Would anyone who is able to, please describe what their morgellons
lesion looks like, and behaves like. Im not talking about the
fibers...im asking about the inside of the lesion and what is going on
in it(so we can determine if this is unique to other sores). Thanks
My husband the Surgeon is so sick of hearing me talk about the
slides I have and the need of a microscope, hes calling a
pathologist so she can look at them. I have had scientists say: if
you have something SCREAM LOUD. I am going to go inactive for a few
days, I have to go to my husbands office and research some botanical
pain treatments.
Cross Your fingers
Dear Charles, I have some good friends in low places, I get many of my oils from Africa, from people who are ethical, and are teaching people to replant and replenish and increase their productivity. We are trying to get as many Docs as we can to be here
on the last Sunday in August. We want witnesses, then we have credibility, then we form an organization based on principles, ethics and let people know that this is real. I now have 10 witnesses that are professionals who have watched Susan Hammer
and the fibers and organisms that come with it. Many were not in Medicine, I don't have the disease, nor am I afraid of getting it
from anyone. But I am screaming and after we prove it exists then we come out in Force. I have been sliding for weeks now and sneaking into a hospital to look at them.
Trish
A pleasent picture for everyone who has this morgellons, God Bless us all.
Some, including yours truly, believe Morgellons is caused by diagnosed or undiagnosed Lyme. Many LLMDs treat Morgellons. Yes, your rash with the circles could be a Lyme rash. I believe Lyme tests miss 95% oif Lyme.
Rita
Okay Im impressed.
So are you saying that the New Hope treatement for sale on your
website is all we need or is there some other treatment that we must
come to you for?
Fred
I am Patricia Springstead. I am an RN. I have worked in wound care,
Oncology, Diabetic Wound Care, Teacher, Emergency Room, Intensive
Care, Trauma. I watched my father die for 18 months of Lung, Brain and
Bone Cancer, he took every chemotherapeutic agent the docs would throw
at him.He was a Marine Capt.24 years in the Military. 11 years ago my
Mom was diagnosed with Lung Cancer, that is when I began looking at
what we are putting on our skin.
I invented a patent for psoriasis 7 years ago, I have 10 of my
orgional patients who are psoriasis free today. I HAD A GENTLEMAN WHO
CAME TO ME 2003. Go to www.mdcrafters.com., hit New Hope Skin
Formulation. There is a testimonial that he went to Docs about mites.
I didn't think anything about it and he got better. He stopped using
the treatment and they came back, so he would go back on it. Until the
Dateline thing I had no idea that I had already used the treatment on
morgellans, I thought it was Psoriasis.
Now that I look back, and have been able to contact people I have been
using this treatment on 6 Morgellans patients. I'll give you some
phone numbers of real people. Susan Hammer, who is an Advertising Exec
with a major network, heard about me from a Nurse who has known me for
years. Her number is 352-597-5888. I have 5 people who witnessed the
woman who came in yesterday and watched and photographed after she
washed with the soap, put on the treatment and painful collagen fiber
had to come out, then out came the mites. In 3 weeks, I have seen her
go from Cowering and treated like shit, with Pestacides, ect. They
were going to try Amphotericin B. Do you know what that is???? It is a
Chemotherapeutic Agent that will blast the bone marrow faster that
any other agent in Oncology.
From the time I was 8 years old I was treated like a brainaic, I was
reading and volunteering in the lab at base hospitals reading slides
by 14. I had an IQ of 181 and when I was 15, (I am now 50) Doctors
diagnosed me with Bi Polar disorder. My Sister is working for one of
the biggest detox Docs in the Country and they are testing my
treatment on migranes, headaches, Neuro pain, back pain, ect. She has
watched me for 11 years learn to make real soap with Hydroxide and
oils from all over the world. I was missed Diagnosed and am a true
ADHD adult. For my whole life I was on meds, the wrong ones and still
by the grace of God have a head back on.
I ran a 40 bed Cardiac Unit at Brooksville comm. Hospital. One of my
employees was getting married and had debilitating psoriasis and
wanted to wear an off the shoulder wedding gown. I bought and
Researched Soaps, Lotions, OTC perfumes and what I discovered was
sickening. Go to www.mdcrafters.com, go to the bottom of the page read
information about us.
I have been sneaking into Hospitals with slides till 4 in the morning
I have had to unplugg my research computer so I can't get hacked. I
spent 500,000.00 and am in debt to my eyeballs for what I though was
taking away psoriais and Now have hit a bunch of roadblocks. I have
groups of friends who are worried about what I know and have seperated
out my patent so that the FDA doesn't raid me for treating patients.
My Husband is a Respected Surgeon named Richard W. Springstead. He was
the first Orthopaedic Surgeon in this county. I have called Reporters,
emailed and finally got our Representative Dave Russell to come here
and view my
data. Look at collagen and mites on films. They were freaked.
botanical organic corp to International. We have met with Delta Buyers
for one of my products, "The Lotion Jar in a Bar" pat licensed tm.
Kathleen Harding wrote her PhD Nursing theis on my theories about
chemicals that get in the skin and arternative treatments. My Cousin
Hal Brown is worried that I am pissing off the Florida Health Dept.
I am scream loudly for all of you and they don't GET it.
I have spoken to Oaklahoma and was treated like a Hippie walking
through Tulips for god sake. I made the patent after researching for 3
years the uses of essentil oils and raw butter, unfiltered,that have
been used for centuarys by every country in the world. I have
scientists telling me to stay away from NIH,and CDC. That they will
make it into a chemical (synthetic) and hammer you all with CRAP. I
contacted Naheed Usman JD patent law and she and i took 8 months to
write it.
I will NOT let anyone use my treatment except for the Nurses and Lab
people I trust. They will all be present. I am going to PROVE to the
medical "Scientists" that this is the only treatment they have in the
US that is drawing out the mites. I have to use my husbands clinic and
already have it ready to go, When Cathy Harding can do it on a study.
I have screamed, ranted and raved to people. Seeing is truly
believing. We don't know if it is the cure. But it is pullin these
things out of the body. It is a treatment.
I am not a "snake oil rip off" I am real and just want to get someone
to listen. I am as frustrated as you. I ask NOT A THING in Return.
Just get to me and I will show you.
You may check my Professional Lisense in Florida on the Florida
Website of Professional Regulation. I have a good reputation and I
feel like I am in Lourdes for skin diseases.
Do you think i would put my license and that of other professionals if
I didn't have something. There are no chemicals. I get all my oils
form all over the world from growers, I do not compromise and I will
be you loudest, screaming advocate. I just want to be able to prove
that your disease exists. So that I can get some funding to get it out
and open a clinic for Morgellans and Pediculosis, and skin diseased
patients. I have NO EGO in this, God gave this to me for a purpose and
that higher power gave me my purpose in life. You have never had a
more honest ethical Spokesperson on you side as me and my team of
experts that have seen what this does.
I have a friend going to Lauderdale next week to ask for 10 million
dollars, because he has it and suffered for 5 years with uncontrable
twitching of muscle and nerve groups. He is getting better, Susan is
Getting better, and there are more. I am not a scam, rip off, and
wouldn't comprimise my Integriey for all the money in the world. No
one is forcing you, I am not asking for money. JUST YOU, so I can show
these "scientists" that you are real.
Sincerely
Patricia "Trisha" Springstead
call me at cell: 352-428-1173, it is usually with me at all times.
I'd love to offer you any answers or suggestions but you have so much
going on! When I first thought I had scabies the treatment made my
crawling sensations increase terribly. After 2 or 3 treatments for
scabies, I finally figured out this couldn't have been my problem. If
you have Lyme, I understand it can cause crawling sensations also, so
its hard to know what's what. I will say though, I've never heard of
fibers associated with scabies, and had never heard about fibers
before learning about morgellons.
I don't have any ideas about your rash question, but I doubt you need
to be concerned about transmitting anything additional through these
fiber, though at this point, we're all in the unknown and uncertain.
Good luck, support your immune system as best you can!
k*
I was noticing that the Lone Star tick rash looks similar to that of
the Morgellons rash (as posted in the files section of this
Yes, thats the site that I originaly found a couple of years ago. They
had a Forumboard (link still there but I cant access it) that was
where I found out that I wasnt alone and that there were alot of
people suffering from these mystery parasites.
My story is that I had scabies and after treatment this new thing
remained. Crawling, biting invisible bugs or worms or whoknows that
havent responded to anything....
Anyway, i never tried thier products but from what Ive heard and read
they dont work.
Fred
I had intended to include in the previous email this question...I had
done a web search related to lint and scabies and came up with this
website that had a reference to lint problems...This isn't called
Moregellons by the website -- but does it sound like Morgellons to
you? I am not familiar with whatever product they were advocating,
though...(nor am I advocating for its
use)...http://www.safe2use.com/pests/scabies/gettingridof/list.htm
Hi,
I have been reading on this group for a short while...and I have been
getting so concerned that I just had to write. I am an Ivy League
graduate and also a teacher. I appear to have gotten Lyme Disease
fairly recently (or at least, I got some symptoms related to a tick
and was diagnosed with Lyme at one point). To top it off, there is a
scabies thing that has gone on at my school -- and I've been
diagnosed...I have some symptoms that remind me of what I'm reading
about Morgellons and I'm writing to let you know about them, to get
your opinion, and to find out as to whether these observations might
somehow be useful.
