Linda's Blog

no need for apologies, this person should know better what we go through. No matter how hard we try not to show, but sometimes the feeling can not be denied.
danacantstop <danacantstop@...

sorry. I try to be kind, but I'm overwhelmed today.

Sorry, it took me forever to reply. Past week was a bit of rough, i really needed to get my act together. Well i hear you Dana, how frustrating...its not like you can describe to people that you are have morgellons and expect them to understand where you coming from. Don't you think that we are caught between a rock and a hard place?(nobody understand what you go thru, except this fine group of people, but even so..). But when it comes to concerns of your love ones, that's when you have to let go of everything and make a though desicion. Well Dana i think i may have said it before here that my mom is weak in terms of watching us suffer. Ever if i manage to tell her about the morg, i am afraid that she might break down and even worse, nor i can't tell my sisters that they have morgellons(not only they have acne but also rash and itching). I mean they are just kids, and i don't want to scare them. So i am the one who has to take charge of things. i have to make up
some lies just to convince them on low carb diet, otherwise the symptoms will progress fast. I been telling myself lately that no matter what happens just stay calm.

so how is Joshie doing? i hope he is okay.

danacantstop <danacantstop@...

I wish you all the luck in the world Tony, hon, and you know I have
grown to care for you as if you were a little brother. Just in case,
try to prepare yourself for the possibility that she won't want to
hear what you have to say. I can't get either my Mom or my little
sister to really consider morg as a real disease, and MY MOM WAS THE
ONE WHO SUGGESTED I MIGHT HAVE IT IN THE FIRST PLACE. Before she
heard an interveiw about morg on Coast to Coast AM, I had never heard
of it and was endlessly searching the internet for answers. Then I
looked up morg. and and said AHA! Suddenly, my mom, who can beleive
in chemtrails and aliens, dismissed morg as soon as I said "mom, I
think this may be it." I really hope that doesn't happen to you...
but remember that when faced with the possibility of something scary
affecting their lives and their loved ones, denial is the first
response of most people. I hope you can at least convince her to put
the little ones on a low sugar diet for the time being.
Solidarity, Joshie had a sore appear last night, on his rear, and the
itching was driving him nuts...
Dana

In what capacity did you use the DMSO? Are you certain your reaction
was from the sulfur and not from the drug/substance you combined with
it? Did you take precautions such as covering the areas treated with
bandages to avoid contaminating them with environmental exposure to
other substances, which would readily absorb into skin as long as the
DMSO was active? Please don't think me too argumentative, I just want
to add your experiences to the 'archives' stored in my brain so that
I can make the best, most informed choices possible.
Thanks,
Dana

careful what we use, ohh that was hell puleese dont re envent that experiment I have it was not good
danacantstop <danacantstop@...

I did not know that dmso contained sulfur, hadn't even looked that
far into it yet. I do thank you for sharing that information. Others
have said that they have had sensitivities to sulfur as well, even
true allergies if I recall rightly. I'm not one of them, fortunatley,
and even had some reduction of symptoms while taking Bactrim (others
have said it was useless as an antibiotic for them). I'm not sure I'd
WANT baking soda absorbing as fully as it would with dmso, because it
already affects me in a pretty big way as I use it now. It might be
overkill with DMSO. I just wanted the information to be shared, and
it gives some creedence to it's use as a therapy that it's listed as
a treatment on other sites.
Keep in mind that anything that works, though, is a get-worse-before-
you-get-better kind of thing, in my experience anyway. Supressing
symptoms has not cured me, I tried that. I stopped doing things
immediately when I felt worse in response, only later to realize that
the fact that I responded so strongly to them meant it might just be
doing something about killing whatever this is off. Also, some
treatments, like abx, exacerbate other symtpoms, like the yeast that
seems to come with morg. So suppression of lesions is not a great
standard by which to judge the effectiveness of a particular course
of treatment, it's MUCH more complicated and subtle to judge that, in
my opinion. It's taken me a LONG time to learn to read these cues
with any accuracy, and still it can be very difficult.
I'm in wholehearted agreement about the steroids. They may make some
symptoms more tolerable, like swelling, and increase energy levels,
but in the end make you less able to fight infection and particularly
susceptible to fungal infection. Being bipolar, they make me manic
and insane as well, so NONE for me.

I did not know that dmso contained sulfur, hadn't even looked that
far into it yet. I do thank you for sharing that information. Others
have said that they have had sensitivities to sulfur as well, even
true allergies if I recall rightly. I'm not one of them, fortunatley,
and even had some reduction of symptoms while taking Bactrim (others
have said it was useless as an antibiotic for them). I'm not sure I'd
WANT baking soda absorbing as fully as it would with dmso, because it
already affects me in a pretty big way as I use it now. It might be
overkill with DMSO. I just wanted the information to be shared, and
it gives some creedence to it's use as a therapy that it's listed as
a treatment on other sites.
Keep in mind that anything that works, though, is a get-worse-before-
you-get-better kind of thing, in my experience anyway. Supressing
symptoms has not cured me, I tried that. I stopped doing things
immediately when I felt worse in response, only later to realize that
the fact that I responded so strongly to them meant it might just be
doing something about killing whatever this is off. Also, some
treatments, like abx, exacerbate other symtpoms, like the yeast that
seems to come with morg. So suppression of lesions is not a great
standard by which to judge the effectiveness of a particular course
of treatment, it's MUCH more complicated and subtle to judge that, in
my opinion. It's taken me a LONG time to learn to read these cues
with any accuracy, and still it can be very difficult.
I'm in wholehearted agreement about the steroids. They may make some
symptoms more tolerable, like swelling, and increase energy levels,
but in the end make you less able to fight infection and particularly
susceptible to fungal infection. Being bipolar, they make me manic
and insane as well, so NONE for me.

Maureen had a good point there.
If you have any history of mental distress, this will probably be
their focus.
THis is a catch-22. If you have Morgellons and follow your doctor's
advice, you will go to a shrink and then have a history of mental
problems.
If you later contact anyone concerning this disorder and they can
check out your backround, the psychiatric treatment will be what they
probably will focus on.
So they, unknowingly, create this conundrum.

Hi:

Just wanted to share my experience with any Sulfur products ( DMSO and MSM as well are sulfur too) I have tried sulfur products and with me they seemed to exacerbate this . Just wanted to let you know I have been there done that .. Tried Steroids as well even IV ones that put me in hell . Just wanted to let you all know this in case you ha vent spent your last red cent on these I already did
danacantstop <danacantstop@...

for some reason I had thought this site was run by a physician, but
it's actually an archive for homeopathic remedies. I don't know how
credible this is. I'm still looking into it, but here it is.
http://www.earthclinic.com/CURES/MRSA.html
the quote from the site that caught my attention:
I prefer to use a more complete way, using a mixture of tea tree oil,
tumeric, water, DMSO and baking soda. DMSO is highly penetrating and
goes right through the hydrophobic cells.

Hi and welcome. The first and best thing to do is calm down and take
a breath. A total change in diet is necessary to control symtpoms for
the time being. Low carb, no gluten, very little dairy or eggs. Lots
of protein and green veggies, extra vitamins, particularly C,
magnesium, and potassium. Zinc and selenium are good to add too.
Drink more water than you think anyone could possibly need.
Try to incorporate alkaline foods like cucumbers and sprouts, alfalfa
tablets are good with each meal to help with this.
Bathing twice a day will reduce the spread of lesions. Baking soda
used as a scrub before rinsing off will help.
I use neutrogena soothing moisture conditioner with zinc and
peppermint and it has helped the scalp lesions.
Lotrimin around eyes and mouth and even on lesions can help them heal
faster. Baking soda applied to lesions as a paste, or even dry if
they are open and oozing, will help them but must be done daily, and
they are slower to heal, but eventually heal more completely.
I clean normally, but I don't have the extreme itching and feeling of
being bitten much anymore, so maybe I'm not the one to advise on this
area.
I'd also reccomend a tetracycline antibiotic be started right away.
they are available as Terramycin from vet/farm supply retailers if
you are unable to obtain a prescription. With the Antibiotic you'll
need to be consuming probiotic supplements, an organic yogurt with
live cultures is a good source.
I also take guaifenessin extended release tablets (mucinex) every day
to fight the sinus and respiratory infetions. I've had some success
with ionic or colloidial silver solutions as a topical antibiotic in
eyes, ears, nose, mouth, and on sores. I also take it sublingually.

for some reason I had thought this site was run by a physician, but
it's actually an archive for homeopathic remedies. I don't know how
credible this is. I'm still looking into it, but here it is.
http://www.earthclinic.com/CURES/MRSA.html
the quote from the site that caught my attention:
I prefer to use a more complete way, using a mixture of tea tree oil,
tumeric, water, DMSO and baking soda. DMSO is highly penetrating and
goes right through the hydrophobic cells.

http://morgellons.org/ look under Advocacy

Hi everyone,
I am an 23 year old Dutch American who has lived with Morgellons for
the last couple of years without knowing it. I noticed changes to my
skin such as bumps and small pimples but it wasn't until last August
until the acute symptoms of this affliction became noticeable. I
exeperienced four day mild headache and my brain tissue swelled. The
following weeks after this I experiened bouts of disabling fatigue at
45 min intervals. Also, neck pain, excessive sweating, and a swollen
face were things that i noticed. Several weeks later heart palpatation
set in and breathing difficulties. Now, since two weeks I do not have
any bowel movements anymore.
I have a few questions for the group:
What treatments have helped you'll the most? list all topical, herbal,
scalp, medical.
Placing a vinyl cover on your matrress, is that helpful? How does one
clean this?
Must I clean the vinyel cover each day with enzyme cleaner or is
ammonia more effective?
how does one clean the carpets that are covered with fibers?
Is Noxema more helpful than head and shoulders for the scalp?
How can I keap my fears/anxieties down so that i am not so stressed
out about this condition?
I would like to thanks in advance anyone for posting any possible
solutions to the questions I have asked.
I sympathize with all of you. This is the most horrific
affliction/disease that one could have and it totally isolates you
from family and friends and places me in a constant state of panic.
Thanks,
Paul Harmsen

Hi :

Re read my letter to the Dr Phil show please ? Thet have already contacted people for a morgellons show and have NOT contacted anyone who is at the morgellons reserch foundation who have the truth and are fighting for us.

