about a year back which
almost cost him his life! He is very motivated in the entertainment
industry, and has many companies that he also runs. He assumed I was
over my illness, but I told him all about it the other night and he's
going to write on our behalf in his magazine. I will keep everyone
posted as to what transpires!!!!!
wendy

wWe're here now. Hubby had to do some continuing education for his
work as an A/C tech and I just didn't want to stay behind for two
weeks. Boy, I'm learning a lot about thermodynamics and
refirigerants. We're staying right next to McCain Mall. Email me
privately and we can set something up!
Dana

Hi Dana,

If someone asked me "Out of this group, who would you like to meet?" My answer would be "danacantstop". Just by reading your emails, I think you are a very intelligent person and I would love to meet you. I live in Ward, Arkansas but I work in Little Rock Arkansas, right by the Airport. When are you coming to Little Rock?

Debbie Sackwar
danacantstop <danacantstop@...

I'd like to actually meet another morgie, just to satisfy my own
curiosity as to whether or not we all have the same thing, comparing
lesions and symptoms and stuff that wouldn't translate well in type.
Also be nice to know someone while we're here, if there's anyone
nearby, email me and we can set up a place to meet, maybe.
Dana

I'd like to actually meet another morgie, just to satisfy my own
curiosity as to whether or not we all have the same thing, comparing
lesions and symptoms and stuff that wouldn't translate well in type.
Also be nice to know someone while we're here, if there's anyone
nearby, email me and we can set up a place to meet, maybe.
Dana

All right, Guys.................enough with the negativity all ready!!!! We are all ADULTS here, and should be able to deal with differing opinions or points of view as such. Not everyone in this world communicates their point in the same way, (THANK GOD), because if they did it would be one boring world!!! Some people are much more direct and blunt with their assessment or comments than you or I may be. That doesn't mean they aren't trying to help someone. Say, for instance, someone had already sat back without commenting and read postings addressing a certain item and that person noticed that the intended recipient of the advice still was not understanding the message. That person might just come out and say, very directly, what the other posts had tried to relay in a more roundabout manner. EVERYONE HERE, ESPECIALLY THOSE OF US WHO OFTEN CONTRIBUTE AND HAVE BEEN HERE FOR A WHILE, CARE ABOUT EVERY OTHER PERSON ON THIS FORUM!!!! So, let's try to take critisism in a
CONSTRUCTIVE way, and always believe a post is meant to help, not hurt or discourage. Also, these petty, back-stabbing comments bring EVERYONE down!!! Daisy, you should know by now that Wendy is very direct and says what she feels. The comments she has made to you in the past regarding your posts were made out of her concern for you. In addition, my feeling is that SHE was the only one who may have put her concerns into words, but there were probably MANY OF US who were feeling the same emotions, (worry), about the amount of time, thought and energy you were spending on this subject each day. I know I was concerned more than once. I know Wendy, and she is a good person who uses words to break through denial if she sees it, or to EXPOSE someone who might not have our best interest at heart.

PLEASE, if you recieve a comment in response to a post that seems cruel, hurtful or negative, take a deep breath, or take a break and re-think the way you are perceiving that response. Consider the source as well. WE ARE HERE BECAUSE ALL OF US ARE HURTING, SCARED, AND ALONE WITH THIS DISEASE. WE WANT TO HELP EACH OTHER, NOT CAUSE ANY MORE PAIN.

Much love to all of you,

Nicole

Thanks for mentioning my "insulting comments" (I thought we were all
past that) .... It's only common sense that if you feel insects are
involved get RID of thier webs and the dust. Yes, I'm always on this
site asking questions and concerned about this disease we ALL share.
I was "riding your reports for a while"??? At times you seemed
CONSUMED and almost out of control and I didn't want you having a
breakdown over being so obsessive. I have experienced one in my
lifetime and it HAPPENS!!!! My CONCERN is a sign of compasion, and
was not to be taken negatively. I was worried about you. Do what you
need to do, say what you need to say .....
Yet, your comment on the curtain being tied is ok? That one blew my
mind as well. Looking at that photo and "believing" our disease did
that truely tells the world we are DOP. It is my "opinion" that maybe
someone in that household is either trying to drive
the "photographer" out of the home, or the "photographer" thinks that
we all are DOP to believe such an action!!! So put me down when I
get "insulting" .....
Thanks so much,
wendy

Thanks Theresa and Dick and Bodie-- I know that Rense is under constant attack--- he deserves a medal just for staying alive, and I do feel better knowing that he'll be back on line.

I admire him for almost never giving his opponents credit--- not that I am questioning his explanation on this chapter--

UncBob

Message from: Rense.com - TECHNICAL DIFFICULTIES

I just checked and it is still down.
It only shows a capital letter "H"
in the upper left corner.
Rense down due to hard drive problems
related to server upgrade -

Posted By: Theresa
Date: Saturday, 10 February 2007, 1:45 p.m.
I just received the following by email. Permission is granted to
publish far and wide as I know many people are concerned.
Take Care,
Theresa
Rense.com is currently experiencing a totally unexpected
hard drive problem which took place during a major server upgrade,
one which will tremendously enhance the entire Rense.com experience
...and establish superior security. Thanks to you, the site is
growing
exponentially and with such massive expansion comes occasional
inconvenience
and unexpected events like we are currently experiencing. We are
doing everything possible to restore full service and expect to be
back up with at least partial operations today. We greatly appreciate
your patience as we re-establish your access to the world's number
one net site for alternative news and information.
Rest assured, the current down-time issue is being resolved as
quickly as humanly possible...
Best wishes and our highest regards,

