Linda's Blog

I wish I had heard of using sodium bicarbonate much sooner...it's
the only remedy so far towards healing the lesions which cover my
body from head to toe. I'm of the opinion that the lesions must
be messed with in order to heal. When in the past I left some
alone, the result was pseudo-healing. Skin would form over the
well established plaque(the lining of the bowl). It appeared
healed yet was not. The materual of the lesions seems crucial for
the Morgellons to continue total habitation of a host body. They
not only seem to be a breeding bed from egg/larva/adult, but also
a conduit to the inner sanctum(nerves, vital organs) as well as
an exit to the outside world. I don't think the ledions form
other than sub-cutaneously, although the adult form of the
parasite is found throughout the body...eye-balls, teeth, lungs,
brain. There must be a 2 pronged approach by expelling them
internally whule also attacking the lesions. I'm not sure thst
complete healing can happen without both.
--Henry

Didn't someone post an article from the Tampa or Jacksonville paper about her
MIRACULOUS LOTION BAR SOAP? It was a couple of weeks ago........
Sent from my BlackBerry® wireless handheld

I believe that the MORE you mess with the lesions, the longer it
takes them to heal and they seem to spread. I have used baking sodas
for years on pimples, cold sores and canker sores in my mouth with
WONDERFUL results..... I still mix a bit with water and dab some on
any morgies lesions at the onset and it does help, however since
using the fenben, I don't get any big lesions, maybe a small blister
here or there, but they disapear if not touched, proded, and dug
into!!!!
wendy

It seems that the "scope" of the outbreak has not been addressed at all, as the CDC has done nothing to inform departments of public health across the US that the CDC is seeking information, it appears....
http://www.cdc.gov/ncidod/eid/vol4no1/reingold.htm
This might be a gap that should have been addressed with Morgellons and needs to be addressed with all diseases.

Thank you. Might you know anyone in Massachusetts?
patram81 <patram81@...

From time to time there are very interesting programs done
on rense.com
concerning Morgellons.
There is a physician who sometimes appears, as well. The last time
I heard, he was looking for people to send him in samples, etc, as he
was trying to unravel what Morgellons is. He is in California and if
you can visit at his office, he may give you a free workup - or so he
said a while ago, when I was listening.
He may, by now, have more information. Also, I think you can go to
rense.com and hear the old broadcasts, I don't know. I have not
tried.

http://www.cdc.gov/mmwr/preview/mmwrhtml/su5401a9.htm
It looks as if the CDC in 2005 was monitoring sales of drugs to detect outbreaks. But why would it have not responded to requests by individuals some years ago to investigate the Morgellons outbreak then?
Does anyone know: how many people requested an investigation? Is there documentation of this? What was the response? Were they informed of a public process to set the wheels in motion for an investigation -- back then? How open was the process?

Hi, Everyone,
If anyone out there has some free time to sift through some of these and other documents, that would be quite helpful. Here are questions that it would be useful to have answered:
#1: What defines a new and emerging disease?
#2: What situations is the CDC required to label as "emergency outbreaks"?
#3: Which documents is the CDC required to have open to the public, in terms of its management of investigating possible outbreaks of new diseases? It appears that previously identified diseases (small pox) have a set protocol to be followed. What about new diseases that are extremely dangerous and harmful -- during the information gathering stage? This might be a gap in Emergency Response effectiveness -- if there isn't a specific plan for assuring rapid response. If such a gap exists, that needs to be rapidly solved (perhaps through media investigation). If there is a plan in place, then it would be useful to identify what it is and whether it was followed?
Some words to google: CDC emerging diseases disease outbreaks protocol for disesase outbreaks etc.
Here are some websites. If anyone finds info about this or other info, your input would be extremely helpful. The goal, in my opinion, is to get the CDC to get its a -- in gear and to effecientlyand publicly handle this issue. In addition, it needs to be held accountable for the general slowness to respond. Finally, protocol needs to be put in place to confirm that the public is fully aware of what the prcoess should be -- so that such slow response is not repeated in the future.

http://www.cdc.gov/ncidod/EID/index.htm

http://www.cdc.gov/ncidod/eid/vol6no6/wheelis.htm

http://www.cdc.gov/ncidod/EID/vol2no2/fidler.htm

http://www.cdc.gov/ncidod/EID/

identifying, managing, reporting adverse events, etc.

http://www.cdc.gov/niosh/nas/mining/pdfs/Protocol%20Checklist.pdf

conflict: identify who will be tested.

Conflict identified: they are trying to see how widespread the problem is, but seem to be limiting study to a small geographic area, conflict between goals and methodology

http://www.cdc.gov/niosh/nas/mining/pdfs/Protocol%20Checklist.pdf

Question for anybodys lawyer friend:

Does the public have access to this info?

If so, at what point can we gain access? How? What is the procedure for gaining access?

Expedited protocol review: if needed, describe the need for an expedited review of the protocoltranslation: they cant loll about and get to it whenever. This might be an area of negligence. Investigate this.

Is protocol law?

http://www.cdc.gov/mmwr/preview/mmwrhtml/00033466.htm

http://www.cdc.gov/ncidod/EID/index.htm

http://www.cdc.gov/ncidod/eid/vol6no6/wheelis.htm

http://www.cdc.gov/ncidod/EID/vol2no2/fidler.htm

http://www.cdc.gov/ncidod/EID/

identifying, managing, reporting adverse events, etc.

http://www.cdc.gov/niosh/nas/mining/pdfs/Protocol%20Checklist.pdf

conflict: identify who will be tested.

Conflict identified: they are trying to see how widespread the problem is, but seem to be limiting study to a small geographic area, conflict between goals and methodology

http://www.cdc.gov/niosh/nas/mining/pdfs/Protocol%20Checklist.pdf

Question for anybodys lawyer friend:

Does the public have access to this info?

If so, at what point can we gain access? How? What is the procedure for gaining access?

Expedited protocol review: if needed, describe the need for an expedited review of the protocoltranslation: they cant loll about and get to it whenever. This might be an area of negligence. Investigate this.

Is protocol law?

http://www.cdc.gov/mmwr/preview/mmwrhtml/00033466.htm

wow... It makes you really sick, living with illness and getting
absolutely NO HELP... I don't understand how so many eyes are closed.

In my opinion, that particular group pretended to be something they're not on a regular basis. I'd be surprised if there aren't some still here, biding their time. They don't give up, easily.

Rita

Even though I have Windows Media that works, I can't get that program to show up, for some reason. Any other links, anyone? Thank you!
Wendy e Tripp <WETRIPP@...

It used to be, but I can never get it to upload on line I believe
that I was on their second segment .... there is the last segment
from the same tv station and there is a brief second of my leg
lesions shown .... the segment with Billy Koch and his wife ....
The link is ALWAYS posted on/at their "HEALTH" section:
http://www.ktvu.com/health/index.html
go there and scroll down you will find:
"Mystery Illness Baffles Doctors; Frustrates Patients"
Is an unknown disease hitting the Bay Area or is it just a case of
mass delusion? If you ask intensive care nurse Cindy Casey she'll
tell you that the mystery disease is very real and very painful. More
Details
Video On Demand: Health And Science Editor John Fowler Updates The
Mystery Illness Story
Previous Reports
Video On Demand: Segment 2: Mysterious Parasite Strikes Local
Residents (Part 2)
Mysterious Parasite Striking Bay Area Residents (Part 1)
The Inside Information On Morgellons Disease

Dana, I think i got mixed up between Fenbenazole and fluconazole.

On seconds thought i think, i am good, no need for fluoconzole. Well see..one day i emailed my Doctor, i told him that i have morgellons..then i explained to him what morgellons really is, all the sign and symptom. But after that i never heard from doctor again, so that's why i like over the counter medicine better. any who...

Dana did you know that a lot of people are getting great result from taking Fenbenazole?

P.S sorry about the Thanksgiving, when you had to ER. But we are all glad that you are allright.

danacantstop <danacantstop@...

Tony, diflucan is only available thru prescription for human use,
you may find it online for vet use if you search. It treats yeast,
so it is pretty easy for a woman to obtain a script for it, not so
sure about a man, you'd likely have to have signs of thrush or yeast
in the blood... Do you have signs of yeast that your doctor could
see?