. The show has only contacted a few people who have such things as phscisophrania in their backround on top of morgellons So it will be another show on this is delusional instead of the truth , please write so they will get the truth and wont air another these people are nuts show?

Thanks Moe

Please write like I did to ask the producers to contact the Morellons reserch foundation Before they air any show that will make this look morte delusinal and not real ok?
franlanedobson <franlanedobson@...

Hello, The Dr. Phil Show has a list of topics that they will be doing
shows about and one is " Do you have a medical problem that is causing
problems wilth your family and loved ones" Well, I thought this was
perfect considering my medical problem, Morgellons. My family
absoulutely thinks I am nuts, yet, they have not taken the time to
even look at any of the proof I have gathered, along with the fact I
have sores all over my body. Anyway, I recieved a call from Justin,
one of Dr. Phils assistants, and he just ask me was I still willing to
talk to Dr. Phil about my problem and was I still will to be on the
show. Of course I said yes, I really believe Dr. Phil is our last
hope. I believe now is a perfect time for as many as possible go to
his website and that particular question and and write your situation.
The more people that write, the more attention we can get for our
problem and our families and loved ones can be set straight once and
for all and we may even get the answers we have all been searching for
and that is what is this? Sharon Hiatt

Hello, The Dr. Phil Show has a list of topics that they will be doing
shows about and one is " Do you have a medical problem that is causing
problems wilth your family and loved ones" Well, I thought this was
perfect considering my medical problem, Morgellons. My family
absoulutely thinks I am nuts, yet, they have not taken the time to
even look at any of the proof I have gathered, along with the fact I
have sores all over my body. Anyway, I recieved a call from Justin,
one of Dr. Phils assistants, and he just ask me was I still willing to
talk to Dr. Phil about my problem and was I still will to be on the
show. Of course I said yes, I really believe Dr. Phil is our last
hope. I believe now is a perfect time for as many as possible go to
his website and that particular question and and write your situation.
The more people that write, the more attention we can get for our
problem and our families and loved ones can be set straight once and
for all and we may even get the answers we have all been searching for
and that is what is this? Sharon Hiatt

Please note:

Referring to Meleuca Inc. products as meleuca tea tree products causes confusion. The Meleuca products I referr to are not tea tree oil garbage u get at Wallyworld They are a Company called Meleuca Inc. this company is called the wellness company and they manufacture everything you would buy in a normal shopping trip like hair care vitimins, toothpolish, makeup, laundrey needs and household cleaning items for your bath to your cealing. No one can stolk pile these or sell these products you have to be a customer of their company like you would any Costcos or Sam's clubs. There is a small ONE time membershoip fee to become a customer ONE time only Not yearly like the Sam's stores and you will be paid by meleuca as and only if you referr other customers to be customers of their company. If you want to find out how to become a customer call them or email me back . either way just get the produicts ( I encoourage poeple to start off with a value pack so your whole home will
be convereted to natural safer products ) I do use other things thay make too. I am on a fixed income of about 650 dollars a month so if it were expencive and didnt work , I wouldnt be a customer , but thats up to you . I became a customer cause other Morgie friends said these products helped them and if I didnt like em I couyld even send the empty bottles back and get all my money back ..Wally world wouldnt do that for me so I tryed and I liked hope you find them as well . Moe
redibooks <redibooks@...

I am trying the Melaluca tea tree products also. I had heard about
them elsewhere a few months ago and since I'd like to get away from
all the chemicals and i have the means to try something new, I had
decided to give these products a try. I have no opinion yet as to if
I think they're helpful in fighting morgs symptoms. Please keep in
mind, 6 months on a heavy dose of antibiotics may well be the biggest
contributor to an absence of symtpoms. I'll be sure to post if I find
noticible relief!!
k

Hi :

Please do not misinterpret what I am doing because the tetracycline is not the only thing but is a contributing factor in my getting better. I am writting my story at this time . By no means do I want to give anyone the idea that one and only one thing will cause wellness. Meleuca Inc. make great products and the products have all helped clean both me and my enviroment from this along with other things I do .

Meleuca Inc. prducts and the antibiotic are not the only things I have done or keep doing to get me better and stay better. I am not keeping any secrets I am simply unwilling to post just one thing that is helping me out ( cause its not just one thing ) I fear that others like I did, will run out ,, get that one thing and not get any results , being it just a few meleuca inc. products or any antibiotic ( dosing on that hasnt been shared either..

Is it them and others that I have done to rid both my body and my enviroment of this, takes awhile to write it all down and not miss anything but I am writting ok? Love ya Moe
redibooks <redibooks@...

I am trying the Melaluca tea tree products also. I had heard about
them elsewhere a few months ago and since I'd like to get away from
all the chemicals and i have the means to try something new, I had
decided to give these products a try. I have no opinion yet as to if
I think they're helpful in fighting morgs symptoms. Please keep in
mind, 6 months on a heavy dose of antibiotics may well be the biggest
contributor to an absence of symtpoms. I'll be sure to post if I find
noticible relief!!
k

I'm so sorry to hear that honey... I wish I knew better what to tell
you. We know this isn't in anyone's head. Can you just TELL them
you're taking the risperdal? I hate to think of anyone being placed
on that kind of drug in our condition. I don't want to contradict the
docs, but if you aren't psychotic... well, I think I already made it
pretty clear what I think about that whole issue. I'll be hoping and
praying for the best for you.
Dana

Oh sweetie, it may have just been poor timing... you aren't the one
who wrote the 'cure your acne' thing, right? And I think most of us
would agree that some part of this is bacterial, but it doesn't end
there, I don't think. So far, after MONTHS of researching daily and
trying to read medical texts that are, frankly, mostly over my head,
I have just the basest idea of an understanding as to what this could
be and how it could come about. The problem is that as the bacteria
have damaged tissues and immunities, we are left open to yeast and to
other pathogens or parasites. Yeast and bacteria, in a chronic
infection, actually create an environment within the body that DRAWS
other infections and maybe even parasites. We are fighting to correct
ALL of the things that have gone wrong and I think bacteria must just
be one of them. After being on abx for nearly three weeks, I have had
an increase in certain symptoms, which leads me to beleive they are
fungal at their source. Others have already done as I'm doing and
found that once you add an antifungal, THERE ARE STILL Symptoms that
are not adressed... Leaving you to guess at parasites.
Look up the following and see what you think:
actinomycosis
mycoplasma infection
Chronic Lyme disease
Sarcoidosis
Anti nuclear antibodies
Autoimmune disease
Cell wall deficient bacteria
The marshall protocol
microfilarial infection
onchocerciasis
candidiasis, systemic candidiasis
ricksettia and complications/co-infections of Chronic Lyme
If you can look those up and tie them all together in your mind,
you'll have some background understanding of the factors involved in
morgellons. And there is STILL much left unanswered beyond all of
that. It's too complicated to try to explain it all, especially since
I don't fully get it myself, but if you start reading NOW, you'll get
there sooner. That's my advice, the best I can give you, to become as
educated about these things as possible.
Dana

Hi :

I am sorry you too had to go the vasoline trip wasnt that just hellish? I looked like someone pourd acid on my face after I tried that . Sure does spread it . Lots of BAD misinformation out there cause no one knows what it is . I could make millions just say I have the cure post a link and bamo even I would fall for it , No one hasd the "cure" no one can cure diabities either they can just treat it but it never goes away. If it were in fact Mites of some sort that were the main cause of this , it would be easily erraticated with the medications on the market right now

A doctor could easily see the mites under a scope . nope , not the cause here but whatever we do have does in fact attract every kind of bug you can and cant think of . Experience bugs yet folks? I used to badly. Even ear mites Yuck! all gone now but the morgellons although non symptomatic for moths now , Is still here.

I kw cause my bug light used to get zapped in the house 24/7 ( shoot I wore two bug lights out ) No more bugs on me scince I treated antibactirialy and antifungaly My self and my enviroment Honestly . Hope you find a way through this hell hun ill be happy to share my story with you when you want to talk . Email me personaly for me phone number ok? BE greatful to share my journy Love Moe
cherriitree <cherriitree@...

