Linda's Blog

Has anyone else tried antibiotics from a fish store? I'd
really like to have my brain back.
Rita

Wow, you've really done some work here. I wanted to add that Wal-
mart brand no rub saline solution for contacts works really well to
rinse eyes also. I noticed too that this must be done in a specific
way. I lie down with the bottle and saturate the interior corner of
the eye so that when I gently close the lid much of it stays under
the lid, for a minute or so, then I gently massage the lid to push
the saline out, blink, and repeat two or three times. I also rinse
the area around the eyes with saline and gently massage it into the
skin. When I am done the tears on my cheeks are tinted grey and are
opaque. If my eyes are bothering me I usually end up pulling out
those long strands of mucus or whatever they are from the corner of
my eyes about ten minutes after I rinse them. When I feel
these 'strings' in the corner of the eye I gently touch a q-tip to
the visible mucus and pull the strand out that way, instead of
rubbing my eyes. It seems to injure them less as well as getting
more of the strands out. These strands are embedded under my eyelids
in the muscles and I can feel them coming out from these muscles
when I remove them. It usually takes three or four repetitions of
this process to remove them all, or if not all then to a point where
I feel relief. I have less sinus and eye area problems since I
started doing this.
Also, not to beat a dead horse, but mucinex REALLY seems to help
when taken daily. I have even been able to tolerate more foods that
I have had problems with since I started on the mucinex. I ate a
Banana last night and no new lesions and no overwhelming fatigue!
Yippeee! Bananas!!!!
Dana

HI GROUP.
BEEN IN REMISSION FOR 2 MONTHS FROM THIS NO CRALLIES. IM SEEING YET
ANOTHER DOC TODAY HOPE HE HAS AN OPEN MIND. I AM 125 LBS AND USED
TETRACYCLINE 500 MG IN MORNING 500MG AT NIGHT I CAN GET IT AT A FISH
STORE, USE SE OR KOSHER SALT IN SHOWER KEEP EVERYTHING DRY . I HOPE I
LEARN MORE FROM HERE I PRAY FOR ALL OF US WHO ARE STILL IN HELL AND
CANT GET RO A COMPUTER . BY THE WAY BEEN ON ANTIBIOTIC FOR 2 MONTHS..
HAIRS BACK BRAIN FOG GONE I EVEN APPLIED FOR A JOB YESTURDAY .THERE IS
HOPE.

I agree, we are numb to the suffering of others, but not that it is
human nature, or not entirely. I think a large part of this problem is
the evil of shock media, of watching police chases and real video
until we have seen it all and are so addicted to such things as to
become tolerant and jaded. Unless we find ourselves in the midsts of
crises or concsiously choose to remain open to all the hurt in the
world, we cannot possibly take the onslaught without becoming numb and
jaded. We are basically bombarded every evening with another series of
stories, each more shocking and painful than the last, because that is
what sells television and newspapers. Who could stand up to that
without the defense of becoming numb? Compared to the mom who drove
her babies off of a cliff into a lake and watched them drown,
morgellons is nothing. That is, until enough of the doctors' children
get sick.
Dana

Recommend reading post 1843 here and the article referenced there
by gulfcoastriverlady. She references "Cure for Morgellons, spin
off of Lyme disease they don't want you to know about:
http://www.xenacarpenter.info/2006/10/cure_for_morgel.html". In this
article they talk about a cure for Lymes & Morg based on taking mega
doses of salt and Vitamin C. The treatment was developed by a group
from web site: http://www.lymephotos.com/. This site has a wealth of
info including a report from a guy who describes his IV and antibody
treatments.
Based on what I read there, I tried the Salt/Vitamin C treatment and
I started to feel better the first day. I am continuing it and
feeling a bet better each day. So far I haven't experienced a
relapse but I/m only on the third day.
If you get a chance to read the article and perhaps try the
treatment please let me know what you think and/or if it works for
you. Fond Regards, Zip
Here was a post on here yesterday or the

In the interest of sharing info, the following are some products I
use. These are not directed toward a cure, but toward making it
through another day. I've tried a lot of things and, for now, these
are providing the most relief to me on a daily basis.
I've provided many links so that you can see a picture, but
everything is available at WalMart or CVS type stores.
I hope you will share what works for you too.
FACE and BODY
==============
Get the little Clear Hairs Off
By whatever means makes sense to you, get those tiny white hairs off
your face and body. You will only see them on areas that are left
exposed (face, neck, arms, legs, hands). Pull them, wax them, shave
thembut get them off and keep them off.
Noxzema Triple Clean Blackhead Cleanser
http://www.noxzema.com/
I wash my face with this many times a day. It feels good, moisturizes
a little, and completely cleans off the critters and all their debris.
Stridex Benzoyl Peroxide Power Pads
http://www.stridex.com/power_pads.htm
After face wash, shower or bath, I rub my face and neck with these
pads. When my face is done, there is still a lot in the pad so I use
it on my arms or my legs.
Neutrogena T/Gel Shampoo Stubborn Itch Control
http://www.neutrogena.com/ProductsDetails_63.asp
When I shower, I get wet, turn off the shower, then use this on my
entire body, let it sit for 3 minutes, then shower it off. Hair too
of course. The menthol is off-putting to the morgies for while, and
the coal-tar is a comfort to the battered body.
Tea Tree Oil
Whatever else I add to my bath water, I also add several drops of
tea tree oil. If I shower, I add a few drops to a
Cottonelle cloth and rub down with it. It smells odd
for an hour, but soon absorbs into the skin and the scent disappears.
Tea Tree Lip Moisturizer
http://www.puritan.com/pages/file.asp?
xs=4F1AD4835908481F972C8AC96F060F5A&PID=1095&CPID=1977&np=1
I use this on my lips all the time
AcneFree Acne & Blackhead Terminator.
http://www.acnefree.com/node/19
I use this when I see a bump or red spot that looks like it might be
a new nest. This stuff does go deep. By about the third application,
it will have burned through several layers of skin. I'm sure I've
driven them from a new nest several times with this product. I'm left
with a little burned area, but it prevented the lesion. The burn
heals in a couple of days, even on my face.
EARS
=====
Swim Ear:
http://www.fougera.com/products/product_details.asp?id=1139
This is just an alcohol, but if morgies are in your ears and you have
to wash them a lot, then it does a good comfortable job of clearing
out the water.
Similasan Ear Ache Relief:
http://www.similasanusa.com/products-earache-relief.cfm
At night I feel them crawling in my ears even after washing just an
hour previously. I add a drop of this stuff to each ear and the
crawlies go away. I don't know if it stops them or stops me from
feeling them, but it works to get to sleep. I've used it in my cat's
ears too and she loves it. The directions say it's safe for infants!
NOSE
=====
Step One is to pull those little white hairs with tweezers. It's a
big job and one that must be repeated every couple of weeks, but it
is worth it for comfort.
Vicks VapoRub
http://www.vicks.com/products/vapor_rubointment.shtml
Putting a good layer of Vicks in your nose can provide hours of
relief from the crawlies in your nose. It also helps with the
excessive sinus drainage.
Neil Med Sinus Rinse.
http://www.neilmed.com/
If you experience excessive sinus drainage (I think most of us do),
then this will be a relief. It's available at Wal-mart, CVS, etc.
It's really freaky the first time, but it doesn't hurt a bit and the
after effects are well worth it. Once you have the accouterments, I
believe you can use a simple saline solution instead of purchasing
the stuff.
HAIR
=====
Neutrogena T/Gel Shampoo Stubborn Itch Control
http://www.neutrogena.com/ProductsDetails_63.asp
They also have a conditioner. The menthol is off-putting to the
morgies for while, and the coal-tar is a comfort to the battered body.
Tea Tree Oil
When the morgies are biting my scalp, I stand over the lavatory, put
my head down, comb my hair forward into the lavatory. That way I can
wipe out the snakes to put in the garbage. Then I shake tea tree oil
on my scalp and hairmaybe 12 dropsand rub it in. You can't really
see it, but you can smell it for the next two hours. The good part is
that it keeps the snakes out of your hair for two hours.
EYES:
=====
A good eye cup
The eye cup should large enough to completely cover the eye with a
contour top and a suction type finish on the rim. It should be clear
plastic so that you can see into it with your loupe. My personal
favorite is the one that comes with Good Neighbor Eye Wash from The
Medicine Shoppe.
Once you have the eye cup you want, make your own saline solution and
put it in a water bottle that has the sports screw top.
Saline Solution:
1 cup distilled water (buy it at the grocery store)
1 teaspoon table salt
I wash my eyes every hour.
Visine-A by Pfizer
http://www.pfizerch.com/product.aspx?id=331
If the morgies are in your eyes, this will reduce the egg production
somewhat. Each time I wash my eyes I add one drop of Visine-A. How
you apply it is important! Pull down the lower lid and drop in one
drop. Slowly close the lid and leave it closed for one minute. I
apply it to one eye, close the lid and open the other lid and apply
there so that my one minute covers both eyes. It's easy to carry with
you when you have to leave home too. You can even take it on the
airlines now because it is small.
GENITALS
==========
Tea Tree Oil
Put several drops on a Cottonelle wipe and use it. This really
really helps. Don't worry about the tea tree oil being a problem
there. You can even saturate a tampon in tea tree oil and use it!
It's good for yeast infections too.
A Magnifying Mirror
===================
You have to have one or more. I like the small round 8x with suction
cups that you can stick onto another mirror--or your computer monitor
or whatever. Here's a link to some:
http://www.magnifyingaids.com/index.php?
page=products&subcategory_id=15
More Tea Tree Oil
=================
There are lots of Tea Tree Oil products that might be good because I
find it to be very effective in providing two hours of relief
wherever it is used. This link is to the Tea Tree Oil products at
Puritans Pride. http://www.puritan.com/pages/psearch.asp?
xs=4F1AD4835908481F972C8AC96F060F5A

I think we humans have very little empathy, no matter how obvious the suffering in others, until it happens to us, personally. This is true in medicine, family, politics... every facet of life. We turn away so easily... as if it were nothing.