rense.com

Sharon said...."Why dont you take a picture under your fridge and see
what's"there."
in the house. Im on a web search in my home, and have found the
helicoptor bug as posted in the photo section, in these webs.
Previously i had focused on seeing all these fibers using a tube
blacklight, and that led to lots of vacuuming of floors and to
countertops. When williamthegreat made me aware of the helicoptor
bug...and the webs, i turned my attention to the ceilings. I was
appaled at how many there were, not visible, not large, but so tiny
like 1/8 inch, and in vacuuming it using a portable spotlight to
see.., it would bring a long strand with it that had crept single
across more of the ceiling. Our livingroom and diningroom are really
high so i have to do all this on a ladder to get to it. I am so
thankful to find out about the webs, and cant believe how i overlooked
the connection to the fibers. Now, i imagine, as they mature, they
reach a shedding point and drop from these high places and become
airborn and attach to whatever is convient. True or not...im getting
rid of that possiblilty. My arms and back ache from the effort, but i
am glad to know about
this. Apparently
whatever we are dealing with has a progression. The only thing i can
relate it to, is reading PREY by micheal crichton. In his book, the
details of how a nanoswarm is made(programed, and evolves or learns,
leads to every nano particle having its own particular job, which
leads to each nano reflecting a human cell, and thus, the swarm
working together infests and then clones a human. Yeah...yuck!
But,sigh, THAT'S Science
Fiction.
But, whatever THIS is doing, if the web-bug-fibers-lessions are
related, then fighting back at something that has crept up on us over
the years is something we can do. The lessions im removing with baking
soda are not coming back(its been 6 months since i got out the first
and worst one out).The "helicoptor" bugs that swarmed above lamps last
warm season, and in seasons past...im scanning the ceilings, walls and
lamps for, now, ahead of the season. The webs that have crept
throughtout my walls and ceilings unseen...are goners. If this stuff
is still around, its going to have to start over from page 1, because
now i know what to look for.
And now im looking for webs in strange places, like under chairs,
between the wall and toilet. They are there! Even under door hinges
near the floor, or running along telephone cords that are tucked under
the carpet.
And finally, although your comment to take a picture of under the
refridgerator was a retort to wendys insulting comments(she was riding
my reports for a while), i did look under the refridgerator. Ours is
built in, and 4 years old. I vacuum the grill in front weekly. OH MY
GOD!What the ---- are all these piles of webs doing under the
fridge!!!!I used the searchlight and can see them thick all the way to
the back. I have never seen anything like this. And then the fan BLOWS
this stuff out into the room! No wonder i was finding fibers in my
dogs water bowl with the blacklight. Today my husband is going to help
me get this huge heavy refridge pulled out to clean it. NOW i
know!
I went to k-mart last night and God blessed me big
time! I happened upon a center asile clearance table, and in it a
small package i picked up to see what it was. It is a shop-vac package
of 4 vacuum tools with an adaptor. It was $4, regular $16. The adaptor
fit on my old canister electrolux hose. The tools are tiny brushes or
openings about the size of a dime. Perfect for computers, door frames,
and SKIN, plant leaves, tiny crevices. I had the best time vacuuming
off small objects. The suction is increased, but the object doesnt get
sucked thru. And then theres the question about what are the tiny
silver objects flying about that can be seen in the sunlight?Ive
always been taught that is dust. At just the right angle of light, its
kinda fun to catch em with the vacuum attachment and give em a ride
down the tube.
So, maybe unstopped, if this connection of web-bug-fiber-lessions goes
unchecked, uncleaned, it has an agenda, to spread and grow and
disperse and likes being inside our homes near warm places(our skin,
electrical stuff, heat vents). The big question is, if we fight back
by removing it by sucking it up, and putting it in the garbage...will
it be gone, or does it re-infect the dump, become airborn and go
somewhere else warm. Or is there no way to remove it? I know alot of
these tiny black bugs end up dead around lamp bases. It could be too
hot for them, or too bright. They are attracted to it alive, and swarm
on the ceiling, so could that make a trap for them? What about a
sunlamp? Are those sold anymore? If washing and drying doesnt kill
them, what is it about the regular table lamps that do? Well, just
thinking out loud here.
The thing about your photos that really "bugs" me....is the curtain
one. Please tell me you just threw that one in for a joke...right?
Without your comments, the suggestion that photo made to me was that
the swarm has learned to "tie one on" big time. Thats scary, unless of
course, their ultimate goal is to clean our homes for us, while we go
find something more pleasant to deal with than this nightmare.

I can't get to rense. I hope it's temporary. I know daystar. I'll see
if she knows anything.
Rita

I have no info on Risperidone but have had some relief from crawling
on my face and scalp. I use food grade diatomacious earth (DE)
"Fossil Shell Flour" by Perma Guard. I take it internally and use it
as a powder on my skin. Its crushed fossils and DE is commonly known
to shred parasites, (I'd google it for more info). I powder my scalp
as well as I can (under my curly hair) at night before bed. I don't
do it during the day cause its white and looks like powder in your
hair. I also put some in my nostrils, but its very fine, you have to
be careful not to inhale it, so I wet my fingers first. Another
warning, it looks like you've been snorting drugs so look in the
mirror!! Also lemon juice during the day is good to stop crawling. I
think its too acidic for them. I've also used that in my ears and
nostrils.
Hope you get some relief
karen

Hello all,
I was just curious. What was the very first symptoms you started to
experience when you realized that something did not feel right in/on
your body?
Also, can anyone out there give me some tips on controlling the
creeping/crawling sensations on my face & scalp. I am able to deal
with most of the symptoms ... but that creeping crawling sensation
puts me over the edge and leads to the depression. Do you guys get
the creeping crawling sensations all over you body or just your
head? I get them on my head only and the rest of my body gets just
muscle twitching/spasms and the occassional sting.
Any info. would be greatly appreciated,
Regards,
Greg
PS: My sister forwarded me an article about people who were
successfullly treated for Morgellons using anti-biotics and an Anti-
Psychotic called Risperidone. Does anyone have any experience with
Resperidone?

I have been having trouble accessing http://www.rense.com/ -- it's happened before--but not for three (3) days running--- so a google turned up this forum (below is latest entry)

Someone tell me it's all in my head---certainly "they" haven't started shutting down websites, have "they"--- has the naked dash to the finish line already begun?

UncBob

http://anon.abovetopsecret.com/index.php

This anonymous post is in response to ATS thread: is Rense.com dead ??
This is my home page; you know that when the US State Department lists it #1 in "disinformation"--he's striking cords. All you have to do is spenda little time there and you see that he is presenting REAL information-- who are you going to trust--Condi, who says D.U. is not a problem to mankind--among the thousand lies----or Jeff, who covers both sides of everything.
This is depressing to me--- Bushco has recently created Exec. orders limiting what "product" scientists can review openly--everything is now subject to censorship. 911 is but one tip of the iceberg
One by one our Bills of Rights has been trashed by the criminals in office--PERHAPS centered around those who are Zionists and support and create our wars--Rense was shut down because he reports this, I fear.
I hope some of you reading this share my feeling that this is the straw that turns me from an observer to an activist--pension be damned.
"Shag" Spencer, Captain, USN (ret)

I'm going out of town for two weeks. I won't be online for a bit.
Didn't want anyone to worry.
Dana

I had to take a two day break from abx for the fungal issues, it seems
to be just what the doctor ordered as far as getting back to my normal
self and dealing with the fungal infection. The stridor in my throat is
gone and it's not swollen anymore, and I seem to be back on track.
I may just have to do the abx in two week courses with two days between
to recoup from the yeast when it takes over. I'm still seriously
considering the fenben, but I want to wait until I have more 'manuever
room' in the rest of my life, like when I'm done moving and know I can
afford it more easily... Anyways, I'm just glad it's looking up again.
Dana

Me too, Zip and Janet have been gone for awhile...
Will be thinking about you guys!
Dana

The ones I see are predominantly a dark blue, and very thin, and
crimped looking. And I held one last night for a long time because it
DID wave and twist in the light. I held my breath and the A/C heater
was off, but it still moved. It could have been due to air currents I
couldn't feel, because it was so small. WEIRD.

Its good to have Rita back. I wonder how is Janet doing, her last post she mentioned that she was sick. I hope she is okay, same goes for Zip and the other.

God bless us all

Anyway the weirdest thing just happened to me, yesterday i have noticed some fiber like gray/white hair(wait too thin to be hair) about 2 inches long and they are growing out of my skin. Well, well no surprise there, its about time i get deal with fibers (or fake hair).
maureen leary <morgellonsmoe@...