Let me be the first to fill you in on my experience with the products
at Naturalgenisis.
I was infected in Dec.2005 and for about 3 months I was in the dark
and isolated from everyone who meant anything to me, which included
my son. However my son became my best advocate.,. In fact, he had a
computer and I did'nt. I guess he had been doing research for a short
time when he finally came across the above mention website.
Apparently he had been investigating by putting in my smyptoms."the
mysterious biting mite" is what he came up. He was convinced that
this mite was it, and after the reading the material he sent me via
the mail, I too was convinced also. Everything that was listed under
smyptoms, almost verbatom, exactly, to the tee, was what I had been
experiencing... Even the pictures looked credible. Also testimonials
were included....But even at that these people spoke of other whole
food nutrition along with the enzemes "Clean Free" and some other
well known tricks to keep the infestion gone once they were REALLY
gone.... The stuff is expensive!!!!! How was I going to afford this
stuff. I decided I would write to the area manager for that website
and tell her my story and how there are many others here in my town
who have been suffereing form these so called mites and is there any
funding available to us indigent ones. Anyway, buttoned that letter
up and off it went, with the request for help and a phone call to me
to discuss any options that she(Cathy) might beable to come up with.
In the meantime my mother put the money up for me to get two/two
gallon jugs of this solution. Its supposed to be highly concentrated,
I just followed the direction. I used it on me, in my vaporizer did
my laundry, and all household items. Anytime I'd feel an ich, sting
or bite, off I run to spray the diluted solution on my and everything
surrounding me. I did finally get that person to person phone
conversation with Cathy! She said that these mites would NEVER go
away, permanent!!! She new about this being refered to
as "Morgellons" and it history! But no real cure.... She told me use
vaseline on my eye brows and lashes. Wrong....Wrong.....Wrong...I
belive it did spread them! Now whats that about!?!? Wierd huh!?!? Why
the cover-up!?!? Needless to say, NO Kleen Free only work for a short
time, I guess!!! The stuff was more like a relief type spray on
spray. Even today I question the Natrualgenisis motivation/cover-up
behind the scene.Maybe if I had had the money to keep that product on
my self and nothing else, and used the ointment and whatnot, maybe
then I would have been able to get healed(: Its going on my thrid
year now and Im no better off, Ive just learned better how to co-
exist with them, keep the peace so to speak! My hair/scalp bothers me
the most. Funny I often think, Cathy the gal from naturalgenisis, new
all the wrong cures, and yet gave her opinions out freely. One other
thing I remember is Cathy was not allowed to collaborate anything
infomation that I may have asked her regarding links to biting mites
and morgellons. She had to claim the 5th.
One more break down to ya all.... Two emergency rooms in Vancouver,
WA hospitals turned me awy and said I needed to cover the emergency
rom costs that day or I couldnt be seen!!! To no avail, next place,
Health Dept. hahahahahah THEY turned me away after talking to me
privately about being delustional. What the f- ver... The Health
Depat of Washington State and all its special units also passed the
buck to the next type of unit....Again, 3+ years later,? Lessons
learned and co-inhabiting. Nothing works without long term treatment
I suspect, however I will try anything once and so Tea Tree products
here Iam.
Moe, thanks for your hope and light and specific information. I cant
even imagine what a good day would feel lilke, I mean without having
to take in one form or another another remedy, because this may be
the one!?!?!

Hi:

Please give up doctors OK? none of them can help us ,even though my doc knowes I have it he says he does't know what will fix it .

The only thing going to doctor after doctor does, is strengthen the Delusional thing in the medical community and it wont help you to get to the point that they all lock you up , You have this, I know that , doctors do know what it is or how to treat it at this time because there is nothing written in any of their journals or medical illness books to see it there yet , The CDC has fgot to be preasured by our congress men and senetors to EXPITITE their investigation, We hve to write them and ask them in letters and on the phone to do this for us .so its hopeless going to docors right now for morgellons OK?

I see my doctor now maybe every three months if that! I do not go for Morgellons ,OK? I do not want him to be put under pressure from his other doctor peers that he is full of garbage and to fire me as a patient.

I go to him if I have anything else wrong and I take care of the morgellons on my own ( He has perscibed LEXEPRO and Lyme doses es of an antibiotic but he is Not a Lyme liteate doctor they are to costly .It took me almost a year to find this one , after I had determind to get better myself 1st.
he is not even educated enough to read my western blot test I just dont tell him that , I called the lyme association in my state for help in reading it . moe
justumn <justumn@...

My blood, stool and urine tests came back. All negative. Without
checking my lesions or my cup full of fibers, bugs, granuels, the
doctor told me I was delusional and to take my anti phycotic meds as
prescribed by the phyciatrist. Went home so discouraged and called my
mom and sisters. They had been discussing me together and decided they
must plead with me to get onto the respariten as prescribed by the
shrink. They believe that I am totally delusional about this. They
haven't even read about morgellons. They believe my lesions are self
inflicted. I decided for their sakes I would take the anti phycotic
drug. This is the 3rd day on them. I am shaky, head ache, and feeling
so alone. I can't go to work because they have seen the evidence of
this disease and when I told them what I thought it was, the company
doctor checked out the morgellons site on line and does not want to
take the chance of me going back to work in case its infectious. In
Canada, this disease is not heard of although there are some in
British Columbia that have contracted it.
I know I've mainly been babbling. Will let you know when these
delusional bugs will realize they aren't real.
shirley

I encourage everyone to email them as well

Dear producers and staff :

I have been suffering with a contion that is now being at least called a syndrome. It is called Morgellons and It is very real and painful both physically and in any other way you can name .

After two years of this nightmarish condition , I am not cured but much better . Non symptomatic for months now, and providing I stick to my rutine that keeps me better I stay fine.

It has come to the attention of many Morgellons suffers that your show will be airing something on this illness without contacting the only reputable non profit organisation that is there for any of us here, the Morgellons reserch foundation.

They have doctors, nurses , media contacts some have morgellons, and everything else you will need to contact for the real scoop on this . It is feared that anyone airing any stories on this illness without contacting the MRF, will result in further mistreatment of all suffers by medical staff and otherwise and do nothing but harm us at all .

I encourage you to please contact the MRF before airing anything on said illness , so that you will have an even sided informational information basis to create a story that we hope will help and not further the distruction in our lives that Morgellons is causing .

Morgellons.org is the place youll need to start and I thank you from many suffers here that you are willing to make a real informed story about this .
Moe

My blood, stool and urine tests came back. All negative. Without
checking my lesions or my cup full of fibers, bugs, granuels, the
doctor told me I was delusional and to take my anti phycotic meds as
prescribed by the phyciatrist. Went home so discouraged and called my
mom and sisters. They had been discussing me together and decided they
must plead with me to get onto the respariten as prescribed by the
shrink. They believe that I am totally delusional about this. They
haven't even read about morgellons. They believe my lesions are self
inflicted. I decided for their sakes I would take the anti phycotic
drug. This is the 3rd day on them. I am shaky, head ache, and feeling
so alone. I can't go to work because they have seen the evidence of
this disease and when I told them what I thought it was, the company
doctor checked out the morgellons site on line and does not want to
take the chance of me going back to work in case its infectious. In
Canada, this disease is not heard of although there are some in
British Columbia that have contracted it.
I know I've mainly been babbling. Will let you know when these
delusional bugs will realize they aren't real.
shirley

I'm maybe going to have to break down and get a generator, it's
costing so much to buy the silver, I could have bought one by now...

Daisy, did you happen to follow that link to 'earth clinic' about
fighting mrsa with BAKING SODA and DMSO? I haven't looked into it
enough to know how credible the physician that proscribes this as a
therapy, but it was definitely interesting...
If you didn't read it and want to, I'll go find the link and post it
if you want, it's in finding1cure, I think...
Dana

Nope

they dont work . Your not trying to kill parisets gang. You want to fight the fibers ok? They attract paracites so get rid of the fibers ok? save your do ray me .. Been there done that already Moe
redibooks <redibooks@...

Wendy, did anybody answer your question about Kleen Free? I haven't
used it myself but a lot of people use it for Morgs. My understanding
is that its an enzyme cleaner that breaks down the exoskeleton of a
mite and they die prematurely. Some people clean with it, bathe with
it and spray their pets with it. I understand its costly though.
I've heard of some people using Nature's Miracle in the same way with
similar results for a little less money. I've used the Bug Arrest
similar product, (early on) and I know it helped me but since I still
notice symptoms, its just a help to be used along with internal
treatments!
karen

-I purchased the SilverGen sg6, and a feature it has built in, tests
the quality of the steam distilled water. If the quality is inferior
(which happened once with a bottle from whole foods, but not from
walmart, walgreens, kmart)the machine will turn
off.
Next, the
control has a dial for setting the parts per million, from 1 to 20,
so you set the dial to what you want. I have talked with the maker,
and he, in his 70's, sets his dial at midway, and drinks 4 oz a day,
and gives his horse a quart a day. One "test" is visual, is the mix
coming out clear. If not, something is not up to par. Ive made over
50 quarts and its always totally clear.They also sell an instrument
that measures the finished product...but, i didnt buy
it.
Im not
good with science stuff. There is a group, linked on the silvergen
site, where folks from all over the country discuss making silver.
Some of them are working in labs, some sell to stores. It is