Please call your rep in Congress and express that you do not want three people in a private medical organization to render inferior the quality of medical treatment for thousands of Lyme patients!
I called the organizations that hire the three individuals in question and called for their dismissal. (See email previously sent on the topic.) The organizations had already gotten MANY calls on the topic, they said.
********************************

Some that I saw in the video looked familiar. It would be helpful to know who made the video, if it was made in the lab, the name of the lab, how the video was made (what was done to produce those results), and whether an attempt was made to replicate the development seen. Answers to these questions could offer info as to credibility. It was extremely interesting. Thank you!
maureen leary <morgellonsmoe@...

http://www.silentsuperbug.com/ watch these two clips pass em on

I was able to get a 5 month scrip for fluconazole and clarithromycin because I
did massive appeals to my insurance company citing the "Schardt Protocol" for
Neuro-Lyme -- which consists of the use of fluconazole for clearing neuro-lyme
issues.
See http://www.canlyme.com/diflucan.html for more info.
My insurance has now cut me off all antibiotics/antifungals ... claiming that
since I've been on antibiotics for more than a month, i couldn't possibly have
Lyme. I don't have the energy to argue with this specious argument (what if that
one month of antibiotics was ineffective against a resistant strain of borrelia?
Did they isolate my borrelia in a culture and do susceptibility testing against
the antibiotics they claim will eradicate my Lyme in a month?? NO!)
I'm sick of arguing with all these idiots. It's much easier to just order
oxytetracycline over the internet -- lyme treatment for $60.00 a month... plus I
don't have to pay an LLMD out-of-pocket every few months to extend my scrip...
or fight with insurance that is telling me -- even though they've never seen or
met me -- that I cannot possibly be ill anymore, and that they'll only pay for
prescriptions written by their own doctors. Doctors that across-the-board
are ignorant of Lyme Disease ("isn't that only a problem on the east coast??")
or Morgellons ("it's clear that there's a controversy over morgellons and I
believe it's entirely psychological... if you won't take orap, i will not treat
you").
-- Niels.
http://nielsmayer.com
PS: fenbendazole is a strong antifungal in addition to its antiparasitic,
antibacterial and anti-microsporiadian properties. It has been shown to be as
strong and effective as IV Amphotericin B, which is far more dangerous and
expensive. I don't feel like I need the fluconazole anymore to clear the
"brainfog" of lyme as I'm getting that same effect with fenbendazole.

http://www.silentsuperbug.com/ watch these two clips pass em on

I was able to get a 5 month scrip for fluconazole and clarithromycin because I
did massive appeals to my insurance company citing the "Schardt Protocol" for
Neuro-Lyme -- which consists of the use of fluconazole for clearing neuro-lyme
issues.
See http://www.canlyme.com/diflucan.html for more info.
My insurance has now cut me off all antibiotics/antifungals ... claiming that
since I've been on antibiotics for more than a month, i couldn't possibly have
Lyme. I don't have the energy to argue with this specious argument (what if that
one month of antibiotics was ineffective against a resistant strain of borrelia?
Did they isolate my borrelia in a culture and do susceptibility testing against
the antibiotics they claim will eradicate my Lyme in a month?? NO!)
I'm sick of arguing with all these idiots. It's much easier to just order
oxytetracycline over the internet -- lyme treatment for $60.00 a month... plus I
don't have to pay an LLMD out-of-pocket every few months to extend my scrip...
or fight with insurance that is telling me -- even though they've never seen or
met me -- that I cannot possibly be ill anymore, and that they'll only pay for
prescriptions written by their own doctors. Doctors that across-the-board
are ignorant of Lyme Disease ("isn't that only a problem on the east coast??")
or Morgellons ("it's clear that there's a controversy over morgellons and I
believe it's entirely psychological... if you won't take orap, i will not treat
you").
-- Niels.
http://nielsmayer.com
PS: fenbendazole is a strong antifungal in addition to its antiparasitic,
antibacterial and anti-microsporiadian properties. It has been shown to be as
strong and effective as IV Amphotericin B, which is far more dangerous and
expensive. I don't feel like I need the fluconazole anymore to clear the
"brainfog" of lyme as I'm getting that same effect with fenbendazole.

I have kept a log from day one ..... A VERY LARGE BINDER with all
doctor appointments, diagnosis, treatments, pharmacy paperwork .... e-
mails from Mary Leiato, Other sufferers ..... I HAVE IT ALL!!!! And
since I was on the "NEWS" I'm sure I could get a copy if any legal
action is to be taken!!!!!
wendy

I was able to get a 5 month scrip for fluconazole and clarithromycin because I
did massive appeals to my insurance company citing the "Schardt Protocol" for
Neuro-Lyme -- which consists of the use of fluconazole for clearing neuro-lyme
issues.
See http://www.canlyme.com/diflucan.html for more info.
My insurance has now cut me off all antibiotics/antifungals ... claiming that
since I've been on antibiotics for more than a month, i couldn't possibly have
Lyme. I don't have the energy to argue with this specious argument (what if that
one month of antibiotics was ineffective against a resistant strain of borrelia?
Did they isolate my borrelia in a culture and do susceptibility testing against
the antibiotics they claim will eradicate my Lyme in a month?? NO!)
I'm sick of arguing with all these idiots. It's much easier to just order
oxytetracycline over the internet -- lyme treatment for $60.00 a month... plus I
don't have to pay an LLMD out-of-pocket every few months to extend my scrip...
or fight with insurance that is telling me -- even though they've never seen or
met me -- that I cannot possibly be ill anymore, and that they'll only pay for
prescriptions written by their own doctors. Doctors that across-the-board
are ignorant of Lyme Disease ("isn't that only a problem on the east coast??")
or Morgellons ("it's clear that there's a controversy over morgellons and I
believe it's entirely psychological... if you won't take orap, i will not treat
you").
-- Niels.
http://nielsmayer.com
PS: fenbendazole is a strong antifungal in addition to its antiparasitic,
antibacterial and anti-microsporiadian properties. It has been shown to be as
strong and effective as IV Amphotericin B, which is far more dangerous and
expensive. I don't feel like I need the fluconazole anymore to clear the
"brainfog" of lyme as I'm getting that same effect with fenbendazole.

Just thought of something...We could write to Erin Brockovitch. Maybe she would be willing to help. She is caring, resourceful, and smart -- and if anyone could find out who should be accountable -- when -- it would be her. I might try to write to her over the next couple of days. We do not know yet that this problem is not curable -- just that it has not been taken seriously enough for a cure to be sought -- in the right places. If she could help us, we might be able to get the help -- and health -- that we are seeking.
janet manton <manton_janet@...

Thanks for response.
Maybe if we knew exactly what the fibers were made of, we could identify an already existing test (for a different disease, for example) that would reveal the abnormality...
Do we know, conclusively, what they are made of?
danacantstop <danacantstop@...

sometimes... not for any length of time, but for a few hours. I have
pain in my hip sockets like pressure in the joints, and sciatica
like pain that travels down the leg from the hip. I limped for a
little while when that bruise appeared on my ankle yesterday.
I think testing for morgellons fibers is getting ahead of the
research, as we don't yet know what to test for. The best you could
hope for at this point is testing for the surrounding issues, like
autoimmunities and infection.

I ran across this while looking for possible causes of the bruising.
This could explain most of what goes on with me, almost all.
Maybe not quite all.
http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_whatis.html

The red pinpricks many describe are called petechiae. They are
mainly a symptom of clotting disorders, septicemia, or an
autoimmunity. I couldn't find a picture of petechiae but it was
described exactly like we describe it, as tiny burst cappilaries
appearing like red dots or pricks on the skin.
I want to ask if anyone else has had any unexplained bruising
without injury? I keep getting bruises on my legs mostly that start
internally with a sensation of pressure, and maybe burning or
itching with it, then a few hours later there is a bruise there.
This last one I am almost certain I felt the blood vessel burst when
it happenned. I put my socks and shoes on at 2 pm and there were no
bruises on my ankle. A short time afterward I noticed it was a
little tender, then I felt a pop and the sensation of heat spreading
through my ankle. I was walking my son home from school when it
happenned so I didn't look at it until I got home. When I removed my
sock there was a very dark purple bruise about the size of one of
those old half dollar coins. Usually the bruises I get like this
don't appear as dark or as large, but seem to be smaller and deeper
in the tissues, looking like a normal bruise. This one is different.
Has anyone else had these? I'm trying to decide if it's worth a trip
to the doctor or if that is just wasted effort.

Is there something else that urine could be tested for to reveal fibers? Do we know what the fibers are made of? Any already existing blood or skin tests to reveal difference? If there are skin tests that people have used, what are they and how could a dermatologist or other kind of physician perform the test? What kind of physician would be most effective?
Is anyone limping?
danacantstop <danacantstop@...

that's an interesting question, I suppose it would depend on the
composition of the fibers themselves...

Because it is said that there is a high incidence of people testing positive for Lyme who later come down with Morgellons symptoms, I thought that this would interest the people on this list. It was sent with a "please distribute" note to a Lyme list that I'm on. Because the guidelines of what can be acknowledged as Lyme symptoms -- and insurance coverage -- is threatened with changes, there is going to be a rally in New York today. We can help by calling the relevant people on this list. I've substituted "Nov. 30th," since the rally, if I understand it is today.
I'm going to also call my elected representative at that time.
Quoted message:

llen lubarsky" <ellenluba@...
Date: Wed, 29 Nov 2006 17:17:56 -0800 (PST)
Subject: [Lyme-Aid] URGENT ACTION FOR THOSE WHO CANNOT ATTEND RALLY

PLEASE DISTRIBUTE:
Nov. 30th is a really important day in Lyme history.
Hopefully, as many people as possible will be able
to show
up at the rally to publicize how dangerous the new
IDSA guidelines are.
FOR THOSE WHO CANNOT ATTEND:
During the hours (11AM-3PM EST) that protesters are
at the Westchester Medical Center / New York
Medical
College ,we are asking that Lyme patients across the
country
make some very important phone calls of support.
PLEASE CALL the following administrators who are in
positions of authority over Drs. Raymond Dattwyler,
Robert Nadelman, and Gary Wormser, the three
Guidelines authors whom we are protesting.
PEOPLE TO CALL:
1) Ralph A. O'Connell, M.D.
Acting President and Provost & Dean of NY Medical
College
(914) 594-4600
2) Susan A. Kline, M.D.
Vice Provost, University Student Affairs
Executive Vice Dean, Academic Affairs
(914) 594-4500
3) Michael Israel
President and CEO
Westchester Medical Center
(914)-493-7017
WHAT TO SAY POLITELY:
1) Say that you suffer from Lyme disease and that
there are 3 doctors employed at the Medical Center &
NY Medical College who have published guidelines that
will cut thousands of patients off from necessary
medical treatment..
(Again, the names of those employees are Dr. Raymond
Dattwyler, Dr. Robert Nadelman and Dr. Gary Wormser.)
2) Ask that they, as administrators in positions of
power, intervene with these doctors on behalf of
people who are desperately ill.
3) Please be polite. This is important, since we are
asking for their help.
WHEN TO CALL BY THE TIME ZONE IN WHICH YOU LIVE
Eastern time zone (call 11am Eastern Time)
Central Time Zone (call 11am Central Time)
Mountain Time Zone (call 11am Mountain Time)
Pacific Time Zone (call 11am Pacific Time)
In order to make sure the calls are spread out during
protest hours of 11am-3pm ET, we are asking people to
call
according to the above schedule.
If you can't call in your time slot for some reason,
go ahead and call anyway.
Check www.Lymenews for UPDATED NEWS
Wish us luck today at the protest, and get ready
to phone.