First, my initial symptoms before being diagnosed with Lyme disease
included not only a very, very swollen neck (it almost looked like
there was a lump)...but also a rash that seemed somewhat atypical of
the Lyme rash...Well, I am told that not everyone with Lyme even gets
the Lyme rash, but I'd like to describe that rash...It had a black,
almost furry looking center but then the rash changed to a red ring
surrounded by other rings within a day or so...Has anybody ever heard
of a rash that has an almost furry looking center?
I had some of the symptoms typical of Lyme, including the severe neck
pain, tiredness, and eventually, a limp...I was finally treated for
Lyme (though I hadn't tested positive -- I'm told that the test for
Lyme has many false negatives)...and within weeks following antibiotic
treatment things got better....
But once the treatment had stopped, within weeks, I was getting some
of the limping sypmtoms again...
I went back to teaching and there was a scabies thing going on at my
school...or so they say that it was scabies...I got some of the
symptoms related to this, too...though to be honest, the dr. was
uncertain as to whether I had scabies.
Now for the weird part...I noticed when I had a crawling feeling in my
ear (like a walking bug) and I poured hot water into my ear (I know
that's a horrible thing to do -- and this is one of the few places
where I would admit this) that small fibers could be found on the
sink...(when I poured the water out of my ear by tilting my
head)...The fibers were very tiny and white or black...but a few were
blue or red (a very small number, but the colors were bright enough
for me to notice)...It has made me wonder as to whether there is some
relation between these tiny fibers and those fibers described in
Morgellons...The colors seem the same, in any case...? In addition, I
have noticed lint like material floating around...as some have
mentioned in their posts, it doesn't appear to be randomly falling,
but rather almost flying...
If I clean the house very, very well (cleaning and washing are my new
hobby), then the number of white lint dust pieces seem to
diminish...Some days are crawlier than others.
I can't help but wonder as to whether this lint thing is related to
the Lyme or what? Is it scabies related? I've read about STARI
(another tick) disease and have also wondered whether I might have
gotten Stari -- and not Lyme (I'm thinking about the red rash center).
Since I also have some other illnesses (that I won't go into here), I
am worried about my other illnesses being transported by this "lint"
thing...I have wondered whether this lint thing may be a spirochette
organism of some sort...I've even wondered whether that organism can
enter the body...Does it originate on the surface of the body, inside
the body, or outside of the body? Is it an organism somehow moving on
a piece of hair -- or a kind of parasite with a very distinctive shape?
So far I have been:
showering with vinegar
using lice shampoo
getting treated for scabies
Some questions...Do scabies have a sort of lint like stage to them?
Perhaps they do -- but the observations on the issue were
disregarded....Or could this lint thing be something else? I have not
noticed the colored tiny fibers of late...but I do notice white ones...
Thank you for any help. I'm desparate!
I think this is true! and it migt help us morgellons sufferers.
I have been reading about mud and clay and hot springs and theri
healing propeties on this website: http://www.eytonsearth.org/sacred-
hot-springs.html and its pretty interesting.
There are also springs in veitnam and japan that are used to kill
scabies and mud baths and hot springs in Egypt that are said to cure
all skin ailments.
The problem is its hard to find out where to go here in the US because
we dont have the same traditions that have been passes down for
millenia!
Anyway let me know if you find a good volcanic mud location and/or
product.
Fred
http://www.healthcentral.com/
Community-Acquired Staph Infections Pose Growing Threat
Many Americans carry the germ that is becoming resistant to antibiotics.
By Meryl Hyman Harris
HealthDay Reporter
MONDAY, March 6 (HealthDay News) -- While bird flu's potential grabs the headlines, a health threat of another kind is already here in the form of staphylococcus aureus, bacteria once primarily limited to hospitals but now present in the community, new research shows.
One study focused on methicillin-resistant Staphylococcus aureus (MRSA), a bacteria that lives uneventfully in the nose of many people but sometimes leads to serious infection. Symptoms can range from something as benign as an infected paper cut, to bloodstream infections, to infections of heart valves that can be fatal, said study author Dr. Philip L. Graham III, of Columbia University and New York-Presbyterian Medical Center, in New York City.
Although the version of Staphylococcus aureus that causes pneumonia in hospitals is generally resistant to antibiotics, the version found in communities can be treated, he added.
The goal of the research, which appears in the March 7 issue of Annals of Internal Medicine, is to alert doctors to treat infections with the proper medication immediately, Graham said.
He and his fellow researchers looked at 2001-2002 data from the most recent National Health and Nutrition Examination Survey and extrapolated that about one-third of the U.S. population carries Staphylococcus aureus. But two million Americans -- fewer than 1 percent -- carry the variety that is resistant to methicillin and other members of the class of antibiotics that includes penicillin, oxacillin and amoxicillin.
For the second study in the journal, researchers examined 384 people in the Atlanta area who had S. aureus skin or soft-tissue infections and found that 72 percent had become infected outside a hospital setting. Most doctors didn't recognize the source of the infection, and recommended ineffective treatments, the researchers said.
"We were interested because, in various places people have been publishing cases, especially [involving] children, having disease caused by staph that is resistant to more antibiotics than one would expect," said Graham. As far back as 1999, four children died of the disease in Minnesota.
"There are some emergency departments of pediatrics where 70 percent of all their staff infections are community acquired. That's a large percentage. We believed that the numbers were smaller on a nationwide basis," he said.
Last month, researchers announced that genes responsible for the virulence of MRSA in the United States appear to come from another, less toxic, bacterium than the hospital version.
The problem will be here for some time to come, said Dr. Pascal James Imperato, chairman of the department of preventive medicine and community health at the State University of New York Downstate Medical Center.
"We still don't know how prevalent this problem is in the general population because the majority who acquire skin infections don't visit their physicians, they heal on their own," he said. "Only the most severe ones get treated." And, he added, the numbers may have changed since the studies were conducted.
"But those data are at least very helpful because they tell us roughly what the situation was at that point in time. They give us a baseline," he said.
Generally, those most susceptible to staph infections include people with pre-existing diseases of the skin or mucous membranes, persons with foreign objects -- such as heart valves -- in their body, and people with immunodeficiencies or chronic diseases, he said.
Imperato said the infection frequently starts with a papule that "often resembles the bite of spider. It's a hard, little lump that is very red and tender and the center portion looks like it is caving in and disintegrating." Any skin disturbances that don't appear to get better should be seen by a doctor, he said.
Though the number of cases of staph infection outside hospitals appears to be growing, there is more study to be done, and the disease is treatable. A well-informed medical community, and individual vigilance, will go far, he said.
More information
For more on community-associated MRSA, visit the U.S. Centers for Disease Control and Prevention (www.cdc.gov ).
Copyright © 2006 ScoutNews LLC. All rights reserved.
http://www.wfaa.com/sharedcontent/dws/wfaa/latestnews/stories/wfaa061004_mo_morgellons.87dcb1f.html
All the best
Nadie
Bravo! I wish I were in florida! If I can be of any help from Texas
please contact me.
I am in Hernando County Florida. I have been studing skin problems
and the use of botancials vs chemicals for 11 years, I have a patent
on an all botanical treatment that I thought was just for psoriasis
and severe dermatitis and have 5 morgellons clients. I did not know
it was Morgellons until June of this summer. I just want to help, I
have seen Corporations walk people out the door because they are
ignorant, I have seen psoriasis and morgellons people treated like
lepers. I am working with a Physician,State Representative and a
Nurse Practicioner who is 2 semesters away from her Doctorate. I
have access to slides, microscopes ect. People have said it takes
time, you need to write a thesis. I DON'T HAVE 5 YEARS TO DO A STUDY
NOR DO I HAVE TIME TO WRITE A THESIS AND JUMP TO THE TUNE OF
UNIVERSITY BUREAUCRATICS. I have worked on burn wards, surgical
units, diabetic ulcerations, wound care, flesh eating bacterias. I
know the largest organ of the human body, skin. I also know Neuro,
Intensive care, Emergency Room and Oncology.
I have contacted the CDC, all Health Depts, NIH, Newspapers about
what we are seeing. NO ONE IS LISTENING, AND I AM SCREAMING. Only
one Calif paper and our tight nit group of professionals is
listening to me. I have slides,video tapes, pictures of Your seeping
open ulcers, I have sent emails after emails. I have spoken to Docs
everywhere. It is just not in the US, it is all over the world. If
anyone wants to talk to me and can come in to my office, I would
love to see you. I know you are hurting, leary, sick of docs, been
lied to scammed by money hungry botanical, body cleansing zealots.