Back in August of 2005, I had a systemic Staph infection and a large
staph filled abcess under my arm ... surgically openend and i had to
attend a wound clinic on a daily basis,for treatment. They prescribed
the SiverSorb. I was on 4 mega doses of antibiotics for weel over a
month, as it was in my blood stream. The doctors didn't make "much"
of my condition but I was scared to death (as I should have been)!!!!!
The wound techs were amazed at HOW SLOWLY my body was healing (even
using the silver) So silver can't really cure it all in the mode that
the doctors expect to happen!!!!!
When my antibiotics were gone I asked the doctors if they were going
to re culture my blood to see if it was gone. They told me, ... "NO,
just come back if you start showing symptoms again." How would I
know??? Should I wait until I develop another abcess? At which that
point maybe it could have been out of control internally!!!!!!
Great Health Care Profesionals, what do you think?????!!!!
wendy

This is the wrong list to ask about acne. In fact, the question
belittles what we're going through.
Rita

Wendy, did anybody answer your question about Kleen Free? I haven't
used it myself but a lot of people use it for Morgs. My understanding
is that its an enzyme cleaner that breaks down the exoskeleton of a
mite and they die prematurely. Some people clean with it, bathe with
it and spray their pets with it. I understand its costly though.
I've heard of some people using Nature's Miracle in the same way with
similar results for a little less money. I've used the Bug Arrest
similar product, (early on) and I know it helped me but since I still
notice symptoms, its just a help to be used along with internal
treatments!
karen

Last night I wanted to email the first part of my book to just one person But mistakenly sent it to the whole board. Its titled Karen For your eyes only.

The first part of my book is attached on it, so read cause I guess the mistake is for your veiwing too. It is not finnished but see what you get out of it ok? thank moe

Silver Pyjamas To Fight Mrsa (from This Is Local London)
By Christina | Related entries in Research and Development, MRSA
Internationally
For some reason, I have been a bit fascinated by silver and its
antibacterial properties. Now, in the UK, they are testing Silver
pajamas (or pyjamas if you are in the UK ) in some of the hospital
units. Read more about it:
Silver Pyjamas To Fight Mrsa (from This Is Local London)
Patient pyjamas made with a fabric containing threads of silver are
expected to be introduced for 12 months as part of the hospital's
attempts to eliminate MRSA.
The trial, which is yet to be fully approved, will test the
effectiveness of the so-called See it Safe fabric developed by Toray
Textiles. The Nottinghamshire-based company claim tests have shown the
fabric kills 99.9 per cent of harmful bacteria in under an
hour.

Hi :

If the question was addressed to me . Then I'm no symtoms for a few months now But I stay doing all the things I do. I am in the process of writing my story out. I do other things besides the antibiotic ( 1000 mg- 500 in am 500 and an adidopholius) Im writting my jouney out so it wont be concluded that only one thing clears it up . I also didnt get better over night ok it was everything I leaned from everyone comined that finnally started getting results 6 months ago and keeping on the get better jouney with everything , today 6 months later I am in remmision . Like a diabetyic stays ok if he takes his insiline and gets sicker if he does not moe
danacantstop <danacantstop@...

Forgive me for being slow to get there and generally loudmouthed as I
have declared 'discovery!' with every leap through these tedious
circles of morgellons that everyone before me has already had to get
through...
whew! that was a mouthful...
Anyways, I've been doing my homework and come to realize, on my own,
that you have already done everything I eventually decided to do, and
more.
I was looking up the date I started the oxytetra. in the archives
because I expected a fuller recovery after 14 days than I have seen.
Don't misunderstand the recovery has been notable, but definitely not
complete. Some symptoms just aren't adressed. There is obviously a
significant bit more to Morg. than bacterial, or else I have ALREADY
leveled off and need to change abx. My gut tells me it may be a
little of both.
So I need an antifungal, because a large portion of this is JUST
YEAST, I think, ready and willing to take over the damaged tissues as
soon as the bacteria are out of the way. So the fenben...
I'd rather go with diflucan, metronidazole... I'd like your opinion
on that. Please don't think it's like I'm asking your medical advice,
I seriously understand that it is in MY OWN HANDS, But I've been re-
reading the things you've posted and figured out you have already
been the way I'm headed... so I'm asking your opinion.
And with the antibiotics working and the baking soda 'souring the
milk' I have had a purging type effect that has lead me right back to
the parasite theory. Morg must make us good food for worms.
So I get why the prazi and ivermectin...
But I have to ask...
After doing all of this are you much improved, are you still
concerned that you are infected?
And did you slowly build up to the dosages, the many drugs, adding
one at a time, or all at once?
Thanks so much,
Dana

Forgive me for being slow to get there and generally loudmouthed as I
have declared 'discovery!' with every leap through these tedious
circles of morgellons that everyone before me has already had to get
through...
whew! that was a mouthful...
Anyways, I've been doing my homework and come to realize, on my own,
that you have already done everything I eventually decided to do, and
more.
I was looking up the date I started the oxytetra. in the archives
because I expected a fuller recovery after 14 days than I have seen.
Don't misunderstand the recovery has been notable, but definitely not
complete. Some symptoms just aren't adressed. There is obviously a
significant bit more to Morg. than bacterial, or else I have ALREADY
leveled off and need to change abx. My gut tells me it may be a
little of both.
So I need an antifungal, because a large portion of this is JUST
YEAST, I think, ready and willing to take over the damaged tissues as
soon as the bacteria are out of the way. So the fenben...
I'd rather go with diflucan, metronidazole... I'd like your opinion
on that. Please don't think it's like I'm asking your medical advice,
I seriously understand that it is in MY OWN HANDS, But I've been re-
reading the things you've posted and figured out you have already
been the way I'm headed... so I'm asking your opinion.
And with the antibiotics working and the baking soda 'souring the
milk' I have had a purging type effect that has lead me right back to
the parasite theory. Morg must make us good food for worms.
So I get why the prazi and ivermectin...
But I have to ask...
After doing all of this are you much improved, are you still
concerned that you are infected?
And did you slowly build up to the dosages, the many drugs, adding
one at a time, or all at once?
Thanks so much,
Dana

Hi Karen:

I have this copy written (Poor mans way but the courts will uphold it ok? Just do not want this anywhere else ,so others wont mess with it ok? This is the start of my book . I only did a small fraction of it today . Please tell me what you think please? Thanks Maureen

PS I have attached it so youll have to down load it ok? Thanks

[INLINE]

Sorry, sweetie, after you've been at this awhile you start to assume
everyone already knows what you're talking about. When I joined it
was like trying to jump into a conversation midstream.
The Silver is an ionic or colloidial silver preparation, a good one
will be stabilized in oxygenated water. The silver has antimicrobial
properties and seems to work best topically and in the eyes, ears,
nose, mouth, and mucosa. It doesn't absorb well from the digestive
tract so holding it under the tongue for a minute before swallowing
works best to get it into bloodstream. It isn't a cure by itself but
combined with antibiotics it seems to really reduce symptoms and the
infections that come with morg. You should be able to find it at a
vitamin or health foods store, or online. There are some not-so-
reputable products sold as silver supplements from what I've heard,
so be careful and remember to look EVERYTHING up before you make a
decision about trying it. A lot of the things we do are risky in one
way or another so be sure you know if you want to take that risk
before you try it, and what could happen. I think silver is one of
the less risky tactics as I've looked it up, and called the poison
control center to ask, but do your own homework and make informed
choices.
Daisy and I have been applying baking soda to lesions because it
dissolves the morgellons material and eventually allows them to
REALLY heal, rather than just heal over. Daisy had posted a set of
instructions a LONG time ago, and you could find them by using the
search function. I'll see if I can't find it for you, though, and
email it to you.
The vinegar was for housecleaning, the idea being that if you applied
vinegar to the surface, then used arm and hammer wash soda, the
reaction between the two would kill all the morgs. I haven't tried
any of that... My house is a wreck right now. I'm just now getting
back to my normal routine as I'd been pretty sick for awhile there.
Hope that helps to clarify things a little.
Dana

That's funny... I've been experimenting with my own 'shock and awe'
in a similar way. Ever since I experimented with the onion thing and
I noticed it did SOMETHING, I have been trying to find a way that
works well to incorporate it. I am still working on it, but it seems
that if onion is applied to the sore after it is open and clean from
several days of just soda, it helps the reaction along. I haven't
done it enough yet to see a good 'trend' in the results but will let
you know if it hastens the cleaning process with the soda. This one
on my lip has opened up to reveal LAYERS of fibers and white
deposists that are slowly surfacing and purging. Will keep you posted
Daisybean. Pretty soon we'll have it down to a science.
Dana