Hi Tony re read my post , I was agreeing with you

I, for one, am glad that you are not allowing peddlers on this forum.
I did not look at the references that she gave as I just tend to skip
past forum posting that is so disjointed and rambling. It seemed like
such a passive/aggressive and controlling sort of approach.
That person was asked to leave another forum a long time ago, though
she may have problems and I do feel pity.

I know we all get a little cranky, occasionally. It's probably the cold
weather. Does Morgellons affect e-relationships?
Please, find it in your heart to forgive each other.
Rita

sos gone. she's been talking up this product from the beginning.
go to that site. lower left person in the company is maureen.
Rita

There is no comparable products when it comes to all the products Meleuca manufatures I looked ! go to meleuca.com and look at the products if you do not berate me I will give you my number and help you get set up as a preffered customer ..I Run from arguing ok? Moe
http://www.momexecs.com/cgi-bin/team.cgi?id=Ma55539&action=show

http://melaleuca.com/

danacantstop <danacantstop@...

Can you look on the lable and tell me what specifically are the
active ingredients. I can't be a meleluca customer, I don't have a
credit card, don't purchase online and it'd be a bitch to get one,
but I can find comparable products myself if I know what is IN them.
Thanks so much,
Dana

OK forget my number
danacantstop <danacantstop@...

Moe, I myself may risk being called rude here, but you've been a
little condescending and increasingly abrupt. I am about the most
tolerant person I know, I have tried to give you the benefit of the
doubt, and still, I am appalled at some of the responses you've
given. Tammy was right, it isn't what you say, but how you say it,
and that you've taken the attitude that you know better than anyone
else what to do. You rarely take the time to really listen and
haven't bothered to remember the details about the people here that
pertain to the responses you give, causing us all to repeat ourselves
in our own defense. Again, it's not what you say, but the attitude
with which it is said. It's like you are less interested in helping
than in being right. I think you have some great information, alot of
it I agree with, but forcefeeding it will not help anyone.
Please don't jump to the defense here, I think your input is
valuable, just hard to take at times. PLEASE, slow down, think about
what you say and how others will interperet it. Debate is fine, it
leads to growth, but only when handled tactfully, openly, and
respectfully. When you argue with something another person has said,
it's good to give some details that support your veiws, and remember
to remain open to the possibility that you are wrong, because it
happens to the best of us.
Remember that we are all learning and dealing, and try to present
your ideas in a less forceful way. You'll find people are much more
receptive to gently stated wording than to the approach you generally
use. Try saying, "I think this... because of this..." and ask "what
do you think?" That lets people know that you care about their
opinions and are willing to bend if you need to. Right now, the veiw
I have of you, though I'm fairly certain you aren't really like that,
is of an egocentric control freak. A little caution in the manner in
which you state things could change that.
This can't be easy to hear, I know, but understand I say it with
compassion and concern, and not to attack you.
I say these things because I do care greatly about this group and all
of it's participants, and I'm seeing a trend here in the way others
react to you that, if you work on it, could really better the
interpersonal relationships you have outside of this group as well.
Remember that you, too, have miles to go, and much to learn.
Dana

I just saw a thing on casey on history channel the other day. All of that is accurate, I beleive. I think he also made prohpetic readings of some sort about the future? would be interesting to know.
patram81 <patram81@...

A very long time ago, I thought they, or someone affiliated, was
going to build a file or website with all his remedies, and for a fee
a person could access the info.
I have also heard that Cayce remedies were given as specific to the
individual making the inquiry, and not as general medical advice fo
the public.
I have not studied this stuff, myself.
What I do know is that the man was a devout fundamentalist Christian
who had very limited education and was employed as an unskilled
laborer of some sort.
When he fell into these 'spells' he had no awareness of what 'he' was
saying. A person would take notes for him and read back the session
proceedings after he awoke.
When he found out that different disincarnate persons of medical
training were speaking through him, one I believe, an Egyptian doctor
from the past, it blew his mind.
He first thought it must be the devil, or some demon because that was
how he saw life through his religion.
After so many people were praising God and thanking him for their
healing, he had second thoughts, and figured it must be a good thing
and continued with his readings.

Bugman offerred to do it for ten bucks...

I had those little fruit fly like monsters too ( but unlike fruite flies these BITE!I just posted about them I call em "morgie flies" cause no one has been able to ID them yet , see why we all need to suportt reserch? we would have somewhere to send these specimins
danacantstop <danacantstop@...

Ummm... THAT may really be worth looking into. I lived maybe fifteen
miles from U.T. at the newly dubbed "apartment of the gnats" and they
DID look almost exactly like fruit flies, but smaller.

I am only qualified to share that anyway . I am no scientist or doctor , but many of those in that profession Have this too , I am simply sharing my experienece if you choose to copy or not copy thats an individiual choice . I was excited , Thought people would wanna know how I got better.I did and still use the grapefruit seed extract . This is my experience . I share this hoping someone will catch on to ALL the things I do .The critisism of me being somewhat rude is not what I am intending . Symply sharing my experience here in the hopes youll get where I am ... all I can do is share what got and keeps morgellons outta my life . If it helps GREAT if not then at least I shared thats all
patram81 <patram81@...

Thank you for saying that, Wendy.
Grapefruit products are really BAD with a LOT of drugs. I even check
out the citrus bioflavenoids in some vitamen C.
I got sick on this once, and am very, very careful.
In fact, I now take powdered C with no additives and totally stay away
from the GSE, though it is a really great product.
I don't know how long it stays in the system.

Hadn't seen you for awhile, figured you were sitting back and watching
the fray, but still wondered if you were okay.
Glad to see you are still here.
Sorry for the mess.

Hi Rita !! thanks
ritainthelibrary <ritainthelibrary@...

I'm Rita, the owner of this group.

I'm Rita, the owner of this group.

OH but I have such a hard time keeping my mouth shut... too late
perhaps, but from now on... I will certainly TRY. If I see an obvious
misinformation, I will correct it, however. I think there is enough
misinformation out there to confound us for decades, without leaving
minor things, like the fenben, unnoted.

Please, we do have to help each other here.
I am asking that we should try to ignore posting to people who we
think may be beligerent. And just don't respond to them. We don't
have to like each other to learn from each other.
I see information here that I believe to be out and out lies. People
sometimes say things just to make their own egos feel good. I could
look up scientific commentaries on the web to refute those
statements, but in reality, we are responsible for researching any
advice we get on forums before trying it, so the reader really has an
obligation to beware.
Sometimes we need a good laugh, too.
And it is true, that we just mull this stuff over and over and over
in our minds and drive ourselves to be just oh, so serious about
everything, that we don't need anyone to drive us nuts, we do it to
ourselves.
Let's just try to lighten up a bit, kids.
Rita is the forum manager here. I am sure that we all hope she is ok
because we have not heard from her for a bit. Hopefully, she is
having a good laugh at all of this.