Who charge a lot of money and treated like you are crazy. I have
looked into your eyes, at your bodies and seen the frustration of
being heard. I have been screaming to the people doing the studies
and they aren't listening. They can't find it on a punch biopsy,
open resection, because it is not in the skin. I have researched,
studied, analyzed, and am making sense to others, because they can
think out of the box. I have refused to do double blind studies
because it is human experimentation. When people are hurting and
scared and watching their beautiful bodies marred, and heads fogged,
twitching muscles, eyesight diminishing it is cruel to not help
everyone.We don't test on animals, why people. I have studied by
sneaking into labs at night and looking into low vision
microscopes and have seen things that the lab staff couldn't
believe. If anyone wants to see me, look into my eyes and see that I
don't want your money, not now, there will be time for that. I swear
that I will help you. I need 5 people so I can show the so called
Experts what can be done. I am fuming over what the Dermatologists
have done to you,Pyrethines, bathe in bleach, creams that are based
in crap. I am not Merck, Bristol Myers, Squibb. I am a human being
who doesn't have your disease, but sits up at night and prays that
God brings you to my door.I have cried on the phone to the powers
that are supposed to educate and help for days on end. I have seen
the experts say it doesn't exist. I cry when someone looks at me and
says Oh My God, I am getting better. I am not Voodoo, I just
happened to have created something, that is not a chemical, and am
begging Docs to send them to me.
I am in tune to Delusional Parasitosis. I have seen Doctors and
asked the questions. Have you seen people who complain of biting,
twitching, neurosymptoms, parasthesias, foggy brains. Oh Probably
about 100 in my 10 years as a Doctor. Then I get really angry. Now,
I am really angry that you haven't been listened to and tossed aside
like an nutcase. You may contact me through this site, I will be
waiting for your email and phone number. I will call you back.
Sincerely,
Nurse,Inventor,Scientist for 23 years
as always, I am first to leap, please contact me, kk
Dear Dana,
wonderful news! yes, I am silver buff, but so is Penny. Penny also uses the ionic copper. I have ordered that as well, check out Penny's recipe, I think it will work.
kk
My brother swears by Gwai. He belongs to online groups where that's the main topic.
Yes, aspirin is acetyl salicylic acid.
Rita
I found a link, but being technically incompetent don't know that I
can post it here...
http://www.psha-inc.com/guai-support/
I KNEW there was something to this guaifenesin thing. This protocol
has effected the recovery of patients with FMS. I have been using
this same protocol almost daily for about six months without knowing
that I was doing it. IT HAS REALLY HELPED. It has not completely
alleviated the symptoms and some have progressed, but I only get a
few sores at a time now and they are small and heal more quickly.
In case the link doesn't work the website is International Guai-
support group for fibromyalgia. I KNOW there is a link between
these illnesses (fibromyalgia, chronic fatigue syndrome, insert
autoimmune disease here etc...) and morgellons. They just behave too
similarly for there not to be, and there has been suspicion that
these illnesses may have an infectious cause at their root. I would
highly reccomend that mucinex be added to the list of things we do
everyday. This site also mentions lowering carbs as a treatment and
AVOIDING SALICYLATES (aspirin, I think) Some of you intelligent
people out there read this and tell me what you think. It's just too
coincidental that the one thing that has really helped me has helped
others, too, and there not be some veracity to it.
Dana
I beleive it was Kay who suggested the ionic silver. (If I'm wrong I'm
sorry, I have a really hard time remembering who said what) I have
been taking it orally, and in eyes, ears, and nasal passages for about
a week. The swelling and pain in my sinuses/eye area is almost
completely gone! I still see the 'shadows,' but it has definitely
improved things... thank you.
Dana
How did you get your doc to test for this? I can see how this might be
a culprit. I have had abcesses that had to be drained surgically and I
was told they were staph, though I have not recieved the cultures yet.
I was treated for two wks with bactrim/augmentin each and bactriban in
nasal passages. After the antibiotics were through, symptoms came back.
The other thing that caught my eye was the link between methicillin
resistant strains and carotenoids. I often appear very tan even when
not outdoors much and sometimes eyes appear yellow though my liver is
functioning normally, according to all blood tests. Oh and I get
really bad if I eat carrots. I would like to know more if you have any
information, specifically about how symptoms present, so I can decide
if it's worth another trip to the doctor. Oh, and CONGRATULATIONS, I
am so happy to hear you are healing. Stay well!
I am taking Lyrica for the pain and it has stopped all of it
completely. No more biting, itching, etc.
I will be taking Zithromax for at least one year to kill the S. Aureus.
It is so simple to test for this....it is just a swab of the inside
edge of your nose to get mucus which is then cultured in the lab.
When I started the zithromax I was seeing fibers....after about 2
weeks no more fibers and the sores began to heal.
Blessings to all, Pat
Hi Dana,
I have worked in the Dental field for almost 15 years now. It wouldn't be
uncommon for your dental health to deteriorate along with your physical health,
as one can effect the other in many, many ways.
The pressure and pain you described sound like a textbook case of TMJ Syndrome.
It is very common, caused by the clenching and grinding of the teeth, and can
wreak havok on healthy, virgin teeth, let alone those with restorations. I am
sure you are aware that many things will cause your teeth to decay/periodontal
disease even if you brush and floss religiously. A big factor to consider is
your genetic makeup. How is the dental health of your parents? There are a
certain amount of individuals that are cursed with a predisposition toward
decay, gum disease and bone loss. Even with early education and proper hygiene,
these people will be fighting a losing battle. Their oral PH is at a level that
allows bad bacteria to THRIVE. Could this be partially to blame as well?
If you want to know whether or not you are unknowingly clenching or grinding
your teeth, open your mouth and look at the tissue on the inside of your cheeks
with a flashlight. Stay open long enough for the tissue to dry out. If you are
a straight, white line of raised tissue all the way back toward your throat, and
it is along the center of the cheek, where your teeth come together when you
close....you are doing something without even knowing. See, when you clench,
you suck all the saliva and air from inside your mouth creating a vacuum effect.
Over time, you literally suck your cheek tissue in between your teeth. That's
where the raised, white line comes from. The lighter and more pronounced it is,
the harder and longer you are clenching.
Oh, and you will gradually create microscopic cracks which could explain your
teeth suddenly crumbling for no apparent reason. Or, I suppose you could just
have this shitty disease called Morgellons.....(kidding). If I can help in any
way, please let me know. I also am well versed in proper protacol for Amalgam
Removal if anyone is considering it and wants to interview Dentists before
having it done.
Love and kindness to all fellow men...
Nicole
Sent from my BlackBerry® wireless handheld
Im
stareing into the new 10x mirror i got at walmart($6), and putting
miraclefoot aloe cream(walgreens$9)on my face. After it drys i
scrape it off and then using my sharp angled tweezers i spend hours
lifting off the white swollen fiber globs that the cream makes erupt
from the pores on my face. Sometimes after one comes out, several
more follow...its as though they are crammed in the pore and want
out. It is in this manner that i now have uncovered 26 varring in
size "bouquets" forming lesions. By repeting this proceedure for
hours intermitintly, the bouquet of fibers opens and begins to
bleed. Then i switch the application to baking soda because it keeps
the area from closing up and allows it to bleed out. The largest
lesion i have, above my lip, and embedded for 9 years...after many
weeks of this application, and one day of bleeding out at a trickle
into baking soda for almost 9 hours...is finally not swollen, and
has no more goo or fibers embedded in it, and is a smooth open
crater of normal skin. I am adding sovereign silver (vitimin shoppe
or whole foods(about $12)when i end each session, to help restore
(promotes non-differential cells for healing), and because it is a
non toxic antibiotic, and hopefully will help not leave a scar...we
shall see. That is the worst lesion i have so far, and thus the many
others are treated in the same way, but less time consuming, but
still taking much time for allowing the process of tending to the
bodies natural process of erupting this irritant once it is
uncovered. I dont know, beyond what im doing...what all this means,
but i find my pores are looking much smaller, and my face less
swollen, and am surprised at how gory this gets letting a sore bleed
out. It seems i have scrubbed baking soda thru about a dimes width
of a skin like looking covering on my face..with no pain. Using a
credit card for this scrapeing , which has apparently become my new
addiction....as once this process is started, is hard to not tend
to...has become amusingly, the only profitable asset of owning a
credit card, and surprisingly a profitable way of dealing with this
mystery
Sandy,
Is it at ALL possible to take one SOMEWHERE and take a photo to show us??? For the last three years, only during the heat of high summer in Oregon, that I seem to be followed around EVERYWHERE by a little swarm of what I thought at first were fruit flies. I was bugging my kids to DEATH asking if either of them had noticed any rotten or spoiling fruit around the house. I kind of have an OCD type thing going with my housecleaning......I have ever since my teenage years, (how bad is it when your college roommates all call you Donna Reed?). Anyway, none of us could find anything in the entire house that would be attracting the fruitflies. Then, my son noticed that they seemed to be either on, or flying directly around ME, and ONLY ME. I considered that the Morgellons had somehow changed my sweat/chemistry and I was now giving off the pleasant and ATTRACTIVE smell of DECAYING FRUIT??? I mean, what else could it be??
This year, I found what looked like very, very small BROWNISH BUGS COMING OUT OF MY SKIN NEAR MY NECK, HAIRLINE and ARMS. I sit down and it is like a little cloud of them settle back onto me, only to fly away again when I move. I was AFRAID TO EVEN ADMIT TO MYSELF WHAT I WAS SEEING, LET ALONE STATE IT ON HERE!!! (You know, brothers and sisters, no matter how weird these symptoms are, there is always something you still think is TOO DAMN BIZARRE TO MENTION OUT LOUD.........EVER). I have seen so many other posts about this, I wanted to let you know I have had this going on too. However, note that because the temperatures have dropped dramatically in the last two weeks, I haven't seen ANY for the last two days.........
sandra white <sanwhite409@...