Topical Silver An Effective Defense Against MRSA Threat
Main Category: MRSA / Drug Resistance News
Article Date: 14 Jul 2005 - 14:00 PST
AcryMed Inc, a medical device company specializing in wound care and
infection control technology, today released research findings that
show silver to be effective in combating MRSA topically, a
potentially deadly infection that is raising growing concern among
the medical community. MRSA (Methicillin-Resistant Staphylococcus
aureus) is a type of germ dubbed a "super bug' due to its resistance
against penicillin and other common antibiotics.
According to a recent study conducted by the federal Centers for
Disease Control and Prevention, MRSA - an infection once confined to
the hospital environment, is now quickly spreading among the general
population. The CDC estimates that roughly 130,000 people are
hospitalized with MRSA each year. Improperly treated, MRSA - which
can be easily spread by casual contact via open cuts, rug burns and
scrapes - can quickly become a difficult to treat and potentially
deadly infection.
The current alarm over the spread of community MRSA is heightened by
the fact that the microbe is resistant to penicillin, methicillin
and most other antibiotics commonly used to treat infection. Some
clinicians within the medical community have expressed deep concern
that MRSA and other so-called "super bugs" can eventually become
uncontrollable.
The new study from AcryMed confirms earlier findings that silver is
a highly effective antimicrobial against MRSA and may be used
topically to prevent the spread of infection.
"The results of our laboratory testing show that the infection
fighting properties of silver is quite effective in killing the MRSA
strain," said Bruce Gibbins, founder and CTO of AcryMed. "Used in
medical dressings or in ointment form, silver can be an extremely
useful first defense in stopping MRSA before it develops into a
systemic infection. More over, due to the nature of antimicrobial
silver, it is highly unlikely that MRSA or other developing strains
of staph infections will ever build immunities to silver as they
have to penicillin and some topical antibiotics."
According to Gibbins, the use of topical silver antimicrobial
products in fighting infections also serves to reduce the over use
of antibiotics. This, in turn, can delay the growing immunity that
these bugs are quickly building against penicillin and other
commonly used antibiotics.
An Ancient Treatment
Silver has long been recognized for its infection-fighting
properties. In Ancient Greece and Rome, silver was used to fight
infections and control spoilage. In 1893, the botanist von Nageli
discovered that minute concentrations of silver contained
microbiocidal properties.
Today, silver is commonly recognized by the medical community as a
valuable antimicrobial for treating wounds and burns. Recent
breakthroughs in ionic silver technology have produced new products
that make next-generation silver antimicrobials more effective and
easier to use than ever before. AcryMed, leaders in silver
antimicrobial technology has developed several patented products
that sustain the effective infection-fighting properties of silver
from several hours to up to seven days. AcryMed is the only company
to make a silver antimicrobial product that comes in a gel form.
SilvaSorb&#1184;Gel is easy to apply on all types of cuts and scrapes -
making it particularly effective as a first-line defense in fighting
MRSA.
"With the recent spread of MRSA, people must take special
precautions and doctors need to consider antibiotic-resistant
strains when treating infections," said Gibbins. "By washing and
applying a long-lasting silver antimicrobial product to scrapes and
cuts, people can stop MRSA before they become serious infections."
SilvaSorb is distributed in the U.S. exclusively by Medline
Industries. The company manufactures and distributes more than
100,000 products to hospitals, extended care facilities, surgery
centers, home care dealers and agencies and other markets. Medline
can be contacted at www.medline.com or (800) 633-5463.
AcryMed
http://www.acrymed.com
Since 1993, AcryMed has been at the forefront of breakthroughs in
the areas of wound care and infection prevention. The company's
technologies and products are currently licensed by distribution
partners and used today in hospitals, doctors' offices, and clinics
around the world. For more information on AcryMed, visit their
website at acrymed.com or call (503) 624-9830.
< back to top
- View the latest MRSA / Drug Resistance News.
- Back to latest medical news headlines.
- Get medical news headlines weekly with our e-mail newsletter.
- Huge database of hospitals world wide .

Who wrote this? Anyone with the GALL to call what we're suffering
from ACNE couldn't possibly have morg. or know what the F*CK they're
talking about. You must think we're all incredibly stupid...
Like we haven't already considered every illness ranging from common
acne to serious and rare illnesses in attempts to diagnose and cure
oursleves. Get a life, you aren't going to SAVE all of us FROM OUR
DELUSIONS.

I remember about 10 years ago i got a pimple above my lip. I treated
it just like one treats a pimple, but it never went away, and kept
coming back. I saw these pimples on my dog Abner, and i used silver
and it gradually removed his "pimple".He had lots of them, and the
vet told me it was best to leave them alone. Because of Abner i got
on the path im on, learning about the mystery skin affliction, and
finding it in myself. Parasites? Nanobiobots? Pimples,
NOT!
What i saw on my dog, was a pimple that would do nothing, and then
suddenly one day i would look, and it had bled a tiny bit, and there
were grains of sand around the bump, and black specks in the hair of
the area. When the silver worked its magic(i was using the brand
Sovereign Silver-vitimin shoppe $12), the bump began to erode. It
looked like white verticle collums in a clump,extending above and
below the skin, covered in a hard flesh colored shell. Months later,
after nightly applications from a dropper bottle or sprays...what
was left was a clean healed
hole. Last summer
i began to remove the "pimple" above my lip. It was an embedded bump
that would sometimes swell and bleed a tiny bit, and i would
think...geeze finally its going to come to a head. It never was a
pimple! It took almost 2 months to get it to the surface using clear
packaging tape to clean the area and observe under the microscope.
And thats when i saw all the fibers on the tape in the layers of
skin covering the area. One fiber was clear with red specks moving
thru it. I used different things to bring it to the surface, i was
just learning and each thing i tried....i could watch the effects on
tv because of my 200x tv proscope microscope. I tried vinegar,
alcohol, peroxide, ozonated olive oil. It wasnt til i used the
baking soda that things started being easier. The other products
seemed to affect the skin around the area...irritating it. The
baking soda never has, nor has the silver. Well, the details of all
this removal of facial lessions, from that one ...to over 30 more
that i brought to the surface...is buried here in the archives-the
lessions no longer buried in my
skin. Now, im using the same
idea to wash the woodwork and walls. I give a quick rinse of
vinegar....then a ph "shock and awe" application of arm and hammer
SUPER washing soda. I figure the vinegar softens the stuck stuff
(like when i use miracle aloe foot cream to soften the covering on
the lessions).....and then the soda will dissolve the stuff off the
walls, woodwork, cabinets, bathroom ect like it dissolves the stuff
in the lessions. Hey! This works great! I even cleaned the grungy
brown gunk, that i couldnt get off the toaster, with this "shock and
awe "formula, and this old toaster looks new and shiny again. This
works great for getting the dusty brown junk off the electric cords,
and it takes it off plastics like the phones, and remote
control....everywhere that this amber oozy gunk is
accumulating.
My cheek got a really intense itch the other night. I taped it 3
times and set the tape aside and went on an errand. In the store,
the spot began to really bother me again. At home i taped it some
more. Under the microscope200x, the first tape of it showed i got
the fiber off. It was a clear transparent fiber with black specks
evenly spaced along the length of it like this. . . . . . . . The
tapes i made later after the store ,showed about 5 small black
fibers. I put the mircle foot aloe cream on the spot to soften it,
then added baking soda. The sore was swollen in an area like a 50
cent coin, with a center flat patch, flesh/white and very hard to
soften it. I put a silver bandage on it, and now...after 3 nights of
these aplications, the patch has dissolved, and there is a slight
indentation, but the swelling is gone. My feeling is that i have
CAUGHT it in time, not like 10 years ago when i thought i had a
pimple i was dealing
with.
My opinion is that this enviormental fiber contains a heavy duty
toxin that seeps into the skin on contact, creates horrible itching
that eventually numbs as it soaks in, embeds, and covers itself with
a fleshy patch. Treating it as a pimple or achne will not make it go
away. Ignoring it for 10 years allows it to grow. Im thankful for
what i have learned, as crazy as all this is....and the doctors need
to quit being dilusional about it. Makes me want to pack up some
miracle foot aloe cream/baking soda/ silver and go visit folks at
the psyche ward, to lift their spirits and tell them about all the
folks on the net looking for real answers.

Oh.. this can be good. I just knew sooner or later it would come to this, couple of months ago my mom was telling me that both of my younger sister having some sort of acne problem. It just didn't occur to me that, they are body is also invading by this morg. This morning i was talking to my sister she said she is been taking meds but its getting worse, and when she showed me that her acnes spreading, i sort had a little heart attack there, i knew exactly what it was..but i just lied to her by saying oh its nothing.

They are both so young, one is 12 and another one is only 6 (youngest and number one hyper active). Is the youngest one that i am most concern about, she just can't go a day without the sugar. Now i really have no choice i really have to tell my mom about the Morg.

Suffering alone is one things, but watching your family members suffer with you, it just..

i am sorry you guys and now i know it feels, my prayers be with everyones family here ..especially the young members of the family.

empathy
qtpcsoqkajwi <qtpcsoqkajwi@...

To cure your acne, the first thing you need to really understand is
that acne is an internal problem. I know that may be hard to grasp
being that the breakouts are on your skin. However, understand the skin
is simply another channel of elimination for your body. Simply put, the
blemishes on your skin is where the problem is ending up, not starting.
It's very important for you to understand that you're not going to cure
your acne by washing your face with a cleanser and applying a cream or
topical treatment. The "root cause" of acne is internal, and until you
address those internal issues you will never permanently cure your acne.
http://acnepttk.blogspot.com/#

I never took febendazol and im better who knowes? Im scared of trying any drug like things cause I do not know what I am fighting
redibooks <redibooks@...