It's human nature.

Rita

Great post and thanks... Which is it? Is there a cure or not??? Of
course, I (we all)hope and pray that there is. B.T.W., do you know or
know of anyone who has been cured by one of these methods. Love to
hear more... Thanks a billion... ZIP

The night before my birthday, my old bike was stolen after years of
being parked by the fence, available for me to take a ride, and go
WEEEEEEEE, a nice break from raising kids, and a nice way to remain
a kid at heart. I made a sign for myself and put it at the
curb. "missing old bike", with a description. Four days later my
family all arrived for a birthday cellebration. Earlier....my old
bike arrived, another mother had noticed it in a park 5 miles away!
She saw my sign and brought it to me. My family was amazed at this
miracle of God. They had been saddened over my loss. Why would they
not be saddened over the loss of my health due to this mystery
disease, and rejoice at the work and prayers i have devoted to get
these fiber bites off my body? It is just too "freekin hard to
believe" as they would say. I spoke to them at my party, with 12
open lesions on my face, all the lesions cleaned out down to the
bowl at the bottom after a month of using baking soda. I gave them
info, said i hoped they would never have this, and gave them each a
party favor...a bag with "my proceedure" containing miracle foot
aloe cream to open a sore, baking soda to fizz it out with, silver
bandages, and a 10x magnifying mirror, and some instructions of this
proceedure. I must look like a nut to them, but, i decided to
respect myself, my work and prayers...and celebrate my hope of
returned health after it being mysteriously stollen by this
contaminate. At thanksgiving, they will return, and i hope my face
will be without scars, and my strength greater than the servant role
we mothers must attend to, and that they will be proud of their mom
and a little wiser, and protected from fiber bites embedding
themselves and steeling from their healthy lives. May God find favor
with us searchers in this mystery and answer all our prayers:)

Verna

I am so excited I can't contain myself (pretty said that this is what
excites me these days!) -- a few drops of over the counter lice
shampoo, heavily dilluted with water, is a great cleaner.
I've been staying at my mom's house for a few days and have been
obsessive about cleaning up after myself.
After vacuuming and scrubbing floors with ammonia and still seeing
traces, I remembered I had some over-the-counter lice shampoo
(permethrin-based). So I put a few drops in a sprayer and filled the
rest up with water.
After spraying the floor -- and the carpet -- they loosened up (and
emerged) so I could just wipe them up.
Now I'm going to try spraying my clothes before I wash them. I think
this can work great for sofas and bedding, too. And the best part is,
I didn't get stung at all -- they were dead before I wiped them up.
If anyone else wants to try this, let me know if you have any success.

Cure for Morgellons, spin off of Lyme disease they don't want you to
know about: http://www.xenacarpenter.info/2006/10/cure_for_morgel.html
Morgellons: No cause; no cure; no joke:
http://www.okgazette.com/news/templates/news.asp?articleid=925&zoneid=3

Hi All,

Last night when I was listening to the broadcast, Dr Straninger spoked about Introcell and treating Lyme.

Here are some sites.

http://www.introcelltherapy.com/introcell_flyer.pdf

http://www.introcelltherapy.com/

What do you think?

All the best,

Nadie

Hi Rita,
My brother found out about this book. Read more about it on
healingresearch.org. Mary

Did you all get my message on bouncing? Rita
rita borgeson <ritainthelibrary@...

Date: Fri, 27 Oct 2006 13:36:57 -0700 (PDT)
From: rita borgeson <ritainthelibrary@...
Subject: FL SOSs
To: Morgellons@...

I've just received an email from someone in Trish's group calling us crazy and saying we're all a bunch of DPs. That was in response to my telling her I didn't want her and Trish in the group. Be VERY careful when dealing with this group. I've never seen a group get so nasty when they couldn't sell a bar of soap and some lotion.

Rita

Just wanted to see if anyone has seen/read this book. Just wanted to
check before I plunked down $125. Thanks and hope everyone is well!

Mary

What is the book about?

Can you get it in the library, ask your library to buy it, or get it from another, same state, source? Here we can order a book from anywhere in the state library system.

Rita

I believe that is a good suggestion and will see if the doctors here
are interested in sharing that knowledge across the country. It
makes sense to me since the sole purpose is to heal.
I was speaking to a friend today that lives in Tampa and telling him
all that has happened and yes about the morgellons groups. He never
had heard of this illness and we spent quite sometime talking.
Shocked at no knowledge with the CDC he emailed me a couple of things.
One is the morgellonssyndrome@... - apparently this is a place
you can email questions to the Center for Disease Control.
The other was something quite strange. You all may have seen it
before. It was the http://silentsuperbug.com videos. There are 2
and it is very, very strange.
Don't know what to think about the videos, hope it is all fiction.
Best to you,
Nancy

get me the info. and I will contact him. thanks, Sandy.
redibooks <redibooks@...

Nancy,
Rita, our "hall monitor", that we all appreciate for watching out for
us and caring for us, has asked to have the subject dropped. I did
want to take a minute though to thank you for your reply and tell you
that if I could be there, (hard to find a sitter for 8 dogs and 5
cats), I would be! Not to be skeptical or bullheaded, but to
participate and help where I could. You hit me in my heart spot, and
yes, canine, human or otherwise I understand the desire, almost
compulsion, to help another that needs help. I follow and participate
in both groups, if I see info there that isn't here, I'll make sure it
gets copied over.
I wondered today, has your group considered contacting the Dr. in
California, (pathologist) that said he's willing to work with
Morgellons patients at no cost in order to try and find a way to
diagnose Morgellons? You may collect enough samples to forward some
to him for further research? Just a thought.
Thanks again.
Karen

That "bouncing" is very interesting.. and telling...
k

Nancy,
Rita, our "hall monitor", that we all appreciate for watching out for
us and caring for us, has asked to have the subject dropped. I did
want to take a minute though to thank you for your reply and tell you
that if I could be there, (hard to find a sitter for 8 dogs and 5
cats), I would be! Not to be skeptical or bullheaded, but to
participate and help where I could. You hit me in my heart spot, and
yes, canine, human or otherwise I understand the desire, almost
compulsion, to help another that needs help. I follow and participate
in both groups, if I see info there that isn't here, I'll make sure it
gets copied over.
I wondered today, has your group considered contacting the Dr. in
California, (pathologist) that said he's willing to work with
Morgellons patients at no cost in order to try and find a way to
diagnose Morgellons? You may collect enough samples to forward some
to him for further research? Just a thought.
Thanks again.
Karen

A funny thing just happened. I did my usual check of bouncing members
and guess what I found. 33 members were bouncing. I think that's just
about unheard of. Further investigation found ALL terminated their

I'm in CA, but Northern, not Southern. We're a good 8 hours from Santa
Ana, but I'm going to discuss it with my mom and see if she's
interested, I'd be happy to make the drive with her! I didn't catch
the radio program.
Joy L.

Springstead M.D.Crafters Wholesale Information

If anyone goes, especially the skeptics, please tell us everything.
Rita

If Morgellons patients have the flu... fever, loss of body fluids,
felling horrible, eating very little, etc... Does it affect Morgellons?
If a fever harms the bug are we better off not taking aspirin etc?
Rita