Moe, I myself may risk being called rude here, but you've been a
little condescending and increasingly abrupt. I am about the most
tolerant person I know, I have tried to give you the benefit of the
doubt, and still, I am appalled at some of the responses you've
given. Tammy was right, it isn't what you say, but how you say it,
and that you've taken the attitude that you know better than anyone
else what to do. You rarely take the time to really listen and
haven't bothered to remember the details about the people here that
pertain to the responses you give, causing us all to repeat ourselves
in our own defense. Again, it's not what you say, but the attitude
with which it is said. It's like you are less interested in helping
than in being right. I think you have some great information, alot of
it I agree with, but forcefeeding it will not help anyone.
Please don't jump to the defense here, I think your input is
valuable, just hard to take at times. PLEASE, slow down, think about
what you say and how others will interperet it. Debate is fine, it
leads to growth, but only when handled tactfully, openly, and
respectfully. When you argue with something another person has said,
it's good to give some details that support your veiws, and remember
to remain open to the possibility that you are wrong, because it
happens to the best of us.
Remember that we are all learning and dealing, and try to present
your ideas in a less forceful way. You'll find people are much more
receptive to gently stated wording than to the approach you generally
use. Try saying, "I think this... because of this..." and ask "what
do you think?" That lets people know that you care about their
opinions and are willing to bend if you need to. Right now, the veiw
I have of you, though I'm fairly certain you aren't really like that,
is of an egocentric control freak. A little caution in the manner in
which you state things could change that.
This can't be easy to hear, I know, but understand I say it with
compassion and concern, and not to attack you.
I say these things because I do care greatly about this group and all
of it's participants, and I'm seeing a trend here in the way others
react to you that, if you work on it, could really better the
interpersonal relationships you have outside of this group as well.
Remember that you, too, have miles to go, and much to learn.
Dana

Wow... This is getting deeper and deeper.
I did live in a 'chemtrail area.' But this was after I got Morg.
I don't know about austin, where I lived before that, cause I'd never
heard of a chemtrail and likely wouldn't have thought anything of it.
When I was in AZ, I saw the sky criss-crossed with HUNDREDS of them
in a grid like pattern. They are thicker than contrails and don't
dissipate as quickly, and it DID really freak me out...
It's so conspiracy-nut grey, though, that I can't think what I could
constructively do with the information. Not you, daisy-bean, I mean,
just the issue is so laden with pitfalls that I hesitate to think on
it too much. That and it scares the bejeezus out of me. There are so
many unbeleivably large obstacles already daily battles for me...
You seem to be getting somewhere with it and have given me some ideas
as to how to approach this one. I'll be singing the arm and hammer
song while I clean house from now on, I think.
Dana

I just put the pictures on the board here. One change in the theory is
the hand. The thread in water may be bacteria or fungus that the
helicopterbug eats. I'll post a picture of the hand. WTG

Is this the Soupy Sales Show?

Nadie
maureen leary <morgellonsmoe@...

I notice once again we have all forgotten where our help really is . And Like I was.. in this , we are all simply looking to just eachother for answers that only the reserchers can locate .

Now WE ( Including me ) have to make choices 1) Keep hoping one of us without an electron microscope or a million dollar lab will find an answer
2) support the only ones equipt to find the answer that will lead us all out of this hell .
Please make a donation ? we have supported everrything else and begged doctors to do the impossible "Fix this" when they infact are probably just as frustraited with us and this as we are ..http://morgellons.org/ its a paypal donation you can remain anonomous !! MOE

Looking under the microscope and comparing photos to the Morgellons
Disease they seem to appear one of the same. As I have experimented
on everything in the house and yard. It appears these are literally
everywhere. I did some research. Looking at items like paper etc. I
found that they are made up of cellulose. A living organism which is
very diverse in it's applications. Excellent reading on this
subject. Also known as a polymer. These tubelike structures under
the form of Polyelectrolyt. This molecule structure allows absortion
of liquids, also it can bind the molecule so as they are strands or
webs. Therefore could this not be one of the delivery systems as to
the dissperion of the cellulose {fibrils as we have called them} In
the photos on the site at flickr for coloradolesarae she has shown
how they the clear ones Fibrils start to fall apart after the
snowmelt moisture has evaporated. This also was my same findings.
Now the red and blue fibrils we notice they stay together in shape
and form. Also hollow could these carry liquids also. With the
polyelectrolyt these can have ions charged so will this not help to
move or push the moisture. Just thoughts on some of the information
I read today. Looks definitly like the fibrils are the same as
Morgellons. But then again why, the more we can connect the dots
then maybe we can finish the puzzle.There are some great sites to
look up the Morgellons and see how that when we speak of Chemtrails
that this is one of the same as far as I see it. Yes my wife thinks
I'm off the edge till I made her look at the stuff in her nose. Now
we are both trying to grasp what we have seen, the horrible time it
has been going on, and my word, how in the name of what is good can
we stop this madness.

Steroids main effect on the body is they shut you immune system down .. I have tons of experience with these drugs . My neurologist would put me on IV steroid treatments when I woulds suffer an MS exacerbation to shrink the holes ( MS LEGIONDS) in my head That's a good thing BUT he told me NO if I caught an infection because he said steroids will deplete your immune system and make you susceptible to any infections . See the dilemma?
danacantstop <danacantstop@...

When I took prednisone, I felt better physically for a day or so,
looser muscles, more energy, but my skin swelled, hands had purple
lines running across palms, ankles and feet swelled to the point I
couldn't walk, and yes, it seemed like the morg took off at rocket
speed. I itched and felt crawling and BIG lumps move under my skin
constantly. It didn't help the infection I had and ended up on abx
after d/c-ing the prednisone anyway. Not to mention that steroids are
notorious for causing mania in bipolars, which we seem to have a lot
of tendencies towards. I wouldn't risk it again, I don't think.
Theres a warning on the bottle that says, 'may lessen your ability to
heal/fight infection, may increases susceptibility to fungal
infection'

Today, annual producton of Melaleuca alternifolia oil exceeds 300 million tons. Melaleuca alternifolia oil is sold worldwide by direct marketing companies, health food outlets, and is used by dozens fo other companies as ingredients in a variety of cosmetic and personal care products. Many different factors have converged that have led to the growth of the tea tree oil industry.

First, over the past decade, extensive research has been performed on 100% Melaleuca alternafolia oil, and the results have been amazing. Tea tree oil has been shown to be an effective treatment for cuts, burns, and abrasions. Tests have also confirmed its effectivenes in treating acne, dandruff, a variety of fungal and bacterial infections, boils, and numerous dental problems. As a result, more and more doctors and dentists are using tea tree oil in their practices and recommending it to their patients as well.

Second, there is a growing concern over the excess use of synthetic chemicals in today's society. Modern chemicals have been linked to cancer and birth defects. Many modern medicines don't work or have too many unwanted side effects. Natural products are no longer being viewd as absurd or backwards. Educated consumers are actively seeking natural ingredients for medicinal and cosmetic purposes.