I have recently started to see these little bugs in the house that when I try to catch one of them, it jumps from me. I caught one tonight and it sent a little shock through me before I tried to squish him. similar to the shock I feel sometimes with this disease. upon examining him, I noticed that no blood or anything came out of him,and he also had a "sheeny" glow to him like I see on my skin. It is small and v-shaped. I talked to someone in tenn. with morg. and she said she has these in her home as well. they jump, crawl, and she says sometimes even fly. I am on a contract with terminex and they come to spray every month, but these things always survive their pesticides. anyway, I have the little S.O.B. in a ziplock bag and plan to take him to the morg. festival this weekend and give him to Dr.Randy Wymore and tell him this as well. If we all keep trying,maybe we will eventually figure this out on our own. has anyone else seen these insects?I sometimes see them flying
around my front door in late afternoon. I live in n.c.Sandy.
Hi Nadie! Greetings Fellow Sufferers.........
I feel VERY, VERY, STRONGLY that Morgellons is not a case of genetic engineering or simple environmental mutation. REMEMBER, we are dealing with a WHOLE NEW CLASS OF ORGANISM. ONE WHICH SHOULD BE UNABLE TO MOVE, OR CREATE ENERGY SIMPLY BECAUSE IT DOES NOT CONSUME ANY MATERIAL THAT WE KNOW OF, (like a normal parasite), AND IT IS MADE ENTIRELY OF CELLULOSE........OR PLANT MATERIAL.....AS ALL OF MY FELLOW SUFFERERS NOW KNOW THANKS TO DR. RANDY WYMORE. (Dr. Wymore, if you are reading this...........WILL YOU MARRY ME?? BECAUSE YOU, AND MEN LIKE YOU - WHO ASK FOR NOTHING MORE THAN KNOWLEDGE AND THE HEALTH AND SAFETY OF YOUR FELLOW MAN IN RETURN FOR WHAT YOU DO EACH AND EVERY DAY, ARE MY DREAM MEN). Oh, excuse me! Where was I?? (LOL)
Have you ever noticed that each and every one of us who have been biopsied up the ying-yang, cultured, urine and blood tested, etc....have always had those tests come back, "Negative for any known bacteria or infectious agent". Maybe not in those exact words....but something along those lines, right?? The CDC has been saying for years now that Morgellons suffererers have no KNOWN organism or bacteria in the cultures they have reviewed. WELL, MAYBE BECAUSE THIS IS AN ENTIRELY, HERETOFORE NEVER SEEN TYPE OF ORGANISM WHICH WILL SEND SCIENCE INTO A TIZZY FIT, and uncover an entirely new strain of developing infectious agents. We don't test positive for anything because they don't even know what they are testing for!!!!!!! THERE IS NO NAME FOR THE THING THAT IS INVADING MY BODY BIT BY BIT!!!! THIS IS UNCHARTED TERRITORY, MY FRIENDS, AND WE ARE ALL WORKING FOR NON-EXISTANT WAGES, (AND BENEFITS), IN THIS VERY STRANGE EPISODE OF........THE TWILIGHT ZONE.
Nadie <nadie7002@...
Just another thing that could of went wrong ? Just another vector out there?
Just another avenue to look at ? What do you think?
http://www.greenmethods.com/incl_pages/gb_fallacis.php
All the best,
Nadie
Wow I just Realized I have those at my Grandparents!, There Like V
shaped Criket thingys and He also sprays for bugs etc and they are
hard as hec to catch,Damn , Im going to have to go investigate!, Also,
I wonder why my Lesions have just magically disappeared like 2 months
ago, All I did was eat more Wendys/MCdonalds/Subway.! and Went to
School,Honestly I think the only thing we can besides using SAFE!!!!
Test Medicane etc, Is wait and Gather Evidence. Also I wouldnt
recommend even trying stuff as they get Immune pretty quick,Just stay
healthy, Vitamin C+++++ Diet, Also I dont know why I got off topic
sorry ^_^,, Also this is a bit secret so dont pass it on.....
( My Uncle (CIA) Reported in 2003 That 3 High BioChemicals were
stolen,From Ohio,Florida,Arizonia,calfornia(+more) These chemicals
were classified as Pesticides and such. Also please dont pass this
information around please! Also some of the Pesticides were found in
Silos in IRAQ!,They looked as if to be testing some BioGerm!, Okay I
went to far! , EYES ONLY!!!! For real.!
Staphylococcus aureus
From Wikipedia, the free encyclopedia
Role of pigment in virulence
The vivid yellow pigmentation of S. aureus may be a factor in its virulence. When comparing a normal strain of Staph. aureus with a strain modified to lack the yellow coloration, the pigmented strain was more likely to survive dousing with an oxidizing chemical such as hydrogen peroxide than the mutant strain was.
S. aureus is a Gram-positive coccus, which appears as grape-like clusters when viewed through a microscope and as large, round, golden-yellow colonies, often with β-hemolysis, when grown on blood agar plates.^[1] The golden appearance is the etymological root of the bacteria's name: aureus means "gold" in Latin.
Colonies of the two strains were also exposed to human neutrophils. The mutant colonies quickly succumbed while many of the pigmented colonies survived. Wounds on mice were swiped with the two strains. The pigmented strains created lingering abscesses. Wounds with the unpigmented strains healed quickly.
These tests suggest that the yellow pigment may be key to the ability of S. aureus to survive immune system attacks. Drugs that inhibit the bacterium's production of the carotenoids responsible for the yellow coloration may weaken it and renew its susceptibility to antibiotics.^[11]
Did I read this right?
http://www.greenmethods.com/incl_pages/gb_nematodes.php
All the best.
Nadie
[LINK]
Community-Acquired Staph Infections Pose Growing Threat
Many Americans carry the germ that is becoming resistant to antibiotics.
By Meryl Hyman Harris
HealthDay Reporter
MONDAY, March 6 (HealthDay News) -- While bird flu's potential grabs the headlines, a health threat of another kind is already here in the form of staphylococcus aureus, bacteria once primarily limited to hospitals but now present in the community, new research shows.
One study focused on methicillin-resistant Staphylococcus aureus (MRSA), a bacteria that lives uneventfully in the nose of many people but sometimes leads to serious infection. Symptoms can range from something as benign as an infected paper cut, to bloodstream infections, to infections of heart valves that can be fatal, said study author Dr. Philip L. Graham III, of Columbia University and New York-Presbyterian Medical Center, in New York City.
Although the version of Staphylococcus aureus that causes pneumonia in hospitals is generally resistant to antibiotics, the version found in communities can be treated, he added.
The goal of the research, which appears in the March 7 issue of Annals of Internal Medicine, is to alert doctors to treat infections with the proper medication immediately, Graham said.
He and his fellow researchers looked at 2001-2002 data from the most recent National Health and Nutrition Examination Survey and extrapolated that about one-third of the U.S. population carries Staphylococcus aureus. But two million Americans -- fewer than 1 percent -- carry the variety that is resistant to methicillin and other members of the class of antibiotics that includes penicillin, oxacillin and amoxicillin.
For the second study in the journal, researchers examined 384 people in the Atlanta area who had S. aureus skin or soft-tissue infections and found that 72 percent had become infected outside a hospital setting. Most doctors didn't recognize the source of the infection, and recommended ineffective treatments, the researchers said.
"We were interested because, in various places people have been publishing cases, especially [involving] children, having disease caused by staph that is resistant to more antibiotics than one would expect," said Graham. As far back as 1999, four children died of the disease in Minnesota.
"There are some emergency departments of pediatrics where 70 percent of all their staff infections are community acquired. That's a large percentage. We believed that the numbers were smaller on a nationwide basis," he said.
Last month, researchers announced that genes responsible for the virulence of MRSA in the United States appear to come from another, less toxic, bacterium than the hospital version.
The problem will be here for some time to come, said Dr. Pascal James Imperato, chairman of the department of preventive medicine and community health at the State University of New York Downstate Medical Center.
"We still don't know how prevalent this problem is in the general population because the majority who acquire skin infections don't visit their physicians, they heal on their own," he said. "Only the most severe ones get treated." And, he added, the numbers may have changed since the studies were conducted.
"But those data are at least very helpful because they tell us roughly what the situation was at that point in time. They give us a baseline," he said.
Generally, those most susceptible to staph infections include people with pre-existing diseases of the skin or mucous membranes, persons with foreign objects -- such as heart valves -- in their body, and people with immunodeficiencies or chronic diseases, he said.
Imperato said the infection frequently starts with a papule that "often resembles the bite of spider. It's a hard, little lump that is very red and tender and the center portion looks like it is caving in and disintegrating." Any skin disturbances that don't appear to get better should be seen by a doctor, he said.
Though the number of cases of staph infection outside hospitals appears to be growing, there is more study to be done, and the disease is treatable. A well-informed medical community, and individual vigilance, will go far, he said.
More information
For more on community-associated MRSA, visit the U.S. Centers for Disease Control and Prevention (www.cdc.gov ).
Copyright © 2006 ScoutNews LLC. All rights reserved.
Just another thing that could of went wrong ? Just another vector out there?