Ok, I have read enough stuff to make me sick.
The people who can come to Brooksville (45 minutes north of Tampa)
on Sunday October 29th at 8am - will get the chance to use these
products in a doctors office with doctors and nurses there. Those
people will also have 3 other morgellons patients there to talk with
and to help them in this process. I am volunteering my time to be
there because I want to be. (I do not work for Trish but I do buy
alot of her products for myself, my family, co-workers and friends)
I love what they do for my skin and have watched them heal people with
psoriasis, etc. The morgellons inflicted that are there will get a
bag of products, bars of the new hope soap, new hope creams and the
lotion bars of new hope. It should last them up to 6 months and they
can come back to you all and tell you what they think, feel, like and
don't like. Simple as that. The only one spending money is Dr
Springstead and Trisha Springstead - because of the amount of money it
has cost to set this up for the ones who want to do it. There will be
2 medical doctors there - Dr Galbreath and Dr Sastry (infectious
disease), 2 nurse practioners(gosh I hope I spelled that right so that
I am not judged on my spelling and grammar), I am going because I am
so excited to see what happens to these morgelons patients. I want to
look in their eyes and talk to them while they go through this.
Trisha had to buy a special microscope, some $3000, and get all the
supplies needed as well to slide these so she can provide the proof
that is necessary to go to the CDC with Dr Sastry. If you think she
is manic, you are confusing that with knowledge and passion. Her IQ
is some 182, she clepped most of her college classes, she is brilliant.
I am honored that she is my friend and that is what she is. A dear
friend. I do not work for her, I work for Brighthouse Networks, the
cable provider in Tampa Bay. I have been an account rep with them for
over 10 years. They were formerly Time Warner. I am a consumer of
these products and I have shared them with my family, friends, co-
workers and people I care about. I use everything she has. I do not
have psoriasis or morgellons, I am 46, and use the anti-aging products
and my skin looks and feels great.
Wish everyone would quit criticizing her for trying to help. She is
smart, compassionate, unafraid of healing those with afflictions. She
has washed down people in her bathroom with the soaps and used the
lotions on them WITH NO GLOVES! She has had the mites jump off of
Susan and jump onto her arms. She has been bit and used her products
and gotten them out - dead and quick. For that reason alone, I trust
that I will be okay there as I don't have morgellons.
Stand down and see what happens. Trisha's mind goes so fast and she
is so smart that she goes over the head of 95% of the people she talks
to.
She also has lost about 20 pounds herself in the last few months
trying to do what she can to help those of you who want her help.
I have a job, family and I have made the time to be there for her so
she can talk to you simply because you are the ones that are sick with
this. How can it be any clearer than that. Don't buy it. She can
only give so much away. All credit cards are being maxed out here and
there are some of you who are discouraging others, and that is so
wrong. Let people judge for themselves. No money, just help. If it
works like I sincerely believe it will on the dozen or so people on
Sunday, they can come tell you what they feel and then you decide.
I am no longer going to defend this woman to those who are not worthy
or her knowledge and her skin care products. I'm going to help her
this weekend and help those who come and then I'm going to take care
of my family, home and career.
You don't need me here as I can see, and I'm blue in the face and hate
defending those I have grown to love and admire. God bless you all
and I hope that everyone of you have the ability to use the New Hope
one day.
Nancy

Dearest Group,
Recently idsa came out with new guidelines. Those guidelines, basicly,
said that Lyme Disease is easy to cure by 3 - 4 weeks of antibiotics. I
and my doctors strongly believe that is incorrect. idsa believes
prophylactic antibiotics on tick bite are not necessary. I and my
doctors strongly believe that is incorrect. idsa believes that anyone
who is sick after 3 - 4 weeks of antibiotics has lyme disease syndrome.
I and my doctors strongly believe the sickness is active infection
brought about by undertreatment. It is my personal belief that idsa
leadership is a bunch of HMO whores.
Rita

Nic

It appears you were correct. I agree the postings could be described as manic, or worse. Having said that, I have to review my open mind/lack of judgement/badly placed effort to be kind statement about the (go to the) conference? in FL this weekend. Is it free? Is the 6 months of product free? I think there are a few people affiliated with Trish still here. The fact they're still pushing Trish and the product is starting to weird me out.

Rita

Karen,

Very, very well written response.

For anyone who can read this post........and anyone who has followed along the postings from RN23yrs, I want to say that I have found the misspellings, lack of punctuation, misuse of words and general "Manic" feeling of her emails to me to be quite disturbing, so much so that I quit corresponding with her out of nervousness. There was just a general feeling that something was not right. Again, this was my PERSONAL FEELING ABOUT IT. I have similarly had an uneasy feeling in my gut regarding these free "Studies" in Florida, even from the first post, and it is usually ONLY when I begin to rationalize and question my intuitions that I end up in a mess, and wishing I would have just gone with what I first felt.

I haven't been online for over a week now, and it is AMAZING to read these posts and watch this play out the way it has since I've been gone!!!! AM I CORRECT IN ASSUMING FROM THESE RECENT POSTS THAT RN23yrs DID INDEED END UP BEING JUST ANOTHER SOS?? WAS THERE REALLY A FREE STUDY OPEN TO ANY PARTICIPANTS WHO COULD COME TO FLORIDA?? I would really be curious to know if I was correct on this one, or if there has simply been some miscommunication between members and it is currently being addressed......

Any response would be greatly appreciated...

Nic
redibooks <redibooks@...

If you read my messages at all you'll see that I did say many times
that this may be a very benificial product. I also in this post that
you replied to let people know that you're doing the study in Florida
this weekend. Though a double blind study implies that some people
will not recieve the actual product and the participants will now know
if they received the actual study product or not. I thought you were
using your product on all the participants to observe the results.
After there was an offer her to send the product free of charge, which
I replied to immediately, but was then later declined, and then the
website was posted leading people to purchase, sorry that made me
suspicious. Maybe you can just hold back on being defensive a minute
and understand my perspective. If I had received that one free sample
that was offered and saw it work, I would have been on here singing
your praises I'm sure!
If this product works you all know not only will you be helping
people, but there is a lot of money to be made on the people in these
groups and all the many people we all know that have this and want to
be free of it. Also, if/when you can say your product has been tested
in the medical community and works, this could become famous world
wide very fast. The constant reference of it being free, is to the
select few who live in Florida and/or can make it to your study this
weekend. So really the free offer is very limited.
For many many years I've rescued dogs. I always took in the sickest
and most needy dogs that couldn't otherwise find homes. Did I do it
to help the dogs, you bet I did/have/do, but underneath all that, it
makes me feel good to help another soul, so even in my selflessness,
(its not easy or free and costs a bundle and one of my dogs is showing
lesions from morgellons), there's a selfishness, because it makes me
feel good.
Let me say one more time how fabulous it would/will be to have a
product that works. And let me say again, not only will we benefit,
but so will the producers of the product and I'll say one more time,
that's OK but I'd rather be a partner (in knowledge) of the outcome
I'm influencing.
karen

Nancy,

The FL product is free, right?

What is your relationship to Trish?

Rita

If you read my messages at all you'll see that I did say many times
that this may be a very benificial product. I also in this post that
you replied to let people know that you're doing the study in Florida
this weekend. Though a double blind study implies that some people
will not recieve the actual product and the participants will now know
if they received the actual study product or not. I thought you were
using your product on all the participants to observe the results.
After there was an offer her to send the product free of charge, which
I replied to immediately, but was then later declined, and then the
website was posted leading people to purchase, sorry that made me
suspicious. Maybe you can just hold back on being defensive a minute
and understand my perspective. If I had received that one free sample
that was offered and saw it work, I would have been on here singing
your praises I'm sure!
If this product works you all know not only will you be helping
people, but there is a lot of money to be made on the people in these
groups and all the many people we all know that have this and want to
be free of it. Also, if/when you can say your product has been tested
in the medical community and works, this could become famous world
wide very fast. The constant reference of it being free, is to the
select few who live in Florida and/or can make it to your study this
weekend. So really the free offer is very limited.
For many many years I've rescued dogs. I always took in the sickest
and most needy dogs that couldn't otherwise find homes. Did I do it
to help the dogs, you bet I did/have/do, but underneath all that, it
makes me feel good to help another soul, so even in my selflessness,
(its not easy or free and costs a bundle and one of my dogs is showing
lesions from morgellons), there's a selfishness, because it makes me
feel good.
Let me say one more time how fabulous it would/will be to have a
product that works. And let me say again, not only will we benefit,
but so will the producers of the product and I'll say one more time,
that's OK but I'd rather be a partner (in knowledge) of the outcome
I'm influencing.
karen

My name is Janet Zimmerman and I am a reporter at The Press-Enterprise
in Riverside, Calif. I'm working on a story about Morgellons and am
looking to interview residents of Riverside and San Bernardino counties
who have the disease. I can be reached by email or at 951-368-9586.

WOW! Is anyone in or near CA? Free treatment for Morgellons is fantastic and it probably is not a SOS. I think some of us should make that call.

Rita

I can second the sauna thing, partially. We used to have a fitness
center at my complex with a dry sauna. I used it daily and the
process would eliminate a lot of fluid and material from sweating it
through the skin. It becomes addictive however, and when you don't
go you experience peripheral swelling and markedly increased
fatigue. It is like anything else, a temporary relief measure, but
also like anything else your body becomes accustomed to it in the
long run and it no longer provides the relief it once did. I do not
think there is any decrease of the disease, just a comfort measure,
but it really does help you feel better if you're swollen and
uncomfortable. I would use one intermittently if I had access, but
probably not daily because then I would have to use it daily and it
would not work as well when I really needed it to. I do think it's
important to get hot and sweat regulary, like through aerobic
exercise, to get good blood flow to the body and promote overall
health. A sauna is kind of a shortcut to this state, only you aren't
really working the muscles, which I think helps lessen the size of
the lumps and deposits of stuff I can feel in my muscle tissues.
Just be really careful to take A LOT of water to the sauna, you'll
need more than you would think. I know when I was using one I would
stop sweating after fifteen minutes or so and as soon as I swallowed
some water the sweat INSTANTLY started pouring off my skin again. It
was kind of surreal how quickly that happenned.

is this the answer that we have all been waiting for? is this a biological warfare released by the government? is that why it can't be killed? what do we do now. contact this center they have set up to study it? I'm ruling nothing out, I'm exploring all my options, especially at the governments expense if they are the cause of this.Sandy.
Note: forwarded message attached.

Did anybody else listen tonight? This Dr. below said he would see
Morgellons patients at no cost at all in order to learn more about the
parasite and how to treat it. Just passing the info on for anybody
that may be interested.
Rahim Karjoo, M.D., F.A.S.C.P./F.C.A.P
American Medical Diagnostic Laboratories, Inc.
Santa Ana, CA 92705
Rahim Karjoo, MD, is a Fellow of The College of American Pathologists
and of The American Society of Clinical Pathology.
On the radio program this Dr. said he will work with Morgellons
patients free of charge in order to attempt to gain a better
understanding of the organism and how to successfully treat it. Just
passing the info on...