Third, growers in Australia, in conjunction with the government, are actively seeking new and more efficient ways to produce higher quality oil. Growers are now producing oil with over 40% Terpinen 4-ol and Cineole levels at 3%. Breakthroughs in genetic engineering have opened up new avenues of research. To ensure the future of the tea tree oil industry, a multi-million dollar research facility has been established at The Souther Cross University in New South Wales (Australia). The center, known as the Australian Tea Tree Oil Research Institute (ATTORI), is entirely devoted to discovering everything there is to know about Melaleuca alternifolia oil. Everyone from growers to sellers, is actively involved with improving the tea tree oil quality.

Although tea tree oil has become quite popular, some words of caution need to be shared. In 1996, the International Standards Organization (ISO) drafted new specifications for "tea tree oil". The Terpinen 4-ol and the Cineole levels remained identical to the Australian standards set in 1985. However, the ISO

made it possible for other species of Melaleuca tree oil to be sold as tea tree oil, even though "tea tree oil" had been synonymous with Melaleuca alternifolia oil since the 1920's. No other species of Melaleuca tree has an essential oil as powerful as the Melaleuca alternifolia tree.

Today, even the American Tea Tree Association allows blended oil to be sold as "pure tea tree oil". It is important that you make sure you are purchasing a good quality of 100% pure Melaleuca alternifolia oil. there are a few good companies that guarantee the quality and purity of the oil they sell. Check the label. If it doesn't have at least 35% Terpinen 4-ol and no more than 10% Cineole (the 1967 standard), don't buy it.

Source: RM Barry: The Melaleuca Quick Reference Guide

We are infectious, gut feeling, but not as transmissable as you'd
think. Morg SEEMS to be a multi-faceted co-infection syndrome, and
seems to be highly opportunistic. At any rate, you have to live, and
beyond taking reasonable precautions to cover affected areas from
contact with others, like not bleeding on their towels and such, what
more can you do? You can't totally isolate yourself, my son still has
to attend school. I worry about it, but I can't let it define my life,
because I have no idea how it's spread, anyway.
I FEEL like a leper sometimes and don't want social contact, or to go
to the grocery store for that matter, but it has to be done, life has
to be lived.
Ummm. Sex, yeah, that's a toughie, sometimes I just feel too crappy to
think about it, but we make up for that later, when we feel better.
Hubby has this too, though not as bad, and we both go through 'don't
touch me' phases, so we make up for it by exchanging massages instead
to loosen tight muscles and remind us that we are still in love.
I think SOME kind of intimacy with another human being is really
important, we all have a need to be touched and loved.
The sex drive thing does come back when the morg is less active.
I think I miss that more than anything else.

This group has always been really supportive since I have joined. There
are some great people here. I haven't seen as many of them lately,
though. We seem to be having some issues, and certainly if I am causing
any of them, let me know. This group is not as willing to go 'out
there' as far as some. A lot of us are scared to death of being labled
insane, and so we just have a line we won't cross. We remember that our
eyesight is deteriorating, our brains and the tissues around them swell
and don't get good blood flow, and we PANIC. When I feel like that,
I 'see' things waver and move in time to my pulse as the blood pounds
through the retinas. I can't explain all of what has been reported by
morgies, but a lot of it COULD be just due to the things I listed above.
Look, I KNOW, if I say the morgies are twisting paper towels to taunt
me, that I will never have one IOTA of credibility, EVEN IF THEY ARE.
So I don't go there.
It's not that I don't beleive you or want to patronize you. Not at all.
In fact, I'm really concerned about the similarities in the stories
that have been posted that I find hard to swallow.
I just don't know what to think about it at all, because that
particular thing hasn't happenned to me. I can only offer you the
support and knowledge that I HAVE TO GIVE, and in my experience it has
been intra-ocular pressure that has caused similar problems. With
increased intra-ocular pressures, we worry about increased INTRACRANIAL
pressure, which can flat out cause psychosis.
This is medical fact. This is not insanity, it's a medical issue to be
adressed, in my opinion.
I love and support all of you, however I can.
Dana

People have good days and bad days, and Morg seems to make people have more then the average of bad. I try very hard to ignore the bs and find the jewels of information. There is another group called finding1cure then is very helpful. All the best dear, Barbara
Moe, are you the owner? I'm just wondering if this is why you get by with being so nasty. I'm not this desperate to stay in a group where there is so much rudeness and hurtfullness. Hey folks, is this group always this way or are we going through a bad time?

Tammy

Make it a Great Day!

Hugs!

Moe

sent from a friend forwarded to ya'll

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Moe, are you the owner? I'm just wondering if this is why you get by with being so nasty. I'm not this desperate to stay in a group where there is so much rudeness and hurtfullness. Hey folks, is this group always this way or are we going through a bad time?

Tammy

WHAT IN THE HECK IS GOING ON? You need an attitude adjustment! I just read about this last night and saved the email as I am planning on making this donation. I am sick of these RUDE EMAILS HERE!!! You know the saying...you catch bees with honey and flies with vinegar? You are not doing any justice to the Morgellons cause with this attitude! Stop trying to control people and life will be much better.

Tammy

In a message dated 2/8/2007 9:21:08 A.M. Mountain Standard Time, morgellonsmoe@... writes:

I notice once again we have all forgotten where our help really is . And Like I was.. in this , we are all simply looking to just eachother for answers that only the reserchers can locate .

Now WE ( Including me ) have to make choices 1) Keep hoping one of us without an electron microscope or a million dollar lab will find an answer
2) support the only ones equipt to find the answer that will lead us all out of this hell .
Please make a donation ? we have supported everrything else and begged doctors to do the impossible "Fix this" when they infact are probably just as frustraited with us and this as we are ..http://morgellons.org/ its a paypal donation you can remain anonomous !! MOE

I've also read alot of his books. I remember he recomended almonds very often for healing. It would be very cool for you to check on this - Thanks - All the best, Barbara
Roma Webster <romawebster@...

Barbara...Edgar Cayce was from the town that I live in...Hopkinsville, KY...he still has a lot of family here...I read some books on him, but can't remember about all his remedies...but I will see if I can find out anything...Roma

I notice once again we have all forgotten where our help really is . And Like I was.. in this , we are all simply looking to just eachother for answers that only the reserchers can locate .

Now WE ( Including me ) have to make choices 1) Keep hoping one of us without an electron microscope or a million dollar lab will find an answer

2) support the only ones equipt to find the answer that will lead us all out of this hell .

Please make a donation ? we have supported everrything else and begged doctors to do the impossible "Fix this" when they infact are probably just as frustraited with us and this as we are ..http://morgellons.org/ its a paypal donation you can remain anonomous !! MOE

The first year with this I ran from place to place and then di not get near another human being .. My mentalhealth deterirated to contant suiside thoughts doing this .

I them made up my mind to do whatever it would take to get better ( didnt even think that was possible)

I began to copy others that recovered and did what they did ( in the beginning I didnt use common sence I had none left Nothing was real to me . what people told me was always in question . So I jusrt surounded myself with positive morgie friends . On the phone .

I still do today what got me better cause it keeps me better .