Particularly since all of the drugs that people are on -- and the illness, itself -- might cause memory issues, I strongly suggest documenting everything, including what physicians were told and how they responded. This might later become useful if there is a lawsuit, for example, with regard to reporting responsibilities. I'm guessing that those physicians who neglect their responsibilities to the patient -- and dismiss without investigating illness -- likely do not indicate in their records, with great accuracy, what had been reported. I know that it is a pain in the neck, but it might be worth taking photos, when possible, for example of a rash, etc. and documenting visit dates, physician seen, and response of physician. That may prove useful later. Wendy, I hope that your lawyer friend has info as to all this. If each department -- from the CDC on -- is charged with specific responsibilities in terms of reporting -- then they will need to be held accountable.
Here is a related article, but I haven't yet found exactly the info needed.
http://www.cdc.gov/mmwr/preview/mmwrhtml/00001665.htm
I wonder if the Attorney General would know who should have the info regarding stages of reporting?

I just sent off a copy of this to my friend who is an attorney! Let's
see if he's interested ..... or what he has to say!
wendy

I have a wonderful friend who lives out in the "boonies" (93 miles
east of me) and he goes to a farm feed store and buys me the 10%
cattle fenbenazole paste (same as equine, yet priced cheaper!!!!)
I am taking the 10mg/Kg dose at this time working up from the 5mg/Kg
per day. A 290g tube costs about $42.00 = $1.60 per 10mg/Kg dose.
I was also using it topically with noticeable results.
I haven't taken any other medications as I am taking psych meds that
may harm my liver .... I'm being cautious.
wendy

Hi, Everyone,
This article just appeared in the Boston Globe a couple of days ago. I think that it's relevant to Morgellons issues because it speaks to the legal obligation that physicians have for reporting clusters of diseases. They have a moral and legal responsibility to do so -- and ignoring the issue is not an option. As you can see in the article below, a hospital was fined for acting too slowly when the hospital acted too slowly. Toward the end of the article, other kinds of diseases are mentioned. (More below) I think that this is very relevant, since the Center for Disease Control is stating that they are gathering information on the numbers of people impacted -- but since the CDC has not gotten their info out to the doctors and nurses who will ultimately have contact with patients -- there is not a way for the CDC to know what those numbers are. If the CDC has, in fact, fulfilled (what I believe is -- any lawyers on this list? Is it a legal obligation of the CDC to inform
state departments of public health at this stage?) its obligation to inform state departments of public health as to the Morgellons issue, then it appears that the departments of public health of each state likely, in turn, have a legal oblgation to pass that information along to the Boards of Health. It would be relevant to find out as to whether there is a legal obligation at each of these levels. The public has a right to know that this obligation has been fulfilled. If that obligation has not been fulfilled at any of these levels -- CDC not acting swiftly and communicating to appropriate departments or state dept. of public health not disseminating info to local communities, etc. then perhaps they are open to lawsuits.
I think that this issue is important not only to Morgellons, but in terms of any infectious disease, in general. The agencies involved have a moral and legal obligation. Once we know what the responsibilities are of these agencies -- and the public's right to know whether these agencies have fulfilled their obligations -- it will be possible to act accordingly.

http://www.boston.com/news/local/articles/2006/11/28/city_faults_childrens_on_disease_reporting/

I think it could be possible for each of us to google the infectious disease reporting laws in our states. Those physicians or hospitals that don't fulfill their obligations to their patients and the communities might be vulnerable to law suits.

Example:

Googled infectious disease reporting

http://www.bphc.org/bphc/pdfs/cdcreportcard_new.pdf

Janet M
(screen name)

I have a pretty lengthy thread on Lymebusters with a bunch of research I've done
into getting pet meds (w/o prescription) to cure morgellons and save a lot of
money over the overpriced and stratospherically marked-up human medicines:
Safe-Guard 10% Fenbendazole Suspension For Dairy and Beef Cows
(3g/day (30mg/Kg) as 15ml 10% suspension BID)
Prazi Pond -- Praziquantel for Koi Ponds
(5-6g on alternating days (50-60mg/Kg) as 10 hand-packed #00
pills)
Agrilabs Oxytetracycline calf bolus
(4 500mg pills per day)
Quest Equine Gel (moxidectin)
(100Kg horse dosing once every 2-4 weeks orally,
mostly used topically)
Ivermectin Equine Paste (generic)
(100kg horse dosing -- 20mg -- on alternating days)
I just restarted the Ivermectin/PraziPond altenating-day dosing, as I was busy
having a Lyme herx from the Oxytetracycline, which I started at the beginning of
the month. Praziquantel is not very much fun -- it makes
me feel crappy enough that I take it before I go to bed -- sometimes this means
waking up in the night with a bad feeling... as if you're "drowning in
mid-air"... It is a worthwhile torture, as the combination of fenben and prazi
and moxi and iver have caused the most progress I've seen in years.
Note, however, that you'll probably "get worse" before you "get better" on the
aforementioned meds. The first few weeks on fenben/prazi were sheer hell. All
sorts of stuff coming out of my skin -- even in places that weren't lesioned ...
stuff coming out my gums... my nose .... itchy... tired... offset only by a
relatively rapid clearing of "brainfog" -- which I attribute to the
fenbendazole. Followed by healing of skin sores, mouth sores, disappearance of
"vericose veins" and leaking blood vessels in lower legs (more like wormi-cose
veins). The "white lines" appearing under my lips went away... as did the fibers
in the lips, splitting of lips, dry lips, etc. My nose is surpsisingly clear
these days and I don't feel like there's stuff growing in my sinuses anymore.
Again, I'm pretty sure that was the fenben helping there.
Here's the thread:
http://lymebusters.proboards39.com/index.cgi?board=rash&action=display&thread=11\
54759011&page=1
-- Niels
http://nielsmayer.com

This requires a TUBE black light...about 20 in long(if i remember
correctly), and here is the article that i wanted to disprove, but,
alas found them in my home. I dont know if the source is from
outside or products we bring inside the home. Please let us know
what you find out. Thanks for trying this..................... ---
How To See Mystery
Chemtrail Aerosol Filaments
By Sue Miller
aka 'Looookinup'
smillernc@...
8-2-3
The unusual phenomena being described here -- and at various
Chemtrail/Aerosol Activity Boards -- is being called by different
names. 'Aerosol polymer filaments and webs' (Mike Castle @Rense).
Chemtrail fibers; microfilaments; 'sky-webs''; chemtrail fall-out;
electrostatic filaments; CT particulates; perhaps
even 'Morgellon's'. "I like the term 'fibrils' as it implies a
synthesized microfiber with conductive properties." (Moondog @
Carnicom).
But whatever they end up being called (personally, I lean
towards 'CT-UV fibrils' -- has a nice ring), they are REAL and
OBSERVABLE.
See for yourself -- it's simple...
These CHEMTRAIL/AEROSOL/ UV/ FIBRIL/ FILAMENTS are very easy to
observe under the right conditions.
To actually WITNESS these filaments covering you, and your children,
your pets, your home, your plates, your pillow and your possessions
can be very shocking.
They are all over us.
They are floating in the air.
They are entwined in all that extra 'dust' you have been wiping up
lately throughout your home...and the 'dust' on your car.
They are clogging your A/C and furnace filters.
They are landing on your food between the plate and your mouth.
We are all wearing them, eating them, drinking them, breathing
them...
And they are virtually INVISIBLE -- EXCEPT under ultraviolet light.

Yea i know some people wouldn't hesitate to cross the line, they would do anything for money. Perhaps we should warn all the new members...

i don't have to worry about myself..its not like i am the bank, I am a part time employee for crying out loud. i have to think twice before i spend my money.

Wendy.. how is fluconazole working for you? I heard its worth it. and where did you purchase fluonazole from?

take care you guys...

Wendy e Tripp <WETRIPP@...