The doctor told my sister that Morgellons isn't contagious. I don't
know, I tend to believe the theory that it comes from bug bites,
like lymes.
Mercy

Dr Schwartz recommended sulfa cream topically. I'm allergic to sulfa
so Its not for me.

My personal belief is that contact has to be intimate or you have to be born to a future Morgellons patient which, I guess, is intimate contact. I believe that, whatever causes Morgellons, it can be passed from generation to generation. I don't believe it's genes. I believe it's something along the line of a bacterial infection/parasite/fungus etc.

So, to answer your question, I believe your friends and neighbors are safe but your lovers are not safe.

I'm sure not everyone here agrees with me.

Rita

Take 5000 mg of Vitamin C per day. Give up ALL sweets, pasta, rice, soda, anything in the bakery aisle, no fun foods for the long term. Put peroxide on scabs on and off all day long. Put Lotrimin AROUND the eyes when there are eye symptoms. Take zinc supplements after eating to reduce urinary frequency.

Rita

My mother has had this illness since May. She has been to 2
dermatologists, with the less than surprising results of "never heard
of it, let me refer you" . If anyone can give me useful products,
diets, ....anything that will help her suffering...I sure would
appreciate it..

My mother has had this horrible disease since May. Everyone is afraid
to visit because no one can tell us if this disease is contagious. Any
replies would be appreciated.

Lori

When my Lyme Disease wasn't responding to the antibiotics, my LLMD took enough blood to feed Dracula and his army. Among the tests were HIV. Anyway, that happened several times through the years. Though I always knew there had been no dangerous behavior on my part, I was still a little freaked every time it happened.

Perhaps it's time to attack your facial lesions, aggressively. Have you tried peroxide, several times a day? What have you tried?

Rita

Hi everyone,

I feel very panicked so just need to share and if there is anyone in this group who is HIV positive, I in no way mean to offend you, or anyone. Someone at my work approached me this morning and asked if I have had an HIV test, and a lupus test after I told her that I have (not recently) had had an HIV test. The reason this is so "loaded" for me is that I have had major OCD issues in the past around this topic, to where my behavior was irrational as far as eating anything that had red, or touching things.... I mean it was "out there"-and I know logically how it is transmitted, etc etc but just the mention of this, really has freaked me out this morning and I am in such a place of fear! I am sure it is due to the lesions on my lips that have been there for about 9 months now, that come and move from each side of my lip and the one near my ear, but I keep trying to remember that they are doing what the morgellons lesions do and have fibers and granules and are sticky- I am
just needing support and wondered if anyone else has been approached in this manner and how to handle it, and let go of the fear that is gripping me at this moment-thanks,

Lori

People are hearing you, Julie, but we all feel the need to be
cautious as well. Don't worry. We're paying attention.

Hey, You sound so much better these days, listen we all have had those dark whiny days, I have plenty of them!!! This, whatever it is has made many people hopeless, and left us emotionally exhausted!!! But, just the fact that there are now sooo... many people talking and sharing makes the journey aa bit easier, to know there are others out there who understand, believe and have valid suggestions, is just wonderful, and gives one reason to hope. I have been in that place that I thought I was Crazy, and perhaps I was delusional!!!! Thank God for the people on this website, Things are much better!!! I hope you are feeling more positive, and by the way, when you mentioned Trick or treat with your little sis, I felt kind of sad that both my girls are too old for that now,we used to have so much fun with the costumes and the door to door candy fest!!! in their teens it was the shaving cream wars, and the eggs, and their friends smaching all my pumpkins, oh yes, the toilet paper
all over the street signs and lights!!!! I ALMOST miss that!!!!! Have fun, and be careful!!! Remember, you are never really alone when you realize God has a plan for your life, and it is for good,and for a future of blessings!! Blessings Debbie
Tony Gomes <hotshotboy1985@...

Debbie , how have you been?
you are trying everything you can help people as always. Well don't go on changing. Now this days i just read what people has to say here, when ever i try to post something i always sound so hopeless and such a whiny little stupid child. But now i am not Trying to sound like a emotional little kid, but i have to say.. suffering from this disease made me see the dark side of the world real clear..i feel the pain of everyone who is caught up in the dark side. And feeling the pain for someone else makes my pains much lighter. Well i hope your symptoms gets better, hey.. stick to the low crab and Vitamin C 500g. thats what i am using and it seems to work. and i really.. hope real help is on its way soon, until then.
well take care...

I'm sorry, but I don't get it. This group is supposed to be dedicated to
finding ways to help with Morgellons. I participted in a trial taking
NutraSilver for 2 wks. and got fantastic results. I'm not trying to sell
anything and I'm not benefitting financially by telling you about my
experience. If you want to go on thinking you can come up with "home
remedies" on your own, then fine. I tried and tried...many things...and got
nothing but temporary minor relief (peppermint oil) and endless suffering.
When I took NutraSilver, it worked. Plain and simple. It was so effective
that I ordered some immediately after my "free trial" ended. NutraSilver is
not so expensive that you couldn't try a bottle for yourself and make up
your own mind. I just got my order on Friday and started up again
immediately with great relief and gratitude. The itching has already
lessened, ALL OF MY SORES ARE GONE NOW and the joint pain in my hips and low
back is improving. Enough said.
I'm on many boards and a member of groups for other things...hepatitis C,
electro-medicine, and even raw foods. Most are open to hearing what others
have to say and at least consider their suggestions. If they don't agree or
have hesitations, they just delete it. I can see your point of not wanting
"salesmen" posting, but on the other hand, if people have found something
that is very effective, maybe even a cure, don't you want to know about it?
I've tried many things recommended for Hep C. Some have helped, others not.
I've spent a lot of money doing so and if something provides noticable
improvement in my condition, I go with it, if not, I move on.
I'll keep you posted about my success and hopefully, some of you will
believe. Better yet, try it for yourself and then you'll know for yourself
that NutraSilver works and is safe.
Julie in Sacramento

Debbie , how have you been?

you are trying everything you can help people as always. Well don't go on changing. Now this days i just read what people has to say here, when ever i try to post something i always sound so hopeless and such a whiny little stupid child. But now i am not Trying to sound like a emotional little kid, but i have to say.. suffering from this disease made me see the dark side of the world real clear..i feel the pain of everyone who is caught up in the dark side. And feeling the pain for someone else makes my pains much lighter. Well i hope your symptoms gets better, hey.. stick to the low crab and Vitamin C 500g. thats what i am using and it seems to work. and i really.. hope real help is on its way soon, until then.

well take care...
Debbie Mattle <debmatt05@...

Hi, i share your frustration, I know I have "hot Spots"that i am afraid to aggrivate, I dont see too many fibers, but I know they are there!!! I know this is gross, but over a long period of time I would have horrible coughing spells, mostly at work, sometimes when I had to spit in a tissue, thee would be little blue or black "strings" in the sputum, but I never really paid much attention, Now, I wonder if that is why I have COPD I get bronchial asthma yearly and have used inhalerrs for years??? I guess there could be a connedtion, I would hate to think my Lungs were invaded by this!!!!! Also, when I first found this website, there was alot of discusssion about Cotton Worms, my daughter brought home a "New box of Q-tips, I took out just 1, and held it up to the brightest light in our bathroom loking into the mirror, after a moment, I could not believe my EYES, the was a few stray fibers that were definitely wiggling from the tip towards the light, I tell you it SCARED
me I called my daughter in and she saw it also!!! So, I dont use them anymore!!! I know it sounds CRAZZY, but I know what I saw!!!!!. I hesitate to share stuff like this because Ive been accused of being Delusional by doctors, but I think the more info we have to share the better!!!!! Love the foot cream!!! It is 60% pure aloe. Well, keep the Faith, we may be on the way to REAl help soon. God Bless

Debbie

Thanks for the info...i will experiement with this. I have been
using a paint size roller of tape(laundry aisle) to remove fibers
off the sheets when i make the bed...it works but is getting
expensive. Great idea , thanks...ill try the ice and check with my

Hi, i share your frustration, I know I have "hot Spots"that i am afraid to aggrivate, I dont see too many fibers, but I know they are there!!! I know this is gross, but over a long period of time I would have horrible coughing spells, mostly at work, sometimes when I had to spit in a tissue, thee would be little blue or black "strings" in the sputum, but I never really paid much attention, Now, I wonder if that is why I have COPD I get bronchial asthma yearly and have used inhalerrs for years??? I guess there could be a connedtion, I would hate to think my Lungs were invaded by this!!!!! Also, when I first found this website, there was alot of discusssion about Cotton Worms, my daughter brought home a "New box of Q-tips, I took out just 1, and held it up to the brightest light in our bathroom loking into the mirror, after a moment, I could not believe my EYES, the was a few stray fibers that were definitely wiggling from the tip towards the light, I tell you it SCARED
me I called my daughter in and she saw it also!!! So, I dont use them anymore!!! I know it sounds CRAZZY, but I know what I saw!!!!!. I hesitate to share stuff like this because Ive been accused of being Delusional by doctors, but I think the more info we have to share the better!!!!! Love the foot cream!!! It is 60% pure aloe. Well, keep the Faith, we may be on the way to REAl help soon. God Bless

Debbie

adaisybaleen <daisybaleen@...