Just another avenue to look at ? What do you think?
http://www.greenmethods.com/incl_pages/gb_fallacis.php
All the best,
Nadie
I have recently started to see these little bugs in the house that when I try to catch one of them, it jumps from me. I caught one tonight and it sent a little shock through me before I tried to squish him. similar to the shock I feel sometimes with this disease. upon examining him, I noticed that no blood or anything came out of him,and he also had a "sheeny" glow to him like I see on my skin. It is small and v-shaped. I talked to someone in tenn. with morg. and she said she has these in her home as well. they jump, crawl, and she says sometimes even fly. I am on a contract with terminex and they come to spray every month, but these things always survive their pesticides. anyway, I have the little S.O.B. in a ziplock bag and plan to take him to the morg. festival this weekend and give him to Dr.Randy Wymore and tell him this as well. If we all keep trying,maybe we will eventually figure this out on our own. has anyone else seen these insects?I sometimes see them flying
around my front door in late afternoon. I live in n.c.Sandy.
Rose <toil_for_lyme@...
To Rita, Kay, Sandy and all others reading this:
I read the earlier posting with great interest. I work in Dentistry, and
REGARDLESS of what the ADA says officially, I feel very Strongly that anyone
with a mouth full of old Alloy fillings will be MUCH better off getting them
replaced with Composites. However, as one of many here who has spent literally
THOUSANDS of dollars trying to treat/cure this disease, PLEASE.....wait until
more is known before proceeding with any form of EXPENSIVE and/or INVASIVE NEW
therapy. Proceed with caution, knowledge and empowerment. ASK QUESTIONS!
Much love to all here....
Sent from my BlackBerry® wireless handheld
Parasitology Center Inc. parasite testing parasitology Dr. Omar Amin, Neuro-cutaneous Syndrome (NCS)
Now that is something I can sink my teeth into!! Jo, I'm so jealous
that their in your territory! I may have to make a trip to Tempe,
will you meet me for lunch? I'll definately get the kit and collect
my samples, but to they just test? or do they treat as well. When I
went to the chiropractor he felt strongly that this was related to
dental work, I have a lot of old amalgam fillings. To me it makes sense.
k*
Date: Fri, 29 Sep 2006 16:50:02 -0700
Subject: Another autoimmunity diagnosis bites the dust?
Lichen sclerosus has previously been linked with borrelia infection.
--
I heard a story a few years ago about a little girl with inoperable
cancer of the brain. Her doctors beleived that she would die but her
family did not share this with her. She had been raised in a family
of strong faith who told her simply that God would heal her. She had
no reason to doubt this, being only six years old, and she accepted
it as fact. Her family and her church prayed for her, and
miraculously she was healed. I am sure we have all heard similar
stories.
What really got me thinking about this was an experience in my own
life. This is going to get a little personal, and I hope I won't be
judged for it, but I think it's important.
I used to get kidney infections a lot. Every few months I'd have to
run to the doctor or emergency room in incredible pain for a
prescription, antibiotics and painkillers. I went through a
difficult time in my life around the same time. My infant daughter
passed away while sleeping next to me in bed, and I was for a long
time searching for a way to escape the pain and guilt. I got pretty
fond of the vicodin. Don't misunderstand, I never tricked a doctor
into giving me a prescription I didn't "need," but I found myself
secretly hoping I'd get sick, because I knew the script would
follow. And I did get sick. Over and over again, I got sick enough
to "need" painkillers.
Finally, it came to me, with a little help from those around me,
that this wasn't working. I decided that this wasn't helping, was
actually hurting me, and that I wasn't going to do it anymore.
The kidney infections stopped. In the three years since I have had
only one problem with my kidneys, compared to four of five times a
year before that, and it wasn't the same problem.
So I started thinking, If the mind can cause the body to become
ill, then it can cause it to become well. I think it comes back to
faith. I don't think it matters WHAT belief you hold, in God, in the
Universe, even as an atheist you can still hold faith in the power
of your own body. I think what matters is the strength and sincerity
of the belief.
Just something to consider.
Dana
Lotrimin ear drops -- is that for plugged ears? Mine are always
plugged, along with the sinus/allergy problems. They are usually so
swollen it hurts to put a Q-tip in there to clean them. And can you
get those at Walgreens or the like?
Thanks!
Joy L.
I know for a fact through personl experience that this disease (whatever it may be) affects the peri nervous system. It is either the afferent or efferent nerves (can't remember without my notes) that send signals to the brain indicating body temperture. I can tell all of you thisv--- 21/2 yrs ago my appendix ruptured. When I went to the ER and had it removed, they indicated that it had been ruptured for at least 4-5 days. I never had a fever, my white blood cell count was not elevated at all, and my pain was tolerable. You can ask anyone in the medical field and they will tell you that when your appendix ruptures it is known to be the highest pain one can feel.
So ... if you experience any pain, please go to the doctor because chances are that it is something serious.
I have been dealing with this unknown disease for over 10 yrs and I have been notating everything for the last 5, not to mention 2 boxes of major research that would be so helpful to any doctor to get to the bottom of this, but no one is interested. Isn't that a shame???
I don't have time this morning as I have a doctor's appt., but I promise I am going to start typing the info that I have and sharing it with you all.
Two important things before I close: Go out TODAY and get the following if you don't already have them in your possession. They are a must!!
1. Selenium 200mcg (mine also has calcium 47mg) I take one a day
2. Lotrimin Ear Drops
Take Care,
Menoi
[INLINE] Sending Smiles Your Way Today
danacantstop <danacantstop@...
wow. best possibility I've read yet. I have often thought part of
this disease may lie in the lymphatic system as I often have swollen
glands, lesions and abcesses occuring along the skin where the lymph
vessels run and a burning painful sensation where the spleen is
located. I don't run fevers anymore though, not even when I am ill
with something medically coraborrated(sp?), like with a kidney
infection. I think this is along the right lines. thanks for posting
the link.
even better, there is a test! now, how do I convince a doctor to
perform it? has anyone had this test?
James, yes I have experienced something similar. Only a few times, I
have SEEN something move under the skin of my forehead. I was very
hot from exercising, and had a really painful and swollen lump under
the hairline. When I rubbed it I felt something start to move and
watched as this 'lump' slowly moved from that area down the hairline
toward my ear. I could feel it move until it got near the jaw/ear
canal and the I lost it somewhere in the soft tissue of the neck
just under the ear lobe. It hurt there for days and broke into a
lesion. I have also had the disturbing sensation of something
breaking loose and "rolling" through my blood vessels. I thought
they were blood clots then having never heard of morgellons. It felt
like a vessel had been clogged and a sudden release of pressure and
the "rolling" sensation along the major arterial/venous structures
in my neck and down my arms or into my chest. I have only felt this
sensation travel downwards. Another similar sensation I have had
also occurred when I had large sores in the hairline. The best I can
describe it is this: It felt like someting in the sore broke loose
beneath my skin, broke into millions of peices and was "falling"
through the skin of my forehead toward my eyes. A few minutes later
the skin of my eyelids started to swell and my eyes felt like
needles were poking through them. My eyes became red and very
painful, especially the side where the lesion was located. I went to
the hospital and told them I must have scratched my eye when I put
my contacts in, but they could find no lacerations. That night I had
to drug myself with benadryl and keep my eyes absolutely still
because the pain was EXTREMELY intense. When I woke in the morning
it was still irritated but better, but that is when I started seeing
stuff growing in my eyes.
Lori,
You may be right. My mom lives near Seligman, on 66, and I stayed
with her for three months last winter. The cold and low humidity
initially seemed to make it worse, I had sinus and asthma stuff and
the cold made my joints hurt, but after I adjusted to it I seemed to
have less symptoms. I think it makes it less active. I also blast my
a/c at night so I don't itch. This would make sense if we are
dealing with some kind of nematode. The crazy part is that my mom
used to live in Texas, and I beleive she was exposed when I was. She
developed similar and unexplained morgellons like symptoms, but
moved to Arizona shortly afterward. She didn't get the full blown
disease like I did. She still gets occasional 'acne' that she
describes as intensely painful and if you touch it at all it leaves
a huge scar, but infrequently. This is based on a bunch of
conjecture, but still worth mentioning. As for the lips, my family
buys stock in carmax.
I feel the pain of everyone. Fully enjoy life it's just not on the
menu for us, tough luck friends. Unfortunately some of us here is soo
tired of fighting, and thinking about suicide. Some of us have
withdrown from social life, and loneliness, hopelessness.... on and on.
And i not even talking about Physical suffering ...
Who knows how long it will take for the Morgellons.org to finish their
researching and come up with the cure. I think they gave up on us, or
perhaps they still think that MOrgellons its all in our head. Before i
found this site, i thought i was dying all alone but its nice to have
fello cyber friends who are going thru same as me. That makes the pain
a little lighter.
So if you get deep depressed just think that your not alone,we are all
in this.
peace and empathy..