Rita .... this has been my quest on these Morgellon sites ... it has
got me censored for asking questions of "pushed" products on other
sites and for warning others. It's refreshing to hear you and a small
group of others stand up to these scammers, and crooks ...... I
recently tried to warn others on yet another site, and now all my
posts are censored there as well ..... go figure .... it almost gets
to the point of not "caring" anymore, but that's not my nature ....
wendy

I bought a black light bulb. Is that what you mean by "black light?" Should I see something specific if the black lightbulb is in the lamp?

ok- I haven't actually called the CDC, but have sent emails to the
link someone posted awhile back asking about the reason for delays
in investigation- no reply. I have sent letters to the major
hospitals nearby describing the symptoms of morgellons and urging
docs to become familiar with the issue by doing their own research.
as far as proteinuria- this is what I know, by no means is it
straight from the PDR, but maybe it will help
a) infection- often I have had low level UTI's and didn't even know
it until the test (for something else) showed it
b) weight loss- with heavy exercise or a moderate amount of weight
loss I think you can lose or break enough muscle tissue to
temporarily cause some of the proteins to be excreted in urine, I
think it's not anything to worry about unless you are on a statin
drug for cholesterol and have muscle pain, when you'd need to worry
about rhabdomyelosis, btw, that is probably misspelled and seriously
oversimplified but... I do my best
c)autoimmune diseases- can cause you to spill proteins into the
urine, glomerulonephritis
That's all I can think of right now

I realize that some people have bad results with antibiotics...I'm on them now...don't know whether it will be good or bad, but want to mention...there are fewer lint things in the air with antibiotics...

The first link you posted, ...safe2use.. did look complicated and used
products that need to be bought over the internet. The second link
though was pretty easy and all stuff you can buy local. The Nature's
Miracle is sold at most any pet store or PetSmart, (no I don't own
stock though I should), Nature's Miracle is an enzyme based liquid
that's used to clean up pet stains and odors. The enzymes would kill
the eggs, (it says) and is good for cleaning the environment. They
also took intenally digestive enzymes and CO-Q10 which you can get at
any local health or vitamin store. The Borax, (20 Mule Team Borax)
laundry soap I buy at Target or Walmart and they say, any anti-itch
you may need like benadryl. I would still use ammonia in the wash with
the borax. I just can't help myself, I feel like its best for killing
them on the clothes.
Maybe worth a try!
karen

Tony
I have to admit that, since the last group of sos, my mind is closed.
They will say anything, do anything, pretend they don't know each
other & lie about everything. I may not be the person to ask about
this. Trust no one who tries to sell you something on the internet.
If you go after them on ebay, for instance, that's one thing. When
they come after you and after your list and after your friends and
after your friends on other lists, they're probably crooks.
I'd rather buy over the counter and not from someone who's cruising
these groups to make money.
Rita

Hi,
There are some issues that I've been thinking about with regard to this broadcast from Fox News on Morgellons:
http://www.myfoxcleveland.com/myfox/pages/News/Detail?contentId=1549984&version=1&locale=EN-US&layoutCode=VSTY&pageId=3.2.1
First, there were a couple of topics that were concerning. The CDC stated in the Broadcast that Morgellons is likely not very contagious, as it would have otherwise been more widespread. However, given the likelihood of physicians' labelling the illness as "delusional" and the tendency for many patients to simply accept such a diagnosis -- combined with the CDC's extremely slow response and general ineffectiveness in gathering information -- we really don't know how widespread the disease is. I do think that letters to relevant sections of local newspapers at this time are crucial. (Letters could include links to broadcasts such as the Fox Broadcast.)
Second, some of the news outlets really should inquire as to the timing of the response of the CDC. This is important not only to this specific illness -- but to any possible illnesses. I feel that the Morgellons response by the CDC is akin to the Hurricane Katrina response of the government. Too little, too slow.
I noticed on the Fox Broadcast that the people interviewed seemed...smart. I have a hunch that people who are more educated (and that could be formal education or just generally good at building knowledge through observation) might be more "dogged" in their pursuit of figuring out what's wrong. Reaching a broad spectrum of the population, if there is a broader spectrum that has been impacted, will be important.
Re: Geography...I'm in the North. The colors of fibers that I'm seeing are not predoiminantly blue, red, and black...but I've noticed that the "glitters" are the same color as the fibers. Maybe that's a pattern...black glitters, black fibers, white glitters, white fibers. Perhaps the colors that are expressed should be broadened, because there might be different manifestations in different parts of the country? (I've also seen red, blue, etc.) I haven't seen full fledged Morgellons symptoms, but way enough to be concerned.
Finally, has anyone who feels like discussing it here reported to the CDC? What was that like? I'm thinking of calling them. WHat is the timeline like? Do you leave a message? Are they interested in people not in the South?
Re: scraping...I noticed on the Fox News tape that drs. wouldn't give skin tests. Has anyone found a strategy or kind of dr. more likely to give skin tests?
Finally, excuse the personal question, has anyone found a relationship between Morgellons and protein in urine?
Wendy e Tripp <WETRIPP@...

Rita .... this has been my quest on these Morgellon sites ... it has
got me censored for asking questions of "pushed" products on other
sites and for warning others. It's refreshing to hear you and a small
group of others stand up to these scammers, and crooks ...... I
recently tried to warn others on yet another site, and now all my
posts are censored there as well ..... go figure .... it almost gets
to the point of not "caring" anymore, but that's not my nature ....
wendy

Interesting, yet I don't think it's the cause in "our" disease!!!!!

Well at least thanks for sharing the ACV idea. Plus low carb diet and strong immune system isn't enough to cure Morgellons. While ago i said "i wasn't that desperate and i could wait until morgellons foundation comes up with Cure" ok.. i take that back.

its hard to believe that, this disease has been around for sometime now and still there are no cure. Sometimes i feel like i should just DO SOMETHING....at least, instead of just sitting at home and wait for someone to come up with cure.

since everybody was talking about fluconazole, i wanted to try it... but i don't know where am i gonna get a perception tho...

Today i was surfing on the web, and i came up with few links where people talks about possible cure for Morgs..but it sounds complicated as usual. Such as they would describe something that you never heard of or something that you need a perception for it, or something you can only purchase on the Internet (grrr).

http://www.safe2use.com/scabiesboard/2005_03/12656.html

http://www.marslife.com/naturecure.htm

Well Rita let me know what do you think about their suggestion...

Tony

rita borgeson <ritainthelibrary@...

Wish I could say the ACV was my idea but the only thing that was my idea was the low carb.

Rita

My husband and i have the red spots also, he all over his chest, i
have them mostly on my belly, when i opened one using baking
soda...there was a lesion under the skin, and i treated it with the
miracle foot aloe, and then the baking soda..it kept getting larger,
then erroded by mopping it up with repeated applications of baking
soda. We also both have the spider veins on facial cheek area. Let
me know if this unusual experiement i found helpful...helps anyone
else: when i quit using dryer fabric sheets, i used aluminun foil in
the dryer because i found that idea on a site where they discuss
alergies. One night my scalp was terrible itchy, and i thought of
the aluminun foil in the dryer idea to remove static electricity. I
made a cap for my scalp and the itching stopped right away. We
continue to use it in the dryer to help remove static and mystery

Yes I have them and believe they're related to this infection!
k

Does anyone here have any little red pin-prick looking specks on their
skin? They look like a tiny broken blood vessel, or like when you
first prick you skin with a needle, right before it starts to bleed,
the pin-point red spot you see? I noticed back in August I am getting
more and more of these. I have freckles (gotta love that Irish
blood ...), so they're not that noticeable unless you look. But when i
really look, wow -- all over my torso, chest, belly area, mostly. My
mom doesn't have any of them. I am just wondering if it's related to
Morgellons or what. My fiance, who exhibits no symptoms of Morgellons,
has quite a few of them too.

Wish I could say the ACV was my idea but the only thing that was my idea was the low carb.

Rita

Desperate people do desperate things. Glad you're feeling better, Dana.

Rita

I know exactly how you feel. I just went through one of those bad
periods. I have managed to lessen the occurance of those in a few
ways, not everyone will agree with me, but I'm going to tell you
what worked for me.
1. take mucinex (must be brand name as it is long acting) 1 tablet
a.m. and 1 at noon. Every day.
2.Benadryl helps if you cannot sleep. You MUST sleep. It gets much
worse at the levels of sleep you say you get now.
3. eliminate as many carbs as possible, especially grains, this is
REALLY IMPORTANT
4. if you have an active bacterial infection, i.e. sinus or skin
lesions that are bad enough, by all means go get antibiotics from
your doctor, they will help pull you back into the less symptomatic
phase of this illness where you can live more comfortably. While
you're at it you may want to ask for diflucan (just say you get
yeast infections from antibiotics) the combination of those two
things last time gave me about 3 months relief afterward. If you are
brave, desperate, or stupid like me, you'll just get antibiotics
from the pet store as needed. I also use a colloidial silver
solution as an antibiotic when I am really bad. I swallow half an
ounce at 30 ppm three times daily as well as irrigating sinuses,
eyes, ears, and lesions.
5. rinse eyes twice daily with saline
6. multivitamin, + calcium, + magnesium, + zinc, + selenium, and
extra vitamin C
7. lots of showers, I DO remember several times feeling like they
would fall out of my scalp and through my skin when I took a shower,
especially into my eyes, so if this bothers you, lie down in the
shower so they fall backwards, after a while this will stop. Also I
remember that conditioner sitting on my scalp before a shower helped
to loosen them up to be removed. It's been awhile since I had them
that bad in my hair, so I'm trying to remember what worked then but
it's not coming.
8. Antacids at night help with itching, I don't know why.
9. don't give in to the urge to pick if you can help it at all, it
makes things much worse, and I always regret it when I do. Do
whatever you have to to distract yourself, or take a benadryl and go
to sleep. Hydrocortisone cream can be helpful for very intense
itching over small areas. Use sparingly, I think theres an increased
rick of infection associated with steroids, but probably not much
with the topicals.
That's all I can think of right now. Keep in mind that the
afternoons and evenings are going to be harder and try to get
through one at a time. You'll feel better now, just having people to
talk to who will not disbeleive you, and to share what has helped is
a huge asset in this fight.
Dana