-God bless you too debbie, thanks for sharing your strength and
faith in this fight. Thanks for confirming the miracle foot aloe, i
dont know what exactly is in the formula, but it would be impossible
for me to get this stuff off my face without it. I wear the cream on
the ulcers on my face while i do other chores. By the time it begins
to get waxy, i can scrap off the covering of the lesions, and then i
start packing the ulcers with the baking soda. I have done this for
a month everynight for my face, to reclaim it from these hidden
sores that i did not know were there til i did a baking soda facial
and looked in the new 10x makeup mirror(walmart, walgreens, and
grocery stores $6). I am now finishing off 12 sores, the others are
done(26 total). They are done when the baking soda no longer creates
a reaction. It seams that the soda fizzles in the ulcer and pulls
goo out for many nights of application, as though there is much more
under the ulcer. I was thinking about it, this bizarre
experience ....each night i apply the soda maybe 10 times to one
sore as it pulls out stuff from the ulcer.I lift out the saturated
stuff with tweezers, then pack it with soda again. It gets to a
point where no more comes out. The next night, i start with the aloe
to open it again...then the soda...and the draining process starts
again. For one sore, this process may go on each night for more than
a week. It takes longer for the deep ones, but the bottom of the
ulcer, once the fibers are out, comes closer to the surface of the
skin, and at that point, when i scrap the aloe off, i often can lift
off the rim of the crater in a complete circle. Also when the sore
is about done, i can scrub around the lesion with baking soda and
the rim (of the now flat crater), will just rub off, and a waxy
crater bottom will rub off or lift off with tweezers.THANK YOU
GOD!!! Whew! At times , when i work looking into this magnifying
mirror, i catch these thin wiry hair like fibers landing on the
cream or soda from the current of air. I also, when lifting out
saturated soda from the ulcers, sometimes lift out a similar hair. I
think what looks like worms in the sores....are swollen fibers . I
think they are attracted to skin pores somehow. If you put the aloe
on an itchy spot, let it dry a bit and then scrap off the
cream....does that stop the itch? Hve you tried
that? I am reposting the
article i found last year , which when i tried to disprove it, my
dogs ran to me in the yard, and i saw them covered in these fibers.
Thats when i looked and found them in my home, and on my skin. Thats
a year ago when my fiber fight began. I could see the orange fibers
glowing in my skin pores, and the blue ones(using a blacklight)
attached to my skin and hair and clothes....but i never would have
guessed they had made all these ulcers under my normal looking
complexion. Sigh. If this is enviormental, it means folks have it
and dont know it. But, why would some have it come out, and others
not. Such mystery. My focus...just remove it. How To See Mystery
Chemtrail Aerosol Filaments
By Sue Miller
aka 'Looookinup'
smillernc@earthlink.net
8-2-3
The unusual phenomena being described here -- and at various
Chemtrail/Aerosol Activity Boards -- is being called by different
names. 'Aerosol polymer filaments and webs' (Mike Castle @Rense).
Chemtrail fibers; microfilaments; 'sky-webs''; chemtrail fall-out;
electrostatic filaments; CT particulates; perhaps
even 'Morgellon's'. "I like the term 'fibrils' as it implies a
synthesized microfiber with conductive properties." (Moondog @
Carnicom).
But whatever they end up being called (personally, I lean
towards 'CT-UV fibrils' -- has a nice ring), they are REAL and
OBSERVABLE.
See for yourself -- it's simple...
These CHEMTRAIL/AEROSOL/ UV/ FIBRIL/ FILAMENTS are very easy to
observe under the right conditions.
To actually WITNESS these filaments covering you, and your children,
your pets, your home, your plates, your pillow and your possessions
can be very shocking.
They are all over us.
They are floating in the air.
They are entwined in all that extra 'dust' you have been wiping up
lately throughout your home...and the 'dust' on your car.
They are clogging your A/C and furnace filters.
They are landing on your food between the plate and your mouth.
We are all wearing them, eating them, drinking them, breathing
them...
And they are virtually INVISIBLE -- EXCEPT under ultraviolet light.

http://portland.indymedia.org/en/2006/01/331695.shtml?discuss

Hi Mary,
thanks for the info. I also have an MD that's an intuitive who told
me the same thing right off the bat "forget western doctors". She
told me that I should be open to all the alternative practitioners I
could find and that I would get to the point that this is not much of
an issue for me. The hard thing I've found is that every practitioner
is another $100-200 at a time and then they offer products. As you'll
read the posts here and any other groups you've joined, (I also follow
finding1cure), You'll find loads of helpful treatments and ideas and
Colloidal Silver is very popular. Someone recently posted about a
particular Silver product that is being/has been tested particularly
for our ailment. I went for a colonic and while I felt that cleaned
me out well, my intuitive MD said I'd be just as well off to give
myself an organic coffee enema. I'm not sure, there's something nice
about having it all flush away in a tube.. lol
Cut carbs & sugar, try everything that's safe and you're comfortable
with. I have no answers, I've only been subject to this about 6
months and my symptoms are nothing compared to many here, but If I can
be of any support, feel free to email me. I'm happy to talk about
what's seemed to work for me, as long as you know what works for one
doesn't work for all. (My theory is that it reacts differently to
different body chemistries, cholestoral levels, bacterial/fungal make up.)
healthier every day.
karen

Just wanted to share (1) foot pads that seems to be working and (2)
advice from a friend who's a medical intuitive.
1. Body purifying foot pads -- I found these on gaiamliving.com.
They're an herbal treatment that you wear at night, alternating feet,
and are said to "absorb toxins, improve circulation, increase energy
and repair a compromised immune system."
The description says they work like reflexology and target major
organs. At this point I'll try anything. Trying not to get my hopes
up, I bought them and have been using them for a week.
I have to say I'm feeling better, itching is almost gone -- and when I
take the pads off in the morning, lots of white stuff and black dots
are on the pad. (Gross, I know, but at least it seems to be working!)
Plus, I've had these sores on my foot and ankle for months and they
just won't go away. Now they seem to be healing -- so these pads
do seem to be improving my circulation. I'm afraid to get too
excited just yet -- but early results are promising. I'll keep you
posted on the results.
Just be aware, the first few nights the itching is pretty intense --
maybe the critters are fighting the detox? And they're not cheap --
$30 for 10 pads and they suggest you use them for 30 to 90 days
(translation: $90 to $270). But they do seem to be working.
2. Medical Intuitive -- I have a friend who's a medical intuitive. If
you're open to this sort of thing (I am) here's what she told me:
-- take boron and coloital silver (don't know what they are)
-- she highly recommends colonics -- parasites seem to thrive
in the colon (Yuck)
-- Also, she said to forget western doctors at this point and go
to a Natura Path doctor -- Chinese herbs and acupuncture will
help.
Haven't tried any of the above yet and was wondering if anyone else
had? Just wanted to share ... Mary in NY

Hi there, I just found this site last night and I think it's
fantastic. I've already learned so much -- like the carb thing. I
also didn't know that washing clothes/bedding in hot water did not
kill the creatures.
So last night (out of desperation) I tried something on my freshly
washed sheets. I had seen a show on HGTV about a little girl who was
very allergic to dust mites. The woman on the show told the mom to
put her teddy bear in a vacuum-sealed plastic bag and put it in the
freezer for a few hours, then vacuum clean.
It works!!! The cold seems to kill the creatures -- they emerge from
the fabric and I just vacuumed them up.
Also, I improvised and but a bunch of ice cubes in a plastic baggie,
then ran it over my cotton mattress cover. Sure enough, these cottony
things started to emerge and I just vacuumed them up.
I also did this on my fabric couch and had the same luck.
Then I got to thinking ... if these creatures hate the cold, might
that be another thing to explore as a treatment option? Maybe cold
baths or something -- I'd love to brainstorm with the group about
their thoughts.
If anyone else tries this, let me know if it works! Best, Mary in NY

I kept getting message that URL could not be located.
Doctors may take twenty years to find a "cure" after Congress appropriates money to begin to research Morgellons.