Hi,
I just wanted to share how much I appreciate all of you and your postings. I related so much, and the humor is quite helpful. Once again in my racking my brain moment, trying to figure out if this is a virus, a bacteria, a mold, a fungus........... I found something quite interesting. Last Saturday I went on a hike, and it is quite dry here- When I finished the hike, my whole face was peeling-which has never happened before- but a couple of lesions seemed to heal quickly- and I am wondering if there is something about moisture vs dryness that makes the lesions better or worse- I say this because if you look at the "hot spots" they are along coastal areas for a large part, AND there don't appear to be many in Tucson, from what I can gather (from when I called OSU to register with them)- I am not sure, the other thing that seemed to help was wearing the "blister" bandaids over them, as someone had suggested?
I am holding onto the dryness theory for today, and not putting any chapstick or moisturizer on my lips, where there are a couple sores, but it's kind of driving me crazy!
I appreciate the idea of maybe we are just more highly evolved:) :)) (lol)
Wouldn't it be great if some of those skeptical docs out there would sign up to our group and read this- maybe then they would believe us and "get it"-
Does anyone have anything that helps sores/lesions on your lips?
(oh, I also heard about the herbs "Cat's claw" and "olive tree leaf" somewhere so I started taking those last Sat.-has anyone else tried these? did it help the symptoms?)
Take care,
Lori
here is my idea, tell me what yall think? Go to this web page and read this, it's on EMED.
http://www.emedicine.com/med/topic794.htm
Notice how this can effect your connective tissues, nervous system, and your blood which I read in another article may not be detected in every blood test. Now, maybe this is something in this family that has not been recognized yet.
Any input apprecited,
Menoi
calarasoulmates <arms@...
After way more hours then I wish to admit of searching endlessly for
possible causes for whats causing this horrible afflication. I have
a few questions as well as a few and I use the word "lightly"
possible causes. I have seen so many possible senarios that I feel
like I am locked into some kind of sci fi horror flick.
Anyways, I am sure you can all relate to that. First the questions,
thanks in advance to any who can offer responses.
How many of you remember having this start while working around
plants or soil?
Do any of you experience a waxes, stickish substance in areas where
they seem to be existing heavyily?
Has anyone experience flashes of light? Possible neurogolical /
epilepsy causes in the very extreme stages of infestation.
What part of your body do you notice in it in the most are any
areas spared?
IF you have mass amounts on your head were you ever treated a the
scabies cream medication up to your neck?
Has anyone moved to try and see if its environmently induced (ex
fungal etc.)
Here are some of the more recent places I found that I found
interesting and consider possible causes to consider, most I haven't
ran accross in the majority of the places I looked for morgellons
information. However, they still seem like that could be related,
I welcome anyones feed back good or bad on them. Thanks again, Tammie
http://www.answers.com/topic/brugia-malayi
http://members.cox.net/llyee/ncs_overview/overview_neuro-
cutaneous_syndrome.html
http://www.skinparasites.com/id17.html
http://www.who.int/tdr/about/products/oncho.htm
In science class we learned how Certain mud baths (WIth Volcanic Rock
in them) Kills 100% Of the bacteria on your body instantly! and you
soak in it for 4 hours!. Any ideas? Well I will have to go try one
myself!.Its also been known to Be a Cure for Acne.!
After way more hours then I wish to admit of searching endlessly for
possible causes for whats causing this horrible afflication. I have
a few questions as well as a few and I use the word "lightly"
possible causes. I have seen so many possible senarios that I feel
like I am locked into some kind of sci fi horror flick.
Anyways, I am sure you can all relate to that. First the questions,
thanks in advance to any who can offer responses.
How many of you remember having this start while working around
plants or soil?
Do any of you experience a waxes, stickish substance in areas where
they seem to be existing heavyily?
Has anyone experience flashes of light? Possible neurogolical /
epilepsy causes in the very extreme stages of infestation.
What part of your body do you notice in it in the most are any
areas spared?
IF you have mass amounts on your head were you ever treated a the
scabies cream medication up to your neck?
Has anyone moved to try and see if its environmently induced (ex
fungal etc.)
Here are some of the more recent places I found that I found
interesting and consider possible causes to consider, most I haven't
ran accross in the majority of the places I looked for morgellons
information. However, they still seem like that could be related,
I welcome anyones feed back good or bad on them. Thanks again, Tammie
http://www.answers.com/topic/brugia-malayi
http://members.cox.net/llyee/ncs_overview/overview_neuro-
cutaneous_syndrome.html
http://www.skinparasites.com/id17.html
http://www.who.int/tdr/about/products/oncho.htm
I'm just taking 3 a day. I also use Bentonite Clay on my skin to help
stop the crawling, (of course I look chalky), sometimes I even rub
some in my nose if I'm going to be alone, (I buy the liquid), and at
night, I put diatomacious (sp?) earth in my hair on my scalp, and in
my ears... whatever it takes...
k*
www.ilads.org
click on the left "events"
go to ilads conference in October
They mention Ginger Savely RN and Raphael Stricker MD, both Morgellons literate
Savely thinks it's possible the lesions could be a secondary rash from lyme disease. It's just a paragraph but worth reading.
Rita
thanks for this recommendation. I bought me a bottle yeasterday,and it seems to be helping the crawling sensations.(and I had them BAD!!!). could you tell me what dosage you are taking? I am taking 4 a day. thanks,Sandy.
redibooks <redibooks@...
I've been using this product for a few days now and I believe there's
been a significant decrease in "crawling". I take a lot of
suppliments, but it looks like this oine may be making a difference.
I bought it at my local health food store, The Vitamin Cottage. Check
it out, it may help others too!
Whoops -- The hotline number is 404 718 1199, not the number listed
below.
I phoned today and tried to speak to the agency's director. No
luck. I will try writing her tomorrow and see what happens. If they
are ignoring the hotline, I think that we have to go "higher" up the
foodchain.
I ask every month and so far there I have only gotten the one canned legal response from them. no status at all is being given. our tax dollars at work.
I think it would be nice if everyone in the group contacted the Center
for Disease Control and asked for a status update on the Morgellons
Syndrome research. You don't have to identify yourself if you don't
want to. But please emphasize (in a polite, sane way) that we want
them to GET MOVING on this quickly.
The main number is 1 800 311 3435 press zero ask for Dan Rutz,
spokesperson.
The Morgellons hotline is 404 639 7111 -- you will get a voicemail.
You can leave a message, but I haven't had any success getting
messages returned.
I did phone Dan directly and he actually picked up and spoke to me.
Have your friends and family call too. It's worth a try. It's an
important first step.
I have the floating black specks in my eyes occasionally, and I have
found a fiber in the inner corner of my eye that I could not get out
(it was not an eyelash, a hair, a thread, or anything else -- it was
definitely embedded). Mine has not been as bad as yours, however,
and seemingly resolved itself. I don't have any suggestions,
unfortunately, but wanted you to know I have had "them" in my eyes as
well.
Joy L.
YES, at a time where I also have some of the itching and lesions a a standoff, I notice I see shadows out of my right eye and my eyesight seems to be getting pretty poor lately!!!! This also worrries me, Hope you can find some help, I would hate to loose my eyesight...I suppose I will be told that is delusional also!!!!! good luck Debbie
danacantstop <danacantstop@...
okay, so I'm getting pretty worried about my eyesight... This is the
newest symptom to occur, and it's coming when I had seemed to have
the others under control. I usually only have a few small lesions at
a time now and the bigger sores associated with that crawling
sensation are now limited to my scalp area where no one can really
see them anyway. So I had really hoped that things were improving,
or at least that I had found ways to "manage" this and keep it in
check. But a few months ago I started seeing a small spot in my
left eye that floats or tracks with my eye movements across my feild
of vision. It has gotten larger and soon I could see that it
appeared to be a cluster of cells growing around two fiber-like
structures. I can see this clearly. Soon, I developed another "spot"
in the right eye. Today, I counted five structures I can see growing
IN MY EYES. I am getting really really scared. I don't have health
insurance, so I have to use a clinic that works on a sliding scale,
and the wait for their optometrist is like three months and I lack
any hope that he could help anyway. I was doing better for awhile,
but I ran out of bactrim, and things are in full swing again. Has
anyone else had visual problems? any suggestions?
Dana
I second that thought -- I started suffering from depression with
this
around the time all the sinus problems started, and a bunch of other
symptoms, that I didn't realize until recently were all a part of
this
thing. I went to therapy, I tried exercise, I tried
antidepressants.
I've been able to get the antidepressants down to the lowest possible
dosage with exercise, but don't think I would have made it through
without it. I am completely opposed to pharmaceuticals, mind you,
and
it makes me crazy that I have to depend on an antidepressant -- but
it
improved the quality of my life (and the quality of life of those
around me) so much that at present I consider it a necessary evil.
Something to
consider.
Joy L. (I realized this morning there are two "Joys".)
okay, so I'm getting pretty worried about my eyesight... This is the
newest symptom to occur, and it's coming when I had seemed to have
the others under control. I usually only have a few small lesions at
a time now and the bigger sores associated with that crawling
sensation are now limited to my scalp area where no one can really
see them anyway. So I had really hoped that things were improving,
or at least that I had found ways to "manage" this and keep it in
check. But a few months ago I started seeing a small spot in my
left eye that floats or tracks with my eye movements across my feild
of vision. It has gotten larger and soon I could see that it
appeared to be a cluster of cells growing around two fiber-like
structures. I can see this clearly. Soon, I developed another "spot"
in the right eye. Today, I counted five structures I can see growing
IN MY EYES. I am getting really really scared. I don't have health
insurance, so I have to use a clinic that works on a sliding scale,
and the wait for their optometrist is like three months and I lack
any hope that he could help anyway. I was doing better for awhile,
but I ran out of bactrim, and things are in full swing again. Has
anyone else had visual problems? any suggestions?