I'm sorry......but I am unable to understand what you are trying to say. You
state you were in Vegas for two days, but had been drinking for several?
Are you having flushing of the skin, or is your skin turning bright red when you
consume alchohol?
Sent from my BlackBerry® wireless handheld

I got really sick over the holiday, wednesday night I just couldn't
take it anymore and tried to go to the E.R. I had swelling and pain
in my neck, jaw, sinuses, and ears, Lesions in sinuses and down the
back of my throat that I could see with a flashlight, and something
like thirty lesions on skin of scalp face neck chest and back. In
one place on my back the skin just split open, by itself, leaving a
lesion about two inches long. I was turned away from the E.R. as non-
emergent because I still haven't been able to afford to pay off the
last bill from when I had a really bad asthma attack. This left me
on wednesday night before thanksgiving, with no access to medical
care. So I played pharmacy tech (which I was at one time) and went
to petco. I am telling you honestly I had no other options at that
time. I bought tetracycline tablets and found out by swallowing them
that there is nothing immediately toxic in them. I have read the
package inserts and realized that they make a variety of antibiotics
for aquarium use. I haven't yet done the research to be sure, but it
appears that there is a 'bactrim' a 'erythromycin' and one that
contains prazi. I'd probably use the sulfa/trimethoprim, or bactrim,
next time, after confirming the ingredients are safe. I also
remembered that I saw on mythbusters that poppy seeds can cause you
to fail a drug test as they contain morphine compounds, so I thought
I'd find out if large enough amounts were ingested if it would be
sufficient to address pain. It does, the amount needed is somewhere
around five tablespoons. I also broke down and bought some more
silver to irrigate sinuses and lesions with. Five days later I am
almost back to normal, and in the healing and dealing stage again. I
absolutely do not know what I would have done had someone in this
group not previously given me the information I needed. I don't feel
good about self treatment and use it as a last resort, but at some
point, it becomes moot, because desperation wins out. At some point
you have to do SOMETHING or seriously start considering suicide. I
have a boy who depends on me and I CAN'T GET THAT SICK. So please
everyone, continue to disperse the information we all need to have,
because you never know what a situation is going to call for. I say
it's up to the person doing the self treatment to get to double
check the information, but they should at least have the knowledge
and the option.
Dana
oh yeah, and chinchilla dust is great. Mix the ash with aloe or
lotion until it is a paste. Use before shower as a mask/exfoliant.
You'll want to actually stand in the tub to apply, it's messy and
hard to wash off, but it gets rid of all that sticky skin glue
plasticky crap that causes outbreaks of lesions if it is allowed to
build up in the skin. Good luck All and happy holidays.

Hi all, this is my first post i've been suffering for about 6 months
now- i am (was) a healthy 32 year old with no real health concerns.
right now i am exhausted, have lost a lot of weight, my hair is
falling out and all i can do right now is cry. my husband (of only
one year) does not have any symptoms and does not really seem to
believe me even when he admits he sees the black granules on my
hands after washing them in hot water. ( he says looks like lint or
hair to him not a 'bug') my animals are the only ones who seem to
understand -that's how i stay sane because when i think i might
be 'imagining" things i'll look around and my cats are seeing the
same things I am and are itching, licking and they will come paw my
face.. i am in a very depressed time right now but some days i feel
amost normal.. i notice the morg symptoms are much worse during my
monthly cycle which i just finished it was the most awful week of my
life. during the daytime i'm ok for the most part it's the nights i
cant sleep, all i do is try and cover my whole body with clothing but
my scalp is the worst. I would appreciate any feedback on what to do
my hair has thinned at an alarming rate, but it's just the crawling
feeling i cannot deal with . Last night it colored my hair (thinking
the ammonia in hair dye might help) which it did a little I think i
felt them moving around. my mistake was taking a hot shower to rinse
out after and whatever this is just kept coming and coming and i felt
the back of my neck it felt almost spongy or spore like, fuzzy, makes
me think of bacteria like a fungus- and it moves quickly if i put a
certain conditioner on it (with clove oil) it moves from that spot to
eh front of my hair and vice versa. I thought i was crazy until i
found this site; now i know its' increasing i see it's starting to
become more 'out there'. i have been to the dr. numerous times first
it was scabies, lice, etc. etc. now im referred to a dermatologist
which im scared to go to just in case they think im delusional too.
my primary doctor actually said she'didn't know' what was wrong with
my hands (lesions) or ears (infected)I've also had a miscarriage. i
have a lot of the other symptoms- 'glitter' occasionally, multi
colored fuzz/lint/hair ball things, brain fog, hair loss, weight
loss, insomnia, crawling feeling everywhere but mostly scalp, neck,
back, elbows... black specks on my hands oh and also my lips hvae
become huge swollen, joint pain, carpal tunnel, the NUMBNESS and
TINGLING in hands and feet is sometimes unbearable.
i'll do my best to show /explain to the dermotologist but i dont know
if it'll work. also any tips on laundry i have a full vent full of
lint every load and even my husband has noticed how it 'flies' out at
you but he thinks it's just 'lint' from living in the country. i feel
like i am in tune to it i can see the carpet move sometimes and my
nail beds have little white larvae looking things sometimes too but
it could pass for just 'skin' if you looked quickly. anyway this is
geting too long im just so upset and sad and angry that no one seems
to care or even konw what i am going through my sister accused me of
doing drugs and while 'seeing bugs' is commmon with methanphetamines,
that is not what is going on. i have been living on 2 or 3,
sometimes 4 hours of sleep a night. all i want to do is eat carbs
when i am hungry so how the hell can i eliminate carbs and sugar
anyway thanks for listening all i know others have it worse than me
im sure, but to anyone out there who is also suffering God Bless you
and i hope someone can help us soon.
b

I live close to you, and lived in austin for years. Ginger Savely no
longer practices in Austin, I beleive that is who you meant. I found
out when I called to make an appt with her a few months ago that she
had moved to San Francisco to study morgellons with MRF, I beleive.
Austin Regional Clinic, with whom she was previously affiliated,
informed me that they do not beleive there is any one in Austin who
is treating morgellons any longer. If you find someone who is,
please let me know... I'll be on my way.
As far as your medical sit. I know that liver damage can cause
intense itching and tingling or burning sensations in the skin. I
beleive that it is a common symptom. That doesn't mean you DON'T
have morgellons, but keep it in mind. I beleive that Austin was a
hot spot for morgellons, esp. the cedar park and round rock areas. I
think you'd probably notice the fibers and stuff leaving the skin as
soon as lesions appear, but I beleive you can have morgellons for a
long time BEFORE lesions appear. I beleive this after watching how
it has seemed to pass from myself to friends and family, but these
are totally just my gut feelings and observations, not facts... so
take them as such.
I have also had symptoms of SVT's and racing heartbeat
intermittently with morgellons. I avoid alcohol completely because
of the grain/gluten intolerance I seem to have now, but I think
vinegar may have set off a particularly bad episode a few weeks ago.
Everyone I have talked to here seems helped by a diet low in
sugars/carbohydrates. You might consider beginning one too.
Keep me posted about the MD situation as I have been unable to find
anyone who I think can really help me in the town where I live now
and Austin is the closest big city.
Dana

Hello my name is James In Austin Texas
Janruary of 2006 I was in vegas for 2 days, after drinking wine for
several days and nights and sleeping little and then walking to the
airport my heartrate went to 180 bps where it stayed there for 6
hours, I was taken by ambulance to the hospital where they checked me
for cardiac problems which showed to be "grossly negotive" but found
leisons on my liver. I returned to Austin and started flushing, or
puritus that would not stop, or would only happen when I drank
alcohol. Does anyone have such a problem with Alcohol???
Scans of the liver again showed 3 leisons in Feb 2006. I started
support for liver and checked into carciniod cancer info and then
mastocytosis information.
The flushing would usually only happen after a little wine, In March
no more wine or alcohol, but still puritus and the creepy crawly
felling, almost and electrical sensation on my skin, itching etc. I
fasted 2 times did liver cleanses, colon cleanses and by June the
liver spots had resolved were gone.
When I use valium I have no flushing or puritus at all. Now a small
red spot on my lower left side, doctor said it was H Zoster, that was
4 months ago, it never itched, but hurt at first. Still red, a couple
of other smaller ones, but no sensation at all, no fibers at all.
Biggest problem is with the rapid heartbeat after eating, or with heat
this I had before the valium.
Allergist put me on testosterone cream, then I found small white fatty
like globules on my scalp, which he said was subasus debris from the
testosterone,,, Hmmm
Looking for Virginia Savel, but cannot find her. Dr Swartz says he can
cure me, but how can he know for sure what this is. I was thinking
Mastocytosis before, and some call him a quack, and to me that means a
doctor that is willing to thinkoutside the box and not fall in line
with big pharma/
Anyway, got to take out the dog for a walk, need a doctor in Austin
asap. Any one can help?? Thanks,
James in Austin

Have no idea of what this is, but ketoconazole came up for fish
fungus in revivalanimal.com
Fluconazole is also called Diflucan and Forcan. I have not found it
on vet sites, but see it advertised for 'as low as $4.95 a dose. A
really good deal if you can get a prescription for it for candida and
obtain it for $4 at Wallmart or Target, and I think Costco.