SUMMARY NOT AN ADVERTISEMENT
NutraSilver® has played a very positive and instrumental role in my
fight against a life-threatening and horrific disease we know as
Morgellons. As a user and tester of NutraSilver®, and a
humanitarian, it is my sincere hope that this hi-lighted summary of
my experience, over the past five months, will make even the smallest
difference in another sufferer's plight.
1. In the first month of using NutraSilver® and keeping a log of
events, I discovered that topical use of the supplement, while
immediately relieving a number of symptoms, vectored and spread
colonization. I started my testing using the NutraSilver® both
topically and orally by adding 10 drops to a glass of water 3 times a
day. When I stopped topical use, the spreading and the appearance of
new lesions ceased.
I continued with the daily oral dosages and within the first two
weeks, my lesions began to heal, no spreading of new lesions was
occurring, and the presence of the fibers eventually diminished
altogether. My joint stiffness and pain, lower back aches and
swelling in my hands and feet actually subsided within 24 hours of
the first test day.
2. In the fifth month of using NutraSilver®, I did a 3-day trial in
which I aggressively increased the amount of my dosage to 7.5ml (200
drops) in water morning, noon and night. I met with some startling
results during and after what I categorized as "a massive purging of
MORGELLONS disease".
On the first day, approximately 10 hours after taking my first
dosage and shortly after taking my third dosage of the day, I had a
vigorous and voluminous "reaction" in which I not only felt acute
pain and suffering, I observed the physical migration and expulsion,
out and away from my body through:
a. lesions, intact skin, nail beds through the nails
b. mouth, tongue, lips
c. tear ducts, scalp, intact skin and
c. through elimination of bodily waste.
These symptoms cultivated into calculated, routine occurrences,
every 1.5 to 3.0 hours over three days. In the 10 days following, I
continued to experience and observe events that sparked some hope:
a. lesions healed faster and many were free of the residual
callus bed
b. remission was more stabilized and free of occasional "tweaks
and twinges"
c. the burden of chronic fatigue lifted
d. the duration of symptom recovery was restored to normal or
better overall
e. had a greater feeling of well-being
f. evidenced less scaring due to accelerated healing
g. fibers and other visual symptoms were absent
h. a vision of a light at the end of a dark, dank tunnel
Additionally, my complexion and extremities are less riddled with
tunnel/lesion scaring and discoloration as result of more aggressive
healing. I am no longer burdened with depression, hopelessness,
chronic fatigue and brain fogging. Intense sensations of
crawling/pins and needles, chronic nasal congestion, blurred vision,
and ringing in my ears have vanished. In essence, I feel
NutraSilver® helped to restore my physical and mental health, as well
as the quality of my life.
THIS IS NOT AN ADVERTISEMENT

OH COME ON!!! I was a professional marketer for many years and this
IS an advertisement... A Rose by any other name?.
Columbine, my friend.. The very fact that the registered TM is used
proves this is pitching the product.. Therefore please do not insult
the intellect of all of us here by changing this around to seem like
its supposed to be something else.
Renaming it a summary does not change it's intent.. TO SELL A PRODUCT!
I am a person who believes you should have the right to advertise or
share whatever you wish.. I believe in the absolute right to free
expression.. BUT NOT LYING!
Be honest enough to express your intent and if this is a testimonial
that is one thing but this IS an advertisement..pure and simple!
I am quite sure if I were to ask you where I could get this miracle
cure would you not immediately supply a resource?
Even if it works I would now exclude it because I dislike being told
untruths more than I hate suffering this affliction!
BE LOVE & BE LOVED BUT LIKEWISE BE HONEST!
J

Thanks for trying the baking soda...let us know of any more progress
on your two year old lesion with the baking soda. It is a
commitment, to clean it with baking soda every day, but thats how
the layers get removed. Ulcers heal from the bottom up, and have to
be opened and cleaned daily. Once the chemical reaction is finished,
remove the saturated baking soda, and pack in some more. Depending
on time limits, repete this durning a session as many times as
possible. The layers of this creation, and its ability to make a
defense is puzzeling....yet the soda definitely affects it with each
application. PS...My dog (whom has since passed away at age 16),
had a white object sticking out of his upper front arm. It looked
like hard plastic, stuck out of his body at a 45 degree angle about
a half inch.Rounded oblong shape,knitted and anchored under his
skin. About half the diameter of a pencil. If i had known what i
know now, i would have nicked it with my new product...a callus
sander from walmart foot cream area, then used the aloe and baking
soda to wear it down. Some of the smaller sores have incredible hard
covering of what looks like normal skin, or just a slight brownish
red color, or white. The sander creates a tiny opening(like when you
nick a seed to get it to germinate). iInitiating this opening for
the aloe, and then the soda to get inside...really gets the melt
down started. Danacantstop wrote:"I tried the baking soda on a sore
that I have had for two years, to
see what it did for myself. I was pretty amazed that there seemed to
be a bubbling chemical reaction taking place in the wound. It does
feel like there is no longer that lump of material under the sore,
but is too early to know for sure. "-- In

Here's another one from the same site:
http://www.dldewey.com/morgel.htm

Hey All! Check this out! You might have to type this in as I don't know how to make it a link!http://www.dldewey.com/stan.htm

Sincerely, Deb
debra martinez <debditz44@...

Dear Fellow sufferrers, I found this letter on the lymebusters site to send to our senators/congressmen, and also to the Director of the CDC. Please read these letters, and send them! Finding these letters gave me a little more hope that maybe we have a chance at survival with this nightmare! The letters contain important information in a very profound and professional way! Good luck to all of you! And know that you have the strength to continue this battle for truth. I know that tonight, I for one will sleep a little better, knowing that finally someone was able to pretty much sum up just about everything to do with this! If enough letters are sent and enough voices are heard then hopefully our government will fund the research needed to help find a cure for all those living this nightmare! I for one, just want to feel normal again.!
Sincerely,
Deb

I spoke to Dan Rutz again today and asked what I could do to speed the process along. He suggested that I write to the director of his agency and to my state senator and congressman. He suggested that I carbon copy my state senator or congressman on the letter to the director. The director of the CDC is Julie Louise Gerberding at JGerberding@cdc.gov.
Here is a copy of the letter that I wrote to my senator and congressman and the letter that I wrote the director. (The letters are very similar and do not say that I personally suffer from the disease.) You can use them, or better yet, make up your own. Dan said that calling him is just "preaching to the choir," that we need to go to the director if we want this work done. It's worth a try.
Dear Senator/Congressman X
Thousands of people throughout the country are suffering from devastating impact of what many people believe is a newly emerging infectious disease, called Morgellons disease. (See the Morgellons Research Foundation website at www.morgellons.org.) But due to the unusual nature of some of the symptoms and because the disease presents a diagnostic puzzle to healthcare providers, many patients have been quickly pigeon-holed into a psychiatric diagnosis. However, preliminary research findings described below strongly support the existence of a new disease. The medical community will not accept Morgellons as a reportable disease until a medical or public health association has verified its existence and has developed a standard for diagnosis. In June 2006, the CDC stated that it would begin investigation of Morgellons disease. However, to date, no research has been done. The CDC has stated that they are waiting for the green light to proceed and that there may be funding issues.
I am writing to ask you to please contact Director Julie Louise Gerberding at the Center for Disease Control and intervene on behalf of the citizens of New York State who suffer from this disease to request to have this work expedited.
Each day with this disease is a nightmare. For so many, each day brings more severe neurological deterioration and each day brings more disfiguring physical changes. Each day, more people contract this illness. Time is of the essence.
I am writing to ask you to please contact Director Julie Louise Gerberding at the Center for Disease Control and intervene on behalf of your constituents in the State who suffer from this disease to request to have this work expedited.
Each day with this disease is a nightmare. For so many, each day brings more severe neurological deterioration and each day brings more disfiguring physical changes. Each day, more people contract this illness. Time is of the essence.
Morgellons symptoms include skin lesions which can be anything from minor to disfiguring in their appearance, sensations of crawling and biting on and under the skin, and the appearance of fibers and granules coming out of the skin. According to statistics from the Morgellons Research Foundation (MRF), the majority (95%) of affected patients also report symptoms of disabling fatigue and self-described "brain fog" or problems with attention. Patients also report a high incidence (50%) of fibromyalgia, joint pain, and sleep disorders. Other symptoms include hair loss, decline in vision, neurological disorders and disintegration of teeth in the absence of caries or gingivitis. Most patients are unable to continue working, and those who are able to continue working report that they do not function optimally. Many patients become socially isolated, either because they have become disfigured by the disease or because they are concerned about spreading it. The suffering caused by
this disease is enormous.
Preliminary Research Findings
Dr. Wymore of the Oklahoma State University recruited two Oklahoma State faculty physicians who tweezed fibers from beneath the skin of some Morgellons patients. The samples were sent to the Tulsa Police Departments forensic laboratory. The police checked the samples against carpet and clothing fibers and other materials, and conducted chemical analyses and other tests, and found no matches against any fiber in their databases. However, the fibers taken from the Morgellons patients matched each other. These facts strongly support that the fibers are generated from within the patients as part of a disease process. Careful examination of the fibers further revealed that they are associated with hair follicles and may be composed of cellulose.
Dr. Citovsky of SUNY Stonybrook has also conducted some preliminary research on Morgellons. Preliminary findings indicate that Agrobacterium was found in the cells of Morgellons patients and may be involved in the etiology and /or progression of Morgellons disease. Pathogenic Agrobacterium is known to produce cellulose fibers at infection sties within host tissues and is commonly used in biotechnology to genetically alter plants. Preliminary findings indicate that Agrobacterium was found in the cells of Morgellons patients. In a CNN interview, Dr. Citovsky stated, "when I look into the skin of these Morgellons patients, I see DNA from something that could only come from a plant." Agrobacterium may very well be the pathogen that distinguishes Morgellons disease. If these results are confirmed, it would be the first example of a plant-infecting bacterium playing a role in human disease. Dr. Citovsky has received numerous additional samples from Morgellons patients, but due to
a lack of funding, cannot test these samples at this time. They have applied for a grant from the National Institute of Heath to perform this work.
Many patients with Morgellons disease have positive Western blots for Borrelia burgdorferi, the causative agent of Lyme disease. It appears that there may be a connection between the two diseases.
Morgellons has been featured many times recently in the news media. Please see the attached CNN story : "Morgellons - Medical Mystery" http://www.cnn.com...y.cnn
It was also discussed in the American Journal of Clinical Dermatology:
The Mystery of Morgellons Disease: Savely VR, Leitao MM, Stricker RB. Am J Clin Dermatol. 2006;7 (1):1-5
Dear Director Gerberding -
Thousands of people throughout the country are suffering from devastating impact of what many people believe is a newly emerging infectious disease, called Morgellons disease. (See the Morgellons Research Foundation website at www.morgellons.org.) But due to the unusual nature of some of the symptoms and because the disease presents a diagnostic puzzle to healthcare providers, many patients have been quickly pigeon-holed into a psychiatric diagnosis. However, preliminary research findings described below strongly support the existence of a new disease. The medical community will not accept Morgellons as a reportable disease until a medical or public health association has verified its existence and has developed a standard for diagnosis. In June 2006, the CDC stated that it would begin investigation of Morgellons disease. However, to date, no research has been done. I am writing you to ask that you please expedite this research.
Each day with this disease is a nightmare. For so many, each day brings more severe neurological deterioration and each day brings more disfiguring physical changes. Each day, more people contract this illness. Time is of the essence.
Morgellons symptoms include skin lesions which can be anything from minor to disfiguring in their appearance, sensations of crawling and biting on and under the skin, and the appearance of fibers and granules coming out of the skin. According to statistics from the Morgellons Research Foundation (MRF), the majority (95%) of affected patients also report symptoms of disabling fatigue and self-described "brain fog" or problems with attention. Patients also report a high incidence (50%) of fibromyalgia, joint pain, and sleep disorders. Other symptoms include hair loss, decline in vision, neurological disorders and disintegration of teeth in the absence of caries or gingivitis. Most patients are unable to continue working, and those who are able to continue working report that they do not function optimally. Many patients become socially isolated, either because they have become disfigured by the disease or because they are concerned about spreading it. The suffering caused by
this disease is enormous.
Preliminary Research Findings
Dr. Wymore of the Oklahoma State University recruited two Oklahoma State faculty physicians who tweezed fibers from beneath the skin of some Morgellons patients. The samples were sent to the Tulsa Police Departments forensic laboratory. The police checked the samples against carpet and clothing fibers and other materials, and conducted chemical analyses and other tests, and found no matches against any fiber in their databases. However, the fibers taken from the Morgellons patients matched each other. These facts strongly support that the fibers are generated from within the patients as part of a disease process. Careful examination of the fibers further revealed that they are associated with hair follicles and may be composed of cellulose.
Dr. Citovsky of SUNY Stonybrook has also conducted some preliminary research on Morgellons. Preliminary findings indicate that Agrobacterium was found in the cells of Morgellons patients and may be involved in the etiology and /or progression of Morgellons disease. Pathogenic Agrobacterium is known to produce cellulose fibers at infection sties within host tissues and is commonly used in biotechnology to genetically alter plants. Preliminary findings indicate that Agrobacterium was found in the cells of Morgellons patients. In a CNN interview, Dr. Citovsky stated, "when I look into the skin of these Morgellons patients, I see DNA from something that could only come from a plant." Agrobacterium may very well be the pathogen that distinguishes Morgellons disease. If these results are confirmed, it would be the first example of a plant-infecting bacterium playing a role in human disease. Dr. Citovsky has received numerous additional samples from Morgellons patients, but due to
a lack of funding, cannot test these samples at this time. They have applied for a grant from the National Institute of Heath to perform this work.
Many patients with Morgellons disease have positive Western blots for Borrelia burgdorferi, the causative agent of Lyme disease. It appears that there may be a connection between the two diseases.
Morgellons has been featured many times recently in the news media. It was also discussed in the American Journal of Clinical Dermatology. (Please see: The Mystery of Morgellons Disease: Savely VR, Leitao MM, Stricker RB. Am J Clin Dermatol. 2006;7 (1):1-5 )