Is this sexually transmitted? I dont know so I dont go there ( im single anyway )

Is it in the blood supply? Probably so I dont get any

Is it in the water ? Probably cause we all flush and if you dont know what an organism is you cant kill it ,, no matter how many filters I buy for my fauset and shower ! so I only drink bottled water , and I dont go niuts trying to fiilter all my fausets anymore

I just got my common sence back

The products I use in my life now from brushing my teeth to cleaning the bathroom are so concentrated I save Hundreds a month buying them . i was of the mind set that I needed quarts of this that or the other thing . These products are Not like that . I am fighting nature with nature and its gotten me better ...Just copy what works Thats common sence Moe
justumn <justumn@...

My experience with this was hellish . I

did not see one solid human being for one year.

This mentally about killed me. I stopped isolating except for elderly people and children all others were going to catch it anyway without my help I thought , shoot I caught it alone .

I then began to do as other morgies did , only following what worked and not copying what was not. I do most of the things today that got me better so I stay better.

Is this sexually transmit able? I donno so I do not go there

Is it in the blood supply?

Probably so I dint get any

Is it in the water?

Probably cause we all flush and no one knows what it is so how can you tell me the water is safe?

I onlydrink purified water in a bottle now. If it could be a contaminate I just don't go there and I don't put myself through hell arguing with myself or other recovered people I'm just using my common sense .. if they are better copy them.. if they are not .. don't real simple ya know ? Moe

Am i still contagious perhaps sexually? don't know so I dont do that.. Moe

That was about the rudest thing you could have said...did it make you feel
superior to say something like that? It shouldn't have...

let me ask you .. If you had stuff flnig off you. if that stuff landed on another person and they became sick with say phumonia is that concidered contagios?
justumn <justumn@...

What has been your experience and, or your gut instincts? Are we
infectious?
How has morgellons affected your work or social life? Hell, I want to
know, do you have sex? I have not kissed or had sex with my boyfriend
since my skin erupted. I just would feel too awful if he got this.
What say you?
shirley

What has been your experience and, or your gut instincts? Are we
infectious?
How has morgellons affected your work or social life? Hell, I want to
know, do you have sex? I have not kissed or had sex with my boyfriend
since my skin erupted. I just would feel too awful if he got this.
What say you?
shirley

Barbara...Edgar Cayce was from the town that I live in...Hopkinsville, KY...he still has a lot of family here...I read some books on him, but can't remember about all his remedies...but I will see if I can find out anything...Roma

hey guys. for all it is worth i would like to tell you about apple
cider vinegar. i don't hear anybody talking about stomach
disturbances. i get very BLOATED after i eat anything. the docs say
it is my crohn's but i know the difference between having stomach
probs due to crohn's have had it for 23 years and this new kind of
bloating which started about 2years ago along with alot of my other
morgellons sypmtoms. anyway.......early in the morning before i eat
anything i put a capfull of apple cider vinegar in some water, about
a half a cup, but i don't think it matters how much, and drink it of
course. this helps with the bloating. amazingly. also have you
heard about oregano oil? it is supposed to be anti-bacterial anti-
fungal and anti-viral. it is worth a try. i'm taking that too. in
the morning in some water. so far i'm certainly not any worse. i
know all of you are trying your best to eat healthy. there is also a
way of eating from the natural hygiene society. it tells you how to
combine foods from different groups. eg. you eat protein with
vegs. and vegs with starch. sweet fruits with semi-sweet ones and
not sour ones. i don't really know any websites but you can try look
this up. why all this on digestion? well with the crohns in my past
thats all i have been interested in but......i find that if you keep
you bowels clean, with less bacteria,especially not eating at
night...the bacteria comes up from your stomach and sits in your
mouth and so adds to the rotting teeth problem.. oh and we all love
coffee and chocolate -a man from the canadian morg society told me
that caffeine products stimulate the itching biting feeling so you
might give that a try too. i did and it helped quite a bit. i
should take my own advice hahahahahaaaaa let me know!

OK..

I just donated ten dollars to the MRF through a private paypal one time thing .I challenge everyone to do the same ( I am on a fixed income so no excuses here ) Lets see whos going to join in? Moe puleese??????????????

http://morgellons.org/contributions.htm

I'm already doing both, yes it DOES help. I'm still getiing slowly
worse. I really need to add a serious antifungal, but don't want to
without a doc. Some of them can be nasty. So I'm going to wait till
my hubby is back in town from work (tonight, hopefully) and TRY the
docs one more time for yeast, see what they can do. If all else
fails, I'll try the fenben I guess.

wow, wouldn't want you to see a picture of my floors!

Go to radio shack or online and get a handheld lighted microscope .. look at your skin thoiugh it . You may see red, blue fibers perhaps black and even black spots in your skin .. Hope not though .. but sounds like you may http://catalog.miniscience.com/catalog/optics/pocket_microscope.html you can get one offline here . I got one, and wow the docs say now
patram81 <patram81@...

I have not had fibers.
Terrible biting (a long time ago), and many other things, but not
fibers.

I was so infected July of 06 in my mouth that I had to blend my food to eat .

I began to brush my painful mouth with pure baking soda , rinced it out with hydrogen peroxide sometimes 5 times a day..( the cheep at the store kind)

Took a week but it all cleared up.. shoot I looked and felt like someone poured Acid on my face! hope this helps Moe
danacantstop <danacantstop@...

Just for the sake of commenting because I have no clue what it really
means, but I once cut one of those white lines inside my cheek. It
was attatched to the lesion at the corner of my mouth and ulcerating
the skin just inside my cheek. I was trying to pull it out, but
accidentally severed it with the tweezers instead. The side that lead
back toward the mandibular junction receeded a centimeter or so,
under the skin and toward the jaw, and the severed end curled up,
visibly, beneath the skin covering it. I don't know what that means,
but several times I have seen/felt things like this move in this
manner, in response to my messing with it. What is it, I don't know.
I keep trying to talk myself into thinking it's just bacteria, it's
just fungus, it's not REALLY a worm... maybe I'm wasting my time
doing that. I am so scared to try those drugs. I'm REALLY sick by
now, and I'm afraid the strain is going to be too much for my
overloaded kidneys and liver to handle. I WANT A DOCTOR. I cannot do
this by myself. I don't know what I'm doing, can't get labs to check
for liver/kidney function... It's like someone handed me a scalpel
and said, ok, tomorrow you're a neurosurgeon, better study tonight!
The more I learn, the more questions I have. I'm not finding answers,
only more questions, bigger questions. I feel like I'm headed off the
deep end no matter how hard I struggle to stay sane, competent. I am
WAY out of my depth here, just in trying to treat myself. Soon, I'm
going to have to deal with not being able to treat my son, either,
because he's getting pretty bad. Last night when I tucked him in I
saw the purple and red varicosities had started around his ears and
on his neck. Last night my throat swelled so badly I could not
swallow anything solid, it wouldn't go down, which meant I couldn't
swallow the antibiotics. I had to skip a dose. I need help and I have
no clue how to get it. Letter writing is all well and good, and I do
that, but I need help NOW. We are living on one income, not even
enough to pay all our bills. I HAVE to go back to work. I can't get
anyone to seriously consider me as a candidate for hire because I
look terrible, open sores on face and such. I can't get a doctor to
agree that I'm sick enough for disability, can't afford to see them
often enough to even try. I get better for a few days in response to
various treatments, but can't possibly afford to keep them up unless
I'm working. Adding prazi and fenben/ivermectin is an impossibility
financially, and from what I understand, would cause things to be
worse at first, and keep me from working until they had a chance to
kill some of this off, for weeks maybe months... Something HAS GOT
TO GIVE, NOW, or it's all going to come crashing down.
For those on disability, how did you get them to declare you
disabled, for pscyh or medical?? I tried the bipolar angle a year
ago, thinking if they thought I was bad enough mentally, I'd get
health insurance and SSI, to help. Apparently, I wasn't bad enough.
I have seriously considered going to the E.R. freaking out like a
nutcase and telling them ALL about the fibers and stuff, enduring
hospitalization and psych meds, just to get some help with health
insurance and income, but I really don't want that.
AHHHHHHH!
Dana

I said it before Ill say it again .. Steriods in anything Exaserbate Morgellons!