Yes. Evidently 'regular' medicine has done some studies on this,
with great results. I had asked a general internist how he manages
to treat so many during flu season and not catch it himself. He said
he takes olive leaf extract.

I have a doctor's prescription for Fluconazole and I buy it at
Walmarts. Its on there $4 list (150mg only). I've also see it on the
web as a pet med. Haven't bought any yet on the web though. Think
it's used for dogs with itching/scratching problems and general
problems with their coat...

I've been researching and using essential oils for over a decade.
And, yes, oil of Oregano has been proven to kill just about any "bug
or bacteria" on the planet...but PLEASE, PLEASE folks, DON'T USE IT
UNDILUTED, DIRECTLY ON THE SKIN!!!!! I found this out the hard way.
Last spring, I contracted some sort of "bug" while visiting my son
in NYC. Once I got back home, I immediately starting applying the
oil of Oregano...and while it DID KILL ALL THE BUGS, the location
really started to SWELL...I mean really SWELL. I did more research
and discovered the oil of Oregano undiluted DOES cause swelling! It
took another 2 weeks to finally figure out how to get all the toxins
out and the swelling to go down (it was the Sole Detox Pads that
finally did it...and no, they are not an MLM, so I don't make any
money, etc. from any sale...but I now swear by these pads...they
remove deadly toxins from the body like nothing I've tried in 15
years! I still use them when I'm feeling toxic just from normal
daily living...foods, air, etc. They make me feel wonderful!)
SO, IF YOU'RE GOING TO USE OIL OF OREGANO, PLEASE DILUTE IT WITH ANY
TYPE OF PURE VEGETABLE OIL...olive oil, etc. A LITTLE OIL OF
OREGANO GOES A LONG LONG WAY!!! But it works for a very wide range
of parasites and bacteria, so it might be worth a try.
Also, as suggested in the initial post, ingesting the oil is a
fantastic way to utilize it. Be prepared, if drinking in water or
liquid, that the oil will hit your mouth and WOW...just keep
drinking your liquid until it dissolves. One can also add the oil
to recipies that call for Oregano. This may be the gentler way to
utilize it.
I hope this helps!:)
=====================

I was doing tons of research last eve on fungus as well .... go here
and flip out ...... may make sence as the baldness thing ..... I think
I have the white piedra ...... maybe we all do as the Morgellons may
have a co-infection such as a fungus, or maybe this is a fungus???
Don't you have to have a prescription for the Fluconazole or is it pet
med too? I will check it out ..... Also that type of fungus :
Clinical manifestations:
"Both clinical varieties are mostly asymptomatic. However, according to
the severity of the infection, progressive weakness of the hair shaft
will occur causing breaks."
wendy Happy Thanksgiving!!!!
http://www.doctorfungus.org/mycoses/human/other/piedra.htm

Happy thanksgiving to All, and today especially Adrienne, who has
brought to the group, intellegent information of her investigation.
Big hugs to you! you are not alone! And your excellent report is
greatly appreciated in this mystery search, your discernment a
valuable contribution.! I agree with your observations. Thanks for
being you, thanks for being here. ******************Group
Hug! Today im thanking God for showing me all the
hidden fiber bites that
were under my fine looking complection two months ago. Since then i
have applied baking soda to them nightly, re-applying the soda
sometimes 10 to 20 times as it gets saturated. The soda goes after,
melts, and mops up what ever is in these fiber bites. It has never
harmed the normal skin around the ulcer, and many of these 30 some
are
totally drained and healed and no scar. As i have progressed, others
have opened, and the ones on my cheek are especially deep but raising
to the surface, flatening out and closing up. I truely have felt led
by God to keep the faith with this proceedure, yet at times,
especially looking like i have chicken pox or worse...some drug
problem...its hard to go on errands in the store...but , i do go-and
with a prayer that i will be invisible to others. While im invisible,
i find myself looking at everyone elses face, seeing alot of what
looks like the small off color spots that hid my underlying ulcers.
Also, i find myself pulling up close to the tv and noticing every
face, even on comercials...and their "spots". One night at walmart
buying more baking soda...i read on the box..."new ideas"- use as a
skin softener. On the side of the panel it tells how to exfolliate
the
face using 3 parts baking soda and one part water and rubbing in a
circular motion. HEY
AGO!
If folks unknowingly have this, and do that....well, YIKES, maybe
there should be a warning on the label!!!! The other night, i
hurried to run out to whole foods, i had saved some birthday money
and
wanted to get a brand new makeup product that had just arrived
(something to cover these slow healing fiber bites). I was rushing
out
the door when i heard some tinkling of bells. It was our neighboors
dog...he is born in my livingroom nine years ago, and without his
electric collar on, had decided to come for a visit. I stayed home to
play with him, and his mom and brother are here as our pets. He too
has a fiber bite, on his rump , growing for several years. His dad is
the dog that had these all over his body, and praying for him,
brought
me on this path of discovery. With the silver, dad dogs ulcers were
healing and he could wag his tail again(he passed away last april at
16 wagging his tail til the end). I have explained to the neighboors
the importance of keeping their dogs ulcer at bay with the silver,
and
given them organic aloe to open it up. When this darling "grand-dog"
came inside for a visit i checked the ulcer on his rump and it had
opened and crusted blood matted the hair around it. I sat him down,
put on my headllight flashlight and proceeded to put some miracle
foot
aloe on the spot for a quick meltdown of the callus. While he begged
food off my husbands dinner, the sore opened and started to bleed
again. Then i added the baking soda and it began to drain. I spent 45
minutes re-applying the soda and combing it off as it absorbed into
the soda. The swelling under the mass of hardened fiber bites on the
surface-decreased by about half...so more work has to be done. I had
called the owners, and took all the dogs on a walk to return him
home,
explaining to the dogs dad...a lawyer who takes this dog to his
office
for each work day....how to continue draining this with soda. Will he
do it..dont know...but reversing these fiber bites, well, they take a
long time to do their agenda, and in removing a little bit...it goes
a
long way in the right direction. So, next time he comes to
visit...ill
work on it again. I am so pleased and thankful to know what to do,
the
soda being inexpensive, effective, and non toxic. The next night i
did go to whole foods, and prayed that no one would notice me and my
face covered with not quite done healing bites.The emotion of this
can
be so severe, humbling, humiliating :( I went over to the makeup
section, and no one came the entire time to that area. While i
listened to frank sinatra sing me love songs on the intercom, i
relaxed and i gazed into their magic lighted makeup table
mirror,remembering how it felt to feel pretty, and with cotton dabbed
my face with tester colors(no, i did not contaminate anything,i was
careful). Well, that was so fun, and like a kid in a candy store,
felt
so good to think about this being healed and done and getting
prettied
up for the holidays. I came home with eyeshadow powder to dab in the
ulcers, the drained dry dents are a tad red(until totally drained
over
time with this proceedure)....so a touch of the powder was the least
expensive "organic" way to do this. Surprisingly, a basket full of
discount german makeup inexpensively added some eyeshadow, mascarra,
and lip gloss. Im no chemist, so dont know if this organic makeup is
finer than the clinique my daughters and i have gotton all these
years, or a plain walmart brand... but, with this awareness of some
contaminate in the enviornment thats headed for our skin,,,gee...it
would be nice to know what to get to protect ourselves. Although most
of my birthday money went to purchasing "party favors" for the family
members last month when they gathered: and which were probably tucked
away never to be seen again...at least i hope they wont be
needed...that birthday money bought all of them 10x makeup mirrors,
miracle foot aloe, a box of baking soda, and my personal instructions
for dealing with a "fiber bites"...gee, i had a great time with the
last of the money, and will "gussy up" for the occasion. So, today
my table is set, the family coming from near and far, to gather
together to ask the Lords blessing, and i am thankful for His help
with this mystery, for the fight of faith he has put in "i'm scared"
me, even if it only helps myself and the dogs, and for now, that my
family listens politely and loves me with all my fiber bites, and for
all of you, your courage, strength, investigations, and support in
this strange and mysterious affliction, in which God, like in the
verse of the song....is "beside us to guide us, our God with us
joining* ordaining, maintaining, His kingdom devine* so from the
beginning the fight we were winning* thou Lord, was at our side,all
glory be Thine. Happy Thanksgiving everyone :)

I do not think this would be effective internally, but I often think
of mixing some such thing with a cream for a topical application.
Some meds are absorbed through the skin, so care must be taken.
I am taking fenbendazole, and at first there was even more activity.
I think they are cyclical, and depending on what time in that cycle
you hit them with something, you may get different reactions.
Now, in each 'active' part of the cycle, I am feeling less and less
movement.
I may have different things infesting me than some other people who
have such an immediate positive reaction.