Dana
After the hell many have gone through with this disease it would be natural to be depressed. If you're not, great. If you are, maybe it's time to try to get some help/medication. Depression may be hard to see from the inside. If you feel despair or hopeless about life, it's time to see someone about it.
Rita
Someone has emailed me, asking about Garden of Life. I know absolutely nothing about it. How much does it cost for how much? What has it done for you? Thank you.
Rita
This article is indeed similar to a possibility I have considered. The
initial outbreaks seemed to be grouped in California, Texas, and
Florida. These three states have this in common: Large produce
industry, migrant workers, and warm climate. I have often wondered if
this pathogen(s) is not the result of unchecked genetic modifications
to produce or textile crops and/or the organisms that live in
symbiosis with them. I have often wondered if it were not a renegade
mutagenic virus from some lab somewhere. I don't completely understand
this process, as my mind is more language oriented than it is to math
and science, but here's what I do understand of the situation.
Modifications to the genetic structures of cash crops have been used
to make stronger produce. These modifications are often made by using
a mutagenic virus to insert genetic material into the host at a
subcellular level, to "rewrite the code." What if this mutation
continues beyond its' originally intended use? What could happen if a
human host were infected with an organism designed to alter genetic
structure?
I wish that I had the capacity to do the intense study into this area
that I feel is needed, but I just don't understand enough to really
get anywhere. Maybe I should be a molecular biologist when I grow up...
Anyone who does understand this information better than I do please
feel encouraged to point me in the right direction. I am literally
just guessing in the dark.
I'd love to think that we have an answer, but for me, I don't believe
this is it as I read this article: "a type of dermatitis brought on
by repeated rubbing or scratching, often a stress reaction or simply a
nervous habit"
http://www.seniorscan.ca/hl/lsc.html
Q
I see questions on your line about Lichen Sclerosus, but I have a
question about a different 'lichen' problem. I had a biopsy done on
what the dermitologist thought was Lichen Sclerosus and it turns out
instead it was something called 'Lichen Simplex Chronica' I can't seem
to find any real information on this. I know its fairly rare from
talking to the doctor, and I am being treated with prescription
strength cortizone cream, which seems to relieve me of the symptoms
and clear the inflammation up within a day or two. However, I am
wondering if it is possible for this to spread, or if it is really
localized. I've been told its not sexually transmissible, but is it
possible it could spread from my perinium (sp?) to my vaginal wall?
Are there other things I should be worried about that I'm not even
thinking of?
THanks for any help you can offer.
A
... the only information I have is on 'LICHEN SIMPLEX' without the
chronica ... this also goes under the name 'neurodermatitis'; quite a
common condition - a type of dermatitis brought on by repeated rubbing
or scratching, often a stress reaction or simply a nervous habit. It
tends to be very persistant and often recurs despite what seems to be
effective treatment. You can be reassured that it won't spread to the
mucosa of your vaginal wall, nor is it infectious.
You should note that strong steroid creams may cause skin thinning
on the face,genitals or body folds ... treatment may be continued with
weaker topical steroids if the itch continues to be bothersome.
Itching can also be relieved with tar preparations or liberally
applied moisturisers. Whatever you do, STOP SCRATCHING! It will take a
bit of will power, but you can pat instead of rubbing -
over-the-counter and inexpensive antihistamines such as
diphenhydramine (Benadryl) taken before bed may help to reduce itching
and promote restful sleep.
Best wishes.
First of all, I'd like to thank the contributions of several members
of this board (you know who you are) for your very valuable
suggestions and ideas. They have really made a difference.
Has anyone tried putting vinegar solution in an air humidifier and
turning it on for the night? Or would that cause eye irritation? I'm
trying to find a way to lessen the mg symptoms at night (crawling,
headache, etc).
Also, what's the best vinegar to take a bath in - white distilled, or
undistilled ACV?
Thanks and good luck to all.
I'm happy for you but I don't understand why the doctor at a cancer clinic knows what you have. It would not have been the place I'd go to for help. How did the connection happen? and what, exactly, is likens? Best of Luck.
Rita
Well hello fellow sufferers.I joined this group when I found it
on the web.I too have sores that have gone misdiagnosed for over 3
years.I learned about a cancer clinic thats about 2 hours
from my house.I made the drive friday to find out I have LSC or
LYKENS SYMPLEX CRONICA,so it is not morgellons.2 days after starting
treatment I see improvemnets.This gave me the idea to suggest everyone
check into seeing a specialist at a cancer clinic near You.
I have been to countless doctors who didnt know what this was and
upon site this doctor knew exactley what I have.So,perhaps seeing
a special dermitoligist would help someone like it helped me.
I am pondering doing an essay in my ENG025 class on morgellons.
I am not dropping out of tyhe group just yet but I need to be honest
and let everyone know what I have is not morgellons.
I hope and pray You will all be as fortunate as myself when it comes
to getting a proper diagnosis and getting cured.
sorry to hear about your mom, it seems everyday i log on there is a new story!!, yet, the mainstream medical community sweeps this under the rug, because it is not a standard disease....fear of the unknown. I have been struggling with this for about 3 years now started as ... a littlt itch rash...diagnosed a scabies...traeated with permethiem cream!! after that i got sooooo much worse ended up in the hospital for 5 days, noone knew what this was, so i was told it was self-inflicted, and sent home with an $8,000 dollar bill... insurance did not cover, I was a professional in the socialservices field, i have been unemployed for 2 years, and now and am now on disability. You mention that your parents own a pet store??? My family insists this all started when I got my little pomapoo puppy, but Ive done all the allergy tests, and seen at least 6 dermatologist, nothing indicates i am allergic to dogs, or cats!!!! do you think animals have somehing to do with this????
Debbie
calarasoulmates <arms@...
Hello to everyone in the group.
My name is Tammie, my mom (Sally) suffers from a very acute form of
Morgellon's Disease with lesions covering about 80 percent of her
body. I also dabble in web design a bit and have spent a large
amount of time doing research on this disease in hopes of being able
to help my mom. This is how I even became aware of Morgellon's
Disease. We had thought it was many other things prior to that,
Psoriasis, Prurigo nodularis
(http://www.dermnetnz.org/dermatitis/prurigo-nodularis.html ),
scabies - treatment for scabies has only made everything so much
worse =(
You can read my mom's whole story at the site I threw together at
www.CureMorgellons.com.
I have my own webhosting setup that I use for a couple of local
business and friends where I live, its really more of a hobby then a
business, anyways, I decided to use it out of my desperation to help
my mom. So I bought www.CureMorgellons.com and put up information
about her story in hopes to get other people to care and become
interested in finding a cure for this extremely disabling disease.
I have watched my mom go from the kind of person who never sat down,
always on the go, always having a bunch of productive projects going
to someone who can't even leave her house for more then an hour
without becoming so tired. She wobbles when she walks so much I
fear she's gonna fall down and now she is starting to see white
flashes, which I fear is the beginning of some kind of seizure
activity. She unfortunately has no health insurance and has to rely
on the kindness of a free clinic that is about 20 mins away for any
doctor care she does get. Its like watching your mom die in front
of your very own eyes.
My main reason for posting here is extend to anyone who wants to
become involved to use www.CureMorgellons.com to get more people
aware and hopefully get some more research happening. I feel
outraged by the number of doctors who so quickly blow this off as
some sort of shared internet disorder. My mom doesn't even know
how to use the internet, she had these symptoms for years, way
before Morgellon's was even mentioned or heard of by any of us. I
can not believe the number of articles and posts I read from people
who seem so intelligent and grounded that say they have been told
they are delusional or how many of them have had successful careers
and families and had to watch it all disappear before their eyes.
Not to mention the families out there that have watched there
friends and loved ones become affected by the same disease. Believe
me this is something I think about every day. Being a mom of 3 kids
I have to worry about their protection too, it tears me apart to
balance the ability to help care for my mom and be cautious about
not exposing my kids to the same thing she is suffering from.
There definitely appears to be a connecting with it passing to
others in some way, I have read to many stories of people seeing it
passed to others that live with them and others they know. My folks
own a pet store where I live and because of this my mom stays home
all the time now, she is mostly to weak lately to help if she
wanted to, but mostly she doesn't want to give it to anyone else.
My dad for some reason seems to be immune to it so far, although
they still exhibit caution around each other. The hardest part is
wanting to give my mom a hug and not being able to out of fear of
spreading it to my children. Its been over a year since I have
hugged my mom and my saddest thought is never being able to do that
again because of Morgellon's.
Because this disease seems to be spreading it is even more important
that awareness about it gets out there. I agree more pictures need
to be made available, the more credible the better, videos sure
couldn't hurt either. I was skeptical at first when I read about
some of the things that people claimed, but through questioning my
mom and what she is going through and reading allot, and I mean
allot of others stories I would be an idiot to not believe it is a
real tangible thing that is happening.