Corisone is a STERIOD!

You dont HAVE bugs the BUGS are ATTRACTED to you due to the MOrgellons .

The Morgellons appears to attract every fying insect known and unknown to man.

When I cleared up the Morgellons ,the bugs no longer followed me ! I keep a bug light and or lighted fly trap in my home though and sometimes Ill catch a "Morgie fly"

The Morgellons appears to be fungal and bactirial in nature .

Bugs are attracted to BOTH. Kill the morgellons and the bugs will leave you alone .

The demotologists use cortison for everything ( They are really over paid if you ask me .

Monitate cream works better and the althetes foot spray too . Moe
ssmileyface <ssmileyface@...

so i went to the dermatologist today for the warts on my feet as well
as my latest crop of bites. i told him i didn't use the scabies cream
because i don't have scabies. so he said ok. what your opinion on
morgellons i asked him....so you guys know the answer. its only a
delusion. well these bites aren't delusional.....anyway so he said to
use this cream that has cortisone and bug killer in it. isn't it bad
to use cortisone becuase the bugs could spread?

I looked into that photo albulm. It looks like your house needs a good
cleaning!!!! Looks like spider webs, cob webs, insect bodies(caught and
sucked dry by spiders), and the picture concerning the kitchen
floor????? That is definately a rip, torn by something like a
refridgerator. The tunnel spider web is exactly what it is .... a
spider web made by a funnel or tunnel type spider. Their webs ar
different from other forms of spiders. Instead of taking pictures I'd
recommend you take the time and clean.
What can I say????
Wendy

I've had nothing but bad from steroids, prednisone specifically, but
would extrapolate that even topical cortisone would increase
susceptibility to infection, fungal especially, and once you quit using
it, lessens your ability to heal, temporarily. Hope that helps.

I was forced to go to them per DSS in reference to my son .
I brought my handheld 30X lighted microscope with me in my purse. While I waited for my appointment in the waiting room I located a blue fiber ( only able to see it with the microscope ) and remembered where it was .
Went to see the court ordered councilor ...
I sat down and calmly and as a matter of factually stated . "Before we get started I have something real bizzar .. ( she had a computer that was on line at the time in front of her) will you please go to morgellons.org on the computer? and read the symptoms please?"
She did so ( I had NOT shown the fiber yet OK? )
After she looked at the bizzar symptoms I said now ya wanna see a fiber? "
She said "OK"
I said "look" prompting her to look inside the scope .."pretty bizzar ey? " I said
I continued .. " If you had a client that sat at you desk complaining that something was bit ting them along with the other symptoms you have just read about , what would you conclude? "
She said " I would call that person delusional"
I said now you know my delema ..
She became my biggest ally in my journey with DSS and gave the PHYSIOLOGIST a heads up before I saw him .. that turned out to be the agency that stayed in my corner
(I stayed calm.. talked in an as a matter of fact way.. did not freak out and gave them no reason to conclude that I had anything else but Morgellons .
Hope this helps MOE

so i went to the dermatologist today for the warts on my feet as well
as my latest crop of bites. i told him i didn't use the scabies cream
because i don't have scabies. so he said ok. what your opinion on
morgellons i asked him....so you guys know the answer. its only a
delusion. well these bites aren't delusional.....anyway so he said to
use this cream that has cortisone and bug killer in it. isn't it bad
to use cortisone becuase the bugs could spread?

I agree ,,with most of what you write. My recovery did not begin until I stopped going top doctors

Like you said they are only going to further my medical record into the delusional thing. I knew what I had and 14 doctor's opinions( based primarily on my records that followed me everywhere ) didn't change that I was sick .

Going to doc to doc only kept me sick , cost me money and sanity. So I dove into supporting and gearing others to get better by copying what others did to get better. I geared myself toward being part of the solution Ranting to support the Morgellons research foundation because research is the only thing that will validate this! someone has to name it with some clout ! Like the aids virus was until it was FOUND and named .

I do not have the million dollar equipment to find this thing . Researchers will only get that equipment if we donate the do ra me to them . I had to make a choice .. continue to do what I was doing ( was only getting me sicker and more terrified ) Or put my mouth and small pennies I had left into hand that can find and name this . Moe
I was just thinking of this the other day! We need to stop bringing fibers and our stories into the psycho docs! Why waste your money and time only to be called delusional? I'm telling you, I'm at the end of my rope with docs! I've had so many health problems that I had to find out on my own and they just don't listen or care. DONE!!!

If you want to go in to a doc this is what I would suggest. Bring something with you that makes these blue fibers come out of your skin, oil or whatever cream you have that works. Put it on in front of the QUACK and ask him or her WHAT IS THIS??? It hurts and I have never had this before. All in a nonchalant way. They'll either ignore it or hopefully freak out inside. [INLINE] Then ask them if they could please find out what this is and get back to you. This would work well if the fibers were real big.

Either way, DON'T PANIC! The docs love this. You don't have to prove to anyone you have morgellons...you know your body better than anyone else.

Moe, I've read your frustration re: people not doing anything. I'm a fighter and a go getter but I feel awful right now. I think that may be other's situations also but we all have different personalities and it is what it is. Why worry about what everyone else is doing? I think it's a waste of energy. JMHO!

Tammy

Add to that the brain fog and you have a good picture. I'm afraid to
write to anyone when foggy because I might make things worse by
sounding that way. I do write as many letters as i can when i'm not
though.

dude, you're serious aren't you? SH*T. The first time someone posted
pics of twisted paper towels and curtains and stuff (I apologize to
that person now) I thought it had to be that brain fog and panic had
temporarily pushed that person a little over the edge. I have a
really hard time with that. I can't imagine bugs would twist paper
towels to taunt someone. It sounds NUTS. Why then, are so may seeing
this? This is concerning, but I'm listening now... Because like ten
people have separately posted similar things and not in response to
one another, but each time isolated postings.
WHAT is this about?
I don't even want to think about it.