I would first like to say that I do not know if what I have or had
was, indeed Morgellons or not but my ordeal started in the mid-90s.
It started with the same symptoms described by many on this site and
it is in researching my symptoms that brought me to this great group.
It was a relief to finally find others that had suffered like I had.
When I first noticed symptoms such as breaking out in the hideous
lesions from head to toe. It was even on the palms of my hands, so
I went to the Dr like many here. I went through the scabies, etc
pesticides which just irritated my skin more and made the itching
more prominent. Eventually, got referred to dermatologist and went
through the scabies treatment again and again with no avail.
Dermatologist did biopsy of lesion and found no parisite, cancer,
disease, anything! So I was back to square one. My family Doc said
he did not know what else to do for me except Cortisone shots, which
I had already had with no response. So on return visits to
dermatologist resulted in him giving me the same crap as others here
have heard......Must be in my head! Bull! I knew better so I
started on the path of homeopathic remedies!
The only good thing I pulled from my multiple costly visits to the
dermatologist was that I was stressing my skin out by bathing and
digging at the lesions too much. At that point I was picking at
leasions, looking at specimens under microscope to see if anything
was alive, and taking approximately 3 bath/showers a day. I
persoanly, have extremely dry skin and my skin was literally flaking
off my body and sore. I also concluded that I was hurting the
healthy skin by bathing too much so I reduced my bathing
considerably and approached each lesion individually to clean. I
also took his advice and quit picking at the lesions so much as
secondary infection had set in. Couple rounds of antibiotics seemed
at the time to alleviate some of the outbreaks for a while.
I researched as much as possible and looked at every disease to the
point that I now consider myself somewhat of an expert on many of
the diseases with similar symptoms as I tried anything I thought
MIGHT work! And I have tried everything! I was continually
broken out to various degrees for over 6 years with no hope on the
horizon of any relief until I noticed my outbreaks were becoming
less severe and didn't last as long as the previous bouts. Seemed
they came in cycles. I failed to mention that I also had allergy
testing for food and environmental elements which came back clean!
My conclusion is that this is a self-limiting disease in that the
severity seemed to lighten with each outbreak. Now understand I was
covered from head to toe. So places started to breakout less. It
all started on my stomach and on my stomach after a few years quit
breaking out altogether. Go figure!
I found the most relief with taking peroxide baths as it seemed to
exfoliate the skin. This is extremely drying to the skin so I would
follow with moisturizing immediately following the bath. I took hot
baths which seemed to make my skin bring red upon exit of the bath!
I also used Tea Tree Oil in bath which helped with the itching!
Once I quit picking at the lesions they seemed to heal faster. I
also used any type of exfoliation mask or product on face/neck area
and it seemed to keep it off my face or at least limit it.
It was not until I discovered Oil of Oregano that I seemed to help
internally and externally. I still to this day, drink 3 drops in
small glass of water and use it externally on all itch or lesions
that occasionally come up. Oil of Oregano has been around for
centuries and is good for problems with a multitude of problems such
as upset stomach, sinus, skin, etc. It has really helped me but as
we all know what works for one may not work for all.
After about 5+ years of praying to God and exhausting myself, I have
finally moved into what I call remission with this hideous disease.
I no longer breakout all over my body. I still have an occasional
lesion but I just put oil of oregano on it and it will start to heal.
To date, I have NOT seen anything move that I removed from a lesion
like many of you have or had. Maybe my experience or outbreaks were
not as bad as some of you, but I have been damn near ending it all
when I was in the worst of it!
I do not know what it was that I had or have, but I believe each and
everyone on this site that it is something be it Morgellons or not.
I know that what I went through I would not wish on my worst enemy
but keep in mind there is light at the end of the tunnel. Please do
not give up! Even though I am in a supposed remission or whatever
currently has not stopped my research or desire to find out what it
is that invaded my body for such a long time. I too suffered from
fatigue, brain fog, but wonder if alot of that was depression from
the mere suffering from this disease as it revaged my body and no
one believed me.
Again, I bring up the possibility of this being a self-limiting
disease. From my experience, this is what happened to me. I too
also worried about what it might be doing to me internally but I had
a body scan done last year and did not discover any problems. All
looks good thank God!
It is time for us to count our blessings as we celebrate this
Thanksgiving! We are all blessed that we have found each other as
going this alone is frightful. We are blessed that by coming
together we might provide strength in numbers so the CDC is forced
into action. Together we can find out what this is and fight it.
This is my story! Hope it helps in some way! To each of you,
please use what you can from each post to help you alleviate and
live with this plight! But please remember that we all different so
we are all going to respond different to any and all proposed
remedies. Until they get to the bottom of this please keep the
faith as that is what brought me back from the abiss.
May each of you find a blessing waiting for your this Thanksgiving!
God bless any and all that suffer this Thanksgiving1
Pam

Is there any way that your insurance company would pay for you to conference call with your PCP a specialist in CT? I've heard that there are some excellent Lyme specialists there.
Here is an article for anyone interested on some flies found in SA
http://findarticles.com/p/articles/mi_m3225/is_11_69/ai_n6076527
jesstrama <jesstrama@...

Hello i was just wondering does anyone know what test to ask you're
doctor to run,for morgellons? i live in hawaii so we don't have any
lime specialist doctors my symptoms are acting up again does anyone
know what medications work the best?please help me, p.s does anyone
know of any morgellons live chat rooms where we can talk to other
members live? thank you.

Olive leaf extract
The drinking of olive leaf tea has been a way for many centuries by
Middle Eastern cultures to treat disorders such as coughs, sore
throat, cystitis, fever and gout. In addition to the infusion,
poultices were also made of the olive leaves to treat boils, rashes,
warts and other skin problems.
The effect that olive leaf extract has on the body has been
researched and looked at for some time, and has become a much talked
about ingredient used in the treatment of fevers and infections.
Although olive leaf extract is classed as an alternative herbal
remedy, it can be helpful in the treatment of the common cold, flu,
cold sores (herpes), ear infections, eye infections, nose and throat
infections, impetigo, pink eye, parasites, and a host of bacterial,
viral and fungal infections.
Many major health claims are being made about olive leaf extract, but
since they involve unverified clinical trials we prefer not to list
the claimed pathogens that it is said to destroy.
The main constituent of olive leaf is the phytochemical oleuropein,
which has broken down to elenolic acid, which have a powerful anti-
bacterial effect, and has the ability to interfere with critical
amino acid production essential for viruses.
Oleuropein is a bitter monoterpene glycoside of the class known as
secoiridoids and is also one of the major components found in the
polyphenolic portion of olive oil
Other ingredients include esters, multiple iridoids, rutin, apigenin,
luteolin etc.
Animal studies have proven the effectiveness of olive leaf extract to
lower blood pressure, but this needs to be verified by human studies.
It further seems helpful in containing viral infections and the
spreading of these viruses by inactivating them, and the ability to
directly penetrate infected cells and stop viral replication.
In the case of retroviruses, it seems to be able to neutralize the
production of reverse transcriptase and protease and also seems to be
helpful in stimulating phagocytosis, which is an immune system
response in which cells ingest harmful microorganisms and foreign
matter.
Some research suggests that olive leaf extract may be a "true anti-
viral" compound, as it appears to selectively block an entire virus-
specific system.
Because of the above, it may be useful when looking to fight
influenza, the common cold, Epstein-Barr Virus (EBV) and other viral
infections.
Olive leaf extract also seems to be indicated as useful in boosting
the energy levels, assisting with chronic fatigue as well as helping
with allergies.
Olive leaf extract has been reported by leading clinicians to offer
significant benefit when included as part of an immune system
enhancement program designed to combat microorganisms - such as our
BodyGuard immune boost supplement.
Contra-indications
Olive Leaf Extract is non-toxic, but when killing too many pathogens
too quickly (detoxifying), a "die off" or Herxheimer's reaction may
occur - which is experienced as flu-like symptoms or allergic
attacks. This however only happens with high dosage and normally
passes quickly.
Olive leaf extract may inactivate antibiotics and should not be taken
while taking antibiotics.
Do your own google search on Olive Leaf Extract and see what you can
find:
http://www.google.com/search?hl=en&q=olive+leaf+extract

Hello i was just wondering does anyone know what test to ask you're
doctor to run,for morgellons? i live in hawaii so we don't have any
lime specialist doctors my symptoms are acting up again does anyone
know what medications work the best?please help me, p.s does anyone
know of any morgellons live chat rooms where we can talk to other
members live? thank you.

Dear danacantstop,

saw your post! WOW My sores are just like those in the gallery. You asked in another post if anyone had tried the medicine for pin worms. Yes! I'm sorry dear, I didn't get any relief from it. At first I thought it might work because the little buggers seemed to slow down, but by the next day I was right back where I started.

Wes
danacantstop <danacantstop@...

follow the marshall protocol link Zip posted a few days back to the
home page. you will have to register. After reading the main info
about the protocol follow this link
http://www.crossinglines.net/
or if it doesn't work, do an internal site search for morgellons on
the marshall protocol site and follow the link there. Read the
communique from a european who claims to know the source of
morgellons. This is insane if it is true. I think this may have been
posted previously, but I'm not hearing a lot of talk about it so maybe
no one got around to it.
Rita, the marshall protocol specifially mentions success with chronic
lyme and sounds like it is based in good science, uses doctors and
prescription drugs...

Reading your email about your son really touched me and also worries me too. My daughter is 5 and is also showing symptoms. Recently she had about 10 sores on her private and it hurt her so bad, I couldn't stand it. I'm with you, its okay if I suffer but not my child. I worry about going to doctor's since everyone I have seen has called me delusional, my family doctor told me that maybe I should get a really good hairdresser and the last time I was seeing her I took her information on Morgellons. She was checking my blood pressure and I asked her if it was high (it usually is) and she said "but that's not one of the symptoms". It took me a moment to figure out what she meant.......I was so pissed. She also made me go to a psychoanalyst who actually believed me. Now my doctor will not return my phone calls. I just want to be referred. Anyhow, hang in there!

Debbie S.
danacantstop <danacantstop@...