I want to see this site become a place people go to and can see
what's really going on, a place they can share stories of what's
happening and mostly a place where data can be collected, shared and
compared to show statistics on who, what, where, when and how its
happening. I believe collecting information will only speed up the
possibility of a cure. If there can be a place where people who
have it and people who are researching it can share there
information and get connected that would be a dream come true. For
instance, last night my son asked me if I thought more women then
men seem to have this disease. I told him I wasn't sure, I know I
read more articles written by women, but there certainly are quite a
few men who write or are mentioned to have it too. This is only one
question that needs to be known. Even if the site did surveys to
get more data collected and shared back with anyone who cares to
listen. I implore anyone out there with the skills to help put
together something like this, and anyone who knows of a affordable
way to market such a site to get it noticed I would welcome an email
from you.
I talk to everyone I meet about this disease including my own
personal doctor. She is one of the main doctors treating people at
my clinic and I feel its important for them to hear it from people
who are not only affected by the disease but also ones who are
witnessing it before their very eyes. There are so many ideas out
there as to what causes this disease, but until we starting pulling
all the puzzle pieces together we are not gonna see the whole
picture or figure out how to fix it.
Thank you for listen, but more than that thank you for caring!
Tammie Arms
web author for www.CureMorgellons.com and daughter of a Morgellon's
victim in SE Pennsylvania (originally from Northern Wisconsin).
Better yet I can put PHP-Nuke on it for you.!
Hello to everyone in the group.
My name is Tammie, my mom (Sally) suffers from a very acute form of
Morgellon's Disease with lesions covering about 80 percent of her
body. I also dabble in web design a bit and have spent a large
amount of time doing research on this disease in hopes of being able
to help my mom. This is how I even became aware of Morgellon's
Disease. We had thought it was many other things prior to that,
Psoriasis, Prurigo nodularis
(http://www.dermnetnz.org/dermatitis/prurigo-nodularis.html ),
scabies - treatment for scabies has only made everything so much
worse =(
You can read my mom's whole story at the site I threw together at
www.CureMorgellons.com.
I have my own webhosting setup that I use for a couple of local
business and friends where I live, its really more of a hobby then a
business, anyways, I decided to use it out of my desperation to help
my mom. So I bought www.CureMorgellons.com and put up information
about her story in hopes to get other people to care and become
interested in finding a cure for this extremely disabling disease.
I have watched my mom go from the kind of person who never sat down,
always on the go, always having a bunch of productive projects going
to someone who can't even leave her house for more then an hour
without becoming so tired. She wobbles when she walks so much I
fear she's gonna fall down and now she is starting to see white
flashes, which I fear is the beginning of some kind of seizure
activity. She unfortunately has no health insurance and has to rely
on the kindness of a free clinic that is about 20 mins away for any
doctor care she does get. Its like watching your mom die in front
of your very own eyes.
My main reason for posting here is extend to anyone who wants to
become involved to use www.CureMorgellons.com to get more people
aware and hopefully get some more research happening. I feel
outraged by the number of doctors who so quickly blow this off as
some sort of shared internet disorder. My mom doesn't even know
how to use the internet, she had these symptoms for years, way
before Morgellon's was even mentioned or heard of by any of us. I
can not believe the number of articles and posts I read from people
who seem so intelligent and grounded that say they have been told
they are delusional or how many of them have had successful careers
and families and had to watch it all disappear before their eyes.
Not to mention the families out there that have watched there
friends and loved ones become affected by the same disease. Believe
me this is something I think about every day. Being a mom of 3 kids
I have to worry about their protection too, it tears me apart to
balance the ability to help care for my mom and be cautious about
not exposing my kids to the same thing she is suffering from.
There definitely appears to be a connecting with it passing to
others in some way, I have read to many stories of people seeing it
passed to others that live with them and others they know. My folks
own a pet store where I live and because of this my mom stays home
all the time now, she is mostly to weak lately to help if she
wanted to, but mostly she doesn't want to give it to anyone else.
My dad for some reason seems to be immune to it so far, although
they still exhibit caution around each other. The hardest part is
wanting to give my mom a hug and not being able to out of fear of
spreading it to my children. Its been over a year since I have
hugged my mom and my saddest thought is never being able to do that
again because of Morgellon's.
Because this disease seems to be spreading it is even more important
that awareness about it gets out there. I agree more pictures need
to be made available, the more credible the better, videos sure
couldn't hurt either. I was skeptical at first when I read about
some of the things that people claimed, but through questioning my
mom and what she is going through and reading allot, and I mean
allot of others stories I would be an idiot to not believe it is a
real tangible thing that is happening.
I want to see this site become a place people go to and can see
what's really going on, a place they can share stories of what's
happening and mostly a place where data can be collected, shared and
compared to show statistics on who, what, where, when and how its
happening. I believe collecting information will only speed up the
possibility of a cure. If there can be a place where people who
have it and people who are researching it can share there
information and get connected that would be a dream come true. For
instance, last night my son asked me if I thought more women then
men seem to have this disease. I told him I wasn't sure, I know I
read more articles written by women, but there certainly are quite a
few men who write or are mentioned to have it too. This is only one
question that needs to be known. Even if the site did surveys to
get more data collected and shared back with anyone who cares to
listen. I implore anyone out there with the skills to help put
together something like this, and anyone who knows of a affordable
way to market such a site to get it noticed I would welcome an email
from you.
I talk to everyone I meet about this disease including my own
personal doctor. She is one of the main doctors treating people at
my clinic and I feel its important for them to hear it from people
who are not only affected by the disease but also ones who are
witnessing it before their very eyes. There are so many ideas out
there as to what causes this disease, but until we starting pulling
all the puzzle pieces together we are not gonna see the whole
picture or figure out how to fix it.
Thank you for listen, but more than that thank you for caring!
Tammie Arms
web author for www.CureMorgellons.com and daughter of a Morgellon's
victim in SE Pennsylvania (originally from Northern Wisconsin).
If anyone here lives in the state of Georgia, her is a number and
name you can call to be part of an investigation funded by the
government.They're calling it something different though! Here's the
information I have on this. I gave this number to my mother who lives
in Winder Georgia. She called and talked to Jane, and Jane is making
a house call on Monday. I am not sure what or when they can do
anything, but I will find out on Monday what they tell my Mother.
Here's the article for Georgians
with this nightmare!
As Always, DM
NEW SURVEILLANCE DATABASE
"UNIDENTIFIED DERMATOSIS SYNDROME"
Jane M. Perry, Director
(404) 657-6534
Abstract: There have been reports to state and local public health
agencies from residents
throughout Georgia of thread-like skin parasites in their skin, and a
related set of symptoms.
In response, the Unidentified Dermatosis Syndrome (UDS) Surveillance
Database was
developed and is maintained by the Chemical Hazards Program,
Environmental Health Section,
Georgia Division of Public Health. It is intended to build and
maintain self-reported symptom
surveillance capacity.
Definition
The Chemical Hazards Program defines "Unidentified Dermatosis
Syndrome" as reports of tiny
bugs that look like black specks, or thread-like parasites in the
skin; or of "something" biting,
stinging, or crawling in the skin, and an accompanying set of
symptoms including itching, visible
sores, and fatigue.
Hypothesis
The Chemical Hazards Program will examine whether:
1. parasites may be causing the symptoms, and
2. individuals may share hypersensitivity to toxins produced by
certain fungi/molds present
in soil causing specific neurotoxic effects.
CURRENT ACTIVITIES: PHASE I
Surveillance Database and Initial Survey
Beginning March 1, 2006 we will administer a survey to collect data
from individuals reporting
specific symptoms of UDS. Chemical Hazards Program staff is
contacting Georgia residents
following referral from various state, district, and local public
health agencies, health care
providers, other professionals, and individuals for voluntary
participation in the survey.
Beginning September 1, 2006 Chemical Hazards Program staff will
analyze the results of the
survey and decide which health education activities, networking
strategies, referral resources,
environmental sampling, or medical interventions will best meet the
needs of the survey
participants. Reports generated will contain grouped information
only, and will not contain any
personal identifiers such as name or address.
The results of the data analyses are expected to be available to the
public in late fall 2006. The
UDS surveillance database will remain in place and continue to gather
information about cases in
Georgia.
Survey
The UDS survey requests basic demographic information: age, gender,
race/ethnicity and
education level. Questions about their home environment and daily
activities, including length of
residency, soil conditions, outdoor hobbies, employment history, and
allergy history are
included. Respondents will be asked in detail about their symptoms,
doctor visits, current
medications, health status of other family members and pets, and
attempted and/or successful
treatments and symptom relief.
Page 2
Data Management and Entry
CHP staff will collect, manage, enter, and analyze all data from
completed surveys. Survey data
will be entered into an Access database and cross checked for
validity, reliability, and accuracy
by random verification of entered data and other accepted methods.
Data Analyses
Access 2000 database software will be used for data analyses. Survey
questions will be analyzed
and compared using analytic techniques appropriate for community
survey design. Univariate
analyses will generate descriptive statistics to characterize data
from the survey. Bivariate and
multivariate analyses will assess whether trends and relationships
exist among survey responses.
ArcView 9.0 software will be used to map/illustrate any trends and
relationships.
If trends and relationships are found to exist and are determined to
potentially be a result of
parasites and/or exposure to specific fung