I have taken fenbendazole but it seems that it has to be taken
continuously in order to work. Are you still taking it? How often?
k

Get a Value Pack (I cant inagine lfe without it) from melaluca and use the cleanrs all over the house Its natural ingtreadents and the cost wow I just ordered what would cost any one over a hundred buck,a cause iom a perfeered customer, Prefeered Custoners gret thr all for about thr lip gloss is cheep really flavoed mel a gel the mint kind gets ell outta yoiur lips
Wendy e Tripp <WETRIPP@...

Just take the fenbendazole ... no itching no sores

The site you're looking for is www.thepetcenter.com/exa/dem/.html I
found that site about 3 years ago and it's still there. WTG --- In

I don't even know what the P3 diet is... when I mentioned diet, I
meant low carbs, no gluten, no dairy other than the probiotic yogurts.
Highly alkaline veggies are good to add to diet, cucumbers and
sprouts... that kind of thing. I wouldn't spend money on a diet.
Common sense and keeping in mind that infection is acidifying and
likes sugars are enough to tell you how to eat for health as a
morgie. We eat grilled meat and chicken and green veggies mostly.

Hi:

Yes anything that has a vasoline type base ( the neosporine type tube on the market, vasoline and so forth.. This will spread this and trap the fibers onto your skin and when i mistakenly used it .. my face errupted back last July and felt and looked like someone poord acid all over me.

That P3 protocol diet is both expencive and I almost died doing it, Please everyone there are nuts all over trying to make a big profit on whatever we have left to spend or sell, Stop ok? I ate at missions everyday and went homeless trying to get the latest blue sky and so called cure , please don't?

There is no cure for this or wed all be there agreed? Spend your money on reserch like at the Morgellons reserch foundation ok? Doctors are on their board that have Morgellons too

don't you think that if there was something to fix this that They would Not be sick too?

There is no cure cause what this is is Not known ok? There are some therories but not facts ok? I am not a specialist of any kind and my theries have not helped me get better , what did though is doing what others did .. I am not Cured ok.. I have my life back.. and Morgellons still lingers I just know what will back the fibers off when they do crop up. I have days where I am still dizy and couldn't spell my name if you payed me .

But I have months of not a single symptom, no new sores and the nights of 24/7 bitting and crawling are gone.

I wear the same bathrob for the whole week and use the same covers to sleep on and only do laundry once a week if that. I vacumme with a heppa filter vacumme cleaner just now I have gotten my enviroment so clean of the fibers that I only have to vacumm one time a week.

Gone are the days when all I could do was sit on my couch shaking and screaming in pure terror. I do not know what will fix this no one at this time does. but gone are the days that I would run online or to the dollar stor spending all I could for one more "maybe this is it " dream.

If it were a lyme only thing than someone would know how to fix it, the evidence is there that has that bactira somehow involved in this but what else?

We all have simular symptoms and some have other things, some homes everyone gets it, some do not.. Our only starting point is to stay put and get active in our states with letters to Senetors to ask them to write to the CDC telling The CDC to Expitdite what they have promised they would do .. fax the CDC .. Go to Morgellons.org and Copy the letters , send them and share your stories ok? GET ACTIVE .stop wanting someone to rescue us ..We are the voices that will calmly and activly not stop bugging the ones who are stalling the investigation in this

Folks I have talked to people that have had this for longer than you could come up with.

Its in the blood supply by now, We flush and no one knowes what it is to treat it so it has to be in the water supply .We have got to get active , No one but the suffers are screaming about this , So scream but not loudly at the right ones here . Dont put your last penny in a "might work Recipe or protocol."those worked than everyone who bought them would no longer be sick ( and I bought em all ..Im still a Morgie )

We are all we have so lets wear the faxes, phones and printers out and use this energy for good use ok?

I found throughmy journey others that shared what helps them and i encorperated them in my daily life , some day I win overt the fibers other days im on night watch keeping them away , these days are mostly mine.

You have to find what works for you and find your way to life through this , but staying and fighting everyone is not life , hold the ones still in Hell , wear out your phones and printers, get our voices heard and lets stop waiting for Them to do what they continue not to do ..

I styed locked away for people for a yaer, went homeless , stayed nuts and terrified and scared everyone else away for a year. I am here to say all is not ok.. my son is gone , but so are the nights of sheer terror.. I am on the road to getting reaserchers the help from us they despratly need and as soon as they find "what is that? " many people will call us for help . Wow wont that be a day! calling us so called nuts for help. Dontcha just want to be a part of that?

Blessings Moe

what is a P protocol? Petroleum? As in vaseline? I must have missed
something...????

I tried the chamomile-onion thing by putting 1/4 of an onion in the
blender with a few tablespoons of strong chamomile tea and a splash of
a botanical oil mixture to make it emulsify. I sat in the tub, applied
to whole body and waited 15 minutes before rinsing in hot water.
It DID immediately alleviate pain and itching from lesions. I did rinse
a lot of 'detritus' from skin afterwards. I didn't see a miraculous
emerging of those white things, like she said, but some stuff came out.
It tingled under my skin and I smelled like onions for several days.
It seemed to strongly affect my body's acid/alkaline balance as I
sufferred from pretty extreme heartburn and ate antacids like candy for
the rest of the day. It also precipitated a change in mood, leaving me
as always when too acidic, overstimulated and nervous feeling. The
benefits may not outweigh the annoyances, BUT...
the most notable thing by far was that most of the lesions had, by the
next day, lost that thick gelatinous white seal and ACTUALLY BLED. Over
the next two days I kept finding large chunks of that black granulous
material and fibers embedded under the remains of those clear scablike
seals. After the black granulous chunks emerged, I felt relief in many
of the sores and more of them have now purged and healed than have
remained. I'm still doing daisy's soda regimen as well, but the two
seem to act oppositely.
Give me some more time to work on it and I'll keep reporting what I
find as objectively as possible.
On one hand, staying cool and dry with no oils prevents lesions from
surfacing, BUT they remain semi-dormant and continue to spread
subcutaneously, eventually congealing in large deposits.
Getting hot and sweaty, lubricating, and applying things like baking
soda or onions or alfalfa etc... Can cause an increase in the number of
active sores and symptoms, BUT seems to alleviate the severity of the
internal symptoms, which is REALLY what I'm more concerned about.
Just allowing this stuff to heal over and remain isn't working. I have
tried BOTH ways. Being warm and sweaty and lubricated does pose a risk
for contagion, both to others and cutaneously yourself, so hygeine is a
MUST, I have to shower really often, ever time a sore drains anything,
I immediately rinse it to keep it from spreading and shower at least
daily, twice if I need to.
I'd like to stay cool and let the sores all heal over so I can forget
about them, but they stay there working on me from the inside out.
My opinion.
A remission of cutaneous symtpoms says little about the state of
overall health. I have had sores for only about three of the last nine
months, and still got worse during apparent periods of cutaneous
remission.
Dana

Absolutely the most powerful thing I have done was to start to
educate myself about the 'surrounding' illnesses that seem to relate
in one way or another to Morg. It has helped me to maintain my sanity
and feel as if I understand more about what is happening to us. It
has kept me from panicking when I have 'unexplainable' symptoms,
because I have found out what they possibly could be and why they may
occur.
It STILL leaves so many questions unanswered, but it's better by far
than guessing with no basis upon which to build. Go slowly, try not
to jump to conclusions (I DO that all the time, but TRY) and Remember
TO BREATHE. One day at a time, one battle at a time, just start
plugging away and you will find ways that work for you to alleviate
symptoms while we all work together to further efforts toward a cure.
There are many things that work, but go cautiously and one thing at a
time so you can accurately gauge what works for you. Common sense is
important, if it sounds miraculous, it's probably not. There is NO
quick fix, but a number of small, slower measures that can REALLY
make a difference.
For me, antibiotics have really helped so far. I just bought
oxytetracyline from a veterinary supply store because the docs were
not very cooperative, but if you can get non-penicillin antibiotics
through your physician, obviously that is best.
Vitamins vitamins vitamins...
And making myself actually sit down and meditate every day has really
helped when I feel out of it, or irritable.
Much of this fight is internal as we deal with fatigue, pain, mood
swings, fear, itching, self esteem issues due to the sores... and
strengthening the mind's ability to deal is a BIG step toward staying
healthy. Like any illness, stress makes it worse.
Well, out of time for today...
Hope you find some releif and some help here.
Dana
P.S.
Temporary 'rescue' relief measures:
benadryl for itching that keeps you from sleeping, or for eye pain
that prevents sleep.
vicks vaporub is soothing for extreme itchies, but sparingly, it
seems to 'swell up' the sores
a few tablespoons of poppy seeds swallowed will address severe pain,
but only if absolutlely necessary, it contains morphine compounds, so
the same cautions as if it were a pain med, and take with Ibuprophen
for best effective relief.
melatonin can help if sleepless, too.
hot baths with any of these: baking soda, alfalfa tablets, a handful
of oatmeal, epsom salt
any kind of conditioner with MINT is soothing to scalp, even if you
just add peppermint oil to your own brand.
ummm... I'm sure I've got more, but got to go... will continue later.