I was just thinking of this the other day! We need to stop bringing fibers and our stories into the psycho docs! Why waste your money and time only to be called delusional? I'm telling you, I'm at the end of my rope with docs! I've had so many health problems that I had to find out on my own and they just don't listen or care. DONE!!!

If you want to go in to a doc this is what I would suggest. Bring something with you that makes these blue fibers come out of your skin, oil or whatever cream you have that works. Put it on in front of the QUACK and ask him or her WHAT IS THIS??? It hurts and I have never had this before. All in a nonchalant way. They'll either ignore it or hopefully freak out inside. [INLINE] Then ask them if they could please find out what this is and get back to you. This would work well if the fibers were real big.

Either way, DON'T PANIC! The docs love this. You don't have to prove to anyone you have morgellons...you know your body better than anyone else.

Moe, I've read your frustration re: people not doing anything. I'm a fighter and a go getter but I feel awful right now. I think that may be other's situations also but we all have different personalities and it is what it is. Why worry about what everyone else is doing? I think it's a waste of energy. JMHO!

Tammy

In a message dated 2/7/2007 4:34:31 A.M. Mountain Standard Time, morgellonsmoe@... writes:

Yes go into the doctor as a parent without any knowledge about anything ! Let the doc make his own conclusions , do not ask for anything just shut your mouth ( I tell myself to apply duct tape and it works ) The doc already knows what drugs treat acne he doesnt need our help .. If u get it GREAT! Moe

tony, buy her some acidophilus too, at least, the fungal gets BAD
after abx for awhile, maybe it will be enough to prevent it for her.
If not, take her BACK to the doctor, still don't mention morg, but
say maybe the abx caused yeast, they can go with that, and treat that.

ME TOO! I was thinking about this for the last few days. I adressed
the bacterial with abx and it HAS improved a LOT of the symtpoms, BUT
SOME have GOTTEN WORSE!
Here's the list:
better on abx:
muscle pain and weakness
jaw pain
sinus pain and congestion
overwhelming fatigue
loss of appetite/ weight loss
Heart palpitations
Breathing difficulties
worse on abx:
sores/lesions
fibers much more prevalent
granules and splinter-like filamentous structures
itching and feeling 'poked' by above splinters
(it's like I got into fiberglass insulation and can't get it off or
something)
Bruising, both with minor bumps and without any injury
varicosisties
Swelling of extremities
BRAIN FOG
Eye irritation and long strands of mucus containing fibers in eyes
raynauds sign (which I now think is not raynauds at all, it's patches
of dense fungal growth seen white between healthy areas, which are
pink)
Tooth decay/deterioration
So, I can eliminate the symptoms that got better with abx as
bacterial, but the rest must be fungal, or why would they get worse?
Just for fun:
It occurred to me last night,
(and this is just a speculation I followed for the hell of it, not
anything I strongly beleive or have proof of or anything like that,
so don't think I'm a nut)
that maybe the government already knows about this. It could be that
a new strain of mold has become infective to humans, possibly due to
global warming, maybe coming from south/central america. If the
government already knows about it, it would explain the supression
and discreditation going on, and the lack of CDC support. Like any
other major threat to the nation, they wouldn't want a panic and
would try to keep it out of the media as long as possible or until
handled. Maybe the chemtrails are actually an atttempt to eradicte
this, rather than cause it as others have said. I see my whole family
having the same symptoms I do, only to a much lesser degree, or
without lesions, but in some way, EACH of them has a set of symptoms
that makes me really worried that they are also growing some facet of
morg. If it's truly THAT prevalent (and I'm not sure it is), then
the entire nation may already be infected.
Okay, enough wild speculation for today.
Dana

Tony,
You don't know how RIGHT you are! The National Institutes of Health and the CDC
BOTH had their operating budgets SLASHED by the Republican Congress for the
FIRST TIME in over THIRTY YEARS!!
What's scary is that the United States will be lagging behind dismally in
medical research and technology soon, with all the budget cuts and the ban on
stem-cell research, and we have always been the country that other nations have
looked to for answers!!!
I don't know how much the cuts are affecting our research with the CDC, but just
wanted to let you know you were dead on!!
Sent from my BlackBerry® wireless handheld

E Cayce was a gifted healer. I have always wondered if there would be something in the archives to help us. If anyone has time to investigate this, it would be fascinating for all of us. All the best, Barbara
redibooks <redibooks@...

Moe,
Diabetes breakthrough
Toronto scientists cure disease in mice
Tom Blackwell, National Post
Published: Friday, December 15, 2006
In a discovery that has stunned even those behind it, scientists at a
Toronto hospital say they have proof the body's nervous system helps
trigger diabetes, opening the door to a potential near-cure of the
disease that affects millions of Canadians.
Please don't ask people to give up hope.
k

Moe,
Diabetes breakthrough
Toronto scientists cure disease in mice
Tom Blackwell, National Post
Published: Friday, December 15, 2006
In a discovery that has stunned even those behind it, scientists at a
Toronto hospital say they have proof the body's nervous system helps
trigger diabetes, opening the door to a potential near-cure of the
disease that affects millions of Canadians.
Please don't ask people to give up hope.
k

It appears that there are those who say they suffer from this hell
on earth, but yet, they must not be suffering as much as I am,
beause I am at my wits end, and I and tired. I have emailed my
congressman, the CDC, more than once, called Oklahoma State
University and corresponded to get some kind of relief, thank GOD, I
scan the internet everyday to see if there is anything new and there
never is, so I take total offense,to people,who admit, that they,
themselves have been called crazy or delusional, are worried that I
will embarrass or make them look crazy. GIVE ME A BREAK! All I am
trying to do is get some kind of help and hopefully an explanation
for what is going on. Not just for me, but for all who suffer this
hell. Like I said in my other post, I say the title, " Is a medical
problem you have causing problems with your family and loved ones?"
to be on the show, this hit the nail on the head! This is exactly
what this medical problem has done to my life, caused total
disruption and my own family to think I am nuts. I have never been
more hurt in my life, than to have the very people I trust and would
just assume that they would believe what I tell them, because they
know I am not a liar, they just think I have a mental illness. Well,
I will email the POPE if I thought it would get some action. I have
not gone into any detail about this invasion, and that is what I
call it, to Dr. Phil, I just brushed the surface. I have been
suffering from this since early last year and I have learned that I
have to be very tactful to those who do not suffer, but I thought we
were all in the same boat in this group and I could finally speak my
mind to people who understand exactly how I feel. It's sad that a
few negative people can ruin something that could be of such great
help to many. Sharon

hi;

If I sounded negative that has not been my intention .

I like you want to stop this, but only the WE can together get the loud voices heard . Alone we are left suffering like you alone .. It inradges me that as a WE group we all sit just waiting (Not you personally ok)

The group as a whole has power if we all combined do what is nessasary to get the CDC to do what they keep telling us there are doing ( They are lying!) they were invited into California last year and still sit on ther behinds doing NOTHING .. That angers me terribly! But just your letters and mine alone can't move them to action.

ALL OF US at one time are needed . understand? Call me I may have some tips that can help (( huggs )) Moe
franlanedobson <franlanedobson@...

It appears that there are those who say they suffer from this hell