As always, first things first, cut carbs and sugar, even fruit. That
always seems to help and is something that can be done immediately!

Hi everyone,
This is just a thought, but you know, I think the whole carbohydrate
thing may have something to do with what this organism eats/is....like
mentioned in another email I read-you know how when the sores bleed
and then that coating is all sticky-well, it reminds me of the
stickiness of any kind of starch like rice or potatoes -you know how
when you drain spaghetti into a collander it leaves that film? Well,
I just think there's some connection, although I am not sure just what
or how to formulate this hypothesis-has anyone else thought about this
and is that how you figured out the carb thing (which has been quite
helpful to limit, by the way-and has gotten easier, although I
definately have not been completely adhering to it)
Lori

I have a good friend who has Morgellons and she is looking for any
help that has had results. Does anyone have any ideas or know of
anyone who is knowledgeable?? I heard there was a woman here in
Florida who has had some success.

I tried the baking soda on a sore that I have had for two years, to
see what it did for myself. I was pretty amazed that there seemed to
be a bubbling chemical reaction taking place in the wound. It does
feel like there is no longer that lump of material under the sore,
but is too early to know for sure. I am kinda out of it today. Last
night hubby and I were both feeling pretty bad, I think the
guaifenesin REALLY pushes stuff out of your deeper tissues and can
definitely cause some muscle pain and fatigue. So we decided to do
our old routine of full body massage. We just used plain old
vegetable oil like you get at the grocery store as a massage oil.
I'm still a little shell-shocked at what ensued. I am still not sure
this was a good idea, as today I feel more thick and foggy than I
have felt in awhile. Last night I saw my husbands skin pass a chunk
of hard, dark colored material like a splinter that was 3/4 of an
inch in length and about 1/4 inch wide and rectangular almost in
shape. I lost a chunk of what appeared to be this same dark material
the size of a large pea from behind my knee. Also, what looked like
a large mass of wet dryer lint emerged from hubby's ankle, a half
teaspoon maybe. And millions of tiny grains of black sand and tiny
clumps of fibers. The scariest part is that until you get all oiled
up and this stuff starts to break up inside your tissues, you don't
realize how much of it is in there. It becomes much easier to feel
the deposits under the skin that have not yet caused sores. I'm not
necessarily reccommending this as I feel really out of it today and
wonder If by breaking these things loose I haven't just
redistributed them and their toxins throughout the body again. But
if you want to live in the twilight zone for a few hours just turn
your heater up and have someone give you a deep tissue massage with
lots of massage oil. I also noted during this process that despite
what I had been thinking, this illness has continued to progress as
much as ever. It becomes obvious when you are able to feel the
pockets under the skin that the sores have little to do with the
disease, they just occur where the integrity of the skin is breached
and infection ensues, or maybe where blood flow to an area is so
diminished that it ulcerates. I was just sitting there last night
repeating,"This isn't normal, right?" I wish I had a video camera.
This stuff is ALL THROUGH ME, even in areas where I have no lesions,
IT IS STILL THERE. I didn't have any idea it was that bad until I
could see it coming out in chunks, and feel it with my own hands.
I am kind of in shock.
ok... well sorry for the graphic depiction, but I absolutely beleive
the more is shared the sooner we come to a solution.
Dana

I know that Im new to the group Rita, but I vote against the
censorship. Unless its obviously an advertisement.
It does look like the Nutrasilver is a quality product and people have
been seing really good results. The head of the CDC in Mexico
reccomends it!
Anyway thats my two cents.
Fred

Dear Fellow sufferrers, I found this letter on the lymebusters site to send to our senators/congressmen, and also to the Director of the CDC. Please read these letters, and send them! Finding these letters gave me a little more hope that maybe we have a chance at survival with this nightmare! The letters contain important information in a very profound and professional way! Good luck to all of you! And know that you have the strength to continue this battle for truth. I know that tonight, I for one will sleep a little better, knowing that finally someone was able to pretty much sum up just about everything to do with this! If enough letters are sent and enough voices are heard then hopefully our government will fund the research needed to help find a cure for all those living this nightmare! I for one, just want to feel normal again.!