Hello, and welcome, although we're sad to find that you're included in
our group, we're happy to help in all the ways we can. Some of the
things we tell all the newcomers are that the diet is definitely
necessary. Take a multi-vitamin, extra C, magnesium, potassium (morgies
seem to be low in those.) Get plenty of rest and LOTS OF WATER.
Exercise as much as you can tolerate to boost immune function and mood.
Coughs and sinus congestion seem to be pretty common morg symptoms,
with my family it comes with dark circles and swelling around the
eyes. I found that taking a mucinex tablet everday has reduced the
sinus congestion and coughing substantially.
To find posts that contain key words in the archives, just use the
internal search function on the mesasages page, or ask, we're happy to
repeat ourselves if we need to.
There are a lot of things that people have found to help for various
symptoms, and are happy to share with you.
I don't do a lot about laundry, besides using arm and hammer laundry
soap, and adding vingar to the rinse cycle in lieu of fabric softener.
Others might have better tips, I don't have the biting and stinging
sensations as much anymore.
That may be because we have MOVED every four months, for the last year,
due to my husband's changing jobs... long story...
Sending you my hopes and prayers,
Dana

Get your son a small bottle of no rub saline solution used for
contacts. Tell him not to rub his eyes at all when they hurt like
that, but as soon as he is able to do so, to rinse them really well.
If he can flood his eyes with the solution while head is tilted back
and holding the lids gently apart, the close eyes and simultaneously
throw his head forward so it drains out, the fibers will mostly rinse
to the corner of the eyes where they can easily be removed with a Q-
tip. An eye wash cup works too, but isn't absolutely necessary if he
can get the process down. Have him rinse every night and morning and
three times in a row if fibers are present. This has really cut down
on the eye problems and if they aren't rinsed out they can get into
the eye, so... well, you know. Rita's lotrimin around eyes helps, too.
I also put a tiny drop of ionic silver in each eye before bed. They
do this to newborns to protect against STD's from the birth canal, so
it can't be too risky. I DO wear contacts, as my prescription is SO
bad it's difficult to see with glasses, even. (It's just not the
same.) And I have been adding a drop of silver to my lenses as they
soak in the saline each night. These things have helped a lot. Just
have him carry the saline with him, and after a few days of rinsing,
hopefully they'll leave his eyes alone for awhile.

Thanks so much for the reply. I'm working now so I don't have a lot
of time but may send you an email later. Hope that's ok with you. I
really want to know everything that worked for you, cause remission is
what I'm after!!! I have the activate but haven't started taking it
yet. I'll start today!!!!
thanks again.
k

Cheep Visine that gets the red out and a good eye wash with an eye cup ( all have a trace ingredent of borric acid in it No need to spend tons gang I don't anynore
Barbara Rohde <aries040149@...

I have not found a cure, but Similasan eye drops are excellent for the eyes. They provide a great deal of relief. They can be purchased by the visine at most stores. All the best, Barbara

try a blank email hun I couldnt understand you . I do not know if your kids have morgellons ..this stuff I wrote works for everyone

the SolUMel is a product that the meleluca company manufactures you have to get it throough them and you have to be a customer to get anything from them

Signing up as a customer Was the best thing I ever did ..There procts along with an antibiotic put me in total remmission after two years of hell Blessings
ssmileyface <ssmileyface@...

Look at reports and all the reserch and how they compare to so called teat tree oil stuff

http://www.rmbarry.com/research/archives.html
redibooks <redibooks@...

Maureen,
I was recently introduced to the melaluca products and just ordered my
second shipment. I haven't understood which products are helpful for
morgs so please(!) I would appreciate if you let me know what you find
valuable and what it helps you with, so that I can check out those
products on my next order.
So far, I like the MelaGel, basically its just a strong tea tree oil
gel and I use it for rashes. I just ordered the pain a trait, haven't
tried it yet. I don't see "enzymes" mentioned in the ingredients of
the laundry soap so I didn't find that helpful. I would love to know
what to try and how it helps this condition!
Thanks, any info appreciated!
k

HI:

The Enzymes arent nessacary ( you could add 1/4 cup of 20 mule borax with it . But The Melapower works cause of the natual Mealuca ( pure tea tree oil) in it

Its a natural anti bactiral,, antifungal.. Kills these thins and Bugs hate it You only use about a 4th of a cup per load IT extreamly Concentrated More Is Not better with these products a little goes a long way that why they r so cheep in the liong run.. and no chemicals in any of it
redibooks <redibooks@...

Maureen,
I was recently introduced to the melaluca products and just ordered my
second shipment. I haven't understood which products are helpful for
morgs so please(!) I would appreciate if you let me know what you find
valuable and what it helps you with, so that I can check out those
products on my next order.
So far, I like the MelaGel, basically its just a strong tea tree oil
gel and I use it for rashes. I just ordered the pain a trait, haven't
tried it yet. I don't see "enzymes" mentioned in the ingredients of
the laundry soap so I didn't find that helpful. I would love to know
what to try and how it helps this condition!
Thanks, any info appreciated!
k

That P protocol is full of garbage !! i ALMOST DYED doing that!

Breathing (more like air hunger! you breath but no O2 is in the air

vicks under the nose works )

Do Not use anything with petrolium in it anywhere near or on you ITll spread

keep everyrthing bone dry

keep pluging youll find what gets yall better I promise I did

I also put a product called SOL U MEL in a vaposor until water turns milky coloredrun the vaporizor .. Itll kill em all over the place and the air you breathe will be cleaner

When its nice out run the fans blowing the air outside an open window get em out of the house

ssmileyface <ssmileyface@...

i think that i have joined your 'club' as well as my boyfriend and 23
year old daughter. i have two other children who don't have any signs
right now but...my daughter has a constant runny nose for a year and my
son has a weird little cough for about six months. does anyone
experience any of these symptoms, cough that is, with morgellons? what
are some cheaper things to wash the clothes with and ourselves? i'm
trying the diet for a few weeks now and it does help a bit so far. how
do i find my answers on this website?

Hi:

I am sooooooo thrilled you found meleluca!!

The Activate supplements and vitality for life for women helped Activate 3 a day gave me my mind back!

I ordered a value pack ( took all my christmas money )and only use everything in it ITS well worth more than gold

in it I used the tub and tile deluted per instructions in their spray bottle The naturals deaterant with baking soda pulled all the garbage out of under my arms .. and the naturals shampoo Its Heavenly

after my shower i spray the whole tub floor sink and all with tub and tile and leave it for 30 mins and now i dont have to clean anymore just spray and leave it till ther next day

Heck .. the sol u mel started the battery in my car I love these products!

The value pack is a must get for morgies please do what you have to to get one ok?

The Nutra view gave me night vision back and the Sustain sport keeps me hydraghted in every bottled water i drink.

I use it ALL hun never get anything thats not meleluca anymore i dont spend any extra money than id usually spend ever,,,,It helped with the antibiotic get me and my home clean!

If you want to do the bussiness end or be a prefeered customer its all good

You will love the lemon bright ,, heck youll love it all

From another Melamaniac and morgie.. Blessings
redibooks <redibooks@...

Maureen,
I was recently introduced to the melaluca products and just ordered my
second shipment. I haven't understood which products are helpful for
morgs so please(!) I would appreciate if you let me know what you find
valuable and what it helps you with, so that I can check out those
products on my next order.
So far, I like the MelaGel, basically its just a strong tea tree oil
gel and I use it for rashes. I just ordered the pain a trait, haven't
tried it yet. I don't see "enzymes" mentioned in the ingredients of
the laundry soap so I didn't find that helpful. I would love to know
what to try and how it helps this condition!
Thanks, any info appreciated!
k

i think that i have joined your 'club' as well as my boyfriend and 23
year old daughter. i have two other children who don't have any signs
right now but...my daughter has a constant runny nose for a year and my
son has a weird little cough for about six months. does anyone
experience any of these symptoms, cough that is, with morgellons? what
are some cheaper things to wash the clothes with and ourselves? i'm
trying the diet for a few weeks now and it does help a bit so far. how
do i find my answers on this website?

Maureen,
I was recently introduced to the melaluca products and just ordered my
second shipment. I haven't understood which products are helpful for
morgs so please(!) I would appreciate if you let me know what you find
valuable and what it helps you with, so that I can check out those
products on my next order.
So far, I like the MelaGel, basically its just a strong tea tree oil
gel and I use it for rashes. I just ordered the pain a trait, haven't
tried it yet. I don't see "enzymes" mentioned in the ingredients of
the laundry soap so I didn't find that helpful. I would love to know
what to try and how it helps this condition!
Thanks, any info appreciated!
k

Hi :
I do not want to seem pushy by any means ok? I glanced through
sopme photoes and noticed the homes you all have are alarmingly like
mine was Badly infested.
What I did and do to this day now to get the fibers outta my home.
Leave a window opened with a standup type fan Blowing to the outside
on as Often as possible . Use an air purifier in bedrooms 24/7 doesnt
have to be expensive kind Just clean it when directed on instructions.
Vacume with a heppa filter typer vaccume in the begining Daily and
clean it out daily ( I only vacume weekly now no fibers in my
enviorment at all)
Do not use any chemicals to clean with at all . I am using The
Wellness Companies cleaners ..Very concentrated! I changed my whole
home to these natural procucts and at gun point I wouldnt hand them
over. Find them somehow Just get them ok? The toothpolish not only
cleans your mouth but itll scrubb out the nastiest sink lol
Vacume car daily then as you dont feel them weekly..
I cleaned my car out this way Never leave anything wet including you
under any cermstances
I used baking soda and viniger to wash both me and my home while I
saved to get these products I was down two savings accounts and a
partrige and a pare tree when I found them ,, Broke was an
understatement. I am on a fixed income and havenet changed my
spending on blue skys and hopes anymore since I worked so hard to get
myself and my enviroment clean.
Never us bleaches.. amonia.. or any chemicals Im serious nature
will balence this if you dont help it out with bug sprays and poisions
( I didnt belive it eiether but with an empty bottle monet back
garentee I had to try. Find them and get them I can share a list
emails only I do not sell these and make no money that way at all so
no P protacols or silver dreams here Been there.
Moe

Good start ..Thank you .. I hope you saw the MRF has updated their sight click for the latest page ok ? (refreash button) It was updated Monday.. Beautiful pages MRF thank you for your hard work . How can we help?

many of you may not know this but Many doctors have Morgellons and nurses and teachers and so forth, so the Medical community needs something to reffer to to treat us

and reserch and the CDC has got to be funded and the CDC has got to be written to constanly by our senetors non stop to show them Americans are watching what you are Promising but not doing.