Has anyone tried the otc medicine for pinworms? I saw it at
walgreens the other day and thought "duh!" so I thought I'd ask. I'm
getting pretty desperate myself. I have never been this bad for this
long. I can feel the big dime sized things moving constantly now and
it hurts and itches all the time now. I think I understand why the
lesions are shaped like linear tracks or 'guitar picks' a lot of the
time. The critter comes to the surface and the skin ulcerates above
it, but when it is threatened it simply slides a short distance away
under the skin and starts a new one at the edge of the old one,
increasing it's length. The sudden bleeding slits that appear are
the same thing I think. The critter obviously has the ability to cut
through the skin in some way. I think it creates an acid, and when
it reaches the surface and pulls back it leaves a cut. I used to
think that some of the people whose accounts I read had gone over
the edge, not that they were crazy in the first place, but that they
had something bad going on with them and kind of got confused as
they tried to figure it out. I don't think that anymore. Most of the
things I have heard described I have now seen on my own body and it
was like "oh that's what they meant." The thing about the different
stages or life cycle, I didn't understand because I had not seen
them all. Now I have. Last night I used baking soda on a lesion and
it opened up one of Daisy's 'fiber beds' which I think are actually
larval beds. I watched as hundreds of tiny white larvae looking
things emerged from the lesion. I swear they looked like tangled
maggots except that they weren't writhing or moving. They don't seem
to move on their own yet at this stage, but underneath the beds a
lot of tiny somethings do. As the lesion opened more deeply and the
white larvae came out, long thin blue fibers appeared, one of them I
pulled with tweezers and felt it pull from the corner of my mouth
through my jaw and under my tongue. After all of the white larvae
were gone something that looks a lot like a fluke just popped out of
the hole. It was flat, flesh colored, 3/4 inches long maybe, 1/8
inches wide, and tapered on both ends. At each end were tiny
filamentous structures with vaguely hook-like ends to them. I am
beginning to think I am beyond a treatable stage to this illness.
These larval beds or whatever they are constitute more of the
surface area of my body than skin. In the last two weeks I have lost
fourteen pounds, I fit into my size five Before-I-had-kids-jeans
again. I had to get them from storage because my regular nines were
falling off. I really feel like I'm running out of time, and fast. I
hope something happens soon with the cdc, I can't have my little boy
getting sick like this. I had to put him on ritalin last week, he's
deteriorating mentally. Last year his teacher described him as well-
behaved, cooperative, and (her words) scary bright. This year he's
always in trouble, can't concentrate on anything, and irritable. I
took him to the dentist yesterday. He needs an extraction, two
crowns, and seven fillings. MY SEVEN YEAR OLD NEEDS TWO ROOT CANALS!
The dentist said I have to start making him brush his teeth, like I
didn't do that before! I've had to accept that he has this too, he
just doesn't yet have lesions. However, I can see where they are
going to be soon. It's easy to see once you know what to look for,
there is a texture change to the skin and it appears mottled and
irregularly textured and pigmented, with tiny raised whitehead
looking things. I feel so badly for him. I can handle it happenning
to me, at least I have so far, but I can't stand to watch my child
decline like I have. I have a really hard time keeping him on the
low carb diet, too. He doesn't get why he can't have PBJ and chips
and cookies for lunch like all the other kids. And I'm scared to
medicate him the way I do myself, without a dr's prescription,
because what if he does get really sick and I have to try to explain
this to a pediatrician. They'll think I'm one of those munchausen by
proxy moms who make their kids sick on purpose and I'll lose him to
the state or something. I have to take him to a counselor, it's
part of the protocol for ADHD meds. I am panicked about that. I get
to go talk to a psychologist looking like a meth addict and try to
explain that my son mentioned we have been sick a lot lately in
counseling because we have bugs crawling under our skin. I know
he'll say something to her about it, because he's worried about it.
I explained to him as gently as I could that dad and I are ill and
no one knows how to cure it yet, but they are working on it. He was
seeing us get sicker and didn't understand it so I tried to explain
it to him in a way he could understand. Now I have to try to explain
that to a psychologist. I am really concerned about this, if the
psychologist thinks I'm crazy she would call protective services and
I could lose him for ever. I can't think of a way to say it without
sounding crazy. Maybe I'm getting a little ahead of myself, but I
think I need to be thinking about this stuff, because it isn't far
off. What on earth am I going to tell his doctor.

follow the marshall protocol link Zip posted a few days back to the
home page. you will have to register. After reading the main info
about the protocol follow this link
http://www.crossinglines.net/
or if it doesn't work, do an internal site search for morgellons on
the marshall protocol site and follow the link there. Read the
communique from a european who claims to know the source of
morgellons. This is insane if it is true. I think this may have been
posted previously, but I'm not hearing a lot of talk about it so maybe
no one got around to it.
Rita, the marshall protocol specifially mentions success with chronic
lyme and sounds like it is based in good science, uses doctors and
prescription drugs...

Dana, Many of us have been using Fenbenazole, an animal dewormer, which
IS WORKING!!!!!!! I have used it for a month and no more itching and no
new lesions, old ones healing .... it's called Safe-Guard and be found
at WalMart, PetSmart, over the net .... but it's your choice to try it.
wendy

Has anyone tried the otc medicine for pinworms? I saw it at
walgreens the other day and thought "duh!" so I thought I'd ask. I'm
getting pretty desperate myself. I have never been this bad for this
long. I can feel the big dime sized things moving constantly now and
it hurts and itches all the time now. I think I understand why the
lesions are shaped like linear tracks or 'guitar picks' a lot of the
time. The critter comes to the surface and the skin ulcerates above
it, but when it is threatened it simply slides a short distance away
under the skin and starts a new one at the edge of the old one,
increasing it's length. The sudden bleeding slits that appear are
the same thing I think. The critter obviously has the ability to cut
through the skin in some way. I think it creates an acid, and when
it reaches the surface and pulls back it leaves a cut. I used to
think that some of the people whose accounts I read had gone over
the edge, not that they were crazy in the first place, but that they
had something bad going on with them and kind of got confused as
they tried to figure it out. I don't think that anymore. Most of the
things I have heard described I have now seen on my own body and it
was like "oh that's what they meant." The thing about the different
stages or life cycle, I didn't understand because I had not seen
them all. Now I have. Last night I used baking soda on a lesion and
it opened up one of Daisy's 'fiber beds' which I think are actually
larval beds. I watched as hundreds of tiny white larvae looking
things emerged from the lesion. I swear they looked like tangled
maggots except that they weren't writhing or moving. They don't seem
to move on their own yet at this stage, but underneath the beds a
lot of tiny somethings do. As the lesion opened more deeply and the
white larvae came out, long thin blue fibers appeared, one of them I
pulled with tweezers and felt it pull from the corner of my mouth
through my jaw and under my tongue. After all of the white larvae
were gone something that looks a lot like a fluke just popped out of
the hole. It was flat, flesh colored, 3/4 inches long maybe, 1/8
inches wide, and tapered on both ends. At each end were tiny
filamentous structures with vaguely hook-like ends to them. I am
beginning to think I am beyond a treatable stage to this illness.
These larval beds or whatever they are constitute more of the
surface area of my body than skin. In the last two weeks I have lost
fourteen pounds, I fit into my size five Before-I-had-kids-jeans
again. I had to get them from storage because my regular nines were
falling off. I really feel like I'm running out of time, and fast. I
hope something happens soon with the cdc, I can't have my little boy
getting sick like this. I had to put him on ritalin last week, he's
deteriorating mentally. Last year his teacher described him as well-
behaved, cooperative, and (her words) scary bright. This year he's
always in trouble, can't concentrate on anything, and irritable. I
took him to the dentist yesterday. He needs an extraction, two
crowns, and seven fillings. MY SEVEN YEAR OLD NEEDS TWO ROOT CANALS!
The dentist said I have to start making him brush his teeth, like I
didn't do that before! I've had to accept that he has this too, he
just doesn't yet have lesions. However, I can see where they are
going to be soon. It's easy to see once you know what to look for,
there is a texture change to the skin and it appears mottled and
irregularly textured and pigmented, with tiny raised whitehead
looking things. I feel so badly for him. I can handle it happenning
to me, at least I have so far, but I can't stand to watch my child
decline like I have. I have a really hard time keeping him on the
low carb diet, too. He doesn't get why he can't have PBJ and chips
and cookies for lunch like all the other kids. And I'm scared to
medicate him the way I do myself, without a dr's prescription,
because what if he does get really sick and I have to try to explain
this to a pediatrician. They'll think I'm one of those munchausen by
proxy moms who make their kids sick on purpose and I'll lose him to
the state or something. I have to take him to a counselor, it's
part of the protocol for ADHD meds. I am panicked about that. I get
to go talk to a psychologist looking like a meth addict and try to
explain that my son mentioned we have been sick a lot lately in
counseling because we have bugs crawling under our skin. I know
he'll say something to her about it, because he's worried about it.
I explained to him as gently as I could that dad and I are ill and
no one knows how to cure it yet, but they are working on it. He was
seeing us get sicker and didn't understand it so I tried to explain
it to him in a way he could understand. Now I have to try to explain
that to a psychologist. I am really concerned about this, if the
psychologist thinks I'm crazy she would call protective services and
I could lose him for ever. I can't think of a way to say it without
sounding crazy. Maybe I'm getting a little ahead of myself, but I
think I need to be thinking about this stuff, because it isn't far
off. What on earth am I going to tell his doctor.