Sincerely,

Deb

I spoke to Dan Rutz again today and asked what I could do to speed the process along. He suggested that I write to the director of his agency and to my state senator and congressman. He suggested that I carbon copy my state senator or congressman on the letter to the director. The director of the CDC is Julie Louise Gerberding at JGerberding@....
Here is a copy of the letter that I wrote to my senator and congressman and the letter that I wrote the director. (The letters are very similar and do not say that I personally suffer from the disease.) You can use them, or better yet, make up your own. Dan said that calling him is just "preaching to the choir," that we need to go to the director if we want this work done. It's worth a try.
Dear Senator/Congressman X
Thousands of people throughout the country are suffering from devastating impact of what many people believe is a newly emerging infectious disease, called Morgellons disease. (See the Morgellons Research Foundation website at www.morgellons.org.) But due to the unusual nature of some of the symptoms and because the disease presents a diagnostic puzzle to healthcare providers, many patients have been quickly pigeon-holed into a psychiatric diagnosis. However, preliminary research findings described below strongly support the existence of a new disease. The medical community will not accept Morgellons as a reportable disease until a medical or public health association has verified its existence and has developed a standard for diagnosis. In June 2006, the CDC stated that it would begin investigation of Morgellons disease. However, to date, no research has been done. The CDC has stated that they are waiting for the green light to proceed and that there may be funding issues.
I am writing to ask you to please contact Director Julie Louise Gerberding at the Center for Disease Control and intervene on behalf of the citizens of New York State who suffer from this disease to request to have this work expedited.
Each day with this disease is a nightmare. For so many, each day brings more severe neurological deterioration and each day brings more disfiguring physical changes. Each day, more people contract this illness. Time is of the essence.
I am writing to ask you to please contact Director Julie Louise Gerberding at the Center for Disease Control and intervene on behalf of your constituents in the State who suffer from this disease to request to have this work expedited.
Each day with this disease is a nightmare. For so many, each day brings more severe neurological deterioration and each day brings more disfiguring physical changes. Each day, more people contract this illness. Time is of the essence.
Morgellons symptoms include skin lesions which can be anything from minor to disfiguring in their appearance, sensations of crawling and biting on and under the skin, and the appearance of fibers and granules coming out of the skin. According to statistics from the Morgellons Research Foundation (MRF), the majority (95%) of affected patients also report symptoms of disabling fatigue and self-described "brain fog" or problems with attention. Patients also report a high incidence (50%) of fibromyalgia, joint pain, and sleep disorders. Other symptoms include hair loss, decline in vision, neurological disorders and disintegration of teeth in the absence of caries or gingivitis. Most patients are unable to continue working, and those who are able to continue working report that they do not function optimally. Many patients become socially isolated, either because they have become disfigured by the disease or because they are concerned about spreading it. The suffering caused by
this disease is enormous.
Preliminary Research Findings
Dr. Wymore of the Oklahoma State University recruited two Oklahoma State faculty physicians who tweezed fibers from beneath the skin of some Morgellons patients. The samples were sent to the Tulsa Police Departments forensic laboratory. The police checked the samples against carpet and clothing fibers and other materials, and conducted chemical analyses and other tests, and found no matches against any fiber in their databases. However, the fibers taken from the Morgellons patients matched each other. These facts strongly support that the fibers are generated from within the patients as part of a disease process. Careful examination of the fibers further revealed that they are associated with hair follicles and may be composed of cellulose.
Dr. Citovsky of SUNY Stonybrook has also conducted some preliminary research on Morgellons. Preliminary findings indicate that Agrobacterium was found in the cells of Morgellons patients and may be involved in the etiology and /or progression of Morgellons disease. Pathogenic Agrobacterium is known to produce cellulose fibers at infection sties within host tissues and is commonly used in biotechnology to genetically alter plants. Preliminary findings indicate that Agrobacterium was found in the cells of Morgellons patients. In a CNN interview, Dr. Citovsky stated, "when I look into the skin of these Morgellons patients, I see DNA from something that could only come from a plant." Agrobacterium may very well be the pathogen that distinguishes Morgellons disease. If these results are confirmed, it would be the first example of a plant-infecting bacterium playing a role in human disease. Dr. Citovsky has received numerous additional samples from Morgellons patients, but due to
a lack of funding, cannot test these samples at this time. They have applied for a grant from the National Institute of Heath to perform this work.
Many patients with Morgellons disease have positive Western blots for Borrelia burgdorferi, the causative agent of Lyme disease. It appears that there may be a connection between the two diseases.
Morgellons has been featured many times recently in the news media. Please see the attached CNN story : "Morgellons - Medical Mystery" http://www.cnn.com...y.cnn
It was also discussed in the American Journal of Clinical Dermatology:
The Mystery of Morgellons Disease: Savely VR, Leitao MM, Stricker RB. Am J Clin Dermatol. 2006;7 (1):1-5
Dear Director Gerberding -
Thousands of people throughout the country are suffering from devastating impact of what many people believe is a newly emerging infectious disease, called Morgellons disease. (See the Morgellons Research Foundation website at www.morgellons.org.) But due to the unusual nature of some of the symptoms and because the disease presents a diagnostic puzzle to healthcare providers, many patients have been quickly pigeon-holed into a psychiatric diagnosis. However, preliminary research findings described below strongly support the existence of a new disease. The medical community will not accept Morgellons as a reportable disease until a medical or public health association has verified its existence and has developed a standard for diagnosis. In June 2006, the CDC stated that it would begin investigation of Morgellons disease. However, to date, no research has been done. I am writing you to ask that you please expedite this research.
Each day with this disease is a nightmare. For so many, each day brings more severe neurological deterioration and each day brings more disfiguring physical changes. Each day, more people contract this illness. Time is of the essence.
Morgellons symptoms include skin lesions which can be anything from minor to disfiguring in their appearance, sensations of crawling and biting on and under the skin, and the appearance of fibers and granules coming out of the skin. According to statistics from the Morgellons Research Foundation (MRF), the majority (95%) of affected patients also report symptoms of disabling fatigue and self-described "brain fog" or problems with attention. Patients also report a high incidence (50%) of fibromyalgia, joint pain, and sleep disorders. Other symptoms include hair loss, decline in vision, neurological disorders and disintegration of teeth in the absence of caries or gingivitis. Most patients are unable to continue working, and those who are able to continue working report that they do not function optimally. Many patients become socially isolated, either because they have become disfigured by the disease or because they are concerned about spreading it. The suffering caused by
this disease is enormous.
Preliminary Research Findings
Dr. Wymore of the Oklahoma State University recruited two Oklahoma State faculty physicians who tweezed fibers from beneath the skin of some Morgellons patients. The samples were sent to the Tulsa Police Departments forensic laboratory. The police checked the samples against carpet and clothing fibers and other materials, and conducted chemical analyses and other tests, and found no matches against any fiber in their databases. However, the fibers taken from the Morgellons patients matched each other. These facts strongly support that the fibers are generated from within the patients as part of a disease process. Careful examination of the fibers further revealed that they are associated with hair follicles and may be composed of cellulose.
Dr. Citovsky of SUNY Stonybrook has also conducted some preliminary research on Morgellons. Preliminary findings indicate that Agrobacterium was found in the cells of Morgellons patients and may be involved in the etiology and /or progression of Morgellons disease. Pathogenic Agrobacterium is known to produce cellulose fibers at infection sties within host tissues and is commonly used in biotechnology to genetically alter plants. Preliminary findings indicate that Agrobacterium was found in the cells of Morgellons patients. In a CNN interview, Dr. Citovsky stated, "when I look into the skin of these Morgellons patients, I see DNA from something that could only come from a plant." Agrobacterium may very well be the pathogen that distinguishes Morgellons disease. If these results are confirmed, it would be the first example of a plant-infecting bacterium playing a role in human disease. Dr. Citovsky has received numerous additional samples from Morgellons patients, but due to
a lack of funding, cannot test these samples at this time. They have applied for a grant from the National Institute of Heath to perform this work.
Many patients with Morgellons disease have positive Western blots for Borrelia burgdorferi, the causative agent of Lyme disease. It appears that there may be a connection between the two diseases.
Morgellons has been featured many times recently in the news media. It was also discussed in the American Journal of Clinical Dermatology. (Please see: The Mystery of Morgellons Disease: Savely VR, Leitao MM, Stricker RB. Am J Clin Dermatol. 2006;7 (1):1-5 )

Hi Fred.
Yes,it was the P3 site. I read it all and it sounds like this guy went
through hell, but if the recommended treatment exceeds my capabilities, then
I don't see the point in paying for the info. I was going to pay it just to
see if I could find some way treat myself on my own, but then the
NutraSilver opportunity manifested.
As far as NutraSilver being safe with the high ppm (3600),yes it is due to
the particle size reduction to nanometers. That makes it not able to
deposit in cells and tissues - it just passes through. The former brand of
CS I was using also was nanometer sized, so it too was safe in large
amounts. I've never had any problem and I haven't turned grey, silver or
blue. I'd never recommend taking large amounts of the type you make
yourself or that is commonly sold. If you look on the NutraSilver site's
product safety page, they have a sidebar link to safety data. They do say
to not let it come in contact with any metal though. Thus,I made sure to
put the drops directly into a glass of water. Silver nitrates are what was
notorious for causing agyria. NutraSilver has none of that. NutraSilver is
used to treat water worldwide.
Yes, I posted to Trish asking for info. about the botanical product. I'm
very interested. I also want to find out about how to wash clothes
appropriately as many indicate you should never wear the same clothes twice.
Geez...I've been doing tons of laundry...and my electric bill shot way up
due to the use of hot water...we can't afford to use the dryer and have to
hang stuff out to dry the old fashioned way. Quite a chore! It's really
exasperating.
Take care.
Julie

Hi, If I may, ACV is Apple Cider Vinegar, you can buy at any store, I think Kay knows a sight where you buy organic,, I read about it on this board, and started mixing it with distilled cold water, I do 3x's per day, it takes a bit getting used to the taste??? Im not sure what the correct amount is I mix 2 tablespoons with a nice glass of cold water. I also started taking the vitaminc C megadoses, at leat 3000 units per day.. I drink lots of water also, and the carb and sugar thing is so important!!!!! I have indulged in some white cake/frosting ,fruits, and sprite today!!!! I am scratching , feel the biting/stinging and have the hive like bumps appearing on my arms all day!!!! I can only conclude that sugar must feed this Whaterver it is!!! I was feeling so much better until I gave in to the sweet tooth!!!! I also take vitamin b-12 vitamin E garllic tablets(odorless) and i use grapeseed oil on my very dry skin..it really helps me, there are so many good suggestions out
there, I have found the most help from simple natural products, I did get some relief from keeping a spray bottle of distilled water and hydrogen peroxide handy, when Used it seemed to decrease my intense itching!!!! I think all these things together make a BIG difference in my comfort level. Hope this helps...Debbie
zip22045 <zip22045@...

Janet,
Read your post and have been using Permethrin without mich sucess...
Sounds like the AVC you mentioned could help me. What is AVC and how