The only way we can get a Congressional Hearing is by A letter campain bigger than Santa's letters

Doctors that have Morgellons are treated just as we have been . Astounding ey? Work in your state weekly online.. snail mail .. phone calls.. and keep tract of the paper trail you do'

Lets hold them accountable ok? We are no longer going to lay down and tolerate this in humane action by those whos paychecks we create ok? We can do this Moe
danacantstop <danacantstop@...

Today, in addition to sending the MRF's letters to Texas senators and
congressmen, I wrote a short letter of explanation and requested that
it be forwarded, along with the MRF's case definition for Morg. to
treating physicians at all of the area hospitals, medical centers, and
teaching hospitals. I used the 'contact us' links for all of the sites
in which I could find one.
I think that if the doctors, by some miracle, pay attention to the case
definition, they may begn to notice morg patients who come into ED's
and health clinics, and will hopefully grow concerned enough to become
involved. It is going to take a number of physicians noting concern to
bring about any real change in the current attitude toward morg. It
really NEEDS to be the medical professionals who speak out about this
issue, if we ever hope for credibility. If in agreement, I'd ask that
others do the same for their local medical care centers. It may or may
not help, but it's at least a start.
Dana

Today, in addition to sending the MRF's letters to Texas senators and
congressmen, I wrote a short letter of explanation and requested that
it be forwarded, along with the MRF's case definition for Morg. to
treating physicians at all of the area hospitals, medical centers, and
teaching hospitals. I used the 'contact us' links for all of the sites
in which I could find one.
I think that if the doctors, by some miracle, pay attention to the case
definition, they may begn to notice morg patients who come into ED's
and health clinics, and will hopefully grow concerned enough to become
involved. It is going to take a number of physicians noting concern to
bring about any real change in the current attitude toward morg. It
really NEEDS to be the medical professionals who speak out about this
issue, if we ever hope for credibility. If in agreement, I'd ask that
others do the same for their local medical care centers. It may or may
not help, but it's at least a start.
Dana

I'll disagree with some of the fine points.
Most Western Blots check for 2 out of about 300 strains and are
really very unreliable. Years ago, one of the strains they checked
for was a European strain and, only when some Lyme (Kathleen Dickson)
activists threatened to sue several companies, like Quest, did they
change that strain to an American strain. If you have Lyme you have
about a 3% chance of getting the correct positive result on the test.
Igenex, in Palo Alto, CA, is the exception and they are the only lab
that gave me a positive result from '88 - '04.
MDs who have patents on Lyme tests have put, in writing, that in one
case the tests are accurate 4% of the time. Another said his was
correct .5% of the time. These MDs are Fikrig and Wormser. After they
wrote those papers they went on to try to ruin LLMDs so they could
become very rich on others' suffering.
If they can, all Morgellons patients should go see LLMDs. Asking if
the LLMD treats Morgellons may be a good idea before you make the
appointment.
MO
Rita

Ohhh... Maureen, I am so touched by your story. I also went through
the whole CPS thing at one point, and I know just how conniving that
GD system is. You wouldn't beleive it if I told you, or maybe YOU
WOULD, but the point is, I'm so happy to hear you are doing better
and have perservered in the face of such hardships. Did you say your
boy is home with you, or still away? I couldn't quite tell, but it
sounds like, still at your folks? I'll be hoping and praying for your
continued progress and for your son. Mine is beginning to show
symptoms as well, his teeth rotting, his energy and attention
faltering... I'm on the titanic with you, sweetie. I am so mad about
this whole thing, less for me than for my son. There is no WAY I can
justify putting him on the meds I take, but it's killing me to watch
little man suffer and not know what the F*ck to do about it. If I
keep taking him to the doctor, I risk the whole munchausen sh*t. If I
put him on vet meds, I risk it even more. I've been writing to those
links posted to try to gain some attention, but I'm so frustrated
with the inaction. My baby is getting sick and I don't know how to
help him.
Why don't we all go cough on our congressmen?
I'm only halfway joking.
Dana

I had finnaly felt months of no symptoms . I had finnaly found a compasionte doctor that can not fix Morgellons, but he doesnt think Im a nut, he saw the fiber in my hand after I said hello to him for the first time.

My son was ripped from me and sent to my parents home that has never been loving nor compasionate in my whole life, while I was in hell with this Morgellons. Now alone I was bombarded with Doctors calling me crazy, The department of Social Services claiming I harmed my son and telling a phycoligist just what he could put in a report that made sure I had no defence in any one's eyes including the courts.

I made sure to get a court apointed attorney to keep these animals off me while I did everything social services asked me to do (drug tests , parenting classes, anger management, the whole works ) All testing came back that I was ok ( I knew I was ) and found a compasionate doctor who gave me antibiotics and a kind smile. This war for my family began in August but my hell with Morgellons has been two years going to date.

The most horrifing thing in all this is that my son, now 13 years old, is showing many signs of Morgellons ; the sores, the itching, fatige to the point he would fall asleep in class, and his teeth rotting out of his head ...now that was blamed on me and neglect was on the Judges lips when she got a dental report. As soon as my son was taken , I began to to whatever it took to get better.

I graduated from the homeless program that housed us (beautiful apartments there) got a section 8 rental vouchrer, moved, started a bussiness, and kept doing, what I had learned from other Morgellons people, the things to get me better. I began to get better so well that when it came time to go to court ( fighting my uncompsaionate parents ) I looked so good that theree people asked me if I was an attorney..first time in a year could wear makeup without my face errupting ,and the bra was a nice touch too.

I never dreamed I could put clothes on without them relentlessly attacking me .I now can put on my bathrob and not have to wash it within 24 hours. I could walk for the first time in years without a cane , my thinking and speech were normal and I was beyond better. Not cured , but this was soo sweet!

Phew.. I am the old gal again but the court visit was beyond heartrenching. My father was there with his old cold and angry bitter tone , But he and all the others exept the Judge saw an amazing Thing! What used to be so frail I could hardly walk, who used too look like a cancer survivor with leprocy, who was loosing weight faster than an anorexic could and was bearly 118 pounds and dying in August, was now a 140 pound, knockout looks back, and a mind that was sharper than a tack, even the Guardiun at Lietem was stunned at the transformation ( Its not just the antibiotic ok I have changed everything about me here.. the products I use to clean with no chemicals the supplements and more and I am on a fixed income so it wasn't expencive.

The only voice I heard that day was their attorney stating to the judge that her cleints received countless calls regarding lice ( this was when I was in the beginning and terrified looking for someone to get me to a specialist so my kids would have a mom).

After she started , the Judge said to me that I was doing a great job taking care of me but the dental report showed neglect and that was all I bothered to stay for , my son was not comming home.

There are many people in my life that know I got better and the horrific thing is my son has this but there is no one who can DX morgellons in him at this time .. I have hollard till the cows came home late for dinner about my son. I know I could get him to my doctor perhaps and ofcourse I would hope he'd miss out on the hellish nightmare I and many others have lived through, but at this writting my family is torn and this mother's heart feels more sorrow than one could imagine.

This is inhumane folks , this is why we all need to pull together and support the Morgellons reserch foundation to get this in a respectable compasionate hand and undrer a microscope to end these horror movies.

I have spoken to many warm smart people in my jouney and will many more, some gave up, some lived in a car so infested a fire ant hill would feel like the plaza hotel , The heartwrenching terror that Morgellons causes is nothing we signed up for, but we have it so what are we going to do now? sit and wait for what? the calvary is not comming! the calvery is the Morgellons reserch foundation let's be part of the solution ok? or are you sick and tired of being harshly treated and so sick that nothing else matters? Others are out here and the solution is the Morgellons reserch foundation.. these people do not know you but blazzed the trail so we can be heard all of us at one time , so be part of the solution ok? this is not a spectator illness ,if we do it alone we get what alone gets us .. Im on board and the Titanic has nothing on this ship gang All aboard ! and blessings!

[INLINE]

What I have learned from the lyme association..

awhen someone contracts Lyme , the body creates antibodies to fight it off for about 4 weeks .. after 4 weeks the body gives up the fight and antibodies are no longer created BUT that doesnt mean the Lyme is gone...

The regular tests for Lyme from your corner Doc in the box Only tests for the antibodies and if you